Hi lottie " Dont count the days make the days count "is one of my favourite thing to say . I've had m.s.since I was 21 I'm 53 this year. I had similar problem with diagnosis. So nothing has changed from how long people have to wait to be diagnosed. I've always remained positive . Even on my worse days. When people ask how I am I also say " got out off my own bed this morning " because your worse scenario is I could be in a nursing home. Break your day down in to a managing segments of what you need to do and what you like to do. I guess I'm lucky that with this prospective I have learned to accept. I was here before m.s so again I say m.s live with me not the other way round . Always give drug therapy a go .eventually any one can find the right balance. Never be hard on your self . Grab life by the horns. I always look at life and say my energy is too precious to waste it on trivial things. For any one reading this and has m.s enjoy life the best and safest way you can. And have no regrets. 💖xxx

When I got diagnosised I was so afraid of waking up and not being able to move. 20 years later and that still has not happened. Thank God. Now, I have woken up blind. Was because of lots of swelling bwhind eyes and scar tissue from steroud shots in eyes. But hey I got vision back after treatments. Just moved up to progressive, all good grandson loves his rides on my scooter.

It’s really comforting to see these videos and to know what I’m not alone. I had a lot of similarities in terms of symptoms. The main one being numbness. I was just recently diagnosed in February 2021. And it took like 3 weeks to fully get diagnosed. My vision changing was the key factor for me knowing that something was wrong inside my body. Thanks for sharing your story. 🧡🧡

It’s amazing that the doctors and hospitals take that much care to its patients in that part of world. Hospitals in the US pretty much dismiss you if you aren’t bleeding profusely, having a stroke or a heart attack. My symptoms are identical to yours.

Thank you. You're such a brave young woman!

Thank you for sharing your story. You are so courageous and inspire me. I hope to be as strong as you. ❤️

My daughter had been diagnosed with autoimmune multiple sclerosis. She's been hospitalised for the 2nd time and today She had seizures and was taken to the ICU. They did MRI and ICU doctor said they found a blood clot on one of the vessels in the brain so now they going to do a CT scan to zoom to the exact place and start my girl on blood thinning medication. I am going through so much and can't stop my tears and I have been praying for her. I love my daughter very much!

Thanks so much for sharing! I was unofficially diagnosed with MS about a week or so ago (My LP results are still pending but everything points to MS). It's been one of the hardest things I have been through but I am so grateful to have gotten my diagnosis so quickly. It's such a bizarre thing to go from a seemingly healthy person to a person with MS. I pretty much had a panic attack when they told me too. I just couldn't believe it.

I'm here for you. I too have RRMS , I was diagnosed October 2011. I had symptoms show up at age 23 but it had been misdiagnosed for years it was not until I was in my early 40s before it was confirmed,.My vision is bad especially during relapses it actually gets worse but once relapse has stopped sometimes vision goes back to sort of normal still a but blurry. And be careful with the steroids they can actually make the next relapse worse but there are times when you need them. Heat and stress are my triggers. I have 14 lesions but just did my six month MRI and a new lesion showed up this time . This lesion was 1.5 cm in size the biggest so far. The other lesions are o.75 to o.50 so yeah significantly bigger than these. I have weird symptoms and the pain is excruciating sometimes. I have to keep house at 72 degrees all year around just a one degree difference can cause symptoms to appear . I live in Tennessee so summer time can be brutal. Also a cooling vest that you can add ice packs to will help on hot days. We get what they call the MS hug , it's like a boa constricter wrapping around you while you are trying to breathe throw a coffee stir straw yep its scary but I keep telling myself to calm down and relax it will pass but it hard to relax when you can not breathe. Yes, being tired is a giving but vitamin D3 and B12 will help. Sending you love and hugs , you can get through this stay strong.

Continue doing what you are doing. You have educated me so much about M.S. THANKS.

I hope you’re fine, i also diagnosed with ms since 2019 , it’s hard i know but we’re strong 🙏🏻

I’ve waited 18 months for a neuro appointment. I have it on Sunday and as strange as this sounds I’m terrified they tell me “everything’s fine” I’m so exhausted and drained from this I don’t want to be here anymore. Praying they help me!

Thank you beautiful for your experience I pray that you get well and stay well

Loved watching your video, thanks for sharing.

Lottie you are amazing! Your strength and spirit is incredible. Xxx

Thanks for sharing your story.

