No video
I Met 200 Other People With Tourette's 😅 *TicFest 2023*
Рет қаралды 21,642
Күн бұрынI went to Tic Fest 2023! This was such a fun and fulfilling experience ✨
i’m pretty sure 90% of this vlog is me laughing my head off, so i hope it’s fun to watch for you guys too! 🤣
it was such a fun and hilarious day, but also very exhausting and did cause quite a backlash with health issues when i got home ❤️
being around so many other people with tics can be overwhelming, but it's so powerful to be surrounded by people who are going through similar things, and being in an environment where you never have to suppress your tics is AMAZING!!
if you’d like information on Tourette’s Action’s events or about the charity (UK based) then click here! 👇🏻
www.tourettes-...
- TIMESTAMPS✨
00:00 - intro
01:04 - journey in the snowstorm
01:41 - feelings before going in
03:13 - funny/embarrassing tic moment
04:03 - photo booth fun!
05:26 - giant wire buzzer VS tourettes
06:37 - 360º video machine
07:41 - carnival games
08:46 - chewlery making workshop
11:16 - hook a duck + tic storytime
11:51 - update & struggling
13:11 - dance workshop!
14:19 - festive love ❤️
15:45 - leaving the event
16:09 - haul!
16:40 - outro
don't forget to subscribe! ♡
-------------------------------
⭐️ instagram ▹ / zara.bethx
⭐️ all socials ▹ linktr.ee/zara...
⭐️ discord server ▹ / discord
BUSINESS EMAIL ▹ enquiries@zarabeth.co.uk
-------------------------------
⭐️ become a channel member ▹ www.youtube.co...
⭐️ stream my music ▹ distrokid.com/....
⭐️ where i get my music (1 month free!) ▹ share.epidemic....
or
app.hellothema...
-------------------------------
⭐️ FAQs ▹
1.What conditions do I have?
‣ I have Tourette's Syndrome, FND and orthostatic hypotension along with some mental health disorders.
2. How old are you?
‣ 18
3. What is FND? 🧠
‣ fndhope.org/fn...
4. What is Tourette's?
‣ www.cdc.gov/nc....
5. What do I use to edit videos? 🖥️
‣ Final Cut Pro X
6. What filming equipment do I use? 📸
‣ main camera - amzn.to/3MW7v8w
‣ tripod - amzn.to/3P7G8Ly
‣ vlogging camera - amzn.to/42CBQ1G
‣ mic - amzn.to/3qD5gjg
‣ wireless mics - amzn.to/3X2RxOE
⭐️ KZfaq Setup + Equipment ▹ amzn.to/42QmxCN
⭐️ Recommended Products ▹ amzn.to/41wXJPX
(not sponsored! but these are af links so i make a cut from any purchases💕)
-------------------------------
My name is Zara Beth (zeezee25 on tiktok) and I post videos about disability, chronic illness, neurodiversity and what it’s like living with Tourette's Syndrome, Functional Neurological Disorder (FND) and Orthostatic Hypotension. Tourette's syndrome is a neurological condition causing involuntary movements called tics.
I use my social media (TikTok, KZfaq and Instagram) to advocate and raise awareness for my conditions and show what it is like living with a disability as a neurodivergent person.
I am also autistic and share my sensory struggles along with my experiences with mental health disorders.
I show what its like having a disability and the accomodations I have to help my daily life. I am also an ambulatory wheelchair user showing my life using mobility aids and how symptoms change from day to day!
I am also a musician with a popular song called "She's Mine" available on all streaming services - I wrote, produced, mixed and mastered all my songs myself! I am also an artist and a writer. I love reading and I'm currently writing a novel and a book about my life!
@Zara_Beth 7 ай бұрын
also, if you didn't know already... i have a discord server! 🩷 & UPCOMING EVENT! 👇🏻👇🏻👇🏻 scroll for more info :) its a safe space for tics, neurodivergent people, LGBTQ+ and anybody who wants to make friends/game/ask questions or for health advice :) we have moderators keeping all the chats safe and as positive as possible, and they're always willing to answer questions or help out it's a super lovely welcoming space and i've met some of my best friends through that space!! OKAY SO EVENT?! we're doing an online Tics & Tourette's meetup 🥳 i'm hosting an online space (in voice chat, camera will be optional) for people with tics and tourette's to meet other people, make friends, ask questions and just get to know other people in the community 💖 it's on *Sunday 7th January at 5pm GMT* and will be hosted in my discord server, & if anybody wants to ask me any questions or say hi then that's an opportunity too as i'll be there! ✨ you can join my discord server (either just to chat or for the event!) below 👇🏻 discord.gg/8M2utHJ7?event=1184130099277222018
@teganpope7235 7 ай бұрын
You help me so much so I have autism and when I feel nervous I just watch your video and it help me sooooooo much😊😊
@EliEatsGlass 7 ай бұрын
I love your server so much! Its so nice to be around people who also have tics! I have made so many friends thanks to your server! Im super excited for the event and a bit nervous! Thanks for doing what you do! You have helped me come to peace with my condition just by being you!
