How To Recover From CFS/POTS/FIBROMYALGIA SYMPTOMS [IN 2024]

How To Recover From CFS/POTS/FIBROMYALGIA SYMPTOMS [IN 2024] - The Science Behind My Recovery

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3 жыл бұрын

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I've dealt with CFS / Fibro / POTS for about 5 years and at the worst stage, I was completely bedridden unable to even turn over in bed. At one point I was bedridden for eight months straight unable to walk and luckily came across a doctor who was able to help me fully recover back to 100% and feel even healthier physically and mentally than before I got sick.
In this video, I talk about the science of my recovery and share the different tips and strategies that helped me go from being unable to even feed myself at times to hiking up a mountain in Hawaii 12 months later.
4:36 - How The Brain is Wired for Survival
7:14 - True Stress vs. False Stress
9:13 - Anxiety to Panic Attack Analogy
11:41 - Velocity Threshold of Anxiety = Panic Attack
13:13 - Stopping Panic Attacks
15:30 - The Feedback Loop: Residual Symptoms = Crash = Repeat
19:10 - The Stress Threshold
27:10 - 3 Key Steps of Fixing This Problem
27:45 - Step 1: Stopping Panic Attacks with Medication
28:44 - Step 2: Dealing with Somatic Symptoms (Brain Retraining)
29:32 - Anxiety is Like a Magnifying Glass
32:22 - Step 3: Building Threshold (Better Habits)
35:24 - Acute Pain vs. Chronic Pain
39:52 - Recovery is Not Linear, It’s Like a Staircase
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RECOVERY FREEDOM FRAMEWORK - WHAT AN IDEAL DAY OF RECOVERING LOOKS LIKE
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BRAIN RETRAINING GUIDE FOR CHRONIC PAIN ⬇️
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Tags: Cns fatigue, cns burnout, nervous system burnout, nervous system fatigue, cns exhaustion, chronic fatigue, cfs, chronic fatigue syndrome, bedridden, housebound, adrenal fatigue, chronic fatigue syndrome treatment, cfs symptoms, cfs recovery, cfs health, chronic pain, chronic pain syndrome, chronic pain explained, chronic pain meditation, post-viral fatigue syndrome, long covid, covid long hauler
#cfs #cfsrecovery #cfsme #bedridden #anxiety #somaticsymptoms #somatic #panicdisorder #panicattacks #chronicpain #chronicsymptoms #longcovid #postviralfatigue
DISCLAIMER: I am not a medical doctor or therapist. I am sharing my own experience and research. My video content is for information and educational purposes only. Please consult with your medical professional.

Пікірлер: 368

@cfsrecovery 2 жыл бұрын

WANT TO SPEED UP RECOVERY? LEARN MORE ABOUT RECOVERY ACADEMY ⬇ www.cfsrecovery.co/recovery-academy

@santeenl Жыл бұрын

Link down?

@cfsrecovery Жыл бұрын

@@santeenl updated the link!

@joeboxter3635 Жыл бұрын

Panic Attack is unique to you. The vast, vast number of cfs don't have panic attacks. It's not even one of the defining diagnostic criteria. Your journey is not like 99% of cfs sufferers and so glad you got better from what you had, glad you doing videos, but it's not for cfs.

@cfsrecovery Жыл бұрын

@@joeboxter3635 sure thing man. Stop watching my KZfaq channel if it doesn’t resonate with you. It just so happens that these principles have helped so many people around the world recover from diagnosed cases of CFS and fibromyalgia and non-Covid

@kellyparks9215 Жыл бұрын

Thank you so much for mentioning that medication was also a part of your recovery story. I’ve finally had to except that for the time being Clonezapam is necessary to get me some sleep. I have developed severe hypnic jerks that make it literally impossible to sleep without medication. It’s been an absolute life saver! I have been researching many of the brain rewiring programs and thus far you are the first to be transparent about this. I’m grateful because that alone takes so much pressure off of me thinking that I was doing something wrong. These medications are demonized so often yet I feel they can be extremely helpful along with doing the work. I really needed this reassurance today, thank you!

@parnianfaizi5471 4 ай бұрын

It’s honestly beautiful how we help eachother when no psychologist or medical professionals does anything

@cfsrecovery 2 ай бұрын

Yes, really amazing 🙌

@MsFiFix1 2 жыл бұрын

the fact you are sharing all this information for free is so inspiring. I have gone into debt paying functional medical doctors that claimed to know the cause of why i was fatigued. Now having pretty much no money left as i'm a student is nice to have this out there without a massive cost. Thank you :)

@cfsrecovery 2 жыл бұрын

I've been in your shoes...spent over 10k on naturopaths, specialists, supplements etc. That's why I feel obligated to share this information with people!

@verona_h Жыл бұрын

please check out the oxygen advantage breathing method. it helped a lot of people as well, they learned how to breath properly and so their body and brain got finally oxygenated

@thewaterprophet6880 Жыл бұрын

I’ve spent 70k and sicker than I thought possible

@alysmarcus7747 Жыл бұрын

@@verona_h i started doing this guys stuff about 4 years ago - first lockdown and i started severe asthma attacks - Murphy's law got my boosters and kicked into ME - here's forest kzfaq.info/get/bejne/p7JzetuS05ibY6s.html

@howtoskatewithanfour6889 6 ай бұрын

@@thewaterprophet6880im seeing his videos and I'm still confused what he did to get better? Just kept anxiety down and thought positive???

@IridescentJen 2 жыл бұрын

hi miguel, i saw you on raelan's interview, so glad to have found your story. i'm both geeky and holistic, intrigued by neuroplasticity long before i became ill so i knew all the parts in play but haven't seen them click into place quite like this. i'm 7+ years in with me/cfs, housebound and frequently bedridden. i've read all the trauma, brain and somatics books and have worked several nervous system programs but was still declining. after years of chasing every rabbit hole and adding more stress by doing it full throttle and aggressively hunting things down, i hit rock bottom this year - my body was shutting down, nervous system totally borked and my innate determined optimism was gone. it somehow led to a sort of acceptance instead of being at battle. renewed hope in a gentler and kinder way. i've enrolled in a cfs recovery program (my way of asking for help, doing things differently and easing up on the lone wolf nature) and i'm starting to feel tiny shifts, mentally and nervous system for now, hoping it will trickle down to the physical level eventually. even though i'm still alone and housebound i'm enjoying my tiny life and having fun again! gently, gently, being recovery focused instead of illness focused (which is a tricky bitch to balance when you do have a few physical issues that need actual attention). thank you miguel and i'm SO glad you made it out the other side of this and are sharing your story and your thoughts!

@cfsrecovery 2 жыл бұрын

Hi Jen, that's awesome you're getting on the right track now. There are times in life when we do need that extra hand. Thanks for your support on the channel!👊🏼

@HUGEFLYINGWHALE 7 ай бұрын

Hey, how are you today?

@MD11111 Күн бұрын

yeah how are you today

@AntonyJS Жыл бұрын

I’m half way through this video and it is already the most informative video and truthful video on the subject I have ever watched. It’s amazing how long it takes to actually learn and understand this. I also don’t believe someone who has never experienced this would or could ever truly understand.

@cfsrecovery Жыл бұрын

yes, you have to know how it feels to only truly understand how debilitating this is when you’re in the depths of it.

@elizabethandiosa4579 15 күн бұрын

Thank you. I am an older woman, retirement age and endured a lot of abuse, mistreatment and stress. My living environment leaves a lot to be desired and a lot to be grateful about. When I heard other women talk about psychsomatic symptoms, I thought it was nuts because I did have physical injuries. The way you have explained how the brain works and forms grooves and paths from our thought patterns makes total sense. I know that's true but wasn't applying it but now....Thank you for adding how changing thoughts works wonders too. It all makes more sense both in the physical and spiritual realms. ❤😊❤

@cfsrecovery 14 күн бұрын

You’re very welcome 😊❤️

@elibennett2 2 жыл бұрын

Great content over the disease of CFS. Battling with CFS myself for about 6 years now I’ve discovered most of what you explained as a way to treatment (not cure) the controlling beast of CFS. It really is something you have to approach from every aspect, you must change your mentality of everything you do. The way you feel about people or situations, your emotions must be positive to keep the anxiety at ease, the way you control your exercise, the way you eat, the music you listen to. All things must keep your body at peace and maintain that adrenaline level so you do go backwards or so you don’t experience symptoms. I hope people who are suffering can submit and sacrifice by changing their life around.

