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FND Hope UK were proud to represent our FND Community on the issues our community experience during our inaugural parliament event.
Professor Mark Edwards summed up the event by saying: 'The FND event in Parliament was an amazing opportunity to talk to MPs about FND and to see them go from not having any significant knowledge or understanding of the condition to realising how common, disabling and important it is. Then, and even more importantly, to see their disbelief and even anger that such a common condition has no established pathway for accessing expert assessment and treatment in the NHS despite the obvious benefits this would have for people with FND and their loved ones. It felt like a real step forward to address the inequity of treatment for people with FND and to finally give a public voice to all those affected by the condition. For me the feeling I walked away with was hope, that working together we have a chance to really change the situation for people with FND now and into the future'.
Thank you to all the MPs who attended our event and signed out declaration to support our community.
#FND #FNDAware #functionalneurologicaldisorder #MyMPisFNDAware #LetsTalkFND #fndawareness #FNDisreal