Is it Possible to Recover from Myasthenia Gravis?

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Күн бұрын

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@AaronShaunBrennan 5 жыл бұрын

Hey Ross, I have had MG for over 20 years. I am now 45 and have become stronger than I was before my diagnoses. I lift weights and am stronger and more fit than 20 year olds. I do everything natural NO STEROIDS! I have a black belt in taekwondo and have done everything I have wanted. I was very weak when i first got MG but now I am doing so great. I want to write a book on healthy eating with MG or at least give a talk on it. I am a culinary grad from the CIA and would like to create a cookbook. I came across your channel. I wish you the very best! Above all faith is the most important thing in becoming stronger. Without Jesus I would not be where i am today. God bless.

@mgathlete1431 5 жыл бұрын

hey Aaron That's an awesome story. There's so much to like in your comment. Faith is the foundation of recovering for me. Where are you from? Maybe we can do a stream and you can tell your story. I am still getting into KZfaq, but interviewing and sharing other people MGs stories is something I would like to do, if you would want to?

@AaronShaunBrennan 5 жыл бұрын

@@mgathlete1431 Great to hear from you. I would like to talk to you more. I have only met two other people in my life with this disorder. It would be great to talk to you in the future about it. We can all learn from each other. Feel free to write to me anytime. My email is Aaronshaunbrennan@gmail.com I live in New Jersey at the moment. Sincerely, Aaron Brennan

@mgathlete1431 4 жыл бұрын

@@AaronShaunBrennan Definitely! I am glad you also did it naturally. There are a lot of people struggling more than they need to. Keen to chat to you about your story. I will email you when I have a plan on how we can do a stream.

@julieanncastuya1132 4 жыл бұрын

How can u treat your myasthenia pls.can u share it...i have also strugling until now..im taking prednison, imuran & mistinon until now...pls..can u share w/ me what u done it naturally

@mgathlete1431 4 жыл бұрын

@@julieanncastuya1132 Hi Raul. I'm going to do a detailed video in the next few weeks explaining what I did. But I changed my diet a lot, nothing processed, took certain supplements, and then changed jobs and where I lived to try removed as much stress as possible. slow process, but it worked.

@ziyazohra7081 3 жыл бұрын

I am also MG patient from India...i was diagnosed at age of 17 gone through thymectomy it was my worst experience, i was mentally depressed. Now i am 23 and doing well.....but sometimes i have to go through panic attacks mental stress....some people make fun of me because of my facial expression(face paralysis) and i have to tolerate all this....but i am doing my best....and i support all MG patient

@ziyazohra7081 3 жыл бұрын

@Shou Awasthi aap kaha se ho aur apki age??

@ziyazohra7081 3 жыл бұрын

@Shou Awasthi apko bi myastheniagravis h??

@ziyazohra7081 3 жыл бұрын

@Shou Awasthi bachpan se ta lekin diagnose late se hua

@ziyazohra7081 3 жыл бұрын

@Shou Awasthi mumbai se hu

@ziyazohra7081 3 жыл бұрын

@Shou Awasthi abi tk treatment chalu ni kiya h kya??? Davai chal ri hogi na

@hopeseun-bello7832 2 жыл бұрын

Hello I am Hope from Nigeria, I am a female 35 years. I have been diagnosed with Mayesthenia and Graves disease and also diabetesfor a little over a year now. Got diagnosed at the very worst stage as well, was disabled for some time but by the help of God I am back on my feet . Still trusting God for a full recovery. Keep doing what you are doing. The community needs it. Looking for ways to create awareness of the disease in this part of the world. Thank u and God bless you.

@sarahpalmer5122 4 ай бұрын

Thank you so much for creating this channel, Ross. I suddenly became very ill with MG at 27 years old with 2 young children. It was detrimental. I have the same convictions of you and have worked very hard to recover as naturally as possible. I rely heavily on mestinon fir function. I'm 3 years into MG and I'm slowly getting to where i want to be. Heavy metals and nutrition was huge piece for me. I'm also so thankful for the comment section in this video.. these testimonials are so much encouragement for me as someone who is praying and working towards recovery for sustainable health.