@cfsrecovery 2 жыл бұрын

That's right. You really just have to retrain the nervous system so that it's not hypersensitive. And you can definitely cure this, not just control the beast of CFS.

@bethgillette948 Жыл бұрын

Miguel, you are a treasure and an enormous public service to the CFS community! I am wondering if you have had the opportunity to speak with your doctor about why he understood what he did and how he recognized it in you when this is such a extremely rare occurrence in our doctors? What does or did your doctor specialize in to have this specialized level of understanding? It would be enormously beneficial for the two of you to do a interview/chat to be shared to help educate other doctors.

@bimmerspov5357 11 ай бұрын

Probably TCM knowledge - to the Chinese medicine such illnesses are nothing new. In our western world we have the tendency with medicine to disregard the mind/body connection…leading to doctors screening things that are not to screen as they are triggered through mind / body imbalances…

@mirandaandrea8215 8 ай бұрын

That’s a brilliant idea! That doctor was a complete angel one in a million! He was so lucky to have him!

@jilllindfield2187 2 жыл бұрын

Really brilliant Miguel, I too am analytical, perfectionistic, overthinker, anxious personality etc…..these qualities have allowed you to produce excellent videos..👍🏽👍🏽👍🏽

@cfsrecovery 2 жыл бұрын

Thank you Jill! I'm far from the perfectionist before though, I'm in a much better headspace now

@Conquerchronicillness Жыл бұрын

This is awesome info. Thank you! Previous chronic migraine sufferer so this makes sense. One key point is removing major stresses. The brain retraining didn't work for me while I stayed in my stressful job situation. Now a few years later dealing with mild to moderate CFS & found your videos.

@cfsrecovery Жыл бұрын

Thanks for watching! Major stresses are so important to address.

@estherringthegack7671 2 жыл бұрын

Love this. Video- quality information well presented!

@cfsrecovery 2 жыл бұрын

Glad you enjoyed it! 🙌🙌

@deion312 3 жыл бұрын

Yes bro!!! Keep putting out more videos!!! Please

@cfsrecovery 3 жыл бұрын

Will do brother!

@ljon008 3 жыл бұрын

And talk more about more your symptoms in the beginning and while you were bedridden 🙏🏼

@cfsrecovery 2 жыл бұрын

@@ljon008 I have that video on my topic list of videos to record 👊

@michellemcdermott5694 Жыл бұрын

Cannot thank you enough, thank you for all the effort you put into your videos. So much honesty, understanding and great techniques to try, you truly are helping (me) that’s for sure. Purchased the book going to listen now.

@cfsrecovery Жыл бұрын

thanks so much for your support!

@HUGEFLYINGWHALE 7 ай бұрын

How are you today?

@northernflicker1111 2 жыл бұрын

You are amazing and so appreciated. So glad youve recovered. Post covid syndrome along with a pots diagnosis led me here. ✨

@cfsrecovery 2 жыл бұрын

You got this Holly!

@AmandaCaseyy 2 жыл бұрын

Same here holly

@northernflicker1111 2 жыл бұрын

@@AmandaCaseyy 🧡🧡🧡

@bethanymorische4043 Жыл бұрын

Same here 😞

@AP-dn7gc 8 ай бұрын

Me too

@homemakersheart3614 Жыл бұрын

This was very helpful for me. Thank you very much.

@cfsrecovery Жыл бұрын

Glad you found value in this!

@openmystic163 Ай бұрын

The CFS Recovery videos are all outstangingly veridical. Thanks so much!

@cfsrecovery Ай бұрын

Thank you so much! 😊❤️

@__OL__ 2 жыл бұрын

You have a really good heart and some great ways of explaining things. Thank you [prayer hand emoji]

@cfsrecovery 2 жыл бұрын

Thank you 444🙏🏼🙏🏼

@hugoingelhammar6163 Жыл бұрын

I can relate so much to the way you describe things. It gives me alot of hope ad willpower to change how I think about my symptoms

@yingle6027 2 жыл бұрын

You explain this very well. Thankyou.

@cfsrecovery 2 жыл бұрын

Glad it was helpful! 🙌

@yingle6027 2 жыл бұрын

@@cfsrecovery You should also look into the dopamine detox. I've limited my media consumption and noticed more energy.

@AntonyJS Жыл бұрын

Just finished the video. I already knew so much after suffering with a very similar problem for the last 3 years but more severely in this last year and have done vast amounts of research. But you managed to cover some areas I had never come across and the whole video explains everything so clearly. Thank you so much for this. I am going to rewatch tomorrow and take some notes as I learn better when I put pen to paper. It’s how I get my daughter to learn her spellings quickly and easily. Writing them out by hand. The brain connects with the physical motion of writing by hand so much better than typing notes on a keyboard.

@cfsrecovery Жыл бұрын

glad you found value in this!

@HUGEFLYINGWHALE 7 ай бұрын

How are you today?

@homemakersheart3614 Жыл бұрын

Came back to watch it again. This was really helpful.

@cfsrecovery Жыл бұрын

Glad you found it helpful!

@HUGEFLYINGWHALE 7 ай бұрын

Hey, did it really help or just give you a good feeling for 5 minutes? Really asking.

@rockerchick4368 Жыл бұрын

This is a excellent explanation 👏 👌 👍. I'm a victim of severe domestic Violence. Then the car accident, getting AWAY!! I was good for year's, and functional . Now, I'm exhausted all the TIME. CFS

@jackieshorter756 Ай бұрын

Thank you for your time giving free valuable information 😊

@cfsrecovery Ай бұрын

Glad it was helpful 😊

@Alicia-gj2nl Жыл бұрын

Great video

@mouhannedazaza5637 10 ай бұрын

Thanks a lot for this video ! You have no idea how much you helped !

@cfsrecovery 10 ай бұрын

Glad it helped! You're very welcome 😊

@HUGEFLYINGWHALE 7 ай бұрын

Hey, how did it help? Are you any better?

@mouhannedazaza5637 7 ай бұрын

@@HUGEFLYINGWHALE yes i am better but i had anxiety and not cfs

@robert-oxley Жыл бұрын

So helpful. Thanks!

@cfsrecovery Жыл бұрын

Most welcome!

@HUGEFLYINGWHALE 7 ай бұрын

Hey, how did it help you?

@thestace7777 10 ай бұрын

God bless you for sharing this!!!

@cfsrecovery 10 ай бұрын

You are so welcome

@pipgalea1376 2 жыл бұрын

Hey Thanks for this, This is the first time I've heard or read of another person who got ill due to a nervous breakdown/ anxiety attacks.. And it totally makes sense. I'm 25 years in so I hope I'm not too late to the recovery party :)

@cfsrecovery 2 жыл бұрын

Hi Pip, it happens to many people we just don't hear about it! But it does affect people from all over the world, especially in today's world of overstimulation and technology.

@IridescentJen 2 жыл бұрын

wow, hey pip it's jen androes. what a trip to glance down and see your name! i hope you're hanging in there. i'm not able to really talk these days (thanks to cfs) but if you're interested in connecting via texty/messagy things i'd like to know how you're doing. xoxo

@hysca5 2 жыл бұрын

Such a great video Miguel. Thank you so much for explaining this all. This is helping me a lot. Looking forward to the video with your doc who explained this all to you. Did you also learn about hormones in this context (brain-body signals)? Keep on doing videos... it's a livesaver 🤗 I finally understand what PACING means (thanks to your diagram with the stairs) 🙏🏼

@cfsrecovery 2 жыл бұрын

Thank you! Glad you were able to take something away from this video. No I didn’t explore much into that area of the brain and go as deep as finding out the exact mechanisms, just bigger concepts of how neuroplasticity works! A lot more videos coming this week 😃

@peterpoterstein6686 2 жыл бұрын

Wow Miguel! Thank you for this great video! It resonates a lot with me. I have other underlying stressors, but I am pretty sure that your model is correct. It is exactly what I figured out and I really like your visualisations. They are so helpful, cause when im down I can't think clear and the better a visualization is, the more it can help in hard times. It think in a lot of people there are toxins the stressors and the insufficiency to get rid of them + a lot of "normal" stress and a few years later -> cfs. I also like your image of the glowing brain from another video with the cooling effect when you breath out. Like a hot soup. It helped me so much in the last days and immediately calmed my brain. There was a guy called John Sarno and he had a comparable view at chroinc back pain. He said the underlying cause are supressed emotions and he cured a lot of people. I think one has to find the personal stressors and has to eleminate them as good as possible. What I suppose is that in the moment of the first cfs breakout, the sensitivity of the threshold also is set down (to stay at your vis) and bam you feel like shxt and it is not enough to just do a few things, no, you have to go way under you thresholds to recover. Hard to do, but that's the way. Thanks a lot and all the best for you!

