Huntington's disease: A family tragedy

Рет қаралды 223,892

15 жыл бұрын

Huntington's disease is an inherited neurological disorder with devastating physical and psychological symptoms that escalate in the years between diagnosis and death. Huntington's most often strikes at midlife - in many cases, without warning. Most people with the disease die by age 60, usually from complications like infections, choking or falls. Huntington's has shattered the lives, homes and plans of three generations of the Eby family, leaving behind a nearly unrecognizable new reality. Read more: lancasteronline.com/article/lo...

Пікірлер: 175

@roisinnishe7533 7 жыл бұрын

this man is what every husband and father should strive to be. this is love.

@antoniochiappetta4833 2 жыл бұрын

Amen

@StudentDoc1000 10 жыл бұрын

You can really see the depth of anguish in this man's eyes and speech. You have to be one strong individual to go through what he is going through. I wish him and his family the best. Keep them in your prayers

@ladylaois8184 2 жыл бұрын

I saw that to. Great comment

@mauramcferran2612 Жыл бұрын

Heartbreaking wife and daughter 💔😥

@SamEsss 6 жыл бұрын

What an absolutely beautiful man...a true gentleman. His soul is so full and his capacity to love and care for his wife and daughter with such dedication and positivity is so amazing. I can’t wish the best for him enough, I truly hope anything that he can possibly be blessed with and needs, he receives. I’m so sorry such a thing has happened to such a good family.

@jenniferbragg3576 10 жыл бұрын

You are a great Man! A angel on earth! Thank you for being YOU!

@ThekAbinger 12 жыл бұрын

I'm 15, my mum was diagnosed with this last year. It's absolutely heartbreaking.

@amgranillo 10 жыл бұрын

What a great man! I can't stop my self from getting emotional over this because I see the hurt in his eyes. He is such a strong man and I wish him and his family nothing short of the BEST... May this cure come quickly so others can continue a healthy life

@lucyb3457 6 жыл бұрын

Aw that poor man. You can see him fighting those tears. God bless him and his family

@agnieszkas7238 3 жыл бұрын

11 years on and there's still no cure. I'm so terribly sorry for what this man and his family are going through.

@beatrixbrennan1545 Жыл бұрын

My friend did the trial to help the physical symptoms and no difference. She is starting the trial for the psychological symptoms next. We shall see. Time is running out. She is already in the mid to late stages.

@skyyeo2858 9 жыл бұрын

What a GREAT man! May God bless you and your wife.

@John-jd3nr 8 жыл бұрын

he is such a great man and such dedication. Best wishes to you

@kabookalilshawty1 11 жыл бұрын

He is SOOOOOO sweet! he stayed with his wife! that's so amazing he truly meant "in sickness and in health" that's true love! hats off to you man!

@cesargallardoii6188 2 жыл бұрын

This should be the the cow story that Channing and Rachel should have played

@bezagebremedhine5102 2 жыл бұрын

Indeed. May God bless his soul❤✝️

@wendyqallab6906 Жыл бұрын

So tragic Mother and daughter.

@loribosch157 11 жыл бұрын

My dad, sister and I took care of my mother for 11 years. Her movements reminded me of this cute wife. My mom loved the fish tanks as well. Now my niece is taking care of my brother, who also is HD positive along with MS. He will be 59 next month. My mother faced this awful disease with grace, beauty and wisdom, telling everyone she met " We all have something and this is my something". I was lucky enough to be with her when she passed away. She donated her body to the U of U med for research.

@nancywright9115 8 жыл бұрын

he is a wonderful man!!!

@maggie121741 14 жыл бұрын

You are a remarkable Husband/Father/Caregiver. My Father passed away almost 8 years ago from HD. I have lost Uncles,Cousins,so many to mention. I watch your face and see how Hd has touched you and I am so proud that you are there for your family. NEVER give up hope. The cure will be founds. The Smiles have touched myheart.

@N33kswife 9 жыл бұрын

There is a special place in heaven for you

@John-jd3nr 8 жыл бұрын

why is that?

