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This world of illness honestly needs another Army of Dr. Bosters! # those with a Passion to Help in Health from the Heart!❤

I wish I had a neurologist like you.

I have severe neurological symptoms and yet all test results are normal.

When I asked a neurologist to please review my brain MRI h told me "NO, not MS," when I asked what could be causing my symptoms, the arrogant prick put his hand to his neck and said " I only work from here up"indicating the head, He brushed hs hands together to indicate he was washing his hands and walked out of the exam while I was still filling out my symptoms list on my admittance as if I were not a person, and he only agreed to look at my MRI. He never returned to the exam. I hate doctors

I'm about to give up asking about my symptoms. MRI normal, yet worsening tremors, tingling feet, weak legs, coordination off....yet no answers.

My diagnostic story is quite unique, I never bothered with the small symptoms, signs of MS, it wasn't until I was watching Sleepy Hollow by Tim Burton and I saw two headless horseman coming at me I knew that wasn't right, Tim Burton is odd, but not that odd, the next day I went to the ER all blood test, heart test what ever came back normal, they sent me to a Neurologist and within 15 minutes of listening to my history he smiled and said, I know what's wrong, let's get an MRI. Hasn't had one yet. The next day I kept missing light switches on my left, I called the Neurologist, he told me to go to the hospital, I walked in with no help, by noon I was paralyzed on my left, could not stand or even walk on my own. After the MRI and Lumbar Tap. He told me I have MS. That was 23 years ago. The doctors at the PT hospital I went to, to relearn how to walk told me I would be in a wheelchair in 10years, like I said that was over twenty years ago. I think I'm doing well because I have docs like Aaron Booster and my first Neurologist Glenn Robbins!!!

Great info! I was sent to ENT for vertigo. MRI of my inner ear had an incidental finding of brain lessons. ENT sent me to neuro, who ran with it. Every test they threw at me was positive. I had a confirmed DX of MS within 2wks. Yay me! 🤦‍♀️

Great video Aaron. I love to see doctor’s sharing their knowledge via KZfaq (or other social media), moreso when it is done with passion and in an engaging manner 👍. I have an inherited cerebral small vessel disease in which demyelination is a feature and in which characteristic white matter lesions are apparent on MRI. It is called CADASIL (Cerebral Autosomal Dominant Arteriopathy with Subcortical Infarcts and Leukoencephalopathy). I know that many people with CADASIL have, in the past, been misdiagnosed with MS. And, rarely, some people have both CADASIL and MS. I’m curious to know if you have had patients who have subsequently been diagnosed with CADASIL (via a blood test checking for a Notch3 mutation, of which there are several hundred known variants)? Keep up the great work.

I remember after my first two MRI, my regular doctors just said it's mild prolapsed disc. 2 years later, I was at a main hospital, paralyzed waist down, in pain - after I was sent for MRI in-patient & radiologists saw my MRI and was alarmed and immediately contacted my neurologist, that was when my neurologist came in and got the story of the history of what had been happening for years before to correlate with the MRI findings. So this really takes me back to the time when I was diagnosed.

I have Migraine, Exploding head syndrome, Cervical instability, Neuropathy and Eds. I experienced MS hug which was super severe. My neurologist in Denver said NOP, it is not MS. God bless your life and knowledge Dr. Boster❤

Great video Dr B! I had mild remitting MS symptoms for 16 years before a formal diagnosis. Unfortunately the diagnostic journey began when my vision declined to 20/200 in one eye and never recovered. Since my only major symptom was vision loss and my MRI showed non active brain and spinal lesions, my MS neuro sent me for a spinal tap to confirm which it did. I had vision problems for many years before then along with annual eye exams that didn’t show any problems. I was told multiple times that my recurring blurry and cloudy vision issues were allergies until I wasn’t able to read an eye chart.

I saw a neurologist and went with the intentions of seeing if i have MS, I was and still having major cog fog. They never did the contrast dye mri. Instead, he talked about losing his wife recently to brain cancer, that was sad, and then sent me to get a psych eval. Well here I am 3 yrs later, and now I have bladder incontinence and retention. I've had dismotility of my esophagus for years now. I have IBS with constipation. In the past I've had vision issues that would come and go. I've been in glasses since I was 5. In my late teens I started having pain in the back of my eyes, I had Mononucleosis as a teen, and Scarlet Fever. I always lacked sleep as a kid, the school noticed, but my mom never let me sleep or take naps as a teen. At 53 yrs old now, I've had many of the MS symptoms. Where do I go now?

