Hidden Disabilities: Fibromyalgia

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Hidden Disabilities: Fibromyalgia

Рет қаралды 4,851

University of Southampton Students' Union

Күн бұрын

May was Fibromyalgia Awareness Month, and our Disabilities Officer Lily directed our Hidden Disabilities video to raise awareness of all the disabilities and illnesses we can't see.
Remember, never assume. #ExpectRespect

Пікірлер: 27

@GD-ps8vw 3 жыл бұрын

I wish there is association for students suffer from it. It affects on the cognitive skills and it is difficult to describe .

@CuteCatsofIstanbul 9 ай бұрын

I hate how I lay in bed in the mornings and hear the world start - how people wake up, some easier than others, but still wake up, get ready, eat breakfast, go out to school/work, drive, take a bus, socialise, talk, laugh, run or be lazy, all ready to do it again the next day ... and I am in bed in sooo much pain feeling exhausted no matter how many hours I slept or didn't sleep, and it's this moment of dark loneliness. But I'm sure many neighbours look at me, an adult living with her parents and think 'she's lazy, she loves to sleep, she is using her parents, she doesn't want to grow up, she smiles/laughs/walks so she must feel great' ... Please don't make assumptions about others. Let's just be kind to each other.

@freddythefrog70 2 жыл бұрын

Hate my neighbours, how they look at me, they haven't got a clue how I have to live my life. My skin burns usually daily. I'm allergic to everything, .massively hypersensitive to lightings LED & fluorescent, loud noises and so many food types & flavoring like MSG causes unbelievable pain and dairy, soy, gelatin, gluten which aggravates fibromyalgia and causes pain. If things aren't bad enough people look at you like you're poop! I'm riddled with psoriatic arthritis which is a part of fibromyalgia, I have to get up twice a night for painkillers. I think about suicide 50 times a day .....this isn't a life

@lauriewright388 Жыл бұрын

Nobody seems to understand? Just up from another painful sleepless night. I pray your symptoms improve 2ith time my friend. Try to remain positive it’s your only chance, as no one seems to appreciate the dilemma we endure!

@catherinewylie6959 2 ай бұрын

I hope you are still hanging in there! I hope you have found something for some relief by now.

@lauriewright388 2 жыл бұрын

Been on pain management medication for 7 years now? The medication makes me more tired than usual, I understand the opioid and nerve ending drugs are addictive. Fibromyalgia is not really taken seriously? It would if they had a week of it?

@Truerealism747 7 ай бұрын

It's nightmare do you have heds to had CFS 26 years fybromyalgia 6

@ArtsyLila 6 ай бұрын

Fibro disabled me in my 30s. I am in the USA. It is still very prejudicial here. Few doctors will treat it once diagnosed. But I was a nurse before and was able to slowly get myself healthier over time, with family help. Now, twenty years later, am in remission with no auto-immune markers showing. It can happen so don't lose hope. I am not back in college to finish my degree, at the age of 52. LOL. This time, it doesn't hurt. Though, the tech is new. Be kind to yourself. You may need to slow down.

@UnionSouthampton 6 ай бұрын

Thank you for sharing your story!

@Truerealism747 4 ай бұрын

Do you have hypomobility

@dirkkatz172 10 ай бұрын

culprit: microwaves, it can last a few years

@Truerealism747 4 ай бұрын

It can be many things but reason why is autism ADHD hypomobility in alot

@user-eo9qd8zx4w 8 ай бұрын

Big thanks to Dr emuakhe on KZfaq from Africa for giving me a lasting solutions to my fibromyalgia case, you're truly an epitome of good treatment

@suemiller4371 Жыл бұрын

@johnathanabrams8434 Жыл бұрын

Is there a reason why people with fibromyalgia tend to be women ?

@ElmosMum8 Жыл бұрын

I personally believe that painful periods amp up the pain cycle and make fibro more severe in women.

@Truerealism747 7 ай бұрын

And the hypomobility is more important n woman heds though I have it and asperger's

@funkymonkey8777 7 ай бұрын

And women also are more open to expressing how they feel. I think men with fibromyalgia feel like they’re supposed to be tough and hide it. So they don’t get diagnosed

@johnathanabrams8434 7 ай бұрын

@@funkymonkey8777 wow that's so heteronormative and misogynistic. Cis women can be tough and hide it and men with fibromyalgia do open up about it.

@funkymonkey8777 7 ай бұрын

@@johnathanabrams8434 I agree. Cis/trans/gay women can absolutely be/act tough and hide their pain. And cis/trans/gay men can be open about how they feel. Is it also true that more women are diagnosed with fibromyalgia? Aren’t men generally are taught to be tough and not “complain” when they’re hurting? And therefore not as many men get diagnosed with fibromyalgia…? I believe that fibromyalgia doesn’t discriminate on gender, sex, age, or ethnicity. Anyone can get it. Medical statistics show that women in general are more likely to go to a Dr for various symptoms. While men, in general, think they are supposed to just be tough and ignore them. I think this is true for all kinds of conditions. Please tell me if I’m wrong, I’m interested to expand my understanding.