@N33kswife 8 жыл бұрын

Because he is actually honoring his vows. What he is doing is what any woman would hope her husband has the strength to give her if she were in the same situation

@Atleastihavemydog 6 жыл бұрын

True love is a beautiful thing.

@blossomtheminipugg7866 2 жыл бұрын

Yes that guy is really a good husband. Amen!

@brillig1492 10 жыл бұрын

You are an amazing man, Ray. Bless you for your devotion.

@cassyfries8280 10 жыл бұрын

Thank you for sharing your story. You are a wonderful husband and father. Truely an inspiration...

@danieldevito6380 2 жыл бұрын

It's BEYOND cruel to have children if you know you either have Huntington's or a high chance of developing it. It's selfish and INCREDIBLY cruel.

@poppyfield1619 11 ай бұрын

Bless that loving man for doing everything he can to support his wife and daughter. Now that is true love.❤❤❤

@josephpinto5305 17 күн бұрын

Another med student here. This man is amazing... I wish i could express myself better, but truly a beautiful soul.

@UNDERSILENCEful 10 жыл бұрын

You are an Earth Angel Sir!I hope ALL your hopes and dreams come true for you and your family

@esanrodriguez99er 9 жыл бұрын

This is painful, I found this video by researching on HD.. My father is a victim of this disease, and it is very horrific. He's 39 and a alcoholic.. I hope and pray they find the cure soon

@mansinagpal9167 7 жыл бұрын

Disсоvеr Hоw tо Cure Candida Infеctiоn Аt Аnу Аgе, Evеn If You’ve Тriеd Еvеrything Аnd Nоthing Hаs Evеr Wоrkеd Fоr You BеfоrеCliсk Hеrе -->twitter.com/ab7c2fc6cdbd6bb20/status/784262969735516160 Huntingtоn s disеasе А fаmilу traagеdу

@gekkiedehaan2226 2 жыл бұрын

Is he still alive?

@MyratheDunmer 10 жыл бұрын

There are no words for how strong this man is. I am utterly humbled by him.

@jasonmarchione9981 7 жыл бұрын

This man is a saint

@NoobFay7onlynerdsrreal 7 жыл бұрын

Тhе Оnlу Hоlistiс Sуstem In Ехistееnсе Тhаt Will Shоw Yоu Hоw То Cure Yоur Yееаst Infесtion, Еliminatе Cаndidа Rеlаtеd Sуmрtоms аnd Rеgаin Yооoоur Nаturаl Innеr Balаnсе -->twitter.com/e8789d6dea5185253/status/784262969735516160 Huntingtоn s disеasе А fаmilу trаgеdу

@r2pantokrator 13 жыл бұрын

Im a med school student researching on HD, and this man is a great inspiration not on ly on how to face HD but towards life itself, thank you wonderful man God bless you , and may him allow more people and myself be like you

@akhan246 11 жыл бұрын

thank you for posting this... it helps me, a future physician, understand this disease better and how it profoundly affects patients

@cynthiarollins3949 Жыл бұрын

How precious is that man💞

@evelyncraft1361 Жыл бұрын

What a kind, sweet husband.

@michellex333 14 жыл бұрын

God bless you call. this just makes me so sad watching this. i wouldn't be strong enough to get through the whole interview without crying.

@TopFloorEricc 4 жыл бұрын

What an incredibly strong man. I admire people like him. The way he manages to give his family hope and happiness is amazing. God bless him and his family.

@MultiMarkthespark 5 жыл бұрын

My wife was diagnosed in 2014 at 44 years old, your patience and kindness is inspirational.

@taylorscott7402 3 жыл бұрын

4 years ago I was diagnosed of HUNTINGTON DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including HUNTINGTON DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an HUNTINGTON DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from HUNTINGTON DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....

@KgirlHasTheWits 12 жыл бұрын

Wow, what an amazing person. Mr. Eby is so loyal and caring in the face of tragedy. Truly a hero. People who are absorbed in the frivolous aspects of life should watch this video and learn from it.