@tarynmg655 3 жыл бұрын

Hi, I have myasthenia gravis. I am 23, from NY, USA. I was just diagnosed with it at the end of August 2020. Luckily, I caught it early in time, so remission / prognosis is looking up (hopefully) . I have just started watching your videos, and I can't wait to hear about your recovery process. I am also planning on starting my own videos about MG thanks for inspiring me! I would like to hear more about your non-pharmalogical / surgical treatments that you have done, even with what foods you eat/avoid would be really helpful for me right now :)

@mgathlete1431 3 жыл бұрын

Hey Taryn I'm glad that you got a diagnosis early, and I hope you are doing better. If you start doing videos, we can do an interview session or something and chat about your experience and other MG things if you want? let me know

@tarynmg655 3 жыл бұрын

@@mgathlete1431 I would love to! My symptoms have improved greatly and I followed a lot of your advice on eating, limiting inflammatory substances, etc. I would love to share my story!

@veravero5715 2 жыл бұрын

Please let us now how are you doing and what is helping 🙏

@hemantdesai2413 2 жыл бұрын

Check your vitamin D Level if not good level then ask Doctor

@castielamossnow150 2 жыл бұрын

How can I get in touch with you … I aam from africa and I have all the symptoms

@reneeprasil6153 3 жыл бұрын

Thank you for sharing. "Giving up" is a temptation. We need reminders that it is not, however, an option.

@gabrielaperalta9947 4 жыл бұрын

Hello Ross. Thank you for being so candid. My 21 year old son was diagnosed last month (February 2020) and looking around KZfaq, I found your posts. We lived in Florida, USA. Thank you again.

@mgathlete1431 4 жыл бұрын

Hey Gabriela, sorry to hear about your son! One of the reasons I want to share is to encourage young people especially that there might be a way to overcome this illness. Sure it's not easy, but one doesn't have to follow the path that isn't working in my eyes. They can make their own path. I hope your son is doing okay!

@gabrielaperalta9947 4 жыл бұрын

MGAthlete Thank you Ross. He was started on prednisone 3 weeks ago and today he was finally able to open his eyes and keep them opened. His blurred vision is getting better as well. It has been hard since I am an RN and want to make sure the treatment given will not hurt my son in the long run. We are going to Bascom Palmer and are being seen by a neurologist-ophthalmologist. Please keep on posting. You are in my prayers.

@mgathlete1431 4 жыл бұрын

@@gabrielaperalta9947 thank you. All the best!

@RicoAndJodie 5 жыл бұрын

Well done Ross! Looking forward to what the future of the channel holds

@mgathlete1431 5 жыл бұрын

Thanks Rico. Thought about what you said about a FB page. Will get on that soon

@houseoffunnies 4 жыл бұрын

Awesome vid! 34 year old male here diagnosed with MG when I was 15 years old.. just wanted to show some love!

@mgathlete1431 4 жыл бұрын

Thanks David... That's a long time man. I hope you are doing well now!

@miarivel 3 жыл бұрын

Glad there is another you tuber spreading MG awareness. I too am trying to do the same with my channel. I was diagnosed in 2006, remission & medication free since 2017. Wishing you the very best on your journey 🙏🏻

@veravero5715 2 жыл бұрын

Please how?

@margaretchisolm7611 3 жыл бұрын

I have MG and Graves Also, it's extremely hard day to day, wonderful inspirational video, keeping you in my prayers

@ehinspections Жыл бұрын

Thank you for sharing your story Ross, you are a real hero! My Son's mom is 42 yo amd has all the symptoms of MG and it is affecting her breathing; do not know how she goes to work everyday.... Keep up your work, you are helping people, thank you!!

@evelyngallichan8412 5 жыл бұрын

Great job Ross!! It takes alot of courage and bravery to share such a journey. Thank you for doing so and I trust and pray it will bless others in whatever journey they may be facing and take inspiration, like I have, to step out and be bold, brave and courageous in sharing challenges in my life that I have overcome or even going through, even though it is not Myasthenia Gravis or a health issue. God bless you! Keep sharing!

@mgathlete1431 5 жыл бұрын

Evelyn Gallichan thank you for the support. I too trust that this is just the start and it will be a blessing for me and others!

@fridcabbarl4363 Жыл бұрын

Hello, my mom is myasthenia, can we contact with you? How did you recover?

@robertreese5915 3 жыл бұрын

Good to hear from someone that has been there or is there !

@louisebarker1 2 жыл бұрын

Hi Ross, I’m Louise from Port Orchard, WA. USA. I have just had my diagnosis of gMG.

@ettiennegerwel6616 5 жыл бұрын

Great Ross! Thanks for all your help. Thanks for the guidance and encouragement.

