Forging A Future For Our Special Needs Children | On The Red Dot | Undiagnosed - Part 4

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CNA Insider

CNA Insider

Жыл бұрын

In the final episode of Undiagnosed, three families of special needs children look at how knowing the cause of their children’s conditions genetic affects their future.
After 17 years, the doctors have finally narrowed down a potential gene that might explain all of Dzakir and Dzakwan’s medical issues and intellectual disability. The family gives more blood samples for confirmation and to check if the condition might continue to run in the family.
Atira and Seana’s parents break the news to the girls’ grandparents that the girls’ condition is the result of both parents passing them faulty copies of a gene that is crucial for neurological development.
Jayden’s sisters share their plans of caring for an adult Jayden in future, and how they expect the course of their lives to be changed.
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About On The Red Dot: CNA's weekly programme documents the stories of ordinary Singaporeans and celebrates their resilience, identity and sense of belonging.
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Пікірлер: 38
@michellemichelle2056
@michellemichelle2056 Жыл бұрын
Atira and Seana parents are so calm and kind and loving towards their kids and just giving them space to be their selves. It would be lovely to meet them and Atira and Seana. God bless this beautiful family
@Derlei
@Derlei Жыл бұрын
I am glad to see that Jayden has 3 caring sisters and they do not feel he is a burden. For Atira and Seana, I do hope their parents find more help for them as the parents are growing older and they may not be able to care for them in their old age.
@sammie20
@sammie20 Жыл бұрын
my siblings and parents moved to Canada for my special needs brother. It has never entered my mind or heart of any resentment. He got the necessary and vital help and education. Seeing him happy was worth coming here. When we love a sibling, it is not a sacrifice of dreams and goals...we just adapt and I love my country Canada. While most of us siblings have no resentment, one has held a grudge against my parents. It is shameful, because she could still have pursued her dreams and goals. No one stopped her. She has 6 kids etc etc...how could you resent anything when you have kids...Her attitude is just hateful!!! My brother who benefited coming here, was so happy, with the education and help he received...he would have been treated and lumped in with the mentally disabled and had a very sad life but instead he had a full happy, loving life till the very end....These 3 loving sisters will do fine...I pray for all
@mizhomesiq
@mizhomesiq Жыл бұрын
I do pity the 3 sisters having to put on hold or just not pursuing their dreams and goals for the sake of their disabled brother. It's just unfair they have to set aside their personal pursuit. I do hope that they can still have some achievements and find happiness along the way.
@aundreagcb
@aundreagcb Жыл бұрын
sherise (jayden’s sister) made a comment on the previous episode that their parents do allow them to pursue their own lives and goals they have, and that their parents are still jayden’s primary caregivers. although i still also do wish them all the best!
@urbanhunter81
@urbanhunter81 Жыл бұрын
i also agree. its not fair for 1 to burden 3 people. wait till the sisters have their own familes.
@2129hours
@2129hours Жыл бұрын
I just felt that although his parents also love the gals but still it’s obvious that Jayden is still their priority and having their daughters worrying about pursuing studies overseas and starting a family in the future is unfair. I hope their parents can make plans so that the gals no need to worry and put on hold of their lives.
@aquaticaries7725
@aquaticaries7725 Жыл бұрын
Rlly hope this doesn’t end up in another case of parents leaving behind/holding back the abled bodied siblings, there’s way too many of those
@Mandy87Marie
@Mandy87Marie Жыл бұрын
Hopefully they can hire a caregiver with the inheritance, if they aren’t able or don’t want to care for him full time
@littlepungchang9595
@littlepungchang9595 Жыл бұрын
My heart goes with their families. It made me cry when I watched the part of grandparents from Indian family.
@anneeli3089
@anneeli3089 Жыл бұрын
It’s heartening to see that despite the children’s developmental delay, they are still continuing to make progress and improvements. They are very interactive and look so happy and well-loved surrounded by their families. I am sure they will continue to make good progress! Thank you all for allowing us a glimpse into your private lives and inspiring us with your stories of love, positivity and perseverance ❤
@mapleleaves7345
@mapleleaves7345 Жыл бұрын
although its unfair for jayden's sister to shoulder the responsibilities to take care of him. but im glad that all the 3 sisters are super loving towards their brother. the family bonding is really very strong. and i believe the family will overcome their difficulties.
@alexdavis5766
@alexdavis5766 Жыл бұрын
I’m disabled physically and my parents do more for me than they would if I wasn’t, that said I would never expect my sister to care for me when my parents are no longer here. They didn’t sign up to have children or make that choice, telling the other siblings they have to look after their disabled sibling is wrong. Ask if they want to by all means, but don’t force them.have a plan in place if they don’t want to drop their life and suddenly care for their sibling like that.
