The new ERN RITA Patient-Centered Webinar Series is made by patients advocates active in the ERN RITA and focuses on the unique needs and challenges faced by immunological rare disease patients and their caregiver.
In the long run, this new webinar series serves as a vital resource for information, support, and networking within the ERN RITA community, while leading to a video library with trusted and valuable information for patients.
Topics proposed for these webinar series will focus on crossover issues across the four RITA streams (PIDs, autoimmune, autoinflammatory and pediatric rheumatology disorders) rather than on stream-specific issues.
For this first introductory session, the RITA coordinating team members Nico Wulffraat, Joost Swart, Alessandra Magnani, RIPAG member Malena Vetterli and RITA Education Working Group Chair Dr. Jordi Anton presented what ERN RITA is, what it can do for patients, and how collaboration with patient organisations helps the rare disease community.