May was Fibromyalgia Awareness Month, and our Disabilities Officer Lily directed our Hidden Disabilities video to raise awareness of all the disabilities and illnesses we can't see. Remember, never assume. #ExpectRespect
Пікірлер: 27
@GD-ps8vw3 жыл бұрын
I wish there is association for students suffer from it. It affects on the cognitive skills and it is difficult to describe .
@CuteCatsofIstanbul9 ай бұрын
I hate how I lay in bed in the mornings and hear the world start - how people wake up, some easier than others, but still wake up, get ready, eat breakfast, go out to school/work, drive, take a bus, socialise, talk, laugh, run or be lazy, all ready to do it again the next day ... and I am in bed in sooo much pain feeling exhausted no matter how many hours I slept or didn't sleep, and it's this moment of dark loneliness. But I'm sure many neighbours look at me, an adult living with her parents and think 'she's lazy, she loves to sleep, she is using her parents, she doesn't want to grow up, she smiles/laughs/walks so she must feel great' ... Please don't make assumptions about others. Let's just be kind to each other.
@freddythefrog702 жыл бұрын
Hate my neighbours, how they look at me, they haven't got a clue how I have to live my life. My skin burns usually daily. I'm allergic to everything, .massively hypersensitive to lightings LED & fluorescent, loud noises and so many food types & flavoring like MSG causes unbelievable pain and dairy, soy, gelatin, gluten which aggravates fibromyalgia and causes pain. If things aren't bad enough people look at you like you're poop! I'm riddled with psoriatic arthritis which is a part of fibromyalgia, I have to get up twice a night for painkillers. I think about suicide 50 times a day .....this isn't a life
@lauriewright388 Жыл бұрын
Nobody seems to understand? Just up from another painful sleepless night. I pray your symptoms improve 2ith time my friend. Try to remain positive it’s your only chance, as no one seems to appreciate the dilemma we endure!
@catherinewylie69592 ай бұрын
I hope you are still hanging in there! I hope you have found something for some relief by now.
@lauriewright3882 жыл бұрын
Been on pain management medication for 7 years now? The medication makes me more tired than usual, I understand the opioid and nerve ending drugs are addictive. Fibromyalgia is not really taken seriously? It would if they had a week of it?
@Truerealism7477 ай бұрын
It's nightmare do you have heds to had CFS 26 years fybromyalgia 6
@ArtsyLila6 ай бұрын
Fibro disabled me in my 30s. I am in the USA. It is still very prejudicial here. Few doctors will treat it once diagnosed. But I was a nurse before and was able to slowly get myself healthier over time, with family help. Now, twenty years later, am in remission with no auto-immune markers showing. It can happen so don't lose hope. I am not back in college to finish my degree, at the age of 52. LOL. This time, it doesn't hurt. Though, the tech is new. Be kind to yourself. You may need to slow down.
@UnionSouthampton6 ай бұрын
Thank you for sharing your story!
@Truerealism7474 ай бұрын
Do you have hypomobility
@dirkkatz17210 ай бұрын
culprit: microwaves, it can last a few years
@Truerealism7474 ай бұрын
It can be many things but reason why is autism ADHD hypomobility in alot
@user-eo9qd8zx4w8 ай бұрын
Big thanks to Dr emuakhe on KZfaq from Africa for giving me a lasting solutions to my fibromyalgia case, you're truly an epitome of good treatment
@suemiller4371 Жыл бұрын
F
@johnathanabrams8434 Жыл бұрын
Is there a reason why people with fibromyalgia tend to be women ?
@ElmosMum8 Жыл бұрын
I personally believe that painful periods amp up the pain cycle and make fibro more severe in women.
@Truerealism7477 ай бұрын
And the hypomobility is more important n woman heds though I have it and asperger's
@funkymonkey87777 ай бұрын
And women also are more open to expressing how they feel. I think men with fibromyalgia feel like they’re supposed to be tough and hide it. So they don’t get diagnosed
@johnathanabrams84347 ай бұрын
@@funkymonkey8777 wow that's so heteronormative and misogynistic. Cis women can be tough and hide it and men with fibromyalgia do open up about it.
@funkymonkey87777 ай бұрын
@@johnathanabrams8434 I agree. Cis/trans/gay women can absolutely be/act tough and hide their pain. And cis/trans/gay men can be open about how they feel. Is it also true that more women are diagnosed with fibromyalgia? Aren’t men generally are taught to be tough and not “complain” when they’re hurting? And therefore not as many men get diagnosed with fibromyalgia…? I believe that fibromyalgia doesn’t discriminate on gender, sex, age, or ethnicity. Anyone can get it. Medical statistics show that women in general are more likely to go to a Dr for various symptoms. While men, in general, think they are supposed to just be tough and ignore them. I think this is true for all kinds of conditions. Please tell me if I’m wrong, I’m interested to expand my understanding.