Hi girl, was diagnosed in December 2020.good luck😙

The treatment sounds so clever.

Watching this in hospital 2 days after my diagnosis thanks for sharing your story It really sucks to be young and have invisible problems im 26 and been having symptoms for about 9 months now got turned away from hospital and drs because "your young and heathlty" nothing to worry about finally early last week i was admitted after threw blood but i am happy to finally have a name for whats going on

Hi Lottie! I was diagnosed in November also. I had to go private for a second opinion as my doctor thought I was fine. Thank you for this video! I have joined the MS together group 😁 I didnt know it existed. You are so so positive and bubbly I'm sure you light up every room you walk into ❤

Ty for the video, I am currently heading towards the same diagnosis, still waiting to see. So Ty because this all makes so much more sense now.

I really like you video because is very helpful. I have a similar problem but still the doctors not confirmed yet I have MS but I had all that symptoms what you explained this video. I done so many MRI from last year until now, but now is starting more worst I'm tired quickly, my body is struggling to keep fit,sometimes is very difficult to walking also.But really thank you for sharing your problem in this video.

Keep being strong through your journey with ms you seem like a very genuine thoughtful person take care

I had optic nuritus 3 months ago. The consultant gave me Methylprednisolone 500mg a day for 5 days. It sent my blood pressure through the roof and I felt like crap. My vision was almost back to normal after 5 days. I have a phone consult next week, hopefully I'll know more by then.

A super helpful video. Thanks alot!

I was diagnosed in 1999. Currently having some MS flare-ups. I just wanted to commend you on the information you put out in this video! You have reserched well. So many need to be educated, so thank you!!

I was just diagnosed with MS while in the process of starting a new job. I had started out with numbness in my right leg which then turned into pins in needles in my arms and in both legs. I was lucky to already have a neurologist established so I was able to get this figured out fairly quickly in my mind. This defiantly helps to know, you are not alone and that there are other people going though the same thing. Stay strong!

I'm going through something pretty similar rn, I've been running to different doctors and hospitals, etc. Dr. at the hospital told me it sounds like my symptoms point to MS as I am a young woman as well. I just did a brain MRI, and will do an upper spine one soon, I relate to all your feelings of wanting them to find something, and all of the anxiety, helps me feel less alone so thanks for this!

i wish you the best. i hope youll always manage your illness the best way and that it will not affect your life and that you'll be happy. you seem amazing and really really pretty.

I have MS Too, mine is pretty mild but like you said it’s pretty unpredictable.

Thank you for sharing!!

this is such a comforting video, i got diagnosed in august 2021. I also had double vision and numbness. it took 4-7 months for me to be fully diagnosed. thanks for sharing your story xx

Thank you so much for this video, Lottie. I was just diagnosed in June, and STILL recovering from the relapse that led to my diagnosis. I have improved quite a bit, but have reason to believe I’m not done yet (hopefully). Videos like this make one feel not so alone. Your description of how steroids made you feel sounds similar to my experience.

i just love how pozitive and happy she is despite what happened to her. I have ms and i wish i could be like her!

Thank you for sharing. A close friend has MS and cannot imagine what it is like for her. You explained it so well, including all the things which must be so scary, but you wouldn’t consider if you do not live with it every day. I think one of the most frustrating things for the person I know is that it is a disability you can’t ‘see’ if that makes sense. Thanks again 🙂

Thank you for making sucha great video it was was very informative on how your dealing with your Multiple Sclerosis issues.i am dealing with Multiple Sclerosis aswell not at all great having to be on this road but it is to only one that I'm on just waiting for that cure for it I have to deal with the right side my right leg and arm aren't functioning properly at all major weakness so I seems as if I were a zombie walk'n around so just waiting and dealing with the rest of the world hope'n that a cure gets here sooom.have yourself a great day

Incredible 🧡🧡 wish I’d have had this when I was going through my diagnosis, we had similar experiences it seems! Lots of love xx

Dr. Wahls. She’s the master

I experience the same thing on steroids i have to take for severe asthma, but I only take 60 mg. Its so hard. Especially, the doctors have been prescribing me low amounts, they can never get it right. I never get all the way better, then they gas light me and say that is because Im not taking high enough amounts even though im not the one prescribing it! Im the same way, the depression comes from not actually recorvering even though you do what the drs say and take medicine that makes you feel like crap. Honestly, sometimes I see cancer videos and Im like jealous, like well at least you recovered. Its really wild. Thank you for sharing :)