@The_LOL-hg7wt
@The_LOL-hg7wt 4 күн бұрын
Agreed. There was something that rubbed me the wrong way when Jayden's mother openly said "it's the girls' responsibility to take care of Jayden when they are not around". And the confident tone of how how the mother said it too. Yikes. I wish the parents' would be more proactive in putting a financial plan in place so the burden isn't so hard on. the girls.
@sammie20
@sammie20 Жыл бұрын
how triumphant the children, parents, grandparents are...I respect them all so much...Stay strong even when it is hard to continue...enjoy the special moments for life is not all hard...there is still beauty all around...my respect and well wishes to all the families!!!
@katiem2473
@katiem2473 Жыл бұрын
I will tell you. As a disabled person myself I would not have a good life without my family When people back in the old days they would put me in a place where I would never be seen but now people have help and a better understanding world so please on behalf of the disabled people please don’t give up hope for them they don’t have a voice but I do the family’s do
@Alice12578
@Alice12578 Жыл бұрын
These families have so much love.
@ocswoodlands
@ocswoodlands Жыл бұрын
its admirable that the sisters are thinking of how they would care for Jayden when the parents are no longer around. for me, I have made up my mind that my son will go on to stay in a home for disabled. I don't want him to be a burden to his sister.. she also has her life to live..
@ramadhanramlan
@ramadhanramlan Жыл бұрын
Tq so so much for producing such insightful docu. Im inclined towards special needs education and this is so refreshing to watch. CNA good job!
@jaclee3594
@jaclee3594 Жыл бұрын
Wonderful documentary. I salute and admire these three families for their perseverance and tenacity in bringing up kids with special needs. Thank you
@Sunnyside45335
@Sunnyside45335 9 ай бұрын
Thank you CNA and good job to all the families out there! God bless! ❤
@ryan-anarchist-2535
@ryan-anarchist-2535 10 ай бұрын
I wish the twins' parents could access BBC iPlayer! There's a TV show here in the UK called There She Goes, and it was written about the writers' daughter who has DYRK1A!!!
@lalithamurugiah
@lalithamurugiah Жыл бұрын
God will bless these families n kids always. As for us being normal beings, the only support we could give to any families going through such challenging situations, would be being understanding and accepting that its absolutely fine while such similar families as mentioned in these series, are around us. They are equally normal. Providing such cushioning effect would b a great feel to every parent handling these kids. I've got my 7years old niece who've got autism and ADHD as well. I completely comprehend. To all the strongest parents out there, keep it going. We love you!
@topsilog000
@topsilog000 Жыл бұрын
thank you CNA Insider for uploading these videos for free - very informative
@simbeekuan4056
@simbeekuan4056 Жыл бұрын
I can't help feeling sorry for these families but glad to see that all are very positive in facing with the situations. I sincerely wished everyone will be able to take the challenges one day at a time and hope that in the near future with some scientific breakthrough they can be cured
@SusanSez1
@SusanSez1 2 ай бұрын
These parents are all so strong and loving. Jayden's sisters are angels. I hope they go on to have full lives in spite of caring for their brother. I Annie and respect each of these families.
@sayurik
@sayurik Жыл бұрын
It’s so concerning that Jayden’s parents expects and pressures his 3 sisters to look after him. They did not ask to be brought to this world, he is not their responsibility. They have their own lives to live and by doing that they are robbing their daughters from their future. They will have families of their own and their own kids to look after in the future. At least with Zakir and zakuan’s family I’m glad to see that the parents did not force the other children into looking after them.
@ownthegame3
@ownthegame3 Жыл бұрын
it takes a village to raise a child it takes more than a village for special needs children and beyond the lifetimes of the parents I can empathise with the burden of the siblings that may affect their future brave on! hope miracles can happen.
@JACK6556.
@JACK6556. Жыл бұрын
God Bless these beautiful children and their familys. Stay strong and always have faith in God. ❤❤❤
@theresalong622
@theresalong622 2 ай бұрын
Prayers for all three lovely families. These children are so blessed to be with such loving parents and family members. ❤
@cristytolin430
@cristytolin430 Жыл бұрын
Praying for all you 🙏
@communicate.anshul
@communicate.anshul Жыл бұрын
5:00 Doctor is like, we don't have any cure or medication but you still need to keep paying me
@fighttheevilrobots3417
@fighttheevilrobots3417 Жыл бұрын
The fact that this media is produced by the Singaporean government makes me nervous because I know they will only show me what they want me to see. Singapore has committed terrible human rights abuses (like many other countries, including my own) . I wish these families the best. Their strength and compassion for their children is admirable. I hope all the other children in the world with disabilities receive care and love, and eventually a cure.
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