Hey everything ok. left email address if you need to talk, any time

Hi, yes all good here thanks. Hope you're well too. Didn't receive your address?

I can imagine that a first responder is such a stressful and emotional job. I can also imagine that it must have been difficult for you to leave if its something you enjoyed. Thanks for your comment, I haven't found work yet, I think I've just realised that I'll never go back to doing massage. I'm currently looking into what I can do now but hopefully something that stays away from stress and physical work. Good luck to you too whatever your path may take.

Hi Kit, hope you're well, you sound positive which is great. Yes I know what you mean about looking deep to find the drive, at times it was difficult. I think my decision has come purely through time (a bit of frustration!) but mostly because I miss that connection with people and that's the thing I'm missing at the moment and I think work can help to give us that. I'm pleased you've found your awakening - it sounds exciting!

Sorry to hear that Bob!

Hey! Sorry to hear you've also been out of work due to your MS and covid.. You're right people always say I'm lucky to not be in work, it might be OK under different circumstances or possibly for a couple of weeks but it's no fun. Like you said financially you need to support yourself but I do find too that I miss the social interaction so much. Volunteering is a great way to get back into doing something meaningful, you could also try work experience? You never know it might lead you to the type of work that you could do and enjoy in the future? Thank you so much, take it easy and look after yourself 🙏

Hi Natalie, I'm so sorry I'm just replying to your message, somehow it went into the spam filter? Sorry! Anyway here I am replying now. Sorry to hear that you are going through a bad time, I really hope that this virus has only made things feel more intense - not being able to see family and friends and feeling more isolated especially at a time when you feel low and could really do with people around to help lift you. I hope these videos do help even just a little. I hope your back is feeling better. Sending good wishes your way 🙏🧡

Yep definitely agree on energy gained, I feel the same as you in that sense and this last year I must admit my fatigue has got better and I noticed that happening since leaving a full time role. I'm happy for you and that you have had these positive changes. I think it's also showing us that we are in fact able to work from home and still be productive too - bonus :-) No - unfortunately The the MRI doesn't lie! Long may it continue to be good for you

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You're welcome, it's difficult going through the whole work thing. Hope you are able to navigate through it

You know what, you're right I did say that. This channel for me is about passing on anything that might be able to help people. If I have helped you in even a small way then that makes me really happy. I'm sorry things have been hard for you, here's hoping things get easier 🤞🙏

Hi, nope it doesn't sound daft, I've been there and I know it's not a good place. When you are just diagnosed, you are getting used to so many different things which you haven't experienced before - both mentally and physically so it can be challenging. You do start to understand your body in time with the MS and things don't become so frightening because either you've had 'that symptom' before and you know how to deal with it, or simply your mindset of how to deal with it gets stronger. You find ways to manage your pain /fatigue /numbness by talking to your neurology team and they can help you find the right way to manage things. You get to find wonderful communities of people who share similar things that you go through and so then feeling alone becomes feeling empowered and if you're lucky enough like me - you get to make good friends along the way. Don't feel lost, and definitely don't feel alone there's people here who care and want to hear you're story 🧡

@@lauraironstalksms Thank you for that encouragement. I have had two flare ups since March the first one was the trigger for all this. Blurry foggy vision was really bad vertigo. That lasted about two weeks then cleared up. Then in Sept the second flare which I lost all vision in my left eye for about a month, it was like having an eye patch over that eye. In between the flares I've had x2 MRI's, a CT scan, lumbar punch and blood tests. I've ten white spots/lesions on my brain, it started as three on the first MRS, but on the second MRI revealed seven more. My wife and family are supportive but they have no idea of the daily pain I endure. I'm 6'5" and built like a brick shit house, so bathing and using the toilet are near impossible for me. The numbness from the waste down seriously effects my ability to drive as I can barely feel the peddles. I can no longer play golf or snooker, the two things that were my escape. But the worst thing is I have serious sexual disfunction, which is preventing two things from happening, if you know what I mean. I apologise for rambling on but I just need someone to talk to, who has experienced this as well.

