What is Spinal CSF Leak? - Spotlight on Migraine S4:Ep11

Рет қаралды 9,309

Күн бұрын

Spinal CSF leak may be misdiagnosed as migraine but they are very different conditions. A patient and a provider give details on what Spinal CSF leak is, what it is like to live with, and how it can be treated.
*The contents of this podcast are intended for general informational purposes only and does not constitute professional medical advice, diagnosis, or treatment. Always seek the advice of a physician or other qualified health provider with any questions you may have regarding a medical condition. AMD and the speaker do not recommend or endorse any specific course of treatment, products, procedures, opinions, or other information that may be mentioned. Reliance on any information provided by this content is solely at your own risk.

Пікірлер: 15

@theseventh5204 Жыл бұрын

CSF leak is a horrific condition that comes out of nowhere and takes your life away until you're able to get the tear fixed. Dr's are not trained in the condition so it's up to you to figure out. They need to change the wording as its horrendous HEAD PAIN, NOT a 'headache'. Extremely disabling. More support is needed for sufferers.

@rondawatterson7872 3 ай бұрын

I am going through this now. I’m unable to stand or sit up

@EdVonBoeckman Жыл бұрын

Thanks for sharing! Very helpful.

@dmedlin8118 2 жыл бұрын

This is great info, but Mayo Rochester declined my referral due to lack of appointment slots, to try and figure out why my "migraine" has some symptoms that don't fit migraine and for which all migraine therapies tried have failed. So, again, great info to know, but in the end, of no value to me--I get to remain in daily hell with no help in sight. This is a shame as Mayo's campus is close by where I live and I'd have to travel several days to get to Stanford, Duke, or UT Southwestern. I share a lot of the symptoms the woman in the video had, though, so I can relate.

@Truerealism747 10 ай бұрын

Do you have pain but not in the head for me upper body

@Rapunzel808 9 ай бұрын

IF inHawaiiget out! 2 mds assaulted me refusing to take action with appropriate testing castle hosp Queens what is Pacific health.

@wayneripley2721 Жыл бұрын

I have a large tarlov cyst @ S2, It is suspected that my CSF puts pressure on my cyst when upright causing it to expand and reducing the amount of fluid around my brain to lessen. I don't have a CSF leak. My Neurosurgeon says this is the first time he has seen anything like this.

@camillerodriguez5161 Жыл бұрын

Hope things have gotten better for you Wayne.

@user-oe9se5il1n 6 ай бұрын

Did your ears end up getting better with the sound sensivity?

@farahlazarre8423 3 ай бұрын

I was told that I had chiari malformation and needed decompression surgery. I had the surgery and it fixed absolutely nothing. In fact, I think it made everything worse. Now I’m told that I have low pressure of the brain. I’m dizzy, often with lower back pain. Pressure or congestion in my head. Muscle fatigue and weakness. Headaches often brought on by laughter. Insomnia. Sometimes woken up by vertigo. I’ve had a blood patch. It helped for a week. Does anyone feel like I do? Looking for help.

@gvillarreal79 Жыл бұрын

Can you fully recover from this? Will deal with symptoms forever? The reason i think i may have this is because if i get up i feel like 8m going to faint.

@Truerealism747 11 ай бұрын

Could be pots

@Rapunzel808 9 ай бұрын

Xoxo !tough few most don’t listen 2027-24 still battling dr.s misdiagnosis, cruelty

@Truerealism747 9 ай бұрын

@@Rapunzel808 does it cause pain in the body without headache I have heds which can be comorbid

@karprahar8975 Ай бұрын

I have csf leak by my nose and mouth some oil type liquid comes from past 2 years when I get up I get faint I feel my ears sound quality decreased even my brain x ray shows some liquid passing all over and cause maxillary sinustis but here in India doctors are so rude they not listen your talk and suggest medicine and what my life is hell now I lose intrest in everything day by day and going to s*ci*e soon....