@cfsrecovery 2 жыл бұрын

Hi Peter, absolutely you hit the nail on the head with everything you've said. And I'm very happy that brain retraining exercise has been helping! That exercise has helped so many people dealing with chronic pain it seemed too good to be true, I didn't actually think it would work until I tried it haha. What you said about the sensitivity threshold is so true, our tolerance is almost non-existent when we're in a crash. Once we do get out of a crash, we need to build that "cushion" for our threshold to give our body space to heal. I break it down in an upcoming video, t's like treading water. Our body can't tread water forever it will get tired, but if we get out of the water we actually give our body an opportunity to rest. Similar to CFS, we need to build enough cushion so we're not "just below" our threshold, we need enough cushion that our bodies aren't "on the edge".

@__OL__ 2 жыл бұрын

@28:45 Your success is determined by how well you respond to symptoms. Brain retraining in a nutshell. Love that!

@__OL__ 2 жыл бұрын

@29:34 I really like the magnifying glass concept too.

@__OL__ 2 жыл бұрын

@36:45 YOU NEED TO CHALLENGE EVERY EPISODE OF [SYMPTOMS] WITH ALTERNATIVE STIMULUS OF SIMILAR OR GREATER STIMULATION [unlike acute pain, which is your body sending a message to your brain] chronic pain is learned over time which is a huge thing here now if you think about it with your symptoms they're also all chronic symptoms now at least for me you know i always thought my heart was gonna explode or you know my lungs were gonna stop and i'll stop breathing BUT REALLY THAT WASN'T MY LUNGS SENDING A SIGNAL TO MY BRAIN, THAT WAS MY BRAIN SENDING A SIGNAL TO MY BODY BECAUSE MY BRAIN WAS SO STRESSED IT WAS SENDING ALL THESE DANGER SIGNALS, THESE FALSE SIGNALS like a glitch in a computer to my body so there was no real heart issue right there was no real lung issue there was no real um you know other there was no real you know organ failure that i thought it was going through it was my brain sending these false signals these false warnings to my body because it thinks it was in danger so what you have to do is when you do have chronic pain YOU NEED TO CHALLENGE EVERY EPISODE OF [SYMPTOMS] WITH ALTERNATIVE STIMULUS OF SIMILAR OR GREATER STIMULATION and that's something that came straight out of the book the brain that changes itself

@cfsrecovery 2 жыл бұрын

You paid lots of attention in this video! I love it, I'll be creating PDFs for these frameworks as well and packaging it as a "recovery blueprint", something along those lines!

@__OL__ 2 жыл бұрын

@39:08 distraction is key (e.g. Joe Rogan podcasts)

@gf301 Жыл бұрын

Thanks for such a good video,a lot of very helpful content in there. One of the key points is to stop trying to fix yourself, rather aim for understanding first, you need to tread lightly. I'm starting to see why all my efforts have led nowhere, I've turned CFS into an enemy to be defeated. I just made it stronger. Quite a realisation.

@cfsrecovery Жыл бұрын

So true!

@HUGEFLYINGWHALE 7 ай бұрын

Don't gaslight yourself dude. The disease is an enemy to be defeated. The stuff presented here is just a theory with no proof.

@Akribelasurfacing 2 жыл бұрын

Excellent information Miguel. Thanks for sharing your story, tips and especially the name of the book that helped you so much. I’ve downloaded it from Audible and will start listening to it tonight. My insomnia will allow me to get through a lot of it tonight ;)

@cfsrecovery 2 жыл бұрын

Awesome! Yes dive into that book it will open up a whole new world of understanding for you about what might be going on with your body (especially if you are experiencing lots of pain). Take some notes as you go through!

@Akribelasurfacing 2 жыл бұрын

@@cfsrecovery yes, lots of pain and terrible insomnia and.brain fog

@cfsrecovery 2 жыл бұрын

Ahh that’s a tough place to be in I know exactly how you feel. You’ll get there, it will take time but you can do it 👊

@Akribelasurfacing 2 жыл бұрын

@@cfsrecovery Thanks for your support.. I believe that I will as well.

@surinderdyal8772 6 ай бұрын

Amazing video

@cfsrecovery 6 ай бұрын

Glad you think so! 😊

@harjinderbharaj2055 11 ай бұрын

Thanks for making things so simple to understand, normally we only hear anxiety, but you have painted the picture of the anxiety,Controlling anxiety psychologically is most difficult, especially when one suffers with fibromyalgia,and as you have put it in pictures I can understand better the threshold, thanks once again.

@cfsrecovery 10 ай бұрын

You're very welcome! I'm glad that I could provide a clear and understandable explanation for you. Chronic conditions like fibromyalgia can indeed be challenging to manage, especially when anxiety is involved. By visualizing the threshold and understanding the interplay between anxiety and the condition, it can help bring clarity and insights. Remember, managing anxiety is a gradual process, and it's important to be patient with yourself. I'm here to support you on your journey. Feel free to ask any more questions you may have on our group of thrivers here facebook.com/groups/586782782687101

@HUGEFLYINGWHALE 7 ай бұрын

There is no proof even one person in the history of planet earth got rid of central sensitization through lowering anxiety

@tominnc315 Жыл бұрын

Great post. Clarity and simplicity. I went thru 9 mo of heart arrhythmias then an ablation in Austin TX Aug 2021 then covid Dec jan 21/22. Then all this crap : anxiety worry pain fatigue etc. 2 complete physicals. All perfect. Got better now a relapse. Gonna order book you referenced

@cfsrecovery Жыл бұрын

Definitely have a read through / listen to that book it will make everything make sense!

@tominnc315 Жыл бұрын

@@cfsrecovery my book arrived today. Ive begun. Looks awesome thankyou pal!

@TDK.92 2 жыл бұрын

Thank you so much for this detailed explanation! 👌🏽 I absolutely love and find so much value in your content! Thank you for giving back 🙇🏽‍♀️ Does the book also cover practical exercises on how to rewire or is it purely theory based?

@cfsrecovery 2 жыл бұрын

Thanks so much Tamara! The book also has practical exercises you can do, That’s actually where I learned a brand new training exercises that help me get rid of all my chronic pain!

@TDK.92 2 жыл бұрын

@@cfsrecovery alright, will look into that. Thank you very much! Keep going with your channel. It brings so much hope & value, you cannot even understand 🙇🏽‍♀️👌🏽

@paradise.ventures 11 ай бұрын

Thank You!

@cfsrecovery 11 ай бұрын

You're most welcome!

@cathyjennings5580 2 ай бұрын

Always REINVENTING SELF PHYSICALLY STRONG. SUPERWOMAN!!!

@cfsrecovery 2 ай бұрын

Thank you so much! 😊❤️

@estrellasyfrases Жыл бұрын

Thank you so much for this fantastic, thorough explanation 🙏 could you explain more about how you used thinking/breathing/other techniques to battle the fatigue?

@cfsrecovery Жыл бұрын

Shortness of Breath and CFS Explained: kzfaq.info/get/bejne/qr51fc5i157JeZs.html

@dan5135 2 жыл бұрын

Great video. This is absolutely what happened to my brain following chronic stress and trauma. The symptoms were insane and so diverse...

@cfsrecovery 2 жыл бұрын

Yes! And that’s what makes it so hard to pinpoint, it could be so many things. It really comes down to crossing every other illness off the list and then you can kind of conclude this is the main problem. How are you now?

@dan5135 2 жыл бұрын

@@cfsrecovery aw thanks for replying. Making great progress. I was never formally diagnosed with anything...after extensive testing and scans the docs found nothing and I was supposedly perfectly healthy. But I researched and researched and based on my disparate symptoms I thought: it's either CFS and/or fibro. Funnily enough I saw a medical medium here in Australia last year and without me telling her a thing she said fibro. So..I've been on the brain training path and tonifying my vagus nerve and doing things like meditation and breathwork. But brain training is a game changer... becoming aware of my moment to moment thoughts and checking my emotional response to my symptoms, has helped so much. I'm not 100% but well on my way. How are you these days? Did you do a formal brain training program?