@mgathlete1431 5 жыл бұрын

Thanks so much Ettienne. Hope are doing well!

@carolinamaree1778 2 жыл бұрын

Thank you for your efforts. I've been hoping to make contact with MG sufferers, especially in South Africa. So little is known about the disease and I think info shared is so valuable and supportive.

@wildmusic4684 Жыл бұрын

Hi Ross. I have myasthenia gravis and graves disease and it's good to know that a support group is out there and you are sharing story. God bless 🙏 #Guyana

@bulldowg101 5 жыл бұрын

Congrats and well done for getting it up and going boet. We here for you and will be following!

@mgathlete1431 5 жыл бұрын

Thanks JB. First one is out the way! Keen for the next one

@deborarispoli 4 жыл бұрын

Hi Ross! Thanks for sharing I’m searching about MG because my father was diagnosed last week and i’m trying to help him We’re from São Paulo - Brasil 🇧🇷

@mgathlete1431 4 жыл бұрын

Hi Debora I hope you find good information and are able to help him limit his symptoms and enjoy his life. Let me know if I can assist with recommended information

@christiancarman4879 2 жыл бұрын

From the USA

@pameladentremont1104 3 жыл бұрын

Diagnosed at 73 New Zealand Very fit female. Wanting to know everything.

@christiancarman4879 2 жыл бұрын

Tu for being positive its dam hard sometimes

@deepaksingh2454 4 жыл бұрын

Being MG patient from india your vdo is inspirational one.with self believe and determination one can work within his limit.increasing the duration of work slowly.exercise and yoga help to gain muscular strength and lungs function.good luck brother

@mgathlete1431 4 жыл бұрын

Awesome man. Thanks for the comment. I think we can all encourage each other. The mental battle is a big part, and if one can control that, then work on diet and lifestyle I think improvements can be expected

@leg_megro185 4 жыл бұрын

Hi Deepak. This is Vivaan From India my mom is very ill With MG how did u get tested ? What meds are u on. The neurologist here are so clueless about MG please please help

@deepaksingh2454 4 жыл бұрын

@@leg_megro185 achr test has done and administrated with Gravitor 60 mg 4times Omnicortail 30 mg after breakfast Shelcal 500mg after dinner. Besides yoga and food will help.so

@leg_megro185 4 жыл бұрын

@@deepaksingh2454 Hi is it possible to have a call with you Are u from Delhi Mumbai MG is so rare here in India please can I have a word with you .

@leg_megro185 4 жыл бұрын

Deepak even if ur not comfortable talking Wanted to know some details of the causes. Did u do ivig ?

@cynthias2239 Жыл бұрын

Thank you for posting this. I’m newly diagnosed. I’ll watch the rest of your postings. I Live outside of Portland Oregon USA.

@ellenvink8479 2 жыл бұрын

I have MG and a thymoon behind my chestbone. I'm form the Netherlands.

@themysticmuse Жыл бұрын

Doc suspects this. Waiting on lab results. My arms!! OMG! Sooooo weak and chickeny. My eyes get tired and heavy. Blurred vision. No drooping or breathing trouble. Yet.🤔 Looking back, I've had symptoms for YEARS. I blamed them on another illness, vascular. I guess time will tell. These vids by actual patients, are so much more helpful and motivating, than the medical ones. I appreciate you, more than you could ever know. My goal is to fight this, and avoid drugs at all cost! I want my life back, dammit! And if anyone can do it, it's this girl!!👊💪🔥😘

@themysticmuse Жыл бұрын

I LOVE YOU.😁😊

@themysticmuse Жыл бұрын

You're an inspiration, my friend. You give me hope. THANK YOU!! 🙏🥰😘

@sakurafarris7511 4 жыл бұрын

This is really helpful to me. I’m not sure if this is what I have and at the beginning elimination stages... not rheumatoid, not myositis, not cervical issues... and next is this path. I’m so scared but this is helpful. It feels like my nasal cavity and jaw don’t work as well, and pills stack on my throat. But mostly I have weakness in my neck, shoulders, hips and arms hands, legs.. numbness too.

@mgathlete1431 4 жыл бұрын

I hope you get some answers soon!

@elenaandrew8414 2 жыл бұрын

Thanks

@ian_buck 5 жыл бұрын

Really great video Ross! Good introduction on what you've gone through and where you're going!

