First Symptoms of Multiple Sclerosis

Рет қаралды 2,399

2 ай бұрын

At a National MS Society Charity MS Walk in Long Beach, California on April 27th 2024, I asked people, "What were your first symptoms of MS?"
Comment or ask questions below! I would be happy to answer!
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Dr. Brandon Beaber is a board-certified neurologist with subspecialty training in multiple sclerosis and other immunological diseases of the nervous system. He is a partner in the Southern California Permanente Medical Group and practices in Downey, California (South Los Angeles). He has several publications on MS epidemiology and has participated in clinical trials for MS therapeutics. You can follow him on twitter @Brandon_Beaber where he regularly posts about MS news and research.
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he video material by Dr. Brandon Beaber is general educational material on health conditions and is not intended to be used by viewers to diagnose or treat any individual's medical condition. Specifically, this material is not a substitute for individualized diagnostic and treatment advice by a qualified medical/health practitioner, licensed in your jurisdiction, who has access to the relevant information available from diagnostic testing, medical interviews, and a physical examination. To the extent that Dr. Beaber endorses any lifestyle change, behavioral intervention, or supplements, the viewer should consult with a qualified healthcare professional to determine the safety and efficacy of the intervention in light of their individualized information.

Пікірлер: 48

@victoriajohnston3219 2 ай бұрын

My first ever symptoms were numbness, pins and needles in my face , head , hands and then in 2008 l had optic neuritis of my left eye l lost most of my Vision in my left eye , it lasted for 6 weeks . My older sister has MS too . I was officially diagnosed in Feb 2023 when my symptoms of balance , unsteadiness and walking problems got worse . I am now secondary progressive . I have a very positive attitude, l undertake mindfulness on a daily basis and do whatever exercise l can , l am a devout Catholic and believe that in prayer god will look after me ❤️🙏🏼

@andrewreisinger6860 2 ай бұрын

Crazy that I have had MS for 31 years and have never really had an episode of vision disruption. Physical eye exam does show evidence of thinning of the back of the eye, though. Glad I never had outright vision loss.

@stonz42 2 ай бұрын

My very first symptom was likely left arm weakness at age 19 that lasted a day or two. I remember eating cereal and not being able to get the spoon to my mouth. I went about a decade with bouts of fatigue, anxiety, and brain fog. All of which I could find an excuse for at the time. Then, at age 29, I started having a slow decline in vision and was ultimately diagnosed at 35. That was 3 years ago. I now have permanent 20/200 vision in the right eye and sometimes have balance issues, but not bad enough to affect my walking. MRI revealed brain and spinal lesions. Spinal tap also showed bands. Been on ocrevus for 2 years now and doing well.

@donnabolt5847 2 ай бұрын

Thank you for going on the ms walk!

@ahmeterwinog6295 Ай бұрын

Hi Dr. Beaber Great job you assisted the event! My first symptoms were difficulty retaining urine, dizziness, balance problems, ocassionslly tripping. I got officially diagnosed October 2023 with RRMS, EDSS of 3 at the time after my first relapse. Started right away with Ocrevus. Six months later and with PT and medication, my EDSS is now to 1, and I had my second Ocrevus infusion yesterday. I am able to jog, walk almost normal, though still sensitive to extreme weather conditions.

@kmac1rox 2 ай бұрын

Left leg would randomly not work, causing me to almost trip myself. Was back in 2018 was seeing Dr Beaber at time great Dr.

@michaelriddick7116 2 ай бұрын

My first life impacting symptom was optic neuritis in one eye. Went to bed 20/20, and woke up 20/200 :( But once I was in the processing phase of the diagnosis, I realized that I had had previous symptoms that I had just ignored or that had gone away on their own. (Tingling in certain fingers on one hand, etc) Hope everyone out there is doing well!! 💪😎💪

@DrBrandonBeaber 2 ай бұрын

Hopefully your vision got better over time.

