I was also born with a bicuspid aortic valve, and I too had a dilating ascending aorta. On 9/7/2023 I had both replaced with the Bio Bentall procedure talked about by Dr. Brinkman (who also performed my surgery). I was discharged from the hospital 5 days after and am as of this posting recovering at home.
@sawekoganti6 ай бұрын
How old are you when you underwent the surgery?
@reedermh5 ай бұрын
@@sawekoganti I was 58.
@sweetmev5 ай бұрын
i am 39 and know that i have bicuspid aortic valve n dilation ascending aorta.
@paralogregt4 ай бұрын
Had mine repaired, luckily my bicuspid valve did not need replacement. In hospital for 5 days and back to work 6 weeks later.
@aurelianslavu6797Ай бұрын
@@sweetmev Same.42 mm
@javedbutt61115 ай бұрын
I am very worried about this
@MrGODINTHEMAKING10 ай бұрын
I have regurgitation and need a valve replacement next month and aneurysm in ascending aorta. Im ready!!! November 2023 surgery
@lava_hound-k1v4 ай бұрын
Are you alive now🙄
@gfolkins13 жыл бұрын
I have a bicuspid aortic valve with severe aortic stenosis and an enlarged ascending aorta. My cardiologist said he could hear the blood flowing back. I also have a very small PFO, that they said was not large enough to cause problems. My main symptom is breathlessness with doing very little activity. Very little dizziness and very little chest pain. But my shortness of breath is terrible. My angiogram showed normal arteries. They are supposed to be replacing it with an artificial heart valve this fall; they said the waitlist was 3-4 months. I live in Canada, so there is no cost to me for the tests and surgery, but the downside is that I have no choices in the doctor, and not a whole lot of information.
@HeartValveSurgery3 жыл бұрын
Hi, Our thoughts and prayers are with you!!!
@dana295 Жыл бұрын
How did the surgery go?
@abelardocamp23532 жыл бұрын
I received my new aortic valve in march 10, 2022 and I feel great.
@maxhavels5272 жыл бұрын
Was it a tissue valve or the mechanical one?
@abelardocamp23532 жыл бұрын
@@maxhavels527 tissue
@tanyabest319 Жыл бұрын
This sounds promising my granddaughter has had emergency surgery 10 weeks for balloons, has aortic valve stenosis and biscupid, was severe at 8 weeks, so got balloons inserted at 10 weeks in southern Ireland, (we in North) now moderate and we been told needs aortic valve replaced within year she was 2 in July and probs didn't show in sonograms during my daughter's pregnancy!! What can we expect surgery wise, mortality, and her recovery? Her uncle has mild leaky valve and murmur, her dad had murmur, her maternal grandfather, great grandfather died very young with angina at 53/54 her great gran on maternal side angina also but still alive at 86
@cvonpete Жыл бұрын
I have bicuspid valve, diagnosed three weeks ago. I’m asymptomatic but have severe stenosis. The cardiologist told me that my heart is strong and healthy and to continue with my cycling regimen until I have symptoms while exercising. I’m watching videos and pretty frustrated. I have no aortic aneurysm so that’s good. I’m 51 and eager to get the valve replaced before I do damage to my heart.
@ahmedkurtovic833311 ай бұрын
luck play big role here. Some people live 80+ without surgery.
@robertramclam32402 ай бұрын
Absolutely live this dictor. My mom has a valve aneurysm and id love foe him to do it for her. Ur amazing!❤
@mariarutz9842 Жыл бұрын
@ Adam, thank you for this channel and I am about to go through surgery for bicuspid aortic valve. I was a healthy 52-year-old female until February. 2023. I began to feel many of those symptoms. Can you please talk about the actual recovery of the skin and do you have current brave patients that can show us how their skin has recovered? I'm still frightened but feeling more empowered with this community you have created. Thank you. ❤❤💕💕
@gregnettles3677 Жыл бұрын
I’m 52 old male it takes about 4 months for the skin to heal.
@ikatsakiashvili5079 Жыл бұрын
i have bicuspid airta i am 31 i live in georgia 🇬🇪
@maxesfuerzo35733 жыл бұрын
Any information on engineered tissue valves? Seems like a relatively new development but very exciting.