@Gigibeen02 7 ай бұрын
I’m just curious but how safe is discord with your info
@Zara_Beth 7 ай бұрын
I think it's pretty safe! I've never had any issues with them as a platform, and you can use a username to protect your identity and keep anonymous in public spaces :) @@Gigibeen02
@Gigibeen02 7 ай бұрын
@@Zara_Beth thank you!
@wdwerker 7 ай бұрын
Thank you for bringing us along to see the entertaining chaos of Tourette’s triggering each other’s tic’s ! I can understand it being a bit stressful but being part of a group and knowing you are not alone has to be comforting somehow.
@rahyrarpg1600 4 ай бұрын
I was diagnosed with a Motor Tic disorder as a young child, and I was diagnosed as adult 3 months ago (aged 31M), I struggled a lot socially while growing up, never really being able to hold more than 1 or 2 friends at a time. None of which I find I could be truly myself around (albeit my best friend, I can). I've been watching your videos and it really fills my heart to see the generation of teens & young adults below me being so accepting of each other and being unapologetically themselves, not feeling terrified of "outing" yourself as neurodivergent or having a Tic disorder. While I mourn what I could have had if the world was a bit more friendly and accepting if I were born 10 years later than I was. I love to see what social media can do you everyone nowadays, its so much easier to connect with likeminded people and find your crowd, to feel accepted. I myself have even managed to find a discord group with people just like me, which I know might sound like a silly statement, but it wasn't until 6months ago, I didn't think I could.
@DarkHeresy77 7 ай бұрын
@Jade-ms6oy 3 ай бұрын
Whait sensory overload is an ADHD symptom??? I was diagnosed with ADHD 2 years ago and I recently started having times where how I was feeling seemed similar to sensory overload…
@naomiparsons462 Күн бұрын
@@Jade-ms6oy Yes - sensory issues in ADHD and autism can cause sensory overload
@Jade-ms6oy Күн бұрын
@@naomiparsons462 ohhh ok thanks
@Idun.bunnyy 7 ай бұрын
Hi! You are my favorite youtuber! You make me so happy! As an autistic person who also has ADHD, OCD and anxiety and I might have tourettes, I am so happy that more neurodivergent people are sharing their experiences. You are amazing! I hope you have a great day! Love from the Åland islands in finland! ❤🏳️🌈 also you are very beautiful!
@rocketgirlygirl8658 7 ай бұрын
Absolutely loved this video, I also peaked a new pin on your lanyard and I absolutely loved it! I’ve always been nervous to wear my sunflower lanyard since it doesn’t seem as popular/accepted in the United States, so seeing someone I relate to being courageous enough to wear pins/lanyards to advocate for their health makes me hopeful that I can do it some day. Hope you have a happy new year and happy holidays! 💛💛
@Zara_Beth 7 ай бұрын
🥹🫶
@user-tl1jh3qz5q 2 ай бұрын
This made me confident, I'm getting assessed for autism soon, and I sometimes am not able to speak for myself in overwhelming situations, so I was looking into the lanyards, but felt a bit nervous as well❤
@user-cl9tw1lh5x 7 ай бұрын
hii, i just wanted to say how much i appreciate your content: how chill it is and how honest too. As a Neurotypical person i find this content so eye opening and educating because no one ever really talks about Tourette's and neurodivergent people and how much harder their life is. So thanks xx (also i have seen in some videos your dungarees, where do you get them?)