@sandraw61 14 жыл бұрын

thank you so much for shareing this with us, my dad died with hd and we all had to be so strong, you are wonderfull man.

@taylorscott7402 3 жыл бұрын

@TheTomphson 13 жыл бұрын

Thank you.

@juliapark5133 Жыл бұрын

Devastating disease. What a truly wonderful man 😢😢😢😢

@Milliex0x0 12 жыл бұрын

I`ve takin care of my sibilings and now their childern. I agree it is the hardest job. The comment of she would have missed meals if you weren`t there for her is so true......... May God watch over you. Thank you for staying with her and for sharing this, people need to see it.

@silviewijaya 12 жыл бұрын

Sir, you such a great person with a compassionate heart.. I pray for you and your family.. God bless you

@KissMyBiscuits 10 жыл бұрын

A truly devastating illness! I hope a cure is found soon!

@John-jd3nr 8 жыл бұрын

it's not a disease, it's part of someone DNA so sadly (as far as I aware) it can't be cured. hope I am wrong though

@ladyjane2001us 13 жыл бұрын

What a role model. You and your family are in my prayers.

@frangipang1955 13 жыл бұрын

you are a truly remarkable man, my father,aunt,3 cousins,great grandmother,uncle, have all died of it and now my darling brother Cliff has it. he is the only one of seven children. thank you for your compassion and love for your family, an example to us all.

@jillscherer6008 7 жыл бұрын

You both are so precious. My mom passed a few years ago with Huntingdon She was 92. I believe a cure is on the horizon.

@Phunny 7 жыл бұрын

Well. A lot of people in this world can't even live up to that age healthy TBH.

@MrZer000 4 жыл бұрын

@@Phunny yea but they dont spend their last 30-50 years in a painful struggle...

@undocumentedspot 12 жыл бұрын

He has an amazing positive attitude. inspiring.

@Travisk22211 13 жыл бұрын

Your an amazing man, God bless you

@BCAD01 13 жыл бұрын

You're a good man! God bless you!

@kisakutie351 13 жыл бұрын

God bless you and your family, and all you have been through.

@johnpaulwalker2818 9 ай бұрын

My grandmother, my mother, and my sister died from Huntington's disease. My cousin had Huntington's, and I have not seen her since as she didn't want me to go through it again. My two nieces have Huntington's. It's a terrible illness for everyone involved. does not get as much press as cancer but is just as bad.

@XyloMan24 13 жыл бұрын

My Grandfather has this Horrid disease as does two of my aunts and my Grandmother reminds me of this man Taking care of an HD patient is no easy job. and i'm sending him my deepest prayers and love.

@gppoem3344 Жыл бұрын

That’s a husband with a heart of gold. 💙

@girlsdontp00p 11 жыл бұрын

this made me teary eyed

@funtime2022 13 жыл бұрын

god bless you sir, you have inspired all of us.

@francislight5053 6 жыл бұрын

The love this man has for his wife is something I have no words for. He is truly someone special in this strange existence we are in.

@wotsgonon1 13 жыл бұрын

this guy ,,,,,,i have no words bless him

@gorillashop337 13 жыл бұрын

God Bless your family

@MrVonFlockenstuffen 13 жыл бұрын

Very impressive! Wish you all the best during this difficult time, in which you still find the energy to put a smile on your face and to take care of your wife. A perfect example of how love should be.

@Anastashya 6 жыл бұрын

You are such a special Angel on earth. ❤️

@eveluvzrain10 2 жыл бұрын

What a lovely kind hearted man 😔💜💜💜

@GNDhigg 11 жыл бұрын

Wow. I wish I could have only a fraction of his cheer and optimism.

@rochegen 11 жыл бұрын

Such a devoted husband and dad to spend the time he does with his wife and daughter. Watching this you can see his pain however masked thru cheer to not only have to be there for his beautiful wife but daughter as well! It is common for HD patients to go hungry if there loved ones are not there to help with assisting with meal times. As wife of a Huntington's man and we do take our marriage vows seriously and we are here for a long time as well as the good times... He is such a wonderful man!