@Thegeordiemonkey3 жыл бұрын
I have a bicuspid valve with stenosis and getting the Ross procedure in the next couple of weeks, this video answers a lot of questions i have, i have a fantastic surgeon in the UK doing it, Dr Asif Hasan.
@HeartValveSurgery3 жыл бұрын
Great to hear the video with Dr. Brinkman helped you learn more about your bicuspid aortic valve! Here's a new video about 4D Flow MRI & Bicuspid Aortic Valve that you might want to check out - kzfaq.info/get/bejne/a5mRqqiCl5mnf4E.html. Very exciting new research!
@deepaksinghsisodiya56902 жыл бұрын
I have bicuspid aortic valve I'm 24 now and moderate AR .can I go through the Ross procedure?????
@goatcontender3123 Жыл бұрын
@@deepaksinghsisodiya5690 same muje bhi hai
@adrianaguerrero598 Жыл бұрын
Thank you for sharing
@MrMercman72 Жыл бұрын
I appreciate the information shared! I am right there needing to make those difficult potential life and death decisions and this really helped.
@danbutler77084 ай бұрын
What blood thinner can I use after being on eliquis for approximately 13 months and I was bleeding from my mouth my rectum with a loud ringing that is still in my ears what type of doctor should I see? Thank you for your webinar this is one that I watched before I did my surgery so I can better understand the surgery God bless you thank you and I am looking for your answer
@TravelsofAngel Жыл бұрын
I have severe stenosis of my BAV, 60 in January and 2 aorta Annuerism ascending aorta. From CTA I was told that descending thoracic is Annuerism. I was told that I can't have TAVR because of the BAV but wonder why, other than BAV. My father's descending valve dissected they aren't sure when but lived to 84. They were trying to put a a pacemaker in his heart (he had AFib too, heart attack before 60). Very fatigued. Covid made me worse.
@TravelsofAngel Жыл бұрын
When do you think Ross procedure would work? I don't want mechanical valve
@travelsofangel74342 жыл бұрын
My father descending aorta annuerizm dissected. He had afib, enlarged heart and was getting a pace maker when it happened.
@bhupinderpalsingh18283 ай бұрын
There is any medicine to heal or recover bicuspid valve.
@HeartValveSurgery3 ай бұрын
Great question. Unfortunately, we are not aware of any medicine that can treat a bicuspid aortic valve.
@christospip53123 ай бұрын
What about weight training but with 60-70% of maximum weight without holding breath. Does it impact negatively the valve and aorta progression ?
@mohammadzamir91943 жыл бұрын
Hi it was such a useful information, I m 42 years old and I had dubble chamber on right ventricle which creat narrowness to blood goes to lungs also minor aortic valve leakage, and my open heart surgery is due soon. My question is, is it possible these problems can be fixed without open heart surgery, I mean with keyhole surgery or any other procedure thanks.
@gregnettles3677 Жыл бұрын
How about pseudoaneurysms? I had my aortic valve changed in Dec of 22 and may of 23 had to had a redo surgery.because of a pseudoaneurysm we’re the they put the cannula for the heart lung machine.I had an pseudoaneurysm that was 2.9 cm found in the ER.went in because I presented with pneumonia fluid around the heart and in the lungs.Have you ever heard of this happening?
@javedbutt61115 ай бұрын
Moderate to severe stanosis 55mm
@javedbutt61115 ай бұрын
My baby age 3 month diagnosed bicuspid aortic valve
@wilsontirado37323 жыл бұрын
What if you have a stenosis and a leak
@HeartValveSurgery3 жыл бұрын
Wilson, Great question. We would encourage you to talk with your medical team about the best specific surgical option for you. Oftentimes, patients with both stenosis and regurgitation will need an aortic valve replacement. So you know, we're hosting a webinar on Thursday that you might like to join. You can learn more about that at this link - register.gotowebinar.com/register/8316942763367593999. Hope that helps!!!
@marvinmagtuba6001 Жыл бұрын
I have bicuspid aortic valve, mild regurgitation, but without stenosis. 33yo wo symptoms. Do you have videos regarding this.