I have been watching you since my own limbo starting back in 2020. Started with optic neuritis, positive for oligoclonal bands in CF, and lesions but not quite enough or in the right spots to confirm diagnosis. Yearly MRIs all stable until my early September MRI this year where I officially hit that last criteria box. Thankfully the new spot is very small with seemingly no symptoms from it. It’s easy to feel lost in what I called “The Gray Area” but your videos have been very helpful and extremely reassuring while leading up to the actual diagnosis. Thank you for sharing your knowledge with us.

You described my situation to a T. I feel calmer. I can’t get in to a neurologist for 3 more months. Thank you.

I needed to hear this so badly!! What you do for us is priceless! Thank you!!

Im following you.. im in that limbo. Had a stroke in my spinal cord in November 22 and by chance found lessions in my brain mri. Im experiencing scary symptoms. I am now using a suprapubic catheter, have incontinence. I havent been able to walk without a wheely walker. I suffer migraines and my life has changed 180 degrees. Im sad and needing answers. I want my old body back 😢

TY Dr. Boster I appreciate your candidness. I've been dealing with issues for over 20+ years trying to find answers only to be getting worse. I'm now determined to get answers, maybe not. I want to live out the rest of my life with atleast some quality to it. I don't want to be a heavy burden to my husband & daughters. I see a Neurologist tomorrow to try to get some answers. Maybe it's not MS, but some other form of neurological disorder. However, I see degenerative issues my Mother had the last 15-20 years of her life she never addressed medically, that I'm now seeing in mine. Now two of my daughters are dealing with similar issues in theirs. I need answers as well as I need the answers for them. Thank you and God bless you!

A brilliant video Dr. Boster! So many of us have a long diagnosis story and it is so helpful to hear diagnosis criteria, what else it could be, and what we can do in the mean time. You are a gem! 😊

Thank you for this!

Thank you Dr. Boster!

Another great video Dr. Boster! Thanks

Thank you so much! Appreciate your videos and lives.

Loved the video Dr. B… Sounded like part of our discussion a few weeks back!

Wow, if I'd had you as my neurologists three years ago, I wouldn't now feel traumatized at the thought of ever seeing a neurologist again! I had neurological problems that turned out to be a side effect of, what turned out to be an aggressive form of NHL (T cell lymphoma). The neurologist was clearly bored of my symptoms and so diagnosed me with FND. Once I had that on the top of my medical chart, no doctor wanted to investigate anything. I believed I was dying... I was dying and nobody would listen to me, until I became very obviously seriously ill.

Wonderful video. Thank you!

Amazing content ! Thank you so much for your time, doctor.

😮 You have cleared up more than any neurologist ive ever met. Also mentioning Neuro optimologist was helpful. Mine is going crazy trying to figure out whats going on with my eye. A neuro op is who I need to see. Thank you so much your channel rocks!!

The best doc I’ve ever seen

Thank you for your wonderful video. Very informative and nicely done. 🙏🏻

my symptoms started in 2011 after a massive, wrong-threated EBV infection. I was diagnosed with Fibromyalgia, CFS, Depression..anything you can think of. Then finally some doctor was brave enough to do an MRI and my brain hat several big lesions. I got, after a few more tests, the diagnosis of MS. And instead of doing something, they put me on lifetime retirement at age 35. Nothing ever happend since. I moved from germany to Belgium three years ago, everthing exploded last year and I have an apponyment with areally good specialist soon. Problem is, I have to go trough every single thing all over again as the german doctors refuse to send my medical history..very, very frustrating 😢

You’ve got a good buddy there.

i am in exactly this limbo situation, thankyou for your helpful video

This has me sobbing. Thank you so much!

Wow, what a great Dr!!! This video helped me so much. Just finished all my tests & will know results in a couple of weeks. Thank you!

Hi Dr Boster, you seem to be the exact person that I am looking for.

