Cervical Dystonia symptoms

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Cervical Dystonia symptoms

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Күн бұрын

"Cervical Dystonia" mitigated by Advanced Neuromuscular dental therapy.
For more information www.MidwestHeadaches.com
This is the video of Mike's dystonia symptoms when I met him.
The video he posted after 1 week of Advanced Neuromuscular orthotic is here:
photo.php?v=3...
Cervical dystonia is a painful condition in which the neck muscles contract involuntarily, causing the head to twist or turn to one side. It can also cause the head to uncontrollably tilt forward or backward. It is also known as "spasmodic torticollis".
Medical specialists think that Cervical dystonia is caused by aberrant nerve signals from the brain. So to manage this, Botulinum toxin used for cosmetic wrinkle relaxing is injected into the neck muscles to paralyze them. Since this toxin's effect wears off over time, it is repeated every three or four months. Brain surgery to implant an electrical stimulator is the next option offered since they believe that there is no known cure for Cervical dystonia
I postulate that the spasms and tilting of the head are an attempt by the nervous system to accommodate for a misalignment of the neck and jaws. It is known that jaw alignment DOES affect the head and neck alignment. When the upper cervical vertebrae are misaligned the nervous system tightens the neck muscles as a protective reflect.
Mike has been suffering from Cervical Dystonia for 14 years. He was diagnosed by specialist physicians at UC San Francisco. He was given several Botulinum toxin injections in his neck muscles. He had limited relief from it. He was also given powerful medications with hallucinogenic side effects. Mike said no more of those medications or Botox injections. Mike could not control the tilting of his head or head movement even for a short time. It worsened when he laid down. So a good night's sleep was impossible. Mike had a great attitude. His life was great. It would be better if he could just have 5 minutes of relief and sit down on the couch without the head movement. He also felt a constant sharp pain in his shoulder that felt like an ice pick was stuck in there permanently. He did get some temporary relief for an hour or so, through acupuncture by his chiropractor. His wife Sara was determined to find a solution. She was not going to give up looking for a solution. So she found us on the internet and called and spoke about another Cervical Dystonia case that I treated.
This video shows Mike describing his symptoms and desired outcomes. Immediately after this, Advanced Neuromuscular protocols were used to diagnose the optimal neuromuscular jaw position that also optimizes neck and head posture. A bite record of this position is called a 'myobite'. A removable orthotic to go over his lower teeth was made by Williams lab. Mike has worn this for about a week. After 14 years of dealing with the uncontrollable head movement of Cervical Dystonia, he is seeing relief that is beyond his wildest hopes. He is able to lie down and get a good night's sleep. He can actually sit on the couch for over 90 minutes to watch TV with Sara. Simple pleasures that the rest of us would take for granted. Yet these were unattainable for someone that suffers with Cervical dystonia.
We have much more work to do for short term and long term. However, the results so far can only be called -- in Mike's own words - "amazing".
The power of Advanced LVI Neuromuscular dentistry protocols continues to amaze us as well.

Пікірлер: 117

@FlowersfromNan 4 ай бұрын

I have essential tremor and it is progressively getting worse. I am sympathetic toward this guy whose tremor is worse than my own. He seems like a great guy. It is difficult to live with tremor because people judge you or they avoid getting close to you. As difficult as the simplest task has become, like putting on pierced earrings, what bothers me most is I feel insecure around people. I try now to avoid social events. I wonder if they think I am an alcoholic with the DTS or because I delight in gardening, I wonder if neighbors think I expose myself to toxic substances ,insecticides, herbicides etc. I have become paranoid. I find it humiliating.

@ramancentertmj 4 ай бұрын

I feel so badly for your suffering. Our reason for posting these case history videos it to give sufferers HOPE. This man was diagnosed as "cervical dystonia" and was recommended brain surgery to implant a stimulator. Yet correcting his jaw / neck position made great improvements in his symptoms. So it proves that the root cause was poor jaw / neck mis-aligment was the root cause since that was the only change we made

@ramancentertmj 4 ай бұрын

What is "Essential Tremor"? That means they don't know WHAT is the root cause of that tremor, right? Could it be that the root cause of those tremors is poor jaw / neck alignment such as it was for Mike?