@PankajKumar-ub2bo3 күн бұрын
Same problem brother but my Arota size 39 mm sujery time need ask
@travelsofangel74342 жыл бұрын
Is stenosis and calcification the same? Have been both with BAV and root and ascending aorta annuerizm
@HeartValveSurgery2 жыл бұрын
Hi Angel, Great question. You may want to visit this website to learn more about aortic stenosis and a calcified valve - www.heart-valve-surgery.com/aortic-stenosis-valve-heart-narrowing.php. Hope that helps!
@rowdyyadav2 жыл бұрын
Sir Bicuspid Aortic Valve , MPG of 26 mm Hg, BAV with moderate AS, no AR. Baby boy age is 6 days. What will you suggest in this condition is it normal or we need balloon surgery? From India
@HeartValveSurgery2 жыл бұрын
Hi Rowdy, As each patient situation is unique, we encourage you to discuss this very important question with your medical team! Our thoughts are with your baby boy, you, your family and your medical team as you figure out next steps!
@victorialondon769 Жыл бұрын
My son has type A quadricuspid aortic valve. No regurgitation or stenosis. Is he still at risk of complications in later life considering he has no issues now?
@HeartValveSurgery Жыл бұрын
Great question Victoria! As you may know, heart valve disease can progress at different rates for different patients. Some patients require therapy during their lifetimes. Some patients do not. That said, we strongly encourage your son to get regular echocardiograms to ensure that that any changes or disease progression are actively monitored. We hope that helps!
@wilsontirado37323 жыл бұрын
What is the morality rate for the surgery?
@HeartValveSurgery3 жыл бұрын
Hi Wilson, Great and important question. Here's a video that you might want to watch - kzfaq.info/get/bejne/mal0ZNKGqcjYeYk.html. And here's some more data to consider - www.heart-valve-surgery.com/valve-mortality-surgery-repair-replacement.php. Hope that helps!
@princekumar-jz4lw Жыл бұрын
My son is one month old and just found out he have bicuspid aortic valve. Whole family is worried. I just want to ask about the life span of a person with this condition. Can he lead a normal, healthy and long life ?
@bablipachauri4933 Жыл бұрын
Hi prince my son is also have same issues
@acf894 Жыл бұрын
I'm 41 and very recently found out that I have a bicuspid aortic valve since birth along with an ascending aortic aneurysm. In reality it's better you know when your child is that young so they know to make the right health choices throughout their life and that it can be monitored for changes. I wish I had known.
@mariarutz9842 Жыл бұрын
@princekumar I agree and similar to Adam I found out on May 10, 2023, at age 52, that this is my condition and that this has been from birth. In February 2023 I really started noticing some symptoms while at the gym. Shortness of breath, heavy chest pains, at times like someone is punching my heart. I will be having a mechanical valve in two weeks. I am grateful to have lived this much of life without issues. I am an active individual, ski, cycle, walk 5 miles a day, hike, and take dance classes. Life is about to change but from what I'm learning this is going to give me a second chance at life. I wish you all the best with your son and informed knowledge NOT fear! So as Adam stated good choices can be made to give him a better outcome later. Take care keep on ticking.
@vics27TR3 ай бұрын
Hi, I am sorry to hear about your precious baby, but how did you know did your baby present any early symptoms?
@ivonvillaverde507711 ай бұрын
I am a heart failure do I need a change of value
@rajvardhan71302 жыл бұрын
Life expectancy after bentall procedure surgery
@rahilaadnanskitchen3 жыл бұрын
Please sir I want to tell about my Yong brother. There Heart working 30 % what. I do Dr say the tapci is 11 if tapsi it 14 then we do operation? Please please you e mail address
@thalasaranya52733 жыл бұрын
Hi sir my baby scan report bicuspid aortic valve with moderate pulmonary artery hypertension Itha pathi detaila sollunga sir pls iam from tamilnadu
@leeschultheis54072 жыл бұрын
I'm a little surprised that they are still touting the Ross Procedure. I had that procedure in 1998, when I was 42 ... and it wasn't performed in large numbers at that point. The idea was, my high pressure valve (aortic) would be living tissue, and the low pressure valve (pulmonary) would be a donor human cadaver valve. [By the way, I have always been very athletic, in shape, and was actually skiing a black diamond slope a month before my already scheduled surgery thinking "I can't believe I need open-heart surgery", since I had no symptoms at that time. Fast forward 13 years, and in 2011 (at 55) I was having major symptoms. It seems the pulmonary valve they swapped into the aortic position is removed with a stub of the blood vessel it exits to, and that the whole low pressure valve was not build via a million years of Evolution to take extended high pressures. This stub root of what was now my Aorta, started to distend and dilate ... meaning the 3 valve leaflets couldn't come together any more to avoid significant regurgitation. So, I had to have another complicated procedure, replacing my Aorta with a Dacron sleeve, and a new Pig Valve. All of my cardiologists since had indicated that the Ross isn't that popular any more, and that many had my experience (I believe including Arnold Schwarzenegger). Also, since aortic valve surgery involves cutting near the nerve that fires the left side of the Heart's contraction, that nerve got damaged in the two surgeries, and I then needed a Pacemaker 2 years later.