@@velociraptorwolf447 You sound similar to me in the fact that you had two flares very close together. I think it was my 4th relapse that caused my vision problems, I had no warning for this and just woke up with vision loss in my left eye - that was scary. However, in a few weeks that sorted itself out. So did the MS Hug and so did the numbness - that took months though and I did have oral steroids to help with dampening down the inflammation. Have they given you any steroids? Are you going through a flare now? I understand about the numbness, I had it in both my hands and legs but more in my hands. I couldn't do things like reach into my pocket to get money, comb my hair, button up my blouse, cut up food, make a cup of tea - all the things people take for granted. To have this in your feet /legs especially when you're driving must be difficult. Not being able to do the things you enjoy sucks, but I would actually still pick up a snooker cue and just keep potting balls even if it's to get your hands /body /motor function used to it. It will be frustrating for a time as it won't be how you remembered it but you'll be surprised how the more you do it, the more you'll keep improving. The sexual dysfunction problem, I know that these things can be talked through with a doctor, I don't know what they prescribe, I know that this will have an effect on you mentally but focus on the things to get your body better and those things will hopefully, eventually come in time too and improve for you. Family and friends can be and are a huge support, but only you'll understand your pain. Pain can cause anxiety and depression so help yourself as soon as you can with things as much as possible to try and eliminate as much pain as you can. Are you speaking to anyone about pain relief whether that's medication or natural?

@@lauraironstalksms My neurologist took a load of blood from me almost three weeks ago, to determine which kind of steroid to give me. So really just waiting for her to get back to me. I am really hoping that these steroids will do something, even just give me a 3rd of my mobility back and stop the numbness. Just to be able to get in and out of the bath, on and off the toilet and to get dressed properly, that would make me happy again. Currently I take cocodamol for pain. I also take a lot of herbal remedies everyday, Holland and Barratt's finest; B12, D3, Blackseed oil, Magnesium, Turmeric, Applecider vinegar, Lions Main and Omega 3. I have no idea if they're doing anything though.

@@velociraptorwolf447 I don't know how steroids work for everyone, I think it will be different. Just to let you know, I was so bad with my 4th relapse, I felt like you so excited to get steroids as I wanted a quick resolution to what I was feeling and I wanted it to go away quickly. I took them and I was disappointed. The inflammation was obviously so bad and it actually didn't do too much for me and what effect it did have took ages. I'm just saying this because although steroids can resolve many symptoms, they sometimes don't give us the quick fix we need and it it may take longer. However, it's progress and I hope that it has a positive effect for you. Yay to the other things you're doing! you didn't say how long you've been taking them for, most vitamins take around 3-4 months to get into our bodies to take effect so perseverance is the key with those. Vitamin D and B12 are my definite go toos. You have the right ideas already, you can do this just stay strong mentally. Keep me posted on the bloods and what they say about your steroids 🤞

So sorry to hear this, I hope things get better for you soon 🙏🧡

Laura Irons talks MS thank you I wrote them an email yesterday of how they've acted n gave notice.. I'll look fr jobs again 🤦🏽‍♀️and dread to face them next week🙈🙏🏽 are you on Instagram?x

Well done you! I was going to suggest that nothing that stressful is worth your health suffering but I believe that is the right thing. Something that is right for you will come along. Yes I'm on insta - Laurai1980 👍

Hi, sorry to hear that. Honestly it's not aways easy to get a job after having a diagnosis because the employer doesn't understand the what that means for them. You don't actually have to declare your MS until after you're done given the job.. I'm finding the same at the moment, applied for 4, didn't hear back from 2, and turned down. from one who asked me about my MS. Have faith, it will come as not everyone is like that and you will get a job 👍

@@lauraironstalksms its nice to hear from you.... then, should I not tell that i was diagnosed with MS when im hiring a job?

Yes you do not have to tell your prospective employer that you have a disability. It's not a legal requirement to disclose this information. If you get the job then you can always let them know after

@@lauraironstalksms thank you so much for your advice..really ease my feeling rightnow...hope will be better for us.

'Riding a motorcycle a million miles' That guy is inspiring people with MS

@@lauraironstalksms now go check my comment on dr Boster after you take the dogs out ; )