@tomsale5142 5 ай бұрын

Are you hypermobile

@indra6710 2 жыл бұрын

Such a great and helpful video. Thank you so much. I am reconizing myself a lot in your story and bought the book brains way of healing. I was wondering, Do you have an video about how you ended up in hospital and how your recovery was like?

@cfsrecovery 2 жыл бұрын

Hi Indra, great. That book will absolutely change your understanding of what's going on with your body right now. I would suggest taking notes and drawing diagrams as you read along to help you understand the concepts even better. I do have a few videos like that! How I got sick: kzfaq.info/get/bejne/iM2GaLuHl6ezlGg.html The science behind my recovery: kzfaq.info/get/bejne/pL2mprahs9fOmo0.html I also go more in depth about my story in an interview I recently did with Heal With Liz, and you can find that here: kzfaq.info/get/bejne/oLx7ldGEp9e5mXk.html

@jestinktheelerglol3471 2 жыл бұрын

@@cfsrecovery pls wil je de ondertiteling aanpassen. Andere talen bv. Holland or turkish

@lynncontic6913 Жыл бұрын

You're a wealth of information and encouragement and I like the way you explain things in detail. It's definitely a challenge to reprogram the brain and stay out of anxiety when you can't function and feel like you've totally lost control. I would love to know the medication they put you on that helped if you'd be willing to share it. Thanks for caring enough to help other people!

@lynncontic6913 Жыл бұрын

Sorry, I posted my question too soon. I see now that you did tell us what you took toward the end of the video. Thanks!

@cfsrecovery Жыл бұрын

You're very welcome Lynn! I'm so glad you found my videos, continue watching my playlists and applying them to your recovery and you should be feeling better! Wishing you the best

@lynncontic6913 Жыл бұрын

@@cfsrecovery I will indeed. You are one amazing testimony. I forgot to ask you, was your brain inflamed as well? And your emotions gone?

@suzannej2134 2 жыл бұрын

Helpful graphics. Succinctly put.

@cfsrecovery 2 жыл бұрын

Thanks Suzanne :)

@hillsofwi 2 жыл бұрын

Much respect for making the effort for outreach. Many of us have spent years without much reason to be hopeful. I'm almost 10 yrs. in w/ classic me/cfs symptoms. I'm wondering if you can relate to the non-replenishing sleep issue. My symptoms improve somewhat throughout the day but after a night's sleep, I am just trashed. Is there anything that you've done prior to sleeping that minimized this? Or was your sleep experience different?

@cfsrecovery 2 жыл бұрын

Definitely. I can totally relate to that, whenever I was bedridden my sleep quality would be like one hour and 10, I woke up feeling like I never actually slept. Even on days where I would sleep for 14 to 16 hours I was even more green when I woke up and then it’s just a negative cycle. Horrible sleep = horrible day = frustration = more insomnia and low quality of sleep and repeat. For me the medication really knocked me out of that cycle and actually allowed my body to go to sleep. It’s tough because I literally tried everything else, Epsom salt baths, blackout curtains, drinking magnesium before sleeping, meditating, shutting off electronics at sunset, really nothing was working until I got in an anti anxiety and antidepressant. Keep in mind those are TEMPORARY medications, in my situation their purpose was to allow my body to actually get rest. I’ll make a video breaking this down more.

@patriciabryant8892 2 жыл бұрын

@@cfsrecovery Thanks fornthe g8 vids - very inspiring - can I ask - at what point did your POTS symptoms resolve and are u fully recovered from these now?

@alfonsohernandez6857 2 жыл бұрын

@@cfsrecovery wanted to ask how long you do anti depressants and anti anxiety meds for? I read you did clonazepam right? Wondering what dose you did and at what point in your health did you start tampering down any WD symptoms?

@johanngerberding5956 Жыл бұрын

thanks a lot!

@cfsrecovery Жыл бұрын

You're welcome!

@alyssaenalexander4074 Жыл бұрын

Thank you so much for this info. I will also watch your other video s in time and I joined your fb group. It is so much info but so clarifying. My symptoms are more fatigue, exhausting, brainfog, flu like muscle ache,.. not much "real pain". You mostly talk about pain, but does ignoring the symptoms also helps with fatigue? Thank you so much.

@cfsrecovery Жыл бұрын

Absolutely! You are most welcome 🙌🏻

@alyeskakochanek Жыл бұрын

You packed so much information into this video! I've been looking for a scientific (but understandable) explanation of what causes CFS and this video was perfect. Panic attacks precipitated my debilitating fatigue and that makes so much sense now. Thank you for sharing this wealth of information!

@cfsrecovery Жыл бұрын

Glad it helps. You're most welcome Alyeska

@HUGEFLYINGWHALE 7 ай бұрын

This is not a scientific explanation my friend. Cfs is not caused by anxiety, it's the other way around.

@Peter-mo3pr 5 ай бұрын

That's simply wrong, chronic stress and anxiety are a major cause of CFS@@HUGEFLYINGWHALE

@tomsale5142 5 ай бұрын

@@HUGEFLYINGWHALEapparently it is in the subconscious mind not the conscious Dr schubiner tms

@alessandrofacciani7209 2 ай бұрын

I had 2 years almost completely pain free..recently due to an incredible amount of stress and awful personal situation the pain started again..I workout 4 days a week..sometimes it’s difficult because I want to do it but I feel drained..best period I was following a pretty strict keto..keep going guys.💪💪

@cfsrecovery Ай бұрын

Thank you for sharing! 😊

@anitahabibovic2881 2 жыл бұрын

Hey Miguel! I just watched your interview with Liz and it was so inspiring!! I was just wondering what dose of setraline were you originally put on if you don't mind me asking. I have had CFS (not diagnosed) for 8 months now but at a moderate level but I am on 100mg of Zoloft and I feel like it has helped in reducing stress and anxiety but the fatigue is still the same. How long did you take it for and how long did it take to taper off? Thanks

@cfsrecovery 2 жыл бұрын

Hi Anita, thank you! For sure, my dose we started on 10mg for the first week, then 25mg, 50mg, and within 6-8 weeks of starting I was on 175mg / day. Honestly it was like a miracle for me. I was on 175mg for about 6 months and then we tapered off by 25mg every 3 months. So since this past March I've been completely off all meds.

@annabellasecretagent2528 2 жыл бұрын

Thanks for all this amazing info and great vibes!! I wondered about the anti anxiety meds as well. Was it Ativan? How long did you take this, was it not addictive? Thanks in advance!

@lunarlyl9964 Жыл бұрын

Thank you for sharing! Can we heal without medication?

@cfsrecovery Жыл бұрын

you absolutely can, and people in the program have done it. So it is very possible!

@gaoshikui88 2 жыл бұрын

Hey Miguel, really urgent question please help! Did you use an anti anxiety medication at the start to "jumpstart" your body because you couldn't shut down the SNS by yourself so to speak? Are you able to share which one you used and what dose you used? I'm seeing a doctor soon and will discuss options.

@cfsrecovery 2 жыл бұрын

Hey Steven, I share that in this video. Make sure you watch the full thing, I'd rather you soak up ALL the information before considering starting something like medication

@phoebeclarke3427 2 жыл бұрын

Sorry, saw your reply two comments down,forget this and comment below! Thanks for your reply.

@cfsrecovery 2 жыл бұрын

No worries!

@jesusmanuelm5653 2 жыл бұрын

Miguel, muy buenos tus vídeos, los veo subtitulados ¿trabajas en Español?¿hablas Español?

@cfsrecovery 2 жыл бұрын

Sorry I don’t understand :|

@steve0ne11 2 жыл бұрын

Can you please make a dedicated video for your experience with POTS? There are lots of us long covid people who are suffering with this right now. That would be greatly appreciated.

@cfsrecovery 2 жыл бұрын

Hey Steve, yeah there's tons of people who are experiencing POTS. What kind of video do you think would help? Like, "how to get rid of pots, how to manage pots symptoms, etc..."?

@steve0ne11 2 жыл бұрын

@@cfsrecovery Hey, I’d just like to know about: 1) How/when your POTS symptoms started. 2) What did your symptoms look like. 3) How did you recover and how long it took. Sorry for the multiple questions, but I figured I’d be specific if you’re asking. Thanks!

