My neurologist told me I have vestibular migraines following a week long dizzy spell. I had so many symptoms and couldn’t accurately describe it. They ruled out everything from diabetes and heart disease to concussion. It’s been very stressful. I had never heard of these migraines before and was a bit upset that they were chalking all my pain up to a headache. They let me know migraines can have symptoms without traditional headaches. I felt like I was going crazy but this video really sums up everything that I have been experiencing. Literally every symptom I have. A genuine thank you.

the way i describe it to people is it comes out of no where (my attacks). it’s hard to explain but it’s not a dizzy sensation necessarily it’s more of a lightheadedness swaying sensation like the inside of my brain feels like it’s rolling around. and it comes super unexpectedly like you have no idea and then boom it hits like lightning and it’s an intense swaying sensation that makes me feel super disoriented and have a little derealization to the point where i feel like i need to sit down right away and grab onto something. and nothing ever triggers it commonly, it’s at the most random times. whether im in bed, whether im washing my face, whether im talking to someone or just walking its always different. i’ve had this for 8 months now and i haven’t been diagnosed but i have every single symptom you said in the video. these little episodes make me feel off balanced at times, affect my vision (i see microdots like tv static u said) and the violent swaying that comes like a bolt of lightning lasts for about 30 to 45 seconds and then it slows down and stops eventually but even after it stops, I just feel super off afterwards for a while. I always noticed I get this after I eat in restaurants and out at stores (not the episodes, but the feeling of just feeling disoriented and feeling like I’m gonna fall over) it’s so scary. And it’s so hard to explain to people. I fully convinced myself. It was a brain tumor for a little bit, but this sounds like exactly what I’m dealing with. it started in October and I had one episode, then the next month around the same time I had another one for the second time ever, then it was on and on like that once a month for a couple more months until it started happening more frequently around twice a month, to now once a week or once every couple days. it’s the weirdest thing ever.

Great video One other symptom a lot have including me Is ear issues , very sensitive to noise , pressured ears , tinnitus . So horrible as well . 👍

I’m not yet diagnosed but it looks like it’s headed in this direction. Been researching VM on KZfaq for just 10 days and found you. As I was listening to you I started sobbing - this is exactly what I’ve been experiencing!- you’ve described my symptoms exactly. I’m feeling really bad today - all the things you just listed - But relieved to know this is actually a thing and that I’m not alone. Thank you. So grateful ❤🙏🏽

Thank you for this, exactly how I feel every day! I've had migraine since my childhood, with a lot of VM symptoms over the last few years as well, vertigo made its entrance into my life 3 months ago and it changed everything.

This describes all my symptoms the anxiety when an attack comes on is the worst. I feel like my neck gets really stiff too. I get a lot of muscle twitches and breathlessness too and the de-realisation is next level in shopping centres. I also get chest pains sometimes. My head also feels like it's going to explode and I get the tingles down my head and my arm. It took me 9 months to get diagnosed its been horrible.

Thank you for this video. I have pretty much all of those symptoms but I've just been to my neurologist who said I don't have VM. I did have headaches a year ago for a few months and had a normal MRI result at the time but over the last couple of months these symptoms started (including nausea). I'm convinced it's VM which, from what I'm seeing, is hard to get a diagnosis for so I suppose the search/journey continues

I have every single one of these. Only recently did I hear of VM and I’m going to see my doctor Monday. Everything makes so much sense now.

Watching from South Africa. Thanks for this video

Thank you so much for this! I have exactly the same symptoms like literally!!

Great video Matt. I've had VM and PPPD for well over 2 years now and I still have trouble describing my symptoms to friends and family. Definitely going to be worth showing them your video as it describes all my symptoms perfectly. Cheers, Chris

Thank you 🙏 I have one now. It’s horrible neck stiffness too.