So happy you touched on this topic, as many do come with these questions especially in the pre diagnosis stage ( or after Dr Google consult)- i will definitely recommend and share this great information. Have a great day Doc, #StrongetTogether

Appreciated! Brain MRI was “borderline undiagnosable” due to the huge artefact caused by my cochlear implant, yet my doctors are still leaning away from suspecting MS. But no one knows yet why I’m having visual symptoms, balance issues, etc. I’m getting the visual potential test at some point soon, but otherwise everything’s at a standstill for now.this is super helpful in making me feel more reassured that I’m not just viewed as making things up while also giving more grace to the fact that everyone is scratching their heads right now.

Wow...a doctor that actually cares and foes above and beyond...diamond in the rough.

Thank you for this explanation. It always helps to know more.

You make me feel positive with your knowledge of MS, thank you so much.😊

Thanks for the video Dr. Boster.

Very well explained! Thank you doc Boster. Hugs 🫂 to you and your family. You are awesome! Thank you!

Thank you for this very informative video. My husband will be seeing a neurologist tomorrow. Your videos have been very helpful to both myself and my husband to prepare for the neurology appointment. God Bless you and your practice Doctor B.

Hey Dr B. I was diagnosed with MS Remitting-Relapsing earlier this year after I was admitted in hospital. All the tests you mentioned were done and the conclusion was MS. In 2014 the vision in my right eye became blurry, MRI was done...White spots on brain, was told then not MS but CIS. Over the years the numbness in fingers toes body would increase then vanish, but then pain in my back increased and effected my spine... my walk...some days better than others, I'm just trying to keep on top of my nutrition etc.❤

Thank you Dr Boster, this is an awesome video- I know many people who feel at a loss when they don’t get an MS diagnosis. Relief but also a feeling of - well what now? Why do I have these symptoms? Is it all in my head? Did they miss something? It’s an uncomfortable feeling. So appreciate you 🔥🔥💖🔥🔥

The way you break down a complex challenge with effective solutions and genuine concern is incredible. Thank you Doc Be 🙏 well

I really needed this video, just got my LP tests results back and it was normal. I have several symptoms of MS and several lesions on my brain in the most common areas (juxtacortical and periventricular) U-fiber and more, I was told to repeat MRI in a year or if I have a NEW symptom. This is very frustrating, neurologist says she doesn’t know what wrong with me 😢 I feel like doctors think I’m crazy and with the normal LP the neurologist has washed her hands of me. I feel extremely defeated.

Thank you for this video

Dr. Boster, Fabulous Video! I have been an MS Support Group Leader in Boynton Beach, FL for many years. I was Originally Diagnosed with MS while living in Boston in the 1990’s. Still maintain contact with many of the original Group Members when we had Monthly Meetings at the Library in Boynton Beach until COVID changed everything. Currently we meet on Line every month with a smaller group. I am hoping to eventually have Live Meetings again which were far superior to these On Line Meetings. I would love to show your Great Video To all of the Support Group Members Eliot Reinstein MS Support Group Leader Boynton Beach, FL

Ty so much! Nystagmus was recently diagnosed & my eye specialist (Dr Bloom here in Dayton) took a look at me & is sending me for an MRI. I feel like an imposter subscribing until i know if this is the issue. Ty for doing a gray area video. Could you maybe do a Nystagmus video? Maybe there's a few of us out here suffering with that too (seems like they maybe overlap). Information is really empowering 🙂

I’m in limbo. Your videos have been so important on my journey. This year I’ve been dealing with breast cancer and it has aggravated the “MS” symptoms. I’m wondering if the flares have increased due to aromatase inhibitors post mastectomy.

Hi from Israel I wish that every Ms doctor will be like you now it it is only a dream... God bless you

I went to bed and woke up on a stretcher in 1995 to be told that I have MS in less than a week. I'm disabled in a wheelchair all day long

Thank you for this wonderful informative video. I'm currently going through this

Nice video. Sometimes, radiology reports which say "cannot rule out demyelination" are simply inappropriate, and when I review the films, the white matter changes are clearly benign "unidentified bright objects" (UBOs) or leukoariosis (vascular changes). Other times, the findings are ambiguous which is where careful history, examination, and sometimes CSF can help. One thing which is very hard for people to believe is that a very high percentage in the general population will have some type of white matter change on MRI of the brain. In an ambiguous case, I personally would favor follow up visits and MRI scans rather than doing tests like OCT/VEP/CSF. In a clear case of "not MS," I offer confident reassurance. I will say things like, "Your risk of MS is now less than mine because you have made it to age XX without any brain lesions typical of the disease."