@mgathlete1431 5 жыл бұрын

Ian Buchanan thanks Ian Buck. I hope you don’t wait too long to start your channel 😉

@linacavallaro4066 2 жыл бұрын

Thank you for all the information. It is very helpful.

@christiancarman4879 2 жыл бұрын

I've had it fir 15 years its been up and down whole time go 6 months wanting to die to going onto remisdion loving life then going back out if remission its very hard

@moniquesamuels2841 4 жыл бұрын

Hey Ross I have had myasthenia gravis 19 years now and am now 22 and I am from Jamaica

@mgathlete1431 4 жыл бұрын

Hi Monique. Wow, you have had it from young. I am you are doing well!

@moniquesamuels2841 4 жыл бұрын

@@mgathlete1431 I have a little support from my family but because it's not common in Jamaica there is no support group

@darks9217 3 жыл бұрын

i also have myasthenia gravis btw

@Teenibash1969 3 жыл бұрын

I have gone through a lot in my life, and my motto has always been, “just get on with it”. I will deal with MG in the same way. I have occular MG, and I will do my best to improve my life and quality of life. If I can keep MG to a level that I can cope with, I hope I will be ok. I have a job I love in the emergency services which I will always do the best I can MG permitting.

@veravero5715 2 жыл бұрын

How are you doing?

@octaviahlungwani6628 3 жыл бұрын

I have been diagnosed with MG at Bara and I am still learning about the sickness and I don’t know of any support group of MG I am staying at Joburg south

@elhenespiritu4874 3 жыл бұрын

Hello :) Im from Philippines and im suffering from that sickness ,I have a myasthenia gravis at age of 22 ..

@mayaanda4919 2 жыл бұрын

Hi elhen im also diagnosed with MG after my operation with pyterigium in my right eye.

@totallycol 2 жыл бұрын

I've been diagnosed at 15 with Myasthenia (still am) and pretty sure I've had a lot of symptoms before diagnosis. I'm just really confused same with my family and we notice symtoms getting worse

@Aka-hz4xb 3 жыл бұрын

Hi i am 24 now . I have been suffering through MG for 2 years now. I had open heart surgery. But still not recovering totally. Please can anyone help me who has totally come out of this?🙏

@kanhaiyaraj9977 Жыл бұрын

Hey Ross Brother.. you are a super hero.. I am suffering with left eye ptotis at age of 8.. now I am 32 years old and When I went to Delhi AIIMs for treatment of ptotis, I came to know that minor double vision is being formed in that eye of mine. my musk is negative AChR antibody negative, cpk negative, chest ct thymous negative , EMG negative, RNSt negative, neostigmine test negative, but doctor me gravitar 60 mg three times , prednisolone dispersibe teb 20 mg once daily, azathiaoprine teb 50 mg once daily and shelcal HD ( calcium and vitamin d3) once daily I am taking medicine since three months but my problem is same. Please give some advice.

@nazrahsanjidah7207 Жыл бұрын

Konse doctor ko dikhaye??

@kanhaiyaraj9977 Жыл бұрын

@@nazrahsanjidah7207 aiims delhi

@nazrahsanjidah7207 Жыл бұрын

@@kanhaiyaraj9977 seronegative bi ho sakte ho agar achr + ya antimusk+ ni ho to

@kanhaiyaraj9977 Жыл бұрын

@@nazrahsanjidah7207 please iske bare me mujhe btaye main bahut preshan hu please

@nazrahsanjidah7207 Жыл бұрын

@@kanhaiyaraj9977 mujh se baat kr lo watsap pe

@shwyr03 3 жыл бұрын

I now can't walk fast or move quickly because it getting to my breath. I couldnt take breath like i lost my breath.... does nutrition will help it...? Im so scared when it progress to difficulty breathing...

@mgathlete1431 3 жыл бұрын

If you seem my video about top resources where I mention the online copy of an MG book, that is sort of the basis for my eating. Low polyunsaturated fat, lower phosphorus relative to calcium, more glycine/gelatin rich proteins over methionine proteins, and then getting manganese rich foods in too. I had a big focus on stress reduction in terms or diet (easier to digest foods), lifestyle (stopped studying and work for a bit), sleep/exercise/circadian rhythm (used to be awake at night a lot), and then relationships too

@Amreentaj-Taj 4 жыл бұрын

How did you get off steroids.iam suffering from myasthenia gravis from 5 years plz help me. I want to get off steroids

@mgathlete1431 4 жыл бұрын

I never went on the steroids. It was difficult in the beginning, and I couldn't really do much, but I wanted to try without them as long as I could and fortunately I started to improve and then didnt need them

@Amreentaj-Taj 4 жыл бұрын

@@mgathlete1431 Thank you for replying my comment. I wish to see more vedios on myasthenia gravis. What was ur diet and what supplements did u take.