@michaelriddick7116 2 ай бұрын

@@DrBrandonBeaber Steroids got the swelling down and vision is functionally 20/20 again. :) Although its made me cross-eye dominant (right hand/left eye) which is less than ideal for many things (softball/baseball, target shooting, etc) 😂🤣

@stonz42 2 ай бұрын

@@michaelriddick7116 I can relate...I'm mostly lefty, but my right eye has permanent 20/200 vision with a grayed out blind spot in the center. I played a lot of sports growing up, but now I can't even play catch because of depth perception issues and inability to focus on a ball.

@user-wc3pk6jn2r 2 ай бұрын

Many people told me don't choose neurology as a specialty as most of the diseases are progressive and there are no cure for them and the patient satisfaction won't be that much. but i said I am gonna be a neurologist and I will discover the appropriate cure for those diseases.

@DrBrandonBeaber 2 ай бұрын

I'm satisfied with my career as a neurologist even though I can't cure everyone. Certainly there will be many improvements over our careers.

@desiredecove5815 2 ай бұрын

Great video Doc- thanks for airing and sharing..

@uliseki8137 2 ай бұрын

I had many symptoms that I ignored for years, such as extreme fatigue and tingling legs, arms, heat sensitivity.. I went to hospital after waking up almost blind ( optic neuritis). That’s when I got diagnosed with MS, but most likely had it at least 10 years already.

@DrBrandonBeaber 2 ай бұрын

It very common for people to retrospectively remember minor prior attacks.

@ryaneldridge1155 2 ай бұрын

Diagnosed 3 weeks ago, optical neuritis, double vision looking to the left that affected my left eye, saw a neurologist and did a lot of tests and was diagnosed with MS. 3 months ago, right leg, would just go numb for a second, that stopped after a few weeks, didn’t think of anything from it. Will be undergoing HSCT next week 🙏

@Roguearmy1911 Ай бұрын

My first symptom was heat exhaustion and blackout. Then started noticing balance issues. My fellow soldiers would ask me if I was drunk. I don’t drink . Currently trying to get my MS service connected .

@martinm8991 Ай бұрын

My first symptom (male, 22 at the time) was orgasming after hour(s) of intense humping. After 6.5 years I got the much more typical mix of double-vision and loss of balance - leading to the diagnosis with lots of MRI lesions. 28 years later I can still walk, but the headaches are a horror.

@harddriveusame7248 2 ай бұрын

My visions "horizontal hold" was off. I could look at a wall and it would still appear to be scrolling left or right, not fast, but enough to make me go to get medical advice.

@andrewreisinger6860 2 ай бұрын

Looking back, my first symptom (I believe) was severe chills and fever one night when I was 17 (I'm 53 now)and what I thought at the time might have been food poisoning. The next morning it was gone. I also played the saxophone in high school and occasionally I would be unable to maintain my air flow from the lungs and through the mouth without having the air go out of my nose....I know that sounds weird, but think of trying to blow up a balloon and air going out of your nose instead...some sort of weakness in the nasal cavity...I have have had these "shivering" episodes multiple times since, usually accompanied by a fever. I joined the Navy as a musician, and a couple of years later I failed the run portion of my PT test (too slow, but I was only 19 and in decent shape I thought). I was diagnosed 4 years into my service when I woke up one morning with slurred speech and right-sided weakness. Went to the Balboa Naval Hospital, MRI + spinal tap= diagnosis of "probable" MS. 2 weeks later Betaseron was approved by the FDA (Jan 93). Now EDSS 6.5.

@DrBrandonBeaber 2 ай бұрын

You were in the betaseron lottery?

@andrewreisinger6860 2 ай бұрын

@DrBrandonBeaber no. I didn't start on a DMT until around 2000. Started with Avonex for a few years, then moved to Betaseron for many years before starting Ocrevus around 2018. I believe not taking a DMT in those years (93-2000) was detrimental. Also, I had MRIs done annually and was always told I had "no interval change" on them. Then I finally saw an IMAGE (that I caught behind my neuro, I don't think I was supposed to see it), and it showed MASSIVE atrophy, very obvious to my lay-person eyes. Many lesions that had morphed into each other. They couldn't even get an accurate count. That threw me for a loop and I was VERY upset.