@melfagnani9019 Ай бұрын

Olá, também tenho distonia cervical e me sinto como você. Sou do Brasil, e aqui, o atendimento pra saúde demora bastante, embora tenhamos excelentes profissionais, a questão da demora no atendimento público é muita, o que prolonga o sofrimento, visto que estou sem tratamento devido a quase 2 anos. O que vem me ajudando é a tratar a questão psicológica para enfrentar a situação. Também me isolei de vida social. Mas vamos levando. Desejo que você se recupere!

@s.p1512 5 жыл бұрын

I have cervical dystonia i feel so self conscious all the time ..This man is so brave

@Kurups101 4 жыл бұрын

have you tried benadryl?

@yofamdonknow8464 4 жыл бұрын

I have a problem but not like this mine goes no no all the time and when it gets bad I have neck attaks

@hi-lb7rn 3 жыл бұрын

Same :(

@marilynv.942 3 жыл бұрын

Me too

@jasminali6490 3 жыл бұрын

Hi its me r n hv the person who originally commented this is my new account

@jerrerock 5 жыл бұрын

I wish all the good luck in the world to this men.

@Kurups101 2 жыл бұрын

I once had these symptoms for two days due to a medication I foolishly took called haldol. For me benadryl took the symptoms away but I can tell you as someone without this condition, living with it for a mere two days had my mind thinking about suicide. I can not stress enough how strong you guys are to deal with this day after day

@andreaglehs2305 6 жыл бұрын

I feel for this dude, my cervical dystonic tremors isn’t quite as bad as his, sure feels like it some days

@Ysobitter 3 жыл бұрын

I was diagnosed with Tardive dyskinesia a couple weeks ago. But my symptoms resemble this man's struggle quite closely. Especially the thing he said about feeling like an ice pick in his neck. It's a miserable way to live, and this poor guys had it for 14 years. I feel for him.

@daviddavis9231 4 жыл бұрын

I have this. At 61 years old, it has gotten worse. This has practically ruined a major part of my life. I see adults and especially children staring.

@s.p1512 2 жыл бұрын

Mines started when i was 21 years old

@HassanShahid915_ Жыл бұрын

@@s.p1512 hi,is it worsening or stopped at a Point?

@hometownchicca 11 жыл бұрын

You're a sweet heart. I hope doctors can help you out. God bless you.

@halitrainor2872 2 жыл бұрын

This guy is awesome- appreciate your authenticity

@ramancentertmj 11 жыл бұрын

Jordan M: I have no idea what your background or expertise is to suggest this case of Cervical Dystonia is due to anxiety. It is demeaning to the person that is suffering from this condition. CD is real. It is due to uncontrolled firing of the nerves that control the muscles the move the head....which in my experience...is due to an imbalance of the muscles that control the jaw / neck area.

@noelcampbell1672 4 жыл бұрын

I have incurable cervical dystonia. Thank you for saying CD is caused by anxiety what absolute rubbish. CD causes social anxiety because people like me feel so conscious of our condition. I have friends but I rarely go out as I have been refused admission to bars/clubs as people on the door assume I must be drunk. Honestly this is what has happened to me on several occasions.

@yofamdonknow8464 4 жыл бұрын

I have tremmors really bad. and people take the mik out me so depressed

@elainemar1841 3 жыл бұрын

@@yofamdonknow8464 neurologist help me with botox injection, 7 injection in my neck every 3 months, I do that for 1 year ,then every 4 months ,then every 6 months .. since 2004 thru 2009 I stop the treatment because I was feeling normal ..... but now 2020 due to the pandemic I start feeling the movement again ,now I have pain everyday ,I need to come back to the clinic.... is sad having this.

@kelvin2281 3 жыл бұрын

@@elainemar1841 hi Elaine, are you getting better now? My close family might be diagnosed with this and I’m really anxious. She is just 18 and developed this kind of symptom after getting anxiety attack.