@elizabethread6878 Жыл бұрын

@@cfsrecovery hi :) was this video ever made? Just looking for it :)

@alexserrano2599 Жыл бұрын

Great video and thank you for sharing your story. The only question mark for me is that the video addresses anxiety a lot but nothing about the Fatigue. The channel is called CFS Recovery but I’m failing to see the link.

@cfsrecovery Жыл бұрын

Hey Alex, thanks for the input. Fatigue is a byproduct of a hyper sensitive nervous system. It improves as you make progress in recovery. Here’s my video about fatigue here: kzfaq.info/get/bejne/itygfrqfxJiXkZ8.html

@HUGEFLYINGWHALE 7 ай бұрын

@@cfsrecoveryI also believe fatigue is a byproduct of hyperexcitability. However it does not imply that it can be reversed and there is no proof it ever happened.

@kaylaberry7983 Жыл бұрын

Do you feel that Cándida gut infections are caused by he stress response as well?

@kristileemaiellachoreo 2 жыл бұрын

Miguel. I cannot believe how lucky you got to have received help from conventional doctors. That is honestly mind blowing to me lol! The hospital sent me home with my resting heart rate at 140 and told me it was anxiety. When I was finally diagnosed with POTS they gave me medications that made me feel worse and told me there was nothing else they could do for me. I found more relief through diet change and herbs/homeopathics

@cfsrecovery 2 жыл бұрын

I did get very lucky! Although, I was unlucky for 5 years and was turned away by over 12 doctors...I also went to the ER 6 times in those 5 years and sent home in an absolute wreck. So I was extremely unlucky until I was lucky lol. That's a tricky situation you're in. It's highly likely that yes you were experience severe anxiety (at least your brain was), but most doctors don't look into the reasons why our bodies feel that way. There's always a cause and effect, so if anxiety is one of the things you're feeling, you need to figure out what's causing it. That's what I teach on this channel and in the Recovery Jumpstart Program

@morningwithgracie7870 2 жыл бұрын

@@cfsrecovery hi sir did u try taking benzo?

@alexserrano2599 Жыл бұрын

Thanks for this very useful video. While they were building up and recognizing the signs of increasing anxiety levels, were you without the aid of anti-anxiety medication? I guess, what I’m assuming is that maybe taking an anti-anxiety medication sort of prevents you from getting better? I’m interested in what your opinion is or experience was as it relates to the use of anti-anxiety meds.

@cfsrecovery Жыл бұрын

Yes I was without the aid of anti-anxiety medication when I was getting worse and worse. They actually gave me antianxiety medication but whenever I took it, it actually gave me more anxiety because I didn't like the feeling of not being in control. It's only when I learn the concepts of how to recover that the antianxiety medication became effective, and I use the medication in conjunction with brain retraining in order to dig myself out of the hole. But I also asked my doctor if it was possible to recover without medication, and he said for most people it is. But in my extreme situation, I needed it to even get the ball rolling in my recovery. Most people don't need medication though, especially if they can walk around already and are somewhat functional, it's much better long-term to focus more on the brain retraining neuralplasticity approach than to rely on medication to get out of this.

@mohmmadabdullah2783 8 ай бұрын

What is the name of the medication you were taking?

@HUGEFLYINGWHALE 7 ай бұрын

@@cfsrecoveryI find it extremely strange that you had a doctor who said most people recover from cfs

@tomsale5142 5 ай бұрын

@@mohmmadabdullah2783sertraline

@alexandernordic8551 2 жыл бұрын

Hi Miguel, I suffer from CFS and POTS since 2017 and I'm bed bound since end of 2019 (I'm 25 now). I have the same symptoms like you had in your worst times. I know exactly when my CFS started. It was caused, like in many cases, by a virus. At a time where I did sport 4-5 times a week and applied for university, so i was very stressed out mentally and physically and then I got a virus from which I never recovered. How and when does a virus fit into your explanation or in other words what has it to do with it? And another question is have you been diagnosed with POTS back then? Your video really gave me hope not to quit with all of this.. Greetings from Germany!

@morningwithgracie7870 2 жыл бұрын

Did u take psyche meds?

@alexandernordic8551 2 жыл бұрын

@@morningwithgracie7870 no

@cfsrecovery 2 жыл бұрын

Hi Alexander. I thought I replied to this but I guess I didn't! To put simply, essentially the body has a threshold for stress, when you have a virus it wreaks havoc on the immune system and this puts a ton of stress on the body, which puts you over your stress threshold. I was never clinically diagnosed with pots as I only did the test once and the time I did do it the symptoms decided they were going to show up that day. Although I've experienced horrible parts symptoms like my heart rate jumping to 130 and staying there for hours after simply getting out of bed and going to the washroom.

@booksinbed Жыл бұрын

@@cfsrecovery Was your experience that your heart rate shot up when you got up and stayed high for hours afterward, *even though you returned to a resting position*? If so, I wonder if there was a different cause for your tachycardia, which might explain why POTS didn't show up on your test. In the diagnostic criteria for POTS, the orthostatic intolerance symptoms show "rapid improvement upon return to a supine position". Typically in POTS your heart rate responds to your posture - racing when up, slowing when reclined. If you experienced tachycardia without postural relief, it sounds very tough.

@kajsakarlsson6106 Жыл бұрын

Hi! I read that you are in Germany but thought of a private clinic in Stockholm called Ameliekliniken, they specialize in ME/CFS and other paraviral diseases. The founders daughter got sick in ME very young. Seems like they are more keen on prescribing and trying antiviral medicine than others

@gail5794 6 ай бұрын

The threshold concept is epic! Such a fantastic video❣️

@cfsrecovery 6 ай бұрын

I'm so glad it resonated with you. 😊

@AP-dn7gc 8 ай бұрын

Thank you for this video! I have been suffering through 14 months of graduate school while having CFS. i am getting worse progressively because the chronic stress and overexertion. Do you think withdrawing to heal is best?

@cfsrecovery 8 ай бұрын

You're welcome! It's tough to manage graduate school while dealing with CFS, especially if it's causing a progressive worsening of your condition. Withdrawal to focus on your health and healing might be a wise decision. Prioritizing your well-being is crucial. Consult with your healthcare provider about this decision and explore options that could allow you to continue your education when your health improves. Remember, healing is a journey, and taking the time to recover is an important step toward a better future. 🌟📚🌱

@tanyawieczorek6603 2 ай бұрын

What did you end up deciding to do?

@j.c.6576 2 жыл бұрын

What about infections and toxins? I remember Dr. Mark Hyman saying that his CFS was caused by mercury poisoning and a C dificile infection. What about adrenal fatigue? Would your program address this issues as well?

@cfsrecovery 2 жыл бұрын

Hi J.C. The answer is no, those issues require different treatments. If there's something actually detectable on tests then you must follow those treatment protocols first. The approach I teach is specifically if there's nothing that 100% without a doubt clearly explains the symptoms that you're feeling and people are turned away by all the doctors / specialists they've met. If there is another issue going on, that can't be ignored.

@lizzieb8039 2 жыл бұрын

Honestly I feel like what you explain is literally why people suffer from various chronic illnesses nowadays, not just CSF. Thank you so much for explaining all of this !

@cfsrecovery Жыл бұрын

Absolutely! This is how things like depression and anxiety start too

@HUGEFLYINGWHALE 7 ай бұрын

No.

@MKJMRMK 2 жыл бұрын

I did not find information on how much it costs to participate in your program. Where can I find that information?

@cfsrecovery 2 жыл бұрын

Hey, the cost really depends on access to me and I have to see if I can even help you first. I always recommend booking a strategy call to see if you're a good fit for the program. You can book that here www.cfsrecovery.co/recovery-jumpstart-apply-page-1

@peachesmcgee4795 2 жыл бұрын

The other thing re anxiety is modern life making things worse.We had evolved to live in smaller communities before tv Internet etc.Now we're bombarded 24/7 with info and news from around the world which is really stressful for the mind.

@cfsrecovery 2 жыл бұрын

100%. I go in depth about that in this video and it totally makes sense. We are not wired to have this much stimulus and process this much information. That's why there's a good amount of people who go through something like this

@cfsrecovery 2 жыл бұрын

Also why insomnia and ADD is such a common problem in todays world!

@gingerschultz3258 Жыл бұрын

Thanks for the very informative video. Do you think everyone with CFS has somatoform disorder? I’m trying to understand your information in relation to my issues.