@ayecii 14 жыл бұрын

sigh this is so sad he's got such a wonderful attitude and he's such a good husband and father he seems so tortured inside.. :(

@ibuprofenPill 9 ай бұрын

An old friend of mine is in late stage Huntington’s. She’s been in long-term care for 6 years. She’s slowly wasting away and in full chorea. She’s only 58 and it’s so sad. She’s always happy to see us and we her. This is a woman who loved whitewater kayaking, mountain biking and camping. She’s on drug therapy which is extending her life but we know we’ll get the call sooner or later. This is a cruel disease.

@jenwhitehead4092 2 жыл бұрын

dear God what a terrible disease. Absolutely heartbreaking x

@lorrainemctigue7521 7 жыл бұрын

God bless you.

@FatBabiesWithAids 12 жыл бұрын

my dad has this and its hard to deal with

@ISAG2424 5 жыл бұрын

The day they get to heaven, I'm thinking their praises will be the loudest of all! What love. God shows through this man how we're all supposed to act and feel. What a blessing he/she have been given. Amen.

@justinboy08 13 жыл бұрын

My family has it to Pop Mum already past away now two more of my family are getting sick . its horrible having this in the back of your mind. good to see someone doing the right thing

@ladylaois8184 2 жыл бұрын

I was a RMN in the 1976 onwards! I was working in a Psychiatric hospital. We had a lovely young mum who my self being very young, felt she was not in the right care.

@ireneyoung8696 2 жыл бұрын

What an absolutely wonderful man.Others run away but he has stuck with his wife through thick and thin.It is love.

@Marzipana1 12 жыл бұрын

This is especially hard as you should have your mother caring for you - not the other way around. You have to be so strong and give her all your love but please don't forget yourself. Don't suffer alone, talk to somebody - maybe a teacher you trust. That's often more helpful than talking to family or close friends.

@dotedupondoggies 5 жыл бұрын

This man is such an Angel!

@idiotic-db8ed 7 жыл бұрын

God bless this man. He will go to heaven. I can tell he has a good heart.

@nybaby40 11 жыл бұрын

poor thing, bless his heart.. what a gentle soul.

@bigalsnel4467 8 жыл бұрын

I have had been diagnosed 5 year's ago my dad and my daughters have morning to do with my any more because of my disability but you have to look on the bright side but some days I'm broken inside

@richieslimbach 8 жыл бұрын

Your inner strength will help you. My mother , grandmother, and uncle died from this disease from hell itself. I was fortunate that I did not get the disease, but if I had children, each child would have a 50-50 chance of getting it. Thats one reason I did not have children. My father and I visited my mother at a state hospital for the mentally ill because back in the 60's nursing homes would not accept HD patients. My mother lived with HD for 10 years, and pneumonia ended her life. She never complained to God, and sometimes fell on the street going to church. I know that she is in paradise now. My father also is there also. Please stay strong BigAl Snel. I will say a prayer for you.

@OSCmedia1992 7 жыл бұрын

Richard Schlimbach if you didn't inherit the illness, there is no way you can pass it on to offspring. You yourself would have to have it because it doesn't skip a generation, its inherited by affected parent

@richieslimbach 7 жыл бұрын

Thank you MacDaddyKO for your comments. I watched a documentary and I was shocked that I was wrong all these years. I always thought that every child has a 50-50 chance of getting the disease, but I did not know that if you don't inherit the disease, the children would not get the gene. I don't know when they started testing for the disease, but at my age of 65 now, it would be pointless to get tested because the days of having children are over (never married anyway). Oh well, I was cheated in many ways that one in this life time, so there is no sense of complaining anymore about anything. If I were younger, I would NOT be tested. If positive, it can ruin your life. Being a homosexual, I never had to worry about having children in the first place, but if I were heterosexual, I surely would have made a tremendous error in my false information.