@maxinemoo6972 2 ай бұрын

Symptoms of numbness for years, finally completed hearing loss in left ear, my right ear it sounded like rushing water.

@andrewlydeamore169 2 ай бұрын

Pins and needles in left leg which proceeded to go up my leg across my genitals and then went down my right leg. I put up with that for 2 week's before going to my local doctor

@emconnell3519 Ай бұрын

My son 18th head ache vomiting twitching down right side of body. Put in to a injusted coma for4 weeks wake up paralysis down right hand side

@Vesna101 Ай бұрын

I had one relapse two years ago and it was my first symptom of MS, numbness on the right side of my face and head.

@DrBrandonBeaber Ай бұрын

Thanks for sharing

@afgrunt Ай бұрын

Painful numbness and tingling in all four extremities for about two weeks I was station in Korea at this time in 2018. Mil doctors attributed to degenerative disc disease. Two years later my 5K run went from 19 minutes to about 23 and I was occasionally called out by my neighbors as being a day drinker due to imbalance year of testing mRIs now I am in a powered wheelchair with continuous pain throughout back neck and head unable to stand up about 5% use of left-hand and 50% use right hand no core strength Extreme difficulty speaking difficulty opening left eye was diagnosed in July 2021 at the end of a robust 25 year military career PS it took about 10+ minutes to dictate this due to speech issues

@roberture5903 2 ай бұрын

If I'm looking back on it now I think I ran through a lot of different symptoms at different times. Someone told me I looked like I was drunk when I walked, blurred vision, bladder urgency, numbness and tingling in the feet all of these were different times

@DrBrandonBeaber 2 ай бұрын

Were they initially very subtle or did you known instantly something was wrong.

@roberture5903 2 ай бұрын

@@DrBrandonBeaber they were initially very subtle and it's not like I experienced them all at one time either. But thank you anyway for this video because hearing people's experiences this morning made me elaborate a little bit more on my own also.

@Ennugia 2 ай бұрын

Question about the pins and needles sensation - they say that any symptom has to last for over 24 hours to count as an MS flareup. My diagnosis came after optic neuritis, but when talking about first symptoms I do remember pins and needles in my legs that would last for, say, 30 minutes or an hour. Does that happen to regular people or juat us?

@DrBrandonBeaber 2 ай бұрын

Inflammation is slow, so more typically, multiple sclerosis flares developed slowly over days. Some people have more subtle intermittent symptoms.

@Ennugia 2 ай бұрын

@@DrBrandonBeaber thanks, Doctor.

@larrytornetta9764 Ай бұрын

Try dalfampridine

@ernietollar407 2 ай бұрын

tingles for years but no diagnosis... if found earlier maybe hsct earlier, could shoulda woulda..

@DrBrandonBeaber 2 ай бұрын

But the tingling was brief and intermittent?

@ernietollar407 2 ай бұрын

my tingling never changed, there was vertigo also, nothing was suspected other than nerve impediment that Dr. eventually retired and then I guess I was still fucntioning normally enough except for balance. the tingle in feet and hands hadn't started numbing. hindsight. I'm turning 60 in August and am glad that our kids are 22,18,16. I'm still abble to shop on foot and am an adept older wiser hobbler.. My music composition skills are actually better simply because I've played music for my whole life, and I've chosen to simply love every moment. I guess the slow soft progression is classic PPMS, although there was one incredibly intense vertigo attack several years prior , maybe before the tingles had really set in... so there were possibly some anomalies. I think stress - or more specifically my tendancy earlier in life to absorb it to a fault was the cause. Ifearlier in life I had achieved my present mature level of stress and problem assessment I very much doubt that I would have allowed my MS genes to get switched on. So now I just smile and tell people not to worry and that they are perfectly beautiful and can always find a way forward.

@ernietollar407 2 ай бұрын

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