Hopes seizures, lennox gastaut syndrome. drop attacks, spasms, tonic clonic generalized convulsions

  Рет қаралды 1,313

Hopes Journey with epilepsy and ACC

Hopes Journey with epilepsy and ACC

7 ай бұрын

hopes seizures, still having around 7 to 10 a day everyday on 4 medications! they come from no where now, happen at anytime, to tired too happy or sad, excited, hungry, poorly or just out the blue they happen x she's getting older now and knows what's going on and doesn't like it bless her xx always followed by a nap as they tire her put so much, even at nursery sometimes none sometimes one sometimes 3 to 4 in the 4 hours she is there everyday is different but never a day without them x shes such a brave girl so proud of her and how she handles them love her soooooo much 🩷 now diagnosed with Lennox gastaut syndrome and starting 5th medication!

Пікірлер: 7
@Lotxs-y
@Lotxs-y 5 ай бұрын
Let her know she is such a beautiful and strong and brave child❤❤❤
@user-rj8cy7mw5w
@user-rj8cy7mw5w 7 ай бұрын
❤❤🎉
@antoniosilvestro7108
@antoniosilvestro7108 6 ай бұрын
Hello, what kind of therapies have you tried? Have you tried hiperbaric camera? Or photobiomodulation? Or Ketogenic diet? My son is 11 months old and has head drops spasms and absence spasms, and i am trying those therapies
@HopesSeizures
@HopesSeizures 6 ай бұрын
Hyperbaric camera? That's an oxygen chamber used for treating sickness? Photobimodulation is for treating wound areas and chronic pain none of those are for epilepsy?
@tabiikhan8416
@tabiikhan8416 2 ай бұрын
Hi plz help me
@firstnamecleo1720
@firstnamecleo1720 6 ай бұрын
I had Seizure to very bad one around 55 min
@HopesSeizures
@HopesSeizures 6 ай бұрын
Bless you, they're horrible aren't they x I hope our daughter is as strong and resilient as you when she grows up ❤️
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