Hi Lottie, I was diagnosed in April this year so can relate to your story. So pleased your on one of the top shelf DMTs. Big hugs x

Diagnosed 20 years ago with RRMS. Now my MS has progress into SPMS. Thank you for your videos❤

Hi Lottie. I was diagnosed with ppms in Oct 2018. I am grateful that if I was to get this disease, I did not get it until age 56. My biggest problem is it affected my walking. I am so fortunate that my primary doctor immediately suspected. MS and started treatment after 6 months

Thank you for this.. I'm 41 and I am in the middle of getting a diagnosis of MS (if it's not WTF? ) watching this exactly like what I'm going through at the moment, double vision, walking like I'm drunk , trouble swallowing. I've had a negative lumbar puncture result and I WAS DISAPPOINTED! I'm hoping to see a neurologist soon to maybe get some clarification and medication, thank you and I hope you are well.

I got diagnosed on December 2019 and my story was really similar to yours but i was in the hospital for a month had a lot of exams and they gave me plasmapheresis and it helped me a looot! And after that i did try a treatment similar to yours but i vas alergic to it wich was a good thing ahah because now i am in the treatment that i was meant to be from the begining , it is just two infusions, the first one i had it on july 2020 and now i am about to have my second one and hopefully the last one! My treatment is called alemtuzumab is a new treatment but its really good! I hope you get better and Your treatment can help with all your process xx

MS Is A Journey A Lots Of Testing ...Thank God For The Tools & Teams ...Stay Focused Pray Is What I Do

Bless you ❤️ you explained things really really well and are so knowledgeable about your condition which is great. I will be seeing a neurologist soon because of tingling sensation on my left side. If you're not already doing this..you can keep a symptom diary tracker or a food diary.. I find like stress (as you have said) can trigger symptoms, also caffeine and lack of sleep. I wish you all the best in health ❤️ don't give up and stay positive no matter what ❤️ yes, it's not ideal and there is uncertainty but just take each day as it comes and live for the moment ❤️

Thank you so much for this video. Im currently trying to seek an invisible illness diagnosis. Not sure if its MS. Its something similar and I can't shake the feeling im over reacting or people think I am and dont believe me ect its good to know im not the only one that feels like that and should dig my heels in and get to the bottom of it

I was diagnosed in march 2021, during pandemic. I heard like a big crack in my world, and didn’t know what to do and didn’t want to cry in those 10 days I was in the hospital and when I came out I cried a lot. Today and after treatment, things are getting better, but I will never feel like I used to do, specially because I have to work and sometimes I want to give up on myself. Thanks for sharing your experience, that gives me a lot hope that everything will be fine.

Thank you for sharing your story. You are a cute girl and you speak well. You, no doubt, have a brilliant future ahead. Cherish the good times and don't focus on the bad so much. Your future is a bright light. Go to it.

Have you heard of MS Hope? They have a documentary called Living Proof as well. My mom has RRMS and found it to be helpful

Being investigated for MS at the moment, this was really helpful. Thank you 😊

Hi! Thank you so much for sharing your experience with ms. I have a lot of the same symptoms of the numbness and tingling. I noticed my flares begin after I eat, well the zappy numbness feeling does. It’s exhausting and gets better if I lay down. I was just wondering if eating plays a role at all with you. Thanks again.

👋 hi I'm 23 I diagnosed with ms when I was 21 since then I took dimethyl fumarate 240 every 12 h and fortunately I didn't have any episodes until now And my MRI haven't changed. When I first find out I watched a video here he said he cut down dairy and got really better I was hopeless and I listened . I think it was effective you might want to try it and also therapy helped too . I wish you keep getting better and better every day💖💖

Good evening Lottie I do admire your positive attitude I've had MS for a very long time when I was first diagnosed I got really bad headaches so my doctor said I needed to have a brain scan all my work friend's were just taking the piss out of me cause they'd say they'll be all on finding it I just took it on the chin I was a graphic designer working for a printing company so plenty of banter I sort of new it was bad news cause I got an appointment two weeks after you'll know appointments don't come around that fast when the neurologist told me my first reply was I've got a Son I'd never heard of MS part of me wanted to hit him I'm so glad I didn't I just came home to my wife and my son we cried a lot but one thing I didn't worry about my MS I chose to just carry on and get on with my life in fack we decided to have another baby she's now 22 I've been lucky but I'm 51 now and yes I don't work anymore but before I've had to have a eltric stem in my brain to help me with my tremors I'm gutted that I've had to finish working I just try to stay happy I'm only human humour is the best medication I do go to MS meetings and I get a lot out of them shame COVID has put a stop to all that I've had both of the vaccines still not confident about going out I've always worn my mask and remembering social dancing 🕺 💃 good luck Lottie and thanks for your video I'm sorry for my life story and my useless grammar 🤭 x