@nickmooreHDR Жыл бұрын
Sorry you had to go through that. I'm 35 with a failing bicuspid aortic valve. If you could go back in time, what else would you do differently?
@leeschultheis5407 Жыл бұрын
@@nickmooreHDR Well, everyone's situation is different. Mine wasn't "failing" at age 42, just gradually getting more leaky. The idea was the Ross Procedure was a "full lifetime" fix (i.e, I could live to 80+ without any additional intervention). Unfortunately, that wasn't true ... but that was the info I was given at the time, so that's why it made sense to do the "inevitable" operation when I was young and healthy. Given what I know now, I think I would have delayed surgery until much later, as it would likely have saved me at least 1 open heart procedure over the course of my lifetime.
@Intellectualodysseyai Жыл бұрын
@@nickmooreHDR hi Nick also 35 here needing the procedure. I wonder if we can somehow get in touch to exchange ideas
@fifztv33832 жыл бұрын
Just asking my brother got bicuspid aortic valve replacement a year ago and they changed the valve with mechanical one question how safe is mechanical valve? How long the recovery of the patient because until now mostly he got dizzy is it normal? And is it also normal if the patient is so sensitive with smells? Hope somebody can answer me all these questions thank you….
@HeartValveSurgery2 жыл бұрын
Hi Fifz, We hope you and your brother are doing well. You raise several excellent questions about aortic valve replacement with a mechanical device. We would encourage you to watch this video to learn more - kzfaq.info/get/bejne/jcpdZbZ5mtfKc6M.html. We hope this helps you!
@travelsofangel74342 жыл бұрын
Can you have TAVR with bicuspid valve (BAV) and your root and aa dialating
@HeartValveSurgery2 жыл бұрын
Hi Angel, Great question. As each patient situation is unique, we would encourage you to discuss this with your medical team. While we are aware of patients with a bicuspid aortic valve getting TAVR, the presence of an aortic aneurysm could complicate the possibility of a stand-alone TAVR procedure. Again, please contact your medical team to discuss.
@garycarrjr2884 Жыл бұрын
THEY SAY I HAVE A BAD AORAT VALUE SAID 50% BUT I BEEN WALKING AND MY BREATHING GETTING BETTER I KEEP WALKING AND CAN I BET THIS VAULE REPLACEMENT PLEASE GIVE ME SOME FEED BACK
@danbutler3757 Жыл бұрын
🙂
@travelsofangel74342 жыл бұрын
Why ross limited to under 55-50.
@TravelsofAngel Жыл бұрын
I'll be 60 next month.
@anishaddadgg85912 жыл бұрын
Hi sir , i have bicuspid aortic valve but without symptoms , i’m 22 , i don’t fume ,will i have problems in the future when i get older? I’ve been taking menaquinone7 for 2 years
@a.g.hustlegarland41972 жыл бұрын
Hi did you figure it out
@anishaddadgg85912 жыл бұрын
@@a.g.hustlegarland4197my doctor heard something so i did an echocardiography and …
@a.g.hustlegarland41972 жыл бұрын
@@anishaddadgg8591 how you doing today
@anishaddadgg85912 жыл бұрын
@@a.g.hustlegarland4197 im fine!! Well i don’t have symptoms, im just scared of the future 🤣