Thank you @AaronBosterMD for this video. I seen a neurologist a few weeks ago. Checking me for MS, stiff person disease etc etc. The neuro was really excited about my brain scan. He said your brain is so perfect, Especially because of my age & health with all kinds of physical problems. The neuro throwed all my symptoms Under the umbrella of Fibro. I have been almost bedridden for 13yrs. My muscles stay engaged super tight everywhere everyday There is no break of the Chronic Pain for me. It causes me to have total back pain & spasms can go from lower back to full body spasms. They last around 5 hrs or longer. I just do not know where to go anymore. I am thinking Fibro is a big crock of Bull & Drs just put you there to get rid of me.

Thank you for this valuable information. I have neurological symptoms and lesions in the pons, but I don’t think I have MS. My orthopedic surgeon doesn’t believe that my c-spine issues are the cause of my neurological deficits, but I do. The saga continues. 🙂

Thanks for all your info. I’m daughter 48 has had 2 previous MRI and having 2 more MRI in November to help confirm what’s happening with her. She had pain and numbness 2 wks. ago after 8-5 visit to the emergency ward she received meds. that are doing their job along with going for physio.

Had a sports injury in 2017. Was told I had a mild concussion. Said my brain actually moved during jumping rope on the concrete floor. Had some eye issues and neck issues but other than that was fine. However, now strange symptoms are showing up that are MS related Finally got untangled from the medical web and decided to go out on my own with holistic practitioners. It seems to be doing just fine I love this video. Thank you so much for being a bright light amongst the dark.

Hi, I’m from the UK. Wow, this is the best video I’ve found on KZfaq regarding white matter hyperintensities/ms/cognitive decline. I’m going through this process right now. Thank you so much for giving us more in depth information. 😊

Thank you so much for all you do dr B! This just happened to me last week w my ms dr....i am 2 weeks away from my next octevus infusion, and my fatigue has returned profoundly. My ms dr says it has nothing to do with my ms....even though its the same fatigue that brought me to the ER (along w other symptoms), which led to my ms dx. He says that ms doesn't cause fatigue, and I beg to differ. It is very frustrating. Thanks again dr B for touching on this topic....Absolutely LOVE your videos and your dedication to helping others. You are Amazing!🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥🔥

I had post viral syndrome and had many neurological symptoms. I got an mri first ER visit. Wasn’t told until later there were spots on my brain. Once out of the hospital migraines got worse and more frequent with more spots on the next mri and then on the third mri too. MRI scan reads that I have early signs of MS, I also have had mono 3 times. Neurologist says I don’t have any signs of MS. So crazy.

It takes a village but without insurance you are on your own. I needed an MRI, If I had the thousands of dollars they wanted as my insurance declined, I would likely have a diagnosis, My insurance insisted I get an EMG first. That took 7 months to schedule >:( I'm 56 and will likely not make 60 because healthcare is for the wealthy and health I don't care is for the rest of us

A great video full of information and hope. I found a great physical therapist that found all my weaknesses and helped me improve to my best. My vestibular system was way worse than I thought but with exercises, it has improved. She helped me improve my gait with a walker. I had a memory test done by social security that found my weaknesses in cognition. Where to go now to improve in cognition?

This has been helpful. I'm going on three years with neurological symptoms, but no answers. It's frustrating to be in limbo, and hard to keep up the hope that I will find out what's wrong.

I follow you and learn alot about my MS journey. I am about to start 2nd phase of Mavenclad, but my alc is 420, so we are going to have to wait till I get about 700. My MS doctor knows you (Dr. Berkovich).. I fully trust her, and up my game by watching you. Thank you.

How can I give it 10 thumbs up?! Really interesting stuff in the video!

Thank you Dr Boster for your massively helpful educating videos. They show you have qualities I can't find here in OKC, OK. You have an awesome caring & compassionate way with your patients. I wish you were here. I've had all kinds of neurological symptoms for the last 2 yrs that I think may be MS & why I haven't recovered from my fight with the Delta 2 yrs ago, which left me disabled. Now a brain mri has found a 7 mm aneurysm on my paraopthalmic artery. Could that be the cause of my symptoms? I am overwhelmed & frightened. This neurologist won't even look at the scans till tomorrow because he's not scheduled to work till then. I've been very upset since I found out last Thursday afternoon. Lord, I wish you were my neurologist!!!