@lyndac6678 3 жыл бұрын

What a lovely guy, my head does this but not as severe. I'm just starting to go to neurology for answers

@ramancentertmj 3 жыл бұрын

It is a good idea to have a thorough medical workup to rule out tumors and other causes. But if they diagnose the condition as CD, most likely it will be Botox injections every 3 months FOREVER with increasing doses to "manage" the symptoms. You may want to find an experienced and competent NM dentist to diagnose the underlying CAUSE of the movement and correct that. That is what we did for Mike and many others. All the best to you.

@Dawnside-g7l 3 ай бұрын

⁠@@ramancentertmjno to Botox toxin injection based of my experiences! I am also a cervical dystonia also known as spasmodic torticollis patient it’s been 3 years in hell because of this debilitating and ashamed neuro movement disorder! I tried so many treatments included Botox toxin injection as they said in medical science as a main treatment for this condition i tried twice but the results was terrible in hell for me it did not work out for my condition in fact it gotten to the point that I gotten worsened because of that toxin in my system it’s spreading out all over in my lower and upper extremities in my muscles and limbs it’s like a myositis disease weakness and paralysis is like in come even in bed so a rather have a torticollis than having a coma like a severe myositis! It’s been almost a year since that I had that poisoned Botox in my body so now I did alternative treatments options which is works for me these muscle relaxant soma and benzodiazepine and others and physical therapy gently stretching exercises and a neck brace to aligned my cervical spine and some portable devices is very helpful the LLLT and VNS and emus oil and I’ve saw my improvement based of these treatments 20-30 percent.

@EgyptianKilla 10 жыл бұрын

This is honestly scaring me... Im 15 years old and I have cervical dystonia but not as bad as this. The only thing that happens is my neck tenses up and moves to the left. I have had this for about 8 months. And I've had to stop sports such as basketball and volleyball which mean a lot to me and has even cause me to go under depression. I've taken Botox injections once and I'm scheduled for my second set in the next couple of weeks. I just really hope this doesn't last for a long time😔

@CarolineMickle 7 жыл бұрын

How are you doing now? hugs

@2koolaree 6 жыл бұрын

I have had spasmodic torticollus aka cervical Dystonia for 30 years. Botulinum Toxin 'A' is the best and most effective treatment, however it takes time for your neck to correct. It took me 4 years, and I had 20 years of being perfectly normal. No side effects at all. You must be patient and it's worth it.

@rashidamunawwar7576 3 жыл бұрын

@@2koolaree Hii dear

@KvltKommando 2 жыл бұрын

Did the botox work or not

@Dawnside-g7l 3 ай бұрын

@@2koolareeno to Botox injection it’s poisoned In my body system! Every patient is different how to respond and resolve in a short period of time of the treatment but in my case I tried Botox toxin injection in my neck I do have cervical dystonia also but it didn’t work out for me in fact it gotten me worsened my condition even more And neck torticollis it gotten worsened after botox and the toxin spreads all over the muscles and limbs in the lower and upper extremities like a myositis paralysis! Man so that poisoned botox is a main treatment for cervical dystonia but for most of the patients isn’t not working and it’s getting worst when using overtime the toxin it’s not worth it at all terrible hell side effect!

@prasannamalla3175 4 жыл бұрын

i think if we have misaligned jaw and have a habit of clenching the teeth often when stressed or other times, the shoulder muscle gets contracted and the head moves involuntary

@helenhill4827 3 жыл бұрын

I wonder if this is happening to me. If I pull my bottom jaw so my bottom teeth are over my top teeth head shaking seems to stop but it's difficult for me to keep this up.

@hirefoo2605 Жыл бұрын

I heard that TMJ have similar symptoms

@romainejohnsonsr.5997 6 жыл бұрын

About 8 months ago, my 7 year old son noticed that I was shaking my head. I haven't been to a doctor to see about it yet. :(

@findingreefs 4 жыл бұрын

My neck does quick turns to the side very randomly and idk why it’s happening

@jordanm6868 11 жыл бұрын

This looks like anxiety is involved. Do you agree? And would anxiety apply to the general majority of cervical dystonia cases you have been presented with?