Hello! Thanks so much for your video I’ve had symptoms for years now and have had a recent mri and where I did have 2 white spots now I have 5 I get overheated really easily and when I get cold I get really cold . I have also had glandular fever and also cold sores on my lip Still no diagnosis for me Very frustrating Did you know where your lesions were located on your brain? Thanks 🙏

Do All I Can To Stay Focused On Every Move I Make

I’m having symptoms of this and worried. I’m 44. I have heat intolerance, lots of headaches, tongue numbness from time to time, cramps in my feet randomly. I also have nerve pain and diagnosed with Fibromyalgia since 2005. Scheduled to see my dr soon

Omg same with the odd face thing! Love ur video 📹 💓

Hey what was it that confirmed tour diagnosis? I have insane symptoms and have had 2 brain scans that are normal except I've had a sinus infection like my whole life apparently lol. Should I get one of my spine? Half of my face is now numb, foot drop, nausea and have had a fever for 6 months. So I was shocked when my scan came back unremarkable. Glad you are on your healing journey now though! I'm 31 it's been 15 years of this

Thanks Lottie 👍🏾

I'm going through tests for ms. I'm almost 100% positive I have it. Thanks for the video. It's quite scary but I think that's just fear of the unknown for me

My husband got diagnosed at age 26, 8 years on and he now have secondary progressive ms, his dad has it to x

If you are comfortable, can you elaborate more on your facial symptoms? Was it eye twitching, lip twitch or Etc?

I have a suspicion that I may have MS. I have so many symptoms that I have heard in MS diagnosis stories. Sadly, I live in the US where doctors just don't listen to you. I have an appointment coming up that I intend to outright ask for a neurology referral. I'm armed with a list of alarming symptoms that hopefully my doctor will find just as concerning.

Hey! I was also diagnosed in November by pure coincidence - I was doing a brain MRI to check my ear canals that turned but to be intact, but they found 20+ lesions in my brain and then the spinal tap confirmed it🤣 I remember my feet went numb 4 years ago for about a week and a half but it didn't bother me enough to think anything of it. Especially that it resolved on its own. Good luck with your journey! I'm just coming to terms with my disease, I'm not on any DMD yet, I just immediately upon diagnosis quit smoking/gluten/sugar/dairy and started supplementing with Vitamin D. Still looking if I'm gonna take amy DMDs🤷‍♂️🤷‍♂️

Thanks for sharing your detailed story. I am experience a lot of the same symtoms as you (numbness, vertigo, tingling) except the visual problems. I also have pain and some balance issues... do you also have a tremor?? I have had an MRI of my spine which revealed 3 herniated discs however I have not had a brain MRI yet and doctors are still not ruling out MS. Did you get a spinal MRI too?

Went to my local er and got no help just got handed a lorazepam to try to stop my involuntary movements, it got worse the next day. I went to the big hospital in my area a few hours away, they decided to do a ct scan and it was fine, got a referral to nuerology in the bigger city, still waiting. Got dropped from my naturopathic doctor because she can’t do anything for me after I’ve been going to her every month for the last year and a half with building symptoms and she never gave any solutions or testing. I’m so frustrated and confused, my symptoms just keep getting worse, last time I saw my doctor I was in extreme pain after days of nonstop movements. I feel constantly confused or sick lately headaches ect. I hope I get answers the doctor at the big hospital said “I don’t think it’s ms no one wants ms” no I don’t want to be sick, (he was a stroke specialist as well) I just want answers and help.

You're lovely and very strong!! ❤️

Look up The Coimbra Protocol by a neurologist called Dr. Coimbra in Brasil.

Could you do a fitness/nutrition video for those with MS? Are there certain exercise to avoid with a flare Up etc?

Oh hun it’s awful. I had to go private including MRI to get a diagnosis. I was called by the Neurologist on a Saturday morning and my life changed forever.