I was diagnosed with multiple sclerosis for 30 years and went to lyme specialist and found out I have chronic lyme disease. Doctors need to get up to date and check lyme disease first

Hey doc, thanx for making MS so simple to understand. I have been diagnosed ms in 2016 Kakali from assam(India)

This is where I am right now. No ms spot on mri but neurological issues everyday. Now what ? They say parenthesis? They don’t know why!!! Now what ? These are real symptoms. Stuck in rural Montana. Help❤

Thank you for this video Dr Aaron, you make a lot more people and myself included feel like we have someone on our side. All the best to you and your family at the boster center sir.

Great video and very helpful! My MRIs are clear of lesion, but I have symptoms which are very much like in MS. The reason seems to be wear and tear in spine; both in neck and lumbar region. I have left side weakness (like line drawn in the middle of my body+face) and pulging disk in the lower back causes saddle area numbness and weakness. I am suffering from serious fatigue, heat intolerance, flushing and malaise episodes (with blood circulation issues?). I have episodes of "silent" migraine where I suffer from double vision 2-3 hours. +++other symptoms. This combo looks so much like MS that it is hard not to be suspicious of it regardless of the clear MRIs. It is good to know that this can also be the situation and in that case what should happen. And that the limbo of not having clear diagnosis, is still something to be taking a note off! Also, I realised some time ago that having heat intolerance can happen in any situation effecting the nervous system. So even that I do not have MS, my life can look pretty much the same than somebody who has it. And that symptoms can be treated regardless of not having definitive diagnosis! Thank you so much! Being in the "limbo" of not having diagnosis is literally nerve wrecking! And any help, information and validation towards it is extremely helpful for a wide audience! 💗💗💗

This is where I am in my journey for diagnosis. I have neurological symptoms but not diagnosis just follow up appointments but I still live with tremors, cog fog, eye issues and left sided weakness with low muscle activation. I have ended up using KZfaq Physical Therapy videos to help with the weakness on my own.

Told I don’t have MS but I have all of the symptoms. Blood results aren’t back yet. MRI without dye showed transverse myelitis and with dye it said artifact movement didn’t give a clear image, I fell asleep in the machine…there’s spots on the brain MRI. Cognitive impairment, left leg gets weak and I get intense pain, severe constipation but CT said I wasn’t constipated, I definitely couldn’t go for over a week and needed to take 10 senokot tablets to go, I get bad insomnia, five days was my longest stretch. I am not a lazy person, was always go go, go and now I’m in bed all of the time. Had cervical laminectomy with fusion for severe myelomylacia, I randomly just drop my coffee cup, I have had bladder issues, the cognitive issues have made me feel like I’m getting Alzheimer’s, been feeling overly stressed (a lot actually going on to justify that), severe mood changes. Just want to know what the heck is going on. I don’t want it to be MS just want my life back! I use to walk 16km a day, home was spotless, loved cooking, cleaning and caring for my family.

Thank you. Currently in limbo with my husband. He has a mild case of ON, and very 2 tiny spots were found in the MRI, I think one in the brain and another in the neck. But the mri came inconclusive and required further clarification. He did LP, it will take a month to get the full result.

Good morning 👁️

Your channel is amazing. I love it. Just a quick question for you.. I had an mri of my brain that showed non specific white matter lesions, mri of spine clear but lumbar puncture came back with Ogliclonal bands. What is literally going on?

OMG I wish I could come see you. In Denmark public health care is free, whereas a referral to a private neurologist has to go through either the hospital or your GP, neither of them being overly willing to make a referral. I've been in limbo land, experiencing a variety of symptoms for the past 18 mo. (poor balance, loss of periferyl vision, loss of bladder and bowl control, numbness in feet, raynauds in hands, lhermit sign, spasticity in both arms and legs, and periods with massive brain fog) My MRI came back negative for MS in oct 22 and jan 23 as did spinal fluid tests. For now my GP just wants to wait and see as he says, that 4 or more "flair-like episodes" (whatever thst is) in 12 mo will get me a referral. No treatment in the meantime😢

I was in limbo for 2.5 years because im an atypical case of MS but finally diagnosed with MS in 2016

Thank you for this video. My wife has some weakness in her leg that comes and goes. They did find a spot, but her follow up MRIs showed no problems on her spine. We are going for a nerve conduction test, and of course, the possibility of ALS. I am also encouraging her to get physical therapy, as she sits a lot is overweight, and it could be some other sort of physical cause, including sleeping glutes. Her conduction test isn't until December, and I am freaking out a bit, but this video has helped me put things in context.