@cfsrecovery Жыл бұрын

Glad you got value out of it! I honestly can't say, but for me personally, I see CFS and somatoform disorder as the same thing. Essentially, a hypersensitive nervous system disorder. And people can bring up all the stuff about mitochondrial dysfunction, but the root cause of mitochondria dysfunction is wrong signals from the nervous system

@gingerschultz3258 Жыл бұрын

@@cfsrecoveryinteresting. I hadn’t heard that before that the root cause of mitochondrial dysfunction is in the nervous system.

@abm5254 Жыл бұрын

Sorry, please don't give here wrong information. ME/CFS is neurologic and not somatoform!

@cfsrecovery Жыл бұрын

@@abm5254 Pulled from Google: Somatoform Disorder - This condition is diagnosed when people have neurological symptoms that can't be traced back to a medical cause.

@abm5254 Жыл бұрын

@@cfsrecovery place check what ME/CFS is. It is neurologic und not somatoform. ICD Code g93.3 is neurologic. Your wrong information is not good for people who really heave ME/CFS. Chronic Fatigue or Fatigue is not ME/CFS!!!!

@kathleenwharton2139 2 ай бұрын

Dr Sarno teaches of TMS..which is very similar to what you are teaching. 😊❤

@cfsrecovery 2 ай бұрын

Thank you for sharing! 😊

@martinamartina5919 Жыл бұрын

can i ask what was your trigger? mine was viral infection and i still have high igg values from it... do yoh have similar clients with this trigger? are they doing good progress of recovery? does anybody fully recover?

@cfsrecovery Жыл бұрын

There are tons of things that trigger people to get CFS, a viral infection is something that I've seen come up a lot in the last year, especially with Covid and everyone's immune systems being down. They call it post viral chronic fatigue, but as long as the doctors have ruled everything out, and they have treated the virus, and they say you're good to go, all the principles I teach on my channel should work. What happens is the stress from the virus pushes you over your stress threshold, but even after the virus is gone, your body is left in a hyper sensitive state. So essentially, we need to retrain it to shift back to its default "balanced mode" so it functions normally again, vs. being stuck in sympathetic overload with tons of neurological symptoms. Lots of people have recovered, have a listen to this playlist: kzfaq.info/sun/PLJT8-UVmfsmJxDAQkExwlWxQzcITzpmmC

@KrishOP123 2 жыл бұрын

Plz make a video on diet.

@cfsrecovery 2 жыл бұрын

Diet didn't apply to my recovery so it wouldn't be a great video lol. I've shared stuff about diet on a few live facebook calls though!

@LearnLuganda 2 жыл бұрын

Hey Miguel, do you think your fatigue and inability to walk was also psychosomatic?

@cfsrecovery 2 жыл бұрын

For sure, they were definitely related to the somatic symptoms. It's important to remember that when referring to somatic symptoms, it doesn't mean the symptoms aren't real. The pain is real, the feelings are real, they are just amplified exponentially by the mind. I think the somatic symptoms caused my nervous system to go into such a bad downward spiral my body literally lost it's sense of baseline. My nervous system was just going haywire. So it started with somatic symptoms which then led to real problems within my body. At least that's my understanding of it, I could be wrong!

@LearnLuganda 2 жыл бұрын

@@cfsrecovery Yes I agree :) I too think my nervous system including neurotransmitters and hormones are completely out of whack and need to re-balance themselves :)

@ezza1236 Жыл бұрын

Can anxiety also affect blood pressure, did you get that during youre worst times

@cfsrecovery Жыл бұрын

kzfaq.info/get/bejne/mtiWlNKZ0Lm6pZ8.html

@Sigge2017 Жыл бұрын

Hi now I have watched the video that you recommended. good video! But it says nothing about the root cause. Anxiety and panic attacks have a cause. Perfectionism also has a cause. over analysis also has a reason. what do you think ?

@cfsrecovery Жыл бұрын

Everyone has a different root cause, it depends what stresses you out. That stress will be different for everybody so you need to find what that root cause is for you, but this video teaches you the mechanism of what's going on. When you understand the mechanism / how things work, you just have to tweak some of the variables and remove stressors, whatever they may be for you

@phoebeclarke3427 2 жыл бұрын

Miguel, how did pots recover?

@cfsrecovery 2 жыл бұрын

😀

@niwtahcardnas9644 Жыл бұрын

What if you don't know if you have cfs and what if it ends up its not? Can this still be beneficial? I do struggle with anxiety/depression so I'm thinking worst case scenario it could help with that. I've had lots of tests but still unsure as to what it is. The best thing they could give me was gal bladder but I got my gal removed and still feel like garbage. I've had all kinds of test with no diagnosis so I'm on my own at this point.

@cfsrecovery Жыл бұрын

Most of the time its a process of elimination. If every single blood test comes back normal and you’re still having unexplainable symptoms and fatigue then that was personally my key indicator that something was up.

@niwtahcardnas9644 Жыл бұрын

@@cfsrecovery I had the basic testing/scans done but not everything, im sure testing could go on for an eternity with all the possible diseases out there and my anxiety capitalizes on that. How do you get comfortable your doctor ruled everything out?

@roborandy 11 ай бұрын

Does this apply to recovering from Long Covid? I feel like a lot of the symptoms align, but also wonder about the inflammation, micro clots, etc. that are more unique to Covid.

@cfsrecovery 11 ай бұрын

Yes, many of the strategies and principles discussed in the video can apply to recovering from long Covid as well. While long Covid has some unique aspects, there are also overlapping symptoms and underlying dysregulation of the nervous system. By focusing on restoring balance to the nervous system, addressing stress and anxiety, implementing pacing and self-care strategies, and making gradual progress in activity levels, you can support your recovery from long Covid. We've had lots of success stories with individuals recovering from long Covid in our CFS Recovery Jumpstart Program with the strategies we share. Remember that everyone's journey is unique, so it's essential to listen to your body and adapt the strategies to your specific needs.

@tanyawieczorek6603 2 ай бұрын

I'm recovering from LC too. Two bouts of bloody covid. How are you doing now?

@lukedelpriore359 2 жыл бұрын

I’ve been ruled out for pretty much everything I do have very chronic OCD And had some bad anxiety in the past However I don’t suffer panic attacks I’m more on the side of Constant thought as to why I feel symptoms. Could this be CFS? Am I a candidate for brain retraining

@cfsrecovery 2 жыл бұрын

Hey Luke, 100% this sounds like CFS and you should do brain retraining. If you've ruled out everything else aside from the OCD / Anxiety then that's what's keeping your nervous system in a constant state of stress. Based on that, I think the approach I teach can definitely help you recover.

@tomsale5142 5 ай бұрын

@@cfsrecoveryOCD from 3 from the asperger's

@AlbertMora-mi9tm 10 ай бұрын

Hey Miguel, 3 months ago I drank two C4 energy drinks on an empty stomach. I was at work and get called to a meeting with my supervisor, I begin to panic because I’m a new hire.. I start power walking to the room the meeting was taking place. When I sat down I started feeling dizzy.. I then experienced my first panic attack. I felt like I was going to die. Till this day I don’t feel normal.. I get drained very easily. I feel like fainting(dizzy,lightheaded) I get exhausted even for talking loud.. Though, resting and getting a lot of sleep does help me feel better.. When I went to the hospital my doctor found a stomach infection Helicobacter Pylori. But I don’t think that’s what’s causing my symptoms(?) .. Do you think I have CFS?

@AlbertMora-mi9tm 10 ай бұрын

Any help would be greatly appreciated!

@cfsrecovery 10 ай бұрын

Thank you for reaching out. I would love to help you out. I always recommend going through the questionnaire and if you qualify, booking a strategy call to see if you're a good fit for the program! www.cfsrecovery.co/apply. Looking forward to connecting with you!

@tanyawieczorek6603 2 ай бұрын

How are you doing now?

@itsme2222 2 жыл бұрын

I'm from India plz tell me your country and hospital name sir where u were taking medicine

@cfsrecovery 2 жыл бұрын

Hi, I was at Richmond General Hospital in British Columbia, Canada

@elainehewitt6813 8 күн бұрын

What about if one is getting worse and worse with more odd symptoms and doing all the work?

