Intracranial Hypotension

Рет қаралды 3,318

Donia Lindo

7 жыл бұрын

My story so far

Пікірлер: 12

@ektaavlogs 4 жыл бұрын

God bless you❤ It's terrible condition this video deserves more!

@ThePhoenixstar88 5 жыл бұрын

Thank you for sharing your story! I hope you are well now 💓💓💓

@salisburyplain998 4 жыл бұрын

Im currently suffering with the same thing,just came on out of the blue at 56yrs old ,been in hospital for 10 days ,several MRI scans no leak found so at the moment they wont do a blood patch,im drinking 6 pints of fluid with caffine tablets and complete bed rest but its not showing signs of going any time soon,good luck I hope you find a way through it.

@wildann9415 Жыл бұрын

How are you now mr/mrs Salisbury?

@salisburyplain998 Жыл бұрын

@@wildann9415 Thankfully very well ,eventually they did a blood patch and I was home the next day and back at work two weeks later but it took about three months for my hearing to stop distorting and my neck to stop hurting and the headache to go ,I'm now left with permanent hearing loss and ringing in my ears plus my eyesight was effected ,I now have to wear glasses but apart from the above I'm back riding in mountain bike races and training for this seasons races ,fingers crossed it continues.

@wildann9415 Жыл бұрын

@@salisburyplain998 I wish the best for you. Today we have been informed that our little sister may have this disease. We got so depressed. Thank you for your answer. It really helped, I wish you a healthy and safe life away from all diseases.

@AmberMcQuaker Жыл бұрын

I'm currently on my 2nd episode of intracranial hypotension in 1 year. It's no joke when you say it's excruciating, I've had migraines my whole life, but this is 100 times worse. The only thing that helps me is Dilaudid (10x stronger than morphine), Toradol and laying flat. Even with meds, it's still agony. I wouldn't wish this on anyone. I hope you're able to find something to fix this, or at least relieve the pain, for you.

@marianaguillory6554 Жыл бұрын

Have you tried caffeine pills?