Thank you so much for this I had 3 lumbar punctures multiple MRI'S and tests as scan all looked atypical of MS . Then when they diagnosed me and I asked why do u think it is MS now? I was told I needed to go to a psychologist to come to terms with my diagnosis! 17 months on Tysabri feeling yucky and new enhancing lesions. After seeing your red flag vids I asked to transfer to new neuro. Had to come off Tysabri waiting for appt with the new neuro. New neuro said no need for more meds, watch and wait approach. See u in a year. Off it for 9 months and never better. Do I still need to worry about rebound?

A lot of those tests were on me because I didn’t have a lot of those things because I have TMS and it’s very rare

I’ve seen 4 neurologists so far. I’ve been ridiculed by one (literally) dismissed by one and so on. I’m going blind (Optic neuropathy) rapidly, depressed (being treated) and I’ve given up ever (being dx. If anyone knows of a kind doctor between Chicago and Madison or even Detroit, I can get there. This is true he’ll.

Excellent video! BTW, I am one of those 10% MS patients with no ocligoclonal noconal bands in my spinal fluid. Have there been focused research studies on that 10% population to see why these markers are absent?

My condition mimicked MS. It started with neuropathy than add intractable vomiting, I had all the fog , aches, spasms, et al. It was only when my vision would dim in only my right eye, FINALLY after a year I would see a neuro-opthamologist who again did not see any problem but agreed to send me to a neuro-immunologist. Who again didn't see anything wrong with my brain. He reluctantly sent me up to neuro-immunology who upon a physical assessment called it SFN believing my diabetes was causal and a lab would show an MGUS. by this time I am 1 1/2 years in and have lost my job and will be losing my insurance WHAT DOES ONE DO?

Happened to me just this week (thank you for your reassurance this isn't MS/ALS) and on the car ride back home, I found myself Wondering, what next.

So just before years end my father would die of cancer giving me time with a nurse to talk about what was happening. We would discuss my Labs which I now keep on a dedicated tablet. I was treated and released from 3 ER's with diagnosis of vomiting with no cause and dehydration. In reality I had experienced HHS, Anion Gap acidosis depleting me of nutrients, Vitamin d3(25) among them. My brains were progressively worse. After my dad passed (cancer) my body would freak landing me in the ER again. This time armed with The nurses information I explained this is not vomiting causing dehydration it is acidic blood causing vomiting. Here is the kicker my blood pressure would fluctuate wildly 100 point swings for "no" reason. I would demonstrate, The nurse came in to check my bp one night, it was 200/110, he was alarmed. So I relaxed, and it dropped 160/90, and he was baffled. I said watch this and I got out of the bed and stood. My pressure would again drop, this time to near normal. it was suspected at one time I may have POTS, i was proving it. Now uninsured, with the knowledge I have SFN an MGUS and likely POTS, I sit with no medical access awaiting a disability determination which is expected to take 9 more months in Texas where medicaid is not available for men. But for you Dr Boster, I would likely be dead. My doctor's "See you in 90 days' would have killed me by now. Currently I am working on supplemented nutrition and mild exercise to keep me out of the ER. My clearheaded assessment would be nerve damage in my neck and spine including a severely herniated C2/C3 disk and degenerating thoracic disks and sciatica causing all my nerve damage. The MRI My insurance refused 2 years ago would have shown, but killing us is easier than treating us. Thanks for all you do and i hope my story will help you or a patient somehow

Thank you again for another great video Dr. Boster. But I am wondering in limbo land if there can be a clear brain and cervical spine mri but if possible can there be lesions on the thoracic spine or lower to suggest ms? I am struggling to get Answers and I'll be happy if it isn't MS but...I want clear answers...to rule it out entirely would make my heart and mind happy. But if there is no mri of the mid and lower spine...how can we know there are no damages. Waiting not so patiently for an EMG. I am losing my mobility. I am using walking aids struggling to keep my day job and know in the next month I will have to give in and leave my job because I just won't be able to get around in the snow and ice. My symptoms covers 5 pages long and not only my legs are giving out, my arms are losing strength with the simplest activity. I don't have access to a Neurologist, most definitely no MS Neurologist where I live the best I can get is an internal specialist. No one has even asked me to walk or have done any of the physical or cognitive tests with me like you suggests. I know you try to read all the comments and I am so thankful for your videos and live streams. I have learned a lot even if it turns out I don't have MS. If money was no option, I'd be making arrangements to some see you in person. I am afraid the longer I go without diagnosis and treatments that my symptoms will become permanent. I only just turned 50 and I'm in worse shape than my 95 year old hone care client. I'll soon have to leave my home care job to have a home care worker of my own. This is sad and frustrating.