@Zara_Beth 7 ай бұрын
my dungas are all from Lucy & Yak! 💖
@LauraProvenzano-zg3dt 7 ай бұрын
I just want to say thank you Zara for everything that you do and I hope you have a great new year. Love you. And also, I hope you can make a lot more music because your voice is like an angel. Love, Laura. Please pin by the way. ❤️❤️❤️❤️
@LauraProvenzano-zg3dt 7 ай бұрын
The one person with the Heartstopper tic is a legend
@GopherM 7 ай бұрын
My level is super low...I can't applaud you enough for the brave face you put forth to the world. While it is painful to watch what you endure I love the way you work your way through life. Keep moving forward and set the example for the rest of us no matter what level we exhibit.
@alannagray5474 7 ай бұрын
Thank you for sharing!! Loved seeing your mom have so much fun with you. The laughter and smiles are the best!
@xvsj-s2x 7 ай бұрын
Thank you for sharing this moment! Happy New Years 🎉
@sophylophy9332 7 ай бұрын
YES! One last vlog for the year! IM SO HAPPY!
@agmaiocplayer3 7 ай бұрын
13:22 You so easily could've plugged your song there but didn't. What a humble person!
@Zara_Beth 7 ай бұрын
honestly i just didn't think of that🤣
@vonHartstein 7 ай бұрын
That must have been an interesting event, it seemed to be quite a lovely and friendly atmosphere. Anyway, I wish you, and your family, a happy New Year's Eve!
@jacobbyford-rew2051 7 ай бұрын
That looked so fun, loved the last vlog of 2023. Happy new year❤
@illuminatedslug 7 ай бұрын
as someone with tourette’s i don’t rly get why you went to this. i feel like my tics would get violent like, fast lol. but im glad u had fun!!
@thedancinggymnast 6 ай бұрын
Same. I don't think that I could cope with that many people ticcing. I haven't really had tics for a few years now, at least prolonged or noticeable ones but I can feel some urges watching these videos. It's mad.
@WeAreThePerfectStorm 6 ай бұрын
I love the replacement music so much more for the dance. What a beautiful gathering had me smiling whole time
@bumbabees 6 ай бұрын
is that a jiji bag? its so cute!! i adore kikis delivery service. got my own little jiji plush im looking at right now ^°^
@ellieroberts5032 7 ай бұрын
Thank you for sharing this Zara your doing amazing also your mum is an actual icon . Thank you for sharing this looks amazing
@ZadenZane 7 ай бұрын
Oh I love it!! PS I never said this under the appropriate videos but some of your supply teachers at school really do need educating!!
@Zara_Beth 7 ай бұрын
i think i know which video you're referring to, if so then they were! the headteacher was informed and i never saw them again 🫶
@random-demon 7 ай бұрын
Happy New Year! Thanks for sharing :) Seeing you and your mom laughing and having fun together was so sweet ❤ And I love your converse!
@tourettesteen222 6 ай бұрын
Omg I love this video so much and I love your channel and you have helped and are helping me get through my tic journey
@emmynother1164 7 ай бұрын
It looks like so much fun! I can't wait for the TAA online event coming up soon! As a person with Tourette's, this is so nice to see other people who get what it means to have TS.
@marleybucy2605 7 ай бұрын
Happy New Year! I love the morning routine, I’ve always been such a fan of daily routines (though they make mine look sad haha) ❤❤
@Zara_Beth 7 ай бұрын
every routine is different!!
@henryhehman8015 7 ай бұрын
Your videos are amazing. As a 20 something man with autism these videos help me a lot. Thank you.
@cat48thia 7 ай бұрын
Your mum is the bestest 😁 keep up all the awesomeness ❤
@maurozanchetta648 7 ай бұрын
So lovely and so fun, my heart melted! Happy new year, Zara!
@Chrissy.boyyyt 6 ай бұрын
I have adhd and sometimes i can do stuff like u do. Its very annoying because i dont want to. But i just gotta calm down. I hope ur life is going GREAT. Ur amazing and dont let Anyone push u down from doing what u want to. Ur also very beautiful❤
@veezer9414 7 ай бұрын
Omg I absolutely love your dinosaur snuggie at the begining!