Hope your heartburns better lol. Great video Matt!!!😄

Hi Matt great video I have all your symptoms and I’ve started to get that breathing symptoms and like I have to take deep breaths in quite often. Did you do a video on your breathing symptom? x

Thank you again for this! I experience most these 10 symptoms PLUS more ---> #11 Occasional pain at the top of my eye balls, #12 Instead of the TV static / visual snow, I have some eye floaters; #13 my computer monitor is at 30% brightess, anything more will be an eyesore; #14 Tender scalp, pain in the headband area, and tension headache / tightness on the forehead; #15 The need for mint as I sometimes feel like puking but never do.

Hi, I was diagnosed with vestibular migraines in 2010 and when I watch your videos about it i feel so happy because I can relate to what you’re saying. Its so nice to know that theres someone else out there that understands what im going through.I just wanted to ask if you sometimes find it difficult to wear face masks during the pandemic? I find it really hard to breathe when my symptoms are bad and no one really gets why. thanks hope you’re well x

Do you feel a preassure in your head when walking in cold weather? And a bit of dizziness and a feeling like gonna faint (but not fainting ). I suffer from VM since 10 years now, with PPPD as well . I can relate to 100% of whay you said in the video.

Thank you

One big one you may have forgotten....when the barometric pressure moves or is low, my symptoms greatly increase.

Wow!! I’m so sorry anyone else has to deal with these. They are so so hard

I hope you've put a new battery in the smoke alarm by now.

So helpful, thank you. Played for my family and it helped them understand. I also have vestibular neuritis. Do you experience this as well? I’m in my 9th month and I can sort of function, if you have any comments or experience with both vestibular migraine and vestibular neuritis can you discuss that ? Thanks so much

How curious. I was diagnosed with vestibular migraine a few years ago and yet do not exhibit any of the symptoms you have described. This further reinforces my belief the diagnosis i was given was incorrect.

Bro I never thought I’d find somebody who deals with the same struggles I do. I’ve always had migraines but they would only happen early morning upon waking. And this last year or 2 has been so bad it’s happening all day most days

Yes to all of these!! Are you finding any meds to help? I can’t get a dr to diagnosis VM because my symptoms are 24/7. 🙄

Thank you I have all of them except the twitches and breathing. But the worst one is the derealisation. I feel like I'm going through life watching a video of myself. There but not. I've had it since I was 15. Now I'm 50 and I've only just been diagnosed.

Hi again, Great vid btw. Just a quick question. You mention Visual Snow- is this a symptom you experience intermittently or all the time? I ask because I have VS all the time and all the symptoms of Visual Snow Syndrome, they seem to interweave with my migraine symptoms. Prior to developing chronic VM I would experience the snow here and there. I am awaiting follow up with another Neurologist and I guess the only way I'll truly know what is what, is following testing and finding the right migraine treatment for me...see if the snow sticks around or not.

Great video, wonder if anyone else experiences numbness and tingling in arms and hands ever? I can get this once in a while as well.

You forgot the most important one of all.....INNER EAR PAIN. I am dealing with this almost daily. As soon as my inner ear starts hurting everything else follows.

I’ve been suffering with VM since 2017 and been horrible. The. Clogged ear (left one in my case) leads to all other symptoms and the attach with can occur by surprise.

I just got these symptoms out of nowhere and I'm very scared because I just couldn't describe it like you did. I hope you get this message because I don't know where to start for recovery. Please help.

Great video, what about tinnitus? :)

Thank you ! Just wanted to ask you, did you have TMJ pain ? Or u feel like one of your side cheeks hurts ?

Yhe heart burn... I read somewhere the reflux could effect the eustanchian tube... don't quote me. I get full pressure in sinuses frontal and inner ears.

Does anyone feel a constant shaking through their whole body 24/7? Honestly it is so debilitating I don't know what to do. This started a month ago for me. Constant shaking sensation, feel like I'm walking on a trampoline, constant state of shock sensation, difficulty having a conversation, brain fog, fatigue.

Thank you for this video ,i have all symptoms for 7 years now,the same as you,and i have dizziness 24/7 just this dizziness dont go away i mean 7 years ago started this dizziness ist just chronic 24/7 and dont get away have you had this too ?

Great video! Are you still suffering? What medications, doctors etc. helped you recover :(((((

I get all of this. Bit I also get some violent spins lasting a minute or so. Anyone else. Also head turned to left or looking down. Example trying to look in a filing cabinet? Main issue lights though, movement and loud noise.

