Getting a Rare, Blood Cancer - Peter | Myelofibrosis

Getting a Rare, Blood Cancer - Peter | Myelofibrosis | The Patient Story

Рет қаралды 6,754

Күн бұрын

Peter had no symptoms when he was diagnosed with a rare blood cancer called Myelofibrosis. He was experiencing chest pains from stress at work, so he decided to go to the emergency room. After multiple tests and a bone marrow biopsy, this rare cancer was discovered.
In this cancer vlog, Peter goes through what it's like to live with Myelofibrosis and his treatment plan which included a clinical trial and a bone marrow transplant.
#cancersurvivor #cancersurvivor #cancerstories #thepatientstory #myelofibrosis #rarecancer #MPN #cancerresearch #bloodcancer #cancertreatment #myeloproliferativeneoplasms #myeloproliferativeneoplasm #fightmyelofibrosis #raredisease #bloodcancer #hematology #diagnosis #treatment #transplant #advocacy
Video Chapters
00:00 Introduction
00:32 Finding out I had cancer
01:32 Bone marrow biopsy
03:00 Getting multiple opinions
04:30 Going through multiple oncologists
07:00 Doing a clinical trial
10:15 Myelofibrosis is a marathon
13:10 Doing a bone marrow transplant
15:00 Follow-up appointments after the bone barrow transplant
16:14 I'm a positive person
Full story & transcript → thepatientstory.com/patient-s...
🔔 DON’T FORGET TO SUBSCRIBE!
The Patient Story:
The Patient Story is led by a dedicated team of medical, editorial, and video experts, committed to authentically portraying the cancer patient experience. Sharing your story holds transformative power, culturally and personally. We handle each narrative with utmost care, compassion, and scientific rigor.
Our editorial process adheres to the highest journalistic standards, ensuring medically researched, vetted, and fact-checked content. Backed by experienced medical professionals, we offer insights into the latest medical advancements.
Beyond patient narratives, we provide comprehensive coverage of cancer news and medical resources. From symptoms to clinical trials, insurance, finances, and support groups, we offer guidance in a humanized manner.
The interview has only been edited for clarity.
Join Our Community:
Sign up for our FREE website: thepatientstory.com/
Facebook: / thepatientstory
Instagram: / thepatientstory
Twitter: / patient_story
Tik Tok: / patientstory

Пікірлер: 23

@ValerieGriner 3 ай бұрын

I love a cancer story with a good ending! He had caring doctors who diagnosed and treated him properly. God bless Peter and his lovely family!

@darrellhicks360 26 күн бұрын

Re-Google.

@SonnieSonnie33 4 ай бұрын

Blessings to you!🤍🙏🏾 I had a similar Cancer diagnosis of Multiple Myeloma blood cancer. It’s so amazing how even though each person’s cancer journey is different but similar in some ways! I thank God you are doing well.💪🏾🙏🏾 I myself is 6 years remission!🙌🏾🙏🏾🔥To God, myself, my support system and the Dr’s & Nurses that was responsible for my care! Hang in there with a true relationship with JESUS, you will be fine.😊🤍🙏🏾💐

@kathyfullarton8126 4 ай бұрын

Bone marrow biopsies are NOT performed on the spine. The iliac crest of your hip bone( in your lower back) is the site used for marrow biopsies. The spine is not involved.

@user-hx6nt9ju2i Ай бұрын

I have seen a lot of videos from doctors here on KZfaq that explain how to starve cancer.I wish you all the best God bless you

@user-yu3ci4sl8v 4 ай бұрын

I wish you the very best, sir 🙏❤️🌺

@kjoy5905 4 ай бұрын

Thank you for sharing your experiences battling a rare blood cancer. Very glad for you that the bone marrow transplant has been successful and you're feeling better. I have Waldenstrom's lymphoma, and have been on oral BTK inhibitor for 6 months. It's reducing the cancer and the goal is remission. Already I have more energy. Take care. K

@lizbrowne1425 4 ай бұрын

Thinking of you Peter and thank you for sharing ❤️🐈‍⬛ god bless you your sat there so positive your amazing

@lizbrowne1425 4 ай бұрын

And your wife also

@sagbeach1 4 ай бұрын

So happy you are doing well now, God bless ….sending prayers and positive energy!

@bama100904 Ай бұрын

Hello, I also have primary Myelofibrosis. I had been suffering from my left hip for quite some time and last January I was told that it was not a worn out hip but Myelofibrosis. My spleen was extremely large. It was in my pelvis. I then started with ruxolitinib (Jakavi) 30 mg per day. That was too large a dose. My kidney function deteriorated. Now that it has been adjusted, my kidney function is stable, but my Hb is low. My wife is a foot reflexologist and she gives me a foot massage every week. This helps a lot, the pain in my hip is completely gone and comes back a bit after 6 days. I am currently still at home and the hematologist/oncologist does not allow me to work. At the end of June 2024 I have to go to the hospital again for a physical appointment. My blood is checked every month and the next day the doctor calls me about the results and what should be done. I wish you much strength and many more good years. I'm from the Netherlands.