@secretchannelyippee 7 ай бұрын
HAPPY NEW YEAR ZARA! Love you so much! You have no idea how inspiring you are for me. I love watching your videos about Tourette's because it helps me not feel so alone. (yes, i have tourette's) Thank you so much for being you! ❤❤❤❤❤❤❤❤❤❤❤❤❤
@paulthomas1052 7 ай бұрын
Great film as always - look forward to more in 2024 - wish you and your family and friends a Happy New Year xx
@Mileslikesgreen 4 ай бұрын
0:35 it's giving... My grandad💀 is excuse for anything is "sudocrem!" 😭
@1lovechuuu 3 ай бұрын
0:35 i have the same cream, it works like a charm! i also recommend it
@x_sophia_x3744 7 ай бұрын
Happy New year in advance Zara! I hope next year is an amazing year and you feel better! ❤
@kodieee_suxks 7 ай бұрын
HEY ZARA HAPPY NYE !! I HOPE YOU HAVE A WONDERFUL 2024 !
@shelbearman1435 7 ай бұрын
Hi I’m so excited to watch this video I have been waiting all day
@EllaAnderson-zb5iq 7 ай бұрын
Love you Zara happy new year!!!!❤️♾🫵
@teganpope7235 7 ай бұрын
I love your videos so much ❤❤😊😊
@belleknight6030 7 ай бұрын
Thank u for everything and happy hew years🎉🎉🎉❤❤🎉
@user-us4nw6qo9s 7 ай бұрын
I’m so glad to se this video, every time you post it makes my day 🫶
@jeanz638 7 ай бұрын
this is awesome vlog also i thought your dancing was great!
@shelbearman1435 7 ай бұрын
Ong I love the Photo Booth pictures❤
@mariaandresfernandez5456 7 ай бұрын
Happy New Year Zara 😊
@daverave40 7 ай бұрын
Happy New year zara hope you have a good one x
@dabronxbomber9383 6 ай бұрын
You and your mother are quite adorable. I just love her Elton John glasses 😂
@Ikhouvanpaarden 7 ай бұрын
Happy new year!😊
@E-MCH8 7 ай бұрын
Thanks love your videos
@Futureurmom 7 ай бұрын
Hello Zara! I am 13 and I'm dealing with motor tics. Do you have any tips on how to cope? (Also my neck is really soar from ticing)
@Zara_Beth 7 ай бұрын
heat packs, music to help reduce tics, microwavable heat bags which you can wear round your shoulders are a lifesaver too!
@Futureurmom 7 ай бұрын
@@Zara_Beth Thank you so much!!
@Alaylap 7 ай бұрын
Happy new year❤
@Sage_art303 3 ай бұрын
Hey Zara, I've been a bit confused because I make these like noises that I can't control they just come out and these quivers and movements that I can't control and I don't know what it is but I thought you are the right person to ask because you've got Tourettes😊
@_dazai_soukoku 7 ай бұрын
Yep this made me cry. I would love to go to one of these so bad. To be accepted sounds amazing
@simphiwembali2937 7 ай бұрын
I genuinely love you with those cute tiks❤
@SylXStar 2 ай бұрын
Have you gone a full day without tics before? It’s almost impossible to go even 1 hour without tics and it pisses me off so much
@ShyKnitter92 25 күн бұрын
Where did you get the pins on your lanyard?
@IzzyS94 7 ай бұрын
Hi, my cousin has Tourette’s and she lives in the UK. You are an amazing person and I love your videos. ❤
@Kapplerartbloomingdale 7 ай бұрын
This event looks like fun. I wish that I could have been there.
@mariaandresfernandez5456 7 ай бұрын
You and your mum in the photo booth i can't hahahahahahaahaha love you guyss
@Zara_Beth 7 ай бұрын
it was so funny! 🤣
@mariaandresfernandez5456 7 ай бұрын
@@Zara_Beth it definitely look fun lol and thank you for answering the comment 😊 i hope you have a wonderful night!
@mariaandresfernandez5456 7 ай бұрын
@@Zara_Beth also i will definitely watch that part on repeat later hahaha your mum seems so lovely! I hope you do more videos with her :)
@lillie808 7 ай бұрын
That just shows you not alone
@Zara_Beth 7 ай бұрын
indeed ❤
@sarvaepc 6 ай бұрын
Ooh now I wish there was an event for people with OCD or social anxiety
@MidsommarPrincess 6 ай бұрын
Where did you get your pink jacket? It's so cute!
@joancotsios5764 7 ай бұрын
Ur videos are so entertaining can you make a vlog one please
@Black25284 7 ай бұрын
Happy new year 🎉🎊🥳
@teganpope7235 7 ай бұрын
Your sooooooo nice and you have a smile on you face ❤❤😊😊
@junenovae 7 ай бұрын
I was there ! It was so much fun.