@cfsrecovery Күн бұрын

A lot of the symptoms you don't need to do anything, you just need to leave them be and they go away on their own! Have a look at these videos to get a better understanding of what's going on and how the body is trying to recalibrate itself. kzfaq.info/get/bejne/kJtyl5mmssXTh3k.html Also, here's a playlist I created that will help you deal with symptoms if you're looking for more info on specifics: kzfaq.info/sun/PLJT8-UVmfsmKHgGkCQPKkmHgZL11LqvJa

@shellquinn3673 9 ай бұрын

I have EDS,POTS and fibromyalgia. I have physical symptoms that have no relation to anxiety. Whilst there is a correlation between anxiety and physical symptoms for some people. It can’t be assumed it is a cause of all the conditions you list. In my case it is not. Eds is genetic, fibromyalgia from traumatic child birth operation, pots (a fault in my autonomic system linked to EDS) where I was diagnosed on a tilt table test after passing out. Anxiety did not cause me to faint on the tile table. Being upright and my blood pooling caused it. It takes a lot to battle against people assuming symptoms are all in your head when you have invisible conditions. I think we have to be careful when linking mental health symptoms the cause of physical symptoms. Whilst I can help my symptoms through various protocols like physical therapy . I cannot cure them. mental health symptoms such as anxiety has the potential to be cured for some people

@HUGEFLYINGWHALE 7 ай бұрын

I agree. Your symptoms are not psychosomatic.. unfortunately

@ezza1236 Жыл бұрын

Eliminate strerrors let you’re body recover then gradually start challenging mental and physical activity. In a nutshell

@cfsrecovery Жыл бұрын

Yes

@tomsale5142 10 ай бұрын

Is it working

@HUGEFLYINGWHALE 7 ай бұрын

You can't eliminate stressors while having the disease because the disease itself is pretty much the greatest stressor imaginable.

@Molliefreya 2 жыл бұрын

This makes so much sense - however what is a bit.. I don't know, discouraging or what ever is, I didn't really have anxiety before CFS. And I don't have anxiety for the most part with CFS either. I think it can be counted on one hand how many anxiety attacks I have had in the past 4 years.. So.. I feel like the anxiety loop doesn't really apply for me, and then I'm like okay.. What's it for me then?

@cfsrecovery 2 жыл бұрын

Hi Zoey, interesting, so you only have the physical symptoms but you don't feel anxious about them?

@cfsrecovery 2 жыл бұрын

How long do you think you've had CFS for?

@Molliefreya 2 жыл бұрын

@@cfsrecovery I would say probably it started oktober last year - got really intense around january

@Molliefreya 2 жыл бұрын

@@cfsrecovery Thank you for asking and caring :) My symptoms are "just" extreme fatigue, brainfod a little bit of headaches on and off. Not that I NEVER get sad or anxious about the whole thing. Like it happens every once in a while that a thought comes up like "what if I don't get better" - but I would say 90% of the time, I am able to rewire that thought after a quick cry 🙈 I have had anxiety before, like years ago - and that was BAD. I don't feel like I have the same experience now.

@FreshAgenda Жыл бұрын

Anxiety is sneaky. Ask yourself how often during the day do you think about your symptoms? How much time do you spend looking at videos and googling about it? This is stress on the nervous system that most people don't consider. If you didn't have any concern over your symptoms you wouldn't have watched the video... thus thing feeds itself if you let it and you won't even realize it.

@CLYDEINVENTOR 9 ай бұрын

Does Celiac Disease contribute to this

@cfsrecovery 9 ай бұрын

Have a look at these videos to get a better understanding of what's going on and how the body is trying to recalibrate itself. kzfaq.info/get/bejne/kJtyl5mmssXTh3k.html Also, here's a playlist I created that will help you deal with symptoms if you're looking for more info on specifics: kzfaq.info/sun/PLJT8-UVmfsmKHgGkCQPKkmHgZL11LqvJa

@avamihalik7531 8 ай бұрын

Must read Breaking the Habit of Being Yourself by Dr.Joe Dispensa, The Power of Now by Eckhart Tolle, and Wired for Healing by Annie Hopper all three saved my life!

@cfsrecovery 8 ай бұрын

Thanks for sharing 😊

@HUGEFLYINGWHALE 7 ай бұрын

Hey, how exactly did they save your life?

@cathyjennings5580 2 ай бұрын

Burdened with FATIGUE MISERY EXHAUSTED 24/7 😮😢

@cfsrecovery 2 ай бұрын

I totally understand. Please check this link. I hope it helps! kzfaq.info/get/bejne/j59dgrt1lbC-dXk.htmlsi=l3jXbOHXCEE62OOY

@pitivierbag6825 2 жыл бұрын

Different for everyone i guess. I have fibromyalgya and very severe cfs. But im not stressed or anxious. My eyes always hurt and half closed due to the severe fatigue. I can barely stand on myself at 31 years old. I tried anti depressant but after a week i stopped as not much pain improvement and being more a zombie. i wake up tired no matter what. Plus trinitus and many shit in my body. No mind trick gonna make me normal again. I keep trying things to get better. So far only keto diet gave me 30% less pain. Sadly still extreme fatigue. Deep inside i feel something like fight mode is on. So no matter how much i sleep my body wont relax. Next steep is massive B1 ammount that i ordered. I eat as much as i want. I have a loving gf. I cant do much more to get better. I need to "unlock" something physicaly stuck. I just have to keep trying différents things and hope something will work.

@cfsrecovery 2 жыл бұрын

Hey Pitivier. That sounds rough man. I wouldn't say "no mind trick is gonna make me normal again" though. That kind of thinking will keep you from getting better, and I know it seems impossible but never count yourself out from things that may help you. I know you said you're not stressed or anxious, but you also said that your body won't relax / you feel like fight mode is on. Have you listened / read the book "The brain's way of healing" ? Because in that book they talk about people who lived with pain for 10+ years and recovered with the brain exercise. If you have listened to it, have you tried the brain retraining exercise? (I also made other videos about it)

@pitivierbag6825 2 жыл бұрын

@@cfsrecovery hello. I did not yet but i will give a try. Some other talk about it. I will also order the book and watch all your videos. I hope to come back here with improvement. :)

@cfsrecovery 2 жыл бұрын

@@pitivierbag6825 Definitely give it a listen / read through it brother! Best of luck

@djVania08 2 жыл бұрын

@@pitivierbag6825 Any progress? how long have you been ill?

@kellysmith-may6889 Жыл бұрын

I feel exactly the same as you pitivier bag..its the unrefreshed sleep that is causing all this! I have long covid.mecfs prob fibro aswell as I hurt all over..I feel like my fight or flight is always on no matter if I relax or what..how does the unrefreshed sleep get better? 6 months now and I'm seriously thinking of ending things!! bedridden

@micheledevilliers3474 Жыл бұрын

👏👏👏👏👏👏👏👏👏👏👏

@cfsrecovery Жыл бұрын

🙌🏻

@metalphobos3632 2 жыл бұрын

The one thing I completely disagree with is that once the panic attack hits you have no control. Definitely untrue. Before I started with limbic training I learned control through deep breathing or limbic breathing and visualisations. Both of these can bring your body back into a state of calm. It helped me immensely. The lie that anxiety tells you is that you don't have control, which is not true. It's all a limbic system trick and it can be rewired.

@cfsrecovery 2 жыл бұрын

I agree with you that you can definitely bring your body back into a state of calm. What I'm trying to say is if people let the anxiety get to the point of a panic attack, they will no longer be in control when that panic attack hits. Could be 5 seconds, could be 30 seconds, could be a full minute. But when that adrenaline dumps in your body and your heart is pumping, and your fight or flight mode is triggered to the max, then there's literally nothing you can do except wait out that wave of panic and adrenaline. Afterwards, you can definitely calm you system down by doing the things you mention.

@metalphobos3632 2 жыл бұрын

But that's not the same as being out of control or not having control. The feeling makes you think you're out of control, when actually you do have control. Yes, the feeling is overwhelming, but its a lie. You're actually in full control, you just have to know how to shift the brain loop. Remember, this is all limbic. You proved it yourself. Its a false message and nothing more. BTW, glad you recovered. Its great to see. Im doing retraining myself.

@amgnico 2 жыл бұрын

Thanks I think this will help me. I'm always in control!

@francescavisca8241 4 ай бұрын

I never had panic attacks. Does that mean I can’t have CFS?