Thank you so much for this informative video. I am almost speechless. Finally there is someone who has my symptoms: tingling numbness and pins and needles in one arm and hand, vertigo and panic attacks. I am much older than you (46) and it all started with terrible vertigo getting out of bed (as you mentioned) in the middle of June this year. I cannot believe what's happening. My vertigo turned into dizziness and light-headedness that I suffer from almost envy day now (becomes more severe under stress). I have the feeling my contact lenses don't fit well anymore, but no double vision. My vision has certainly worsened severely, too. I also suffered from Epstein-Barr in 1998 and was out for weeks. Can you please tell me if and how your dizziness lasted? Best from Hamburg, Germany

Hi may i know what do you work as? Are you able to work after having MS?

My mother has been going through progressive symptoms that seem like MS but was told she had ALS. I was curious to know if anyone has had that same problem??? ALS can mimic MS. Because she has progressed so much they think it’s ALS but her symptoms are not the same like MS. She has almost every symptom of MS.

How are you feeling now?Thanks for sharing.

Prior to major numbness in your hand have you had pins and needles tingling feeling in your body

Hello, did the symptoms of your initial main flare-up ever fully resolve (remit)? Thanks for this video. I was just diagnosed in August.

Have not been diagnosed. Waiting for MRI. Not sure if I have MS, Parkinson's, or what? But my symptoms started with ataxia. If you don't know what ataxia is, it is a fancy medical term for walking like a drunk. This has progressed to problems swallowing and speech problems. No numbness or tingling. My vision got bad before the ataxia. Also the "balance" problems are not from dizziness. It is muscle control and muscle weakness. No loss in cognitive ability.... I don't think? I'm in college and have a 4.0. So, some symptoms sounds like MS.... Maybe?

Did you still have the numbness in your left side after treatments?

Are you still able to work? I have been having symptoms for about a year. And maybe two or three sometimes here and there over the course of my high school years, I am now 22. But my main symptoms right now is that I can’t hold my bladder, I get numb off and on, I have really bad tremors, and I can barely walk after 10 minutes of straight walking. Today was my MRI of my brain scan, the neurologist already got back to me. It show that I have lesions in my brain that are currently in active, but nothing active recently. So he scheduled another MRI of the top of my spine to actually confirm whether or not it is MS. And I may have to have a lumbar puncture as well, after that. I’m scared to death.

We're u diagnosed with or without contrast in mri

Your symptoms are identical to mine. The tingling is horrible!!! My MRI showed 1 white fluid spot....they said migranes. I know this is no migranes. Facial tingling, pain in my arms and legs, unstable legs, extreme fatigue, decreased urination, bad vision in one eye, etc. I wish this on no one. It's so horrible. Just saw my neurologist, he ordered different test because this has gotten worse by the day.

God bless u girl

I'm scared and live in London. I have just been referred to a neurologist as I have numerous brain lessons. How long do you think it will take me to get a ms diagnosis?

I have done blood urine and head ct scan recently with everything coming back normal. But i have been having consistent symptoms for about 2 1/2 weeks now. My question is do you necessarily need to have white blood cell count elevated in blood test in order to even fathom the thought of having MS?

Was diagnosed 17.02.2021. By accident, acctualy, i just wanted to check my spine😅

I was diagnosed with optic nerve atrophy which after 3 years of symptoms I was diagnosed with ms my mobility and constant vertigo is what I struggle with oh and the pain,pain,pain x

Hi All, thanks for all your amazing prayers and unconditional love. Praise Abba our Heavenly Father and Christ Jesus always and forever. Glory be to God in the Most High 💪💝🙌🙏 Best news of the day is… my daughter's report came back from US and she got negative autoimmune MS!!!!! 👏🏼👏🏼👏🏼 And she finished her lunch today…. Literally finished everything…porridge, chicken vege and fruit puree another good news, she has been transferred to the rehab ward for her speech and physio therapies..all these good news came on my 49th 🎂 birthday..that's on 28th June..Thank you Jesus for healing my daughter and giving her back to me in one piece. It's a miracle of God. I rejoice for all the tears and pain I went through since April😄😅😆🎉🎊💖💝❤

So as I understood pins and needles sensation come on one side right?