@filizmely 7 ай бұрын
Hey, I love your awareness content! Just wanted to let you know that I found the music put over the dance class footage a bit anxiety inducing. Maybe it's just me and of course everything can be a trigger but I'm not triggered easily by music so maybe I'm not the only one so I just wanted to let you know so you have this insight to take into consideration for future videos. Also I try very hard to not make this sound like negativity but rather constructive critisism but English is not my first language so if it comes across rude please know it wasnt meant to be!
@Cheddar-the-Chaos-Editor 7 ай бұрын
First of all you have so many pillows Second of all MY SISTER HAS THE SAME DINO OODIE I HOPE YOU HAD FUN
@TypicalWhiteAsianBoy 7 ай бұрын
That's amazing 🎉❤
@Robinlover1234 3 ай бұрын
11:53 scared me so I thought it was my cat😭
@Robinlover1234 Ай бұрын
BRO A COUPLE MONTHS LATER I DID IT AGAIN😂😂
@EllieClaydon 27 күн бұрын
What town do you live in?
@frisk6355 7 ай бұрын
I respect you really much
@Clorox790 6 ай бұрын
I have ADHD and during class i have to mess with things and have i have to take medicine and when i don't tske it i act cRaZy 😖
@Flickit100 7 ай бұрын
TicFest, such a sweet name.
@teganpope7235 7 ай бұрын
Zara please can you post a video I miss them 😢😢
@Zara_Beth 7 ай бұрын
i post every week on Sundays 5pm
@E-MCH8 7 ай бұрын
You love pandas ❤. I do to. I don’t have Tourette’s but I have pans/pandas and that’s why I love pandas. And I have the same stuffy
@E-MCH8 7 ай бұрын
Oh and I have this weird thing where I say hm very quickly. But I don’t think it’s Tourette’s
@reunitingetal1327 7 ай бұрын
@@E-MCH8PANDAS can cause tics so if you have PANDAS then it would be causing that, not Tourettes. You can have tics without it being Tourettes
@ranjanbhattarai 2 ай бұрын
I have a panda stuffy to
@mellohighh 7 ай бұрын
where did you get your pins? id love to get similar ones!!
@Zara_Beth 7 ай бұрын
i made them!! 🙈 sneak peak into 2024 shop plans..?!
@mellohighh 7 ай бұрын
@@Zara_Beth OMGGG?
@mellohighh 7 ай бұрын
@@Zara_Beth i hope if u sell them they ship to ireland :0
@demonslayerfan 7 ай бұрын
@zara Beth I have that same dinosaur snoodie
@Alaylap 7 ай бұрын
Last vid 2023 2024?? Loads more vids plus!😂
@SpacyTheCat 7 ай бұрын
❤❤❤
@jonbowlerbowler7366 7 ай бұрын
Happy New Year 🎈🎆🎊 Zara Beth
@jonbowlerbowler7366 7 ай бұрын
Hay Zara Beth Can I Ask You A Question Please
@jonbowlerbowler7366 7 ай бұрын
Hay Zara Beth Can I Ask You A Question Please
@laurengaunt600 5 ай бұрын
I also have Tourettes and 7 others
@usamarafieck1715 7 ай бұрын
I like strawberry.
@antoniod 7 ай бұрын
Is there a Tourette's dating site?
@Zara_Beth 7 ай бұрын
not that i know of 🤣
@S.SaulGoodman 7 ай бұрын
Are u Jess's sister?
@Zara_Beth 7 ай бұрын
no, but we're best friends 🫶🏻
@S.SaulGoodman 7 ай бұрын
@@Zara_Beth I got u!, Thanks for answering
@thekaratekidpartii2169 7 ай бұрын
Ha, you sneezed like a little guinea pig.
@philrealedits 7 ай бұрын
Second
@teganpope7235 7 ай бұрын
are you ok because you hit your head😊😊
@satansalley6526 7 ай бұрын
Fun vid.All the best to you and your family in 2024.
@GRCTECH7 7 ай бұрын
@D.Guitar 7 ай бұрын
This was Fun. Thanks for having us Along 😻😉♀️✨🦚🌕🌹🎭🏳️🌈💋
@Black25284 7 ай бұрын
Happy new year 🎉🎊🥳
@demonslayerfan 7 ай бұрын
@zara Beth I have that same dinosaur snoodie
LADbible TV
Рет қаралды 7 МЛН