@mpeezy51 5 жыл бұрын

Jordan M anxiety is a side effect of having this issue. Which probably intensified the condition.

@SaniWaniPlayz 8 жыл бұрын

+ Jordan M anxiety effects tmj symptoms severely and that would explain when ur stressed why the symptoms are worser it works together with the condition so take it easy be positive get treated with the mouth treatment there's a specialist in Korea he has a treatment centre helped cure many at least if ur 80 percent better well thank god for that

@hirefoo2605 Жыл бұрын

I was just diagnosed and feel alone:( I started getting random head jerks and the first 2 months of Botox seemed to work. Then the third time it only lasted 1 1/2 months. I’m so sorry your are going through this. Will this happen to me as well? Or is everyone different? How does this process?

@r.g.3815 9 жыл бұрын

So sorry. My patient had a migraine and the next day she had cervical dystonia with head tremor. She saw a neurologist in Oklahoma City and was diagnosed with psychogenic head tremor which resulted in muscle spasms in her neck. One year later she gets to see a movement disorder neurologist at a residency clinic in Oklahoma City and they tell her she's having withdrawals when she's having her neck spasms. See diagnose Dana

@ramancentertmj 11 жыл бұрын

Dear Dr. Zubiaur: Thank you for asking for permission and finding this video useful. By all means, use this video in your presentation and include my website address since it has lot more information about ENT symptoms and TMD. It is MidwestHeadaches

@Raj-ul9my 3 жыл бұрын

It’s an neck injury abs you must address the issue and fix you posture and any compressed nerves or disk problems

@user-mi4ke8yv4e 8 ай бұрын

Damn bro u found the cure the cervical dystonia🙌🏼🙌🏼

@bounlathhansackda7079 4 жыл бұрын

I had a sway which has now become a nod for over a year since 2019 aug but it not as bad as his. Is there a cure?

@tomjordan6356 6 жыл бұрын

I have had cervical dystonia for many years. I am curious why you will get the shakes while lying down ? I would recommend getting a second opinion. Botox works great for me. I am sorry to see you suffer through this. Through diet , excersize, I put myself through the challenge of re-aligning my brain with neuroplasticity. ?? Any thoughts ?

@Tns85 10 ай бұрын

I sometimes have had tremor when I lay down also

@ClinicadelaVoz 11 жыл бұрын

Dear Dr. Raman: what a a great and instructional video. Here at the Voice Clinic in Mexico City we are trying to promote and spread awareness of Spasmodic Dysphonia (SD), a form of focal dystonia. May I use your part of this video to show other forms of dystonias in a National Otolaryngology meeting here in Mexico? This would be shown to ENT specialists during a conference where I will be speaking about SD and your name would be on the slide. Thanks for your time! Fermin Zubiaur, laryngologist.

@mikujitbagchi8129 4 жыл бұрын

You will get well soon.. Jesus will bless you with a beautiful life ahead..

@Gabrielherrera-ym5sh 2 жыл бұрын

have a question, dystonia is only in the neck or it can include another muscle? because in my case I feel a contraction in the back of my neck that makes me shake my head and crackle my neck every time I move it, it sounds very ugly.

@ramancentertmj 2 жыл бұрын

Good question! Yes, it can involve other muscles. Our muscles do not work in isolation. Normally they work in pairs or groups of agonists (work together) and antagonists (work against) to effect movements that are smooth and purposeful. In dystonia (poor - tonus) this is not the case. My treatment approach is to diagnose the root structural cause for which the muscles are compensating - in this case with movement. Almost always it is the poor structural alignment of the jaw and neck. Where the teeth happen to come together is not the same as where the jaw and neck would ideally align. Once that structural deficit is made up - temporarily at first with fixed PNM orthotic- the muscles no longer have the need to compensate. This usually leads to relief of symptoms as well. Does that make sense?