I have been in this limbo for 10 years. Five neurologists. Hoping for answers soon.

THIS was helpful. I'm 66, having the balance, numbness, "zaps", and other symptoms. My eyes "go out" at times. Back when I was about 28, the docs thought I might have MS and they did the MRI but it wasn't conclusive. They did the lumbar punch (which to this day I am terrified of) and they said "You have the markers in your spinal fluid for MS." I have had stuff off and on, balance mainly, and the zaps, and pain. We've got another diagnosis of fibro but that is the pain aspect and not the other stuff. I'm going to a neurologist again in January and am terrified they're going to say it's not MS but it's not anything else either. We DO have something going on here, and I need to know what it is. Or give whatever it is a name so I can just go on living for the 20 or so years I have left without freaking out every time I feel a zap in my big toe or my elbow, my eyes don't work, or I lose my balance and fall again. I hope this guy is as good, and as kind, as you seem to be.

I'm in the beginning stages of a work up to check for MS or other neurological disorders. However, I am open to the possibility of it being psychological. If the pathology doesn't reveal itself I am going to ask for a psychiatrist. What's weird, though, is I have visible and very real symptoms of varying disorders but my tests all come back negative. I had symptoms of Lyme disease and was treated and responded but I have no positive Lyme test despite having multiple done. I have acne problems, bad PMS, hirsutism and lose half of my pregnancies to miscarriages but my bloodwork and ultrasounds come up just fine. No signs of imbalanced hormones or PCOS. I have obvious signs of inflammation all over my body but my bloodwork is negative for inflammation. I have obvious gastrointestinal distresses and reactions to foods, but no positive food allergies. It is incredibly frustrating. I feel like the sickest healthy person. It's been 30 years of "inconclusive" "idiopathic" and "everything tests normal." Even my MRI just showed one FLARE. My brain looks fine, otherwise, but I have horrid cog fog, constant headaches, silent migraines, numbness, tingling, weakness, dizziness, tinnitus, blurred vision, extrene fatigue, clumsiness, forgetfulness, imbalance, shooting pains, etc.

What about the NFL test? My neurologist ordered that blood test instead of spinal tap to confirm MRI findings/MS diagnosis.

Yep! I was diagnosed with MS. Yet, I have reasons to doubt this diagnosis. Too many red flags to get into. I was told to start Ocrevus. I told my neurologist, "I need a 2nd opinion first".

My neuro diagnosed me and I was sorta in denial until my OD was like, gently trying to tell me my symptoms and OCT were concerning and I should speak with a neuro. It was like, two days after I found out and I was like Oh yeah, I forgot I have MS now 😭😭😭

Watched your video intently. Interesting stuff. Soy allergy symptoms are similiar.

I've been born with hydrocephalus.. then developed Epilepsy.. chronic migraines..increased muscle tone.. chronic migraines..then diagnosed with Dystonia (focal) then progressed to full body.. Dysphonia.. Dysphagia..I'm mute..hypoxia.. coughing blood currently.. BMI 14...cataxia.. carpal tunnel syndrome..ataxia..multiple vision issues like eye floaters and double vision... cognitive difficulties.. losing my language to the point I'm talking in English because I'm speaking English it's not my mother tounge..major depression..anxiety ..anger issues...due to my diseases then..they said MiTo disease .. Also not a boring diagnosis like Dr House says..

Wow, I've just learnt more in the first 10 minutes than I have in the last three years, I'm just waiting on the results from a lumbar puncture test. I am in limbo, I woke up with all these crazy symstons after having covid.

I learned through my chiropractor in Oregon the gonstad method Gonsted created his adjustment i believe based on himself and he ended up with MS in the end. I find that interesting.