@cfsrecovery 4 ай бұрын

@francescavisca8241 4 ай бұрын

@@cfsrecovery thank you!

@cfsrecovery 4 ай бұрын

@@francescavisca8241 you’re welcome!

@santeenl Жыл бұрын

What’s the difference between what you had and adrenal fatigue/burnout?

@cfsrecovery Жыл бұрын

adrenal fatigue is actually very rare. Yes, my cortisol tests came back low (just like with adrenal fatigue) but it was a symptom of my nervous system and not actual adrenal fatigue. After I recovered my levels all normalized.

@santeenl Жыл бұрын

@@cfsrecovery hm alright, thanks! With your stress levels and anxiety the story looks like a typical burnout, CFS can come in random and people have really painful arms and legs? Anyways, the name doesn’t matter. Did you have brain fog, off balance, light feeling in your head and all?

@HUGEFLYINGWHALE 7 ай бұрын

@@santeenlthis guy probably does not believe cfs is curable, just like you😅

@santeenl 7 ай бұрын

@@HUGEFLYINGWHALE huh, cfs is curable 100%.

@HUGEFLYINGWHALE 7 ай бұрын

@@santeenl what makes you believe that? I'm really asking.

@phoebeclarke3427 2 жыл бұрын

Me again!,!Could you please devote a bit more time to brain retraining, and where might I look? Can’t thank you enough for the free bee,your a champion! And caring and loving,I only wish more were!!

@cfsrecovery 2 жыл бұрын

I posted multiple videos about brain retraining on my KZfaq channel, just check my channel!

@phoebeclarke3427 2 жыл бұрын

So Pots sort of cured itself ,during the process ?

@cfsrecovery 2 жыл бұрын

Yup, thats right

@morningwithgracie7870 2 жыл бұрын

@@cfsrecovery are u officially diagnosed of pots? Or it is anxiety? Cause pots is always high hertrate...esp standing n wsalking..

@jsquire5pa Жыл бұрын

@@morningwithgracie7870 you’re not understanding… the mind can cause physical symptoms. Just because there are real measurable physical symptoms that does not mean it is not created by the mind

@HUGEFLYINGWHALE 7 ай бұрын

@@jsquire5pathe mind doesn't cause these symptoms my friend. I'm sorry.

@jsquire5pa 7 ай бұрын

@@HUGEFLYINGWHALE probably not in toto but I promise you this is just not completely understood .. we just don’t know definitely

@iamthefiremanjj Жыл бұрын

Ssris were horrible for me tbh

@booksinbed Жыл бұрын

It makes me uncomfortable that he lists POTS on the thumbnail but wrote in a comment here that he was never diagnosed with POTS, even though he was checked for it.

@cfsrecovery Жыл бұрын

I said pots symptoms in the thumbnail

@booksinbed Жыл бұрын

@@cfsrecovery I'm sorry, when I read the thumbnail I read it like "How I cured my severe (CFS/fibro/POTS) symptoms" rather than "(CFS), (fibro), and (POTS symptoms)". It reads to me like the word 'symptoms' applies to all three conditions listed, and I didn't expect POTS to be separate. If it isn't too rude to ask, why do you consider your previous symptoms to be POTS symptoms if you were checked for POTS and found negative?

@HUGEFLYINGWHALE 7 ай бұрын

@@booksinbedbecause he also wants money from people suffering with pots

@quiltednestvintage6347 2 жыл бұрын

it sounds like the underlying issue is really anxiety and not CFS or POTS... can you clarify? Also - sounds like meds and a Psychiatrist were very needed for healing..... (Which makes total sense) Am I understanding properly?

@cfsrecovery 2 жыл бұрын

Hi. No, anxiety was not the underlying issue. The real underlying issues were all the stressors that I was putting on my body which then led to anxiety and anxiety then led to symptoms. For me and how extreme my situation was I definitely needed the medication to get myself out of the hole, however some people don’t need medication.

@Star5dg 2 жыл бұрын

Anxiety is clearly one of the many conditions or symptoms that are potentially part of cfs. I for one has sevsre anxiety and chronic fatigue syndrome and Ehlers-Danlos syndrome. Although my genetic condition deteriorates lack of collagen stretchy lax skin etc I know for a fact I speed up this degenerative process with extreme fight or flight anxiety etc

@peterpoterstein6686 2 жыл бұрын

@@Star5dg Hi unknown stranger from the internet here. I recently stumbled upon Dr Hauser in Chicago. Not sure if you know him, if you don't then check out his videos. All the best for you!

@morningwithgracie7870 2 жыл бұрын

I also agree with it.. Maybe u have anxiety not pots and cfs

@Star5dg 2 жыл бұрын

@@morningwithgracie7870 as in me? I have sevsre cfs I can't work or exercise. Can anxiety cause this?

@denisebraisby4251 Ай бұрын

I have had a stressful life but the straw that broke the camels back was the COVID vaccine. I was highly stressed and grieving when I had it. It basically poured petrol on the fire

@cfsrecovery Ай бұрын

May I ask what symptoms you may be struggling with ATM?

@ezza1236 2 жыл бұрын

So you did have cfs and fibro ?

@cfsrecovery 2 жыл бұрын

Call it panic disorder, somatic dysfunction, cfs, fibromyalgia, it’s all pretty much identical. I was diagnosed with the first two but they’re exactly the same as cfs and fibro. Don’t get caught up in the names of these things at the end of the day it is a nervous system disorder for 99.9% of people experiencing all this. Unless you have other underlying health conditions, it’s a nervous system issue

@ezza1236 2 жыл бұрын

@@cfsrecovery I feel like I have the exact same personality type as you too! I have lived like this my whole life, I wish I had known that these traits could lead to this, but hey it’s not our fault, this almost forces you to make positivie changes

@djVania08 2 жыл бұрын

@@cfsrecovery I am not really sure that panic disorder is the same as CFS. I get the part with sensitive nervous system. But people with MS have sensitive nervous system too, yet it isn't panic disorder. Dunno man. I'm glad you've got your life back and I'm envious for sure too, but I don't think you can bundle up all these together. If that would work, people would be getting better left and right. Even your positive reaction to ADs (I'm glad they helped) but that's really not what most people with CFS experience. ADs usually don't make any major difference in their symptoms, even though they might help calming down the NS. I speak from experience

@hiperboreanwolf8022 2 жыл бұрын

@@cfsrecovery what a bunch of BS. Fibromyalgia is a small fiber polineuropathy and if the autonomic nerve system is also damaged it leads to POTS. Treatment is removing autoantibodies from blood who attack the small nerves. You didnt had ME and iFibro

@Justusson Жыл бұрын

@@cfsrecovery When you say panic disorder, somatic dysfunction, ME/CFS are the same - do you actually mean it or was that written in haste? With covid and long covid (PACS) research has been intensified in finding the cause and come quite much further lately. It’s quite unanimous that retroviruses has got a _Great_ deal to it. HERV-K, EBV, Herpes - at least one have been seen to be present in all cases. Let alone all the gut imbalances where bacterias are missing that should be there to hinder inflammation in the brain and the neurological system, along with even a faulty gene that has been seen missing in 100% of all ME/CFS patients, but not in control groups. And the antibodies that attaches itself to the blood vessel’s walls, hindering them to contract - basically causing POTS. There’s a _plethora_ of imbalances which none of them can be attributed to anxiety. They may be worsened by it, but you tend to focus quite a lot on primarily anxiety as a root cause and not another symptom. Whether I you meant it as such or not I do not know. But if that’s the case, I think you’re doing ME/CFS a humongous disservice. Now, I don’t know - as I wrote above - perhaps this was written in haste and wasn’t intended as such. I agree with the different stressors on the body and where it at one point goes overboard. For me - that’s just another symptom and stressor. But in the case of ME/CFS, anxiety is not the root cause nor is it the same whatsoever. I just wanted to make that clear.

@elainehewitt6813 9 күн бұрын

I would argue the missing link here is childhood trauma. What was perceived as a child will still hold as an adult. An adult will react to life as he/she did as a child until and unless there is either deep self awareness or some other type of long term intervention. And then there’s the “shame” issue which will create symptoms later in life as an adult for seemingly no apparent reason. Welcome to my world!

@cfsrecovery Күн бұрын

Thank you for sharing! Please check this link. I hope it helps! kzfaq.info/get/bejne/esiGZ6qArN23c4E.htmlsi=lCfR94CnvZ5XsEmx