@Gabrielherrera-ym5sh 2 жыл бұрын

@@ramancentertmj ok in my case I present a contraction in my neck that causes the head shaking but the most unusual thing is not the head shaking which is partly frustrating but the sound it causes me is something strange because sometimes it is a super rare cracking in the neck When I move my head it sounds very ugly that is also cervical dystonia or rather affects the brain more, would it be another case? Thanks for answering, I really appreciate it.

@1600HistoriC 4 жыл бұрын

I have a dream of becoming the words best boxer, and maan. What a passion I have for it... it’s like Dancing 🕺🏻 n i developed this cervical Dystonia.. and fuck dude I cry about.. I have this one vessel with this one dream. I just hope I can do it and be able to to manage these symptoms

@SeanWoodsGuitarist 10 жыл бұрын

Hi Prabu I am a classical guitarist with FHD I am giving a seminar in two weeks time at a guitar festival and one of my Keynote headings is Common Types of Dystonia, I was wondering if i could use this video to demonstrate Cervical Dystonia with yours and Mikes permission. Kind Regards Sean

@ramancentertmj 10 жыл бұрын

Hello Sean: You have my permission to use the video in your address. My whole purpose in posting this is to inform people...which is also what you are doing. More power to you! People need to know that Physiologic Neuromuscular Dentistry (PNMD) may offer a solution, rather than simply paralyzing muscles with Botox which does not offer a long term solution in many cases. Mike, I understand, is a quite a guitar legend in the SFO bay area. He has given me written permission which is why I was able to post this on KZfaq & make it accessible to "public".

@lorenabernal6229 8 жыл бұрын

im only 18 and have something that looks like this with my neck, i fucking hate it

@callmezombie3059 8 жыл бұрын

me too... I'm 20 and have something similar to this! gets worse when I am out with my friends, see large groups of people... I have anxiety and I lock myself away all the time.. Help me please! I'm tense 24/7 have neck and shoulder pains.. it's not as bad as this but it's still horrible and embarrassing:(((

@93Jossan 8 жыл бұрын

+Daniel Connell I have the same, been having it for years. It gets worse when put into stress, pressure, lack of sleep, or anxiety (mostly at a place with many people and/or new people) I take medicine that calm down the blodpressure, but mostly it doesnt work but can make it a little better. I recommend to go see a doctor, it's not gonna help with waiting for someone else to bring the help. You gotta seek the help, and be patient and stubborn, cause doctors have to look at other things first before saying it's dystonia. You gotta be clear of how it is, some doctors can be lazy but you just gotta be stubborn if that happens. DON'T lock yourself away from society, that's just gonna make the anxiety worse, don't ever let the shakings take control of your life!

@93Jossan 8 жыл бұрын

Keep your life going, for the pain in shoulder, I recommend massage and works out. Walks, swiming, yoga, tai-chi , sport activities. Not anything too big, but there are several good activites and trainings for tense shoulders and body. It can help the shoulders and make the shaking a little better (cause you get more relaxed)

@centfisk 10 жыл бұрын

Is there a chance to see a recent follow up video? Also does anyone know if there have been any experiments with medical marihuana to help cervical distonia patients? Not necessarily smokin it but in any form, oils, injections, eating ect? I am under the impression that all offical research of the benifits of medical marihuana are banned but I'm sure some people have tried it for this condition.

@ramancentertmj 10 жыл бұрын

This patient got better & so have not been back from California where he lives. I have no information on medical marijuana for CD. Even if it "works" how is it better than prescription medications that just mask the symptoms for a few hours? I like the idea of actually correcting any structural problems that CAUSE symptoms. That is just me. :-)

@centfisk 10 жыл бұрын

Thank you for your answear. I agree correction the structual problem that cause the symptoms is the best way. However not all people that are suffering from cervical distonia have to oppertunity to get those corrections. If medical marijuana "works" then it might be a good solution for some people. Heck it might even work better than prescritption medication, who knows :)

@centfisk 8 жыл бұрын

@SkyDaLimit925 7 жыл бұрын

Fox Mulder some weed helps ?