@me-xx2gl 4 жыл бұрын

Yes, it is inherited in a direct line. Grandma had it. Her son did not get the gene. Her daughter did. Daughter had children and both have the gene. Son had children and his kids will not get the gene. The 50/50 thing means each child of someone with the gene has a fifty percent chance of getting the gene. With each child there are the same odds. A family can have all children or none of them get the gene. Good luck to you. I hope you dodged the bullet

@patriciathegreat 11 жыл бұрын

Imagine the person you love the most... mom or dad or bf or gf... getting this... It would be the hardest thing to live with. My parents died when I was young from cancer. It sucks.

@datgurlkeisha 12 жыл бұрын

i love that sticking by her sad. god bless her and their family

@epickup08 2 ай бұрын

What a sweet man...😍

@TheBadbowman 13 жыл бұрын

This man is about the kindest man I've ever seen, I hope he goes to heaven. Good luck with your problem, I wish you the best of the greatest luck Sir!

@leonidlerner1381 Жыл бұрын

What a lovely man.

@sandymuddy5766 4 жыл бұрын

This was posted in 2008, should not take this long to start clinical trials, my friend lost his wife, son & daughter 2007, 2017,2019 so what the hell is going on with this gene therapy blocker 10 years later?! 🙄

@karsoccerbug1 14 жыл бұрын

God bless him.... I wouldnt be able to smile if my dad that bad...sadly my dad has this and its getting really bad

@andreasingermiller 13 жыл бұрын

My Dad and brother and I all have HD.....

@georginasmith441 6 жыл бұрын

lovely man - tragic disease

@texastea5686 7 жыл бұрын

amazing and loyal husband!

@SmoldyCinema 13 жыл бұрын

@corsoluvs exactly what I was thinking. Its nice to see that there are normal individuals who still comment on youtube. That man is amazing

@cyprsz 6 жыл бұрын

My grandmother recently died from Huntington’s disease

@Bumblybee256 13 жыл бұрын

I don't think anyone's saying they can reverse the brain damage caused, it's pretty heart wrenching that he thinks it's a possibility..

@schizoartsyaprilflowers9379 Жыл бұрын

Reality can be cruel. Sadly. 😥

@skeptigal2785 Жыл бұрын

I don't think he was really counting on it. The interviewer asked the question, and he couldn't say, "No, I'm not hoping for a cure!" But he's clearly a very positive and cheerful man; bless him!

@archangelraguel1145 5 жыл бұрын

how long is life expectancy for a person with huntingtons if the onset of disease is 20 years old.

@skeptigal2785 Жыл бұрын

The course of the disease is 15-20 years, so 40 in that case.

@hellomyfriends9740 2 жыл бұрын

This was very hard to watch.

@ChappuSafana Ай бұрын

Same problem help me pls

@beatrixbrennan1545 Жыл бұрын

Both mom and daughter passed away in 2013. They were both Christians so they are in heaven together, free from this wretched disease, in total peace.

@francisthomlinson9062 Жыл бұрын

Amen

@BamBamsDance 12 жыл бұрын

Through tradegy, he still is positive and loving. a lesson to us all.

@annmariechinn106 2 жыл бұрын

My father had Huntington's disease he was one of six he was the only one that came down with it we don't know about the others heart disease it was hot enough family My poor Dad I just couldn't remember that scared looking his eyes

@annmariechinn106 2 жыл бұрын

We did not find out my father had Huntington's until he died when they did the brain autopsy he was in the third stages of Huntington's but no one is family came down with it it's still a mystery and my poor dad suffered

@jancallaway8498 2 жыл бұрын

What acaring lovely man

@nanatrout5656 11 жыл бұрын

Good luck to this family.

@csaknyorisz 13 жыл бұрын

we have a family history my mom died like this

@szqsk8 11 жыл бұрын

God bless that man's soul, he's one in a million. A lot of husbands wouldn't stick around (and a lot of wives either) to see something like this through. This disease is just insidious.

@danieldevito6380 2 жыл бұрын

Taub is the most underrated character on the show. I think he's the 3rd best character, behind House and Wilson.