I have some symptoms of MS. I had a my MRI a couple weeks ago and the neurologist gave me results today saying they were clean but he didn't show me the picture and or explain anything to me. I haven't felt well since I caught mono at 17 and now I'm 31. Drs. always tell me it's my anxiety and since I'm young, and most of my blood work comes back normal that I shouldn't have anything wrong with me. Last blood work my Vitamin D was low and high white blood cells that come and go. They can't figure out why my white blood cells are elevated on and off. Also, I've been on vitamin D for about a year now and feel no difference. My symptoms are extreme tiredness! All I wanna do i sleep. Black dot in the middle of my vision and other floaters, flashing lights. Constant twitching on my top and bottom eyelids..sometimes in the corner of my eyes. Ringing ears and muffled hearing. I have a hard time swallowing..like my throat muscles are too weak to push my food down normally. I constantly feel like I have a lump in my throat. I've felt twitching inside the front of my throat. I thought it was my thyroid but I've had MRI on my throat and apparently it's fine and thyroid blood levels. Numbing sensations in my face and scalp, the back of my neck. I feel like it's in my brain too. I've felt the right side of my brain jolt or something, scraping sensations and other weird unexplainable sensations. Bad headaches. All four limbs get numbness but my left foot is almost all the time and it goes up to my knee. Vibrations in my chest. Elevated heart rate. Sharp pains in my fingers. No sex drive. I feel like I have sore throats all the time too. And severe dry eye. Muscle spasms all over. I feel like my brain is slow.. I stumble on words and pronounce them wrong or can't get the word out. I'm forgetful all time. Swollen painful lymph nodes that come and go. Mostly in my neck and along my jaw. Frequent urination and sometimes I can't hold it or very little pee comes out. I'm not sure if all these are symptoms of MS but I've seen quite a few Drs. So far and been to emergency rooms for all my strange symptoms. They can't seem to find anything. Last time I went to the E.R they sent 60 different blood tests and have ruled out about 70/80 percent of diseases etc. Idk what to do. I feel like I'm crazy at this point and never gonna get a diagnosis. 😭😭😭 Does anyone else have any of these symptoms? Or a suggestion on what it can be?

Hi my calf muscle get spasticity in it. And it feels like leg being pulled down . Can any relate please also fasciculations in general.

Hello, in august my wife 27 years old, was diagnosed with stage 4 stomach cancer, been the hardest time ever, but since last week, I’ve had tingling, numbness, pins and needles, in my legs arms feet, feels like you can feel blood running through with air bubbles. Don’t know weird, sometimes my skin feels like it’s hit by a cobb wenb, don’t know if my wife situation brought it on, stress maybe but even getting lower back pain. I’m really worried I’m not diagnosed yet but fearing the worst, I’m 28 years old always been fit and fine. Sad times

They had a student do mine and they were wiggling it around in my nerves for ages before the consultant took over 😢

Also got recently diagnosed... its such a scary moment but is good to know we are not going through it alone🤍

Hello sis could u tell me esential tremor possible in ms

Here's the scary part of MS. One day youre perfectly healthy, feeling fine, perfect balance etc... You wake up the next morning and half your body is numb, you cannot balance or walk. MS can hit a person quickly. MS can cause many problems such as blurred vision, numbness, loss of memory, forgetfulness, brain disorders, poor balance, sleeping issues, RLS, back and neck pain, headaches, heat regulation problems, over sensitivity to touch, bowel and digestive problems, dizziness, cramping, etc... The good news is there are some great medications available to manage MS. Gylenia has been a good one for me. Capoxone injections were terrible. Best of luck, and hang in there. Oh, and try to get some good medical insurance, as treating MS is expensive with neurology, blood tests, CAT Scans, doctor visits, medication, etc.

I just got diagnosed this weekend… I’m 24 and I’m scared

Thanks for the video. Very helpful. I’ve had neuro issues on and off for about ten years. Woke up on 30th December two weeks ago with severe double vision having never had any vision issues in my entire life (42yr old male) Wife convinced me to phone NHS24 on New Years Day and I was sent to A&E and admitted. Various CT and MRI scans with no conclusive results but a possible brain stem inflammation I got three days of IV steroids that wiped the floor with me. I share the trauma of dementia and stroke patients and I was over the moon to get out yesterday after 12 days and no sleep the final four days. I’m home in my own bed and I’ve still got double vision, but at least I’m more comfy if full of fear. Hoping eyesight returns in the coming weeks but have to wait six weeks to be seen again and discuss results. I don’t know if it’s MS but my god it’s worrying. Your story has certainly helped! Thanks

I have a feeling I’ll have a similar story of the hospital saying my scan was clear and neurology saying MS.

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