Рет қаралды 1,313
hopes seizures, still having around 7 to 10 a day everyday on 4 medications! they come from no where now, happen at anytime, to tired too happy or sad, excited, hungry, poorly or just out the blue they happen x she's getting older now and knows what's going on and doesn't like it bless her xx always followed by a nap as they tire her put so much, even at nursery sometimes none sometimes one sometimes 3 to 4 in the 4 hours she is there everyday is different but never a day without them x shes such a brave girl so proud of her and how she handles them love her soooooo much 🩷 now diagnosed with Lennox gastaut syndrome and starting 5th medication!