@KvltKommando 2 жыл бұрын

The only way it helps me is by reducing pain or distracting me but it does nothing for the condition other than making you forget about the pain a little, and even then it will still be bothering you while you're high.

@nothinpersonal2633 6 жыл бұрын

I think the surgery is the best way for fix that

@ramancentertmj 6 жыл бұрын

Surgery is the best way...because? Cut what...since surgery involves cutting something. What if it is no better or actually worse, after surgery? What is the down side to correcting this with non-surgical, reversible means?

@noelcampbell1672 4 жыл бұрын

I have to take sleeping tablets Zolpidem otherwise the pain of CD is absolutely overwhelming, The tablets give me that remission to sleep and help in the first few hours of awakening then its just painkillers. People need to understand the chronic pain lots of people have because of CD. The pain CD causes seems to be played down on these videos. This man is incredible. god Bless him.

@TheHondurana 10 ай бұрын

Are you still suffering from this acute cervical dystonia?

@dimagendisenosypublicidad4989 10 жыл бұрын

suffering from cervical dystonia bad alinieacion of my column because of an accident and stayed with botox treatment for three occasions, then with pills and drugs for 5 years seemed like an eternity, actualmentre not take them and if I have now a problem of oromandibular dystonia as shown when, because dental blackets use for one year

@Tns85 10 ай бұрын

That's exactly where I have the pain in my neck. And I have horrible head tremors. I wore my headgear every night

@Tns85 10 ай бұрын

I had a head gear also

@chris2crazzy 3 жыл бұрын

Try cbd oil

@LorraineIwakashdan 5 жыл бұрын

I started off with a movement like this and a trunk spasm and a leg tic. It stayed the same for 25 years and then in 2017 I fell twice and now get shoulder spasms and face spasms. I'm also worst when I rest. An Osteopath has made a lot of progress with the shoulder.

@JustME-ft4di 3 жыл бұрын

Lorraine K-L Can I ask what osteopath did that helped?

@LorraineIwakashdan 3 жыл бұрын

@@JustME-ft4di It did not work long-term I'm afraid. I am now on Baclofen. This really does help.

@navneetkaur5750 4 жыл бұрын

Hi sir my bother have Cervical Dystonia can you please tell me from where I can but that jaw stablilizing appliance . ??

@jimmyjatinjim 3 жыл бұрын

u can buy it online

@Kurups101 4 жыл бұрын

what about benadryl?

@ClinicadelaVoz 11 жыл бұрын

Great! thanks for your reply, I will include your name and website. All the best.

@mohdmunawar8196 7 жыл бұрын

i had some thing similar to this but stayed only one day should i expect it to come again or any way that i could prevent it . thanks

@valerief1231 7 жыл бұрын

Mohammed Munawar my head tremors usually only come at night, or if I'm very tired and lay down. I just searched the symptoms and ended up here.

@dawsonjohnson2156 4 жыл бұрын

God bless this go away

@dampergoldenrod4156 7 жыл бұрын

get an upper body ergometer immediately and do a couple hundred rotations per day to increase neck muscle strength to keep your head straight.

@Moonchild99. 6 жыл бұрын

But what causes it?

@ramancentertmj 6 жыл бұрын

I believe that is due to imbalance of neck muscles which in turn is related to poor alignment of the mandible. Once we aligned that correctly, then the symptoms got better. Physicians believe that it is due to random firing of the brain.

@stephenm353 6 жыл бұрын

Any advice for me? I'm a constant no no shaker. Get BOTOX every 3 months to help but i don't think it's working anymore. Diazepam doing nothing either. 50yr old diagnosed when 28. In the UK. Heard about the cannabis oil so I'm not sure whether to take a chance in losing my job by taking it or just suffer for life.

@ramancentertmj 5 жыл бұрын

Go to www.MidwestHeadaches.com Look under "Contac"t for options to contact. Take care

@jordanm6868 11 жыл бұрын

And if patient reads the comments, just forget about it. It'll go away, and you're not a freak. At least it's not your lips and you can speak clearly :) Good luck.