Hi I have been suffering from VM for about 2 years now I only got a diagnosis a couple of months ago. I have most of the symptoms you describe, has it affected your sleep pattern? I used to work 12h shifts, nights, weekends the works and I could sleep for 10 hours straight. Now I struggle to get 3 hours before I wake up no matter how tired I am and the times are oddly regular sometimes I can roll over and go back to sleep other times my brain won't shut down. The worst symptom has always been light sensitivity for me. When I am suffering trying to read my computer screen is really hard I just cant focus on text.

How is your vision looking from side to side? Is it blurry still? How long did it take to leave? Thank you.

Does anyone get eye flickering in the eyelid. Upper eyelid only. This symptom is driving me the most nuts. I also get the internal shaking feeling/ just feels like nerves frayed. Like a cat with its hair on end. Is that the twitching? I only have upper body only. Head/neck/arms. Pressure headaches yep! Especially behind the eye. Anxiety yes, awful and so scary as it comes on all of a sudden. All the symptoms match me. The depersonalisation thing is called Alice in Wonderland effect.

Nausea and gut problems too.

How do you control this? I am this way for years now. Symptoms always come of a sudden and never know what a trigger can be but lights oh lord I feel I am about to faint every time I am shopping in a store :(

Very true i am facing these issues but the sad part is doctors r not knowledgable abt this i met one ENT specialist she used to tell it's all normal just do some exercise that's all she tells how did u overcome can u please adress me

Have you ever had the pressure in your head on only one side? I’m having a lot of pressure on my left side of my head and tingling after what I think was an attack yesterday.

Hello Matt. This question is for you and anyone else who is going through this. With all the symptoms that goes with this illness does anyone have trouble eating? The dizziness/ head pressure makes it really hard for me.

How did you get relief it's so bad with me makes day to day tasks almost impossible.

Do you need room spinning vertigo for it to get diagnosed? I have all the symptoms and I do have dizziness every day but not like the room is spinning, more like I'm constantly swaying if it makes sense it's so hard to describe.

Hey i have a question i have vestibular migraine and im almost 100% recovered but one thing that keeps bugging me is when ever im reading on a computer or phone the letters start swaying left to right does that happen to you too im hopeless about it because no one knows what im talking about, and its been hard for me to read.

Did u had ear popping or ear fullness.. And eye pain

Most importantly how do i get rid of them.had everyday different levels 24/7 for over 32 years migraines. Vestibular for over 21 yrs.its hell.

Does anyone feel heaviness or feeling of weakness in their limbs? I feel like I'm dragging my legs and arms through water. My face is full of pressure with dizziness and depersonalisation. My eyes struggle to focus on screens and words on screens.

One thing that REALLY helps the off balance is wearing ear plugs!

Can you claim any benefits for this in UK?

Hii Iam aslo suffering from VM . I have muscles twitching and face teachings too much how many days resolve my problem Please let me known..

Do you Think that alcool 🍷 is responsable ? Do you drink alcool 🍸!?

What about vomiting

I dint had migrine in past... Is there any chance to get vestibulat migrine

Does have nerve pain in hands

Did you have tinnitus?

Hii good evening... Facial twitching and muscle twitching problem, is it Leads to hemifacial plasam , brain stroke or big problems? Please let me know..

U had normal migrine in past

Do you feel self motion in bed when your eyes are closed?

I have the all the symptoms that u have described.At first i went to a cardiologist he done an echo,ecg,blood test all the stuff and all were normal,he said there is nothing wrong with my heart..Later I went to a neurologist he said everything is fine,then i went to an ent specialist she said this a kind of migraine and prescribed propanolol and flunarizine ...I got better but not much because the anxiety was skyhigh every now and then.Then i went to a psycatrist,she gave some ssri meditations which helped me to a certain extend which reduced my anxiety drastically.I started going gym,playing etc then again it got worse..now Iam suffering again I recently changed the medication to amitriptyline and propanolol but side effects are there.Now Iam going to the next doctor.🥲