@mgathlete1431 4 жыл бұрын

@@Amreentaj-Taj NO worries. I am currently working on videos about those 2 topics to give people more information on what I did/do.

@Amreentaj-Taj 4 жыл бұрын

@@mgathlete1431 thank you for replying my comment

@darks9217 3 жыл бұрын

I used to take steroids in myasthenia gravis but I slowly stopped and skipped at times and now I can go without steroids for 3 months or probably more.

@KarienDebruyn-k1w 19 күн бұрын

South africa got MG

@darks9217 3 жыл бұрын

When your myasthenia gravis whent to remission were u completley back to normal???

@hshanif3079 4 жыл бұрын

I am from Bangladesh saying brother help me I have been suffering from this disease for 1 year but did not do well. I am 18 years old Thymes Normal Anti Body Negative Please tell what to do as a groom's brother

@mgathlete1431 4 жыл бұрын

Can't say what you should do. I just keep learning and adjusting. Lowering stress in terms of foods, lifestyle and environment

@anumrizvi6362 4 жыл бұрын

I m ocular MG patient.. Can MG recover with medication treatment?? Because my doctor suggest me some medicine and I have been taking medicine for 6 months and I feel little bit improvement.. can it properly recover with medication treatment?? Plz reply plz plz

@mgathlete1431 3 жыл бұрын

I think a few people have improved with medication. I took medication for a while and am now fine without medication. So I definitely think its possible to recover, or at the least improve

@miarivel 3 жыл бұрын

Also remember that medication helps by supressing your symptoms. Its also beneficial to focus on nutrition & how your fueling your body & the tools your using to minimise stress. I was diagnosed with MG in 2006, remission & medication free since 2017. All the best.

@aldococai4865 3 жыл бұрын

@@miarivel do you have Facebook or something to chat please?

@leg_megro185 4 жыл бұрын

Hi ross I am desperate My.mom is so sick with MG Was it only diet??? Did u have Musk antibodies

@mgathlete1431 4 жыл бұрын

It's not diet only. It's figuring out what is stressing me out and trying to remove it. Diet is a big part, because if it's the 'wrong' foods, then that stress is adding a few times every day. But besides diet, work, sleep, sunlight, walking, mentally, spiritually are all important parts to get on top of to improve/recover

@leg_megro185 4 жыл бұрын

@@mgathlete1431 yes agree. She is on a strict plant based vegan diet The thing is she's isnt getting better like you Said ur Jaws were so weak ..to chew so is hers ..did that go away only with diet? You were on medication right? Did u go a IVIG..o am just eager to know did ur jaw muscles actually strengthen with only right foods and sunlight...isn't it the flushing of Antibodies that is most important.. Please explain sadly the neurologist here are so clueless ...about this rare condition

@leg_megro185 4 жыл бұрын

@@mgathlete1431 please reply .I am shattered to see my young 40 yrs old mom suffer...sad she's been an athlete and MG was actually induced thru a wrong medication...it turned out to be a side effect of an overdose of an strong Anti anxiety pill which was given by a nutty Indian doctor...

@mgathlete1431 4 жыл бұрын

I would try relax. It takes a long time to recover and to reverse. So everyone needs to be patient, learn as much as they can, make a plan and then try to execute that plan. A book called "the thymus, myasthenia gravis and manganese" is available online. That is the most useful information I can recommend. It doesn't improve overnight even with a perfect diet and lifestyle. I only took mestinon, but I focused on rest, recovery and making all my meals myself. I stopped university and work to recover.

@leg_megro185 4 жыл бұрын

@@mgathlete1431 wow so it's only Mestinon. And the change in life style. Ross why dont you pen down just like a short diet plan or is it's on some link of urs. Or is there like a strict diet book plan I can follow...the book you recommended does it have some diet tips..I have bought tons of MG books ...but they only only explain how one gets MG See your my inspiration. I am only 15 very traumatized to see my moms neck droop and jaws chest stomach muscles so immensely weak .please please just a few food tips you are like my savior now please guide me just for a few tips . And I know u even mentioned about something so basic like the use of toothpaste..please help me ross..I can't see my mom slip ..