This illness needs 100 times more funding for research then what it gets now.

The biggest problem with ME/CFS is the lack of funding into research. Robert Naviaux is doing great work with his cell danger response hypothesis and could find real treatment for us, but he said that he spends 90% of his time trying to find funding and only 10% on actual research. Funding for ME/CFS needs to be on par with all other major diseases - HIV/MS/Parkinsons/etc...

One of the best parts of this interview, in my opinion, is toward the end when Dr. Shepherd is discussing diagnosis. Everyone says that ME/CFS cannot be formally diagnosed with tests, and perhaps that's right. But Dr. Shepherd describes very well the patient who presents with classic ME/CFS systems. He articulates them beautifully -- one, two, three, four, five, six. He lays it out clearly and says THAT patient should be diagnosed with ME/CFS. Maybe the patient's physician doesn't know how to treat it, but the criteria for diagnosis ARE clear. That alone will help with the "legitimacy" of the disease.

I've had me/cfs fibro for 12 years now . I got it after having glandular fever . It strips you of your pride , dignity , independence and so much more . I have tried everything to get better . For the first 7/8 years I kept working listening to people telling me to push on through , don't lie down to it . I had no guidance from doctors . Now I'm a shadow of the person I once was . I don't work anymore I spend most of my time by myself not because I want to because I have to . I never see friends . I've lost a lot through this disease . I'm also going through divorce at present . I can't thank Jennifer Brea enough for making this film I'm sure it will make a huge difference . Also Dr Shepherd .. His work with me/cfs is amazing . We need more doctors like him . I've tried so much to make people aware of this horrendous disease . I've contacted BBC .. ITV .. Scottish government doctors that do research up in Dundee university where the do a lot of research . Thank you Jennifer and Dr shepherd .

so glad she is gaining her wellness back

Thank you Jennifer Brea. I first came down with CFS in 1982 and have been living with it ever since. It is very hard to describe to people, and it was great for me to ask my loved ones to please watch Unrest.

I have been disabled now 10 years from CFS & Fibro. The movie Unrest was like watching myself in so many of those in the movie suffering. Thank you Jennifer Brea!!!! I pray this great movie brings awareness, contributes to greater research & funding along with a finding to the link that so many of us have but cannot be found today.

Just watched Unrest, a brilliant but very sad documentary, she is an amazing woman.x

Thank you Jennifer and Charles Shepherd for speaking out . It’s been incredibly tough living with this illness. It’s also been terribly painful to not be believed let alone given support or empathy . I dream of a treatment . I lost so much life due to this illness .

I have CFS and POTS as well. I fight through every single day praying that one day I’ll miraculously get better. Doctors know nothing about it and they’ve given me no treatment. I am done pretending to be a normal functioning working adult. I am disabled by this illness, period.

The biggest problem is actually that you have to pull yourself together on a good day to even see a doctor. They never see you when it's the worst! Only when it's best, in comparison. Actually there is only the way of filming to make others see you at your worst.

Cfs survivor 19 yrs. I got help through Clymer Healing, the first cfs clinic ever. I am 60% functional. I will take it from being bedridden

This is so heartbreaking. I hope they find a cure and these people get their lives back and no longer have to suffer😢

desde España un gran saludo por tu trabajo........muchas gracias

It looks like this thing starts after an infection which clears from most people as they recover. But with ME/CFS patients, the infection changes something with the immune system for good. I admire Jennifer Brea for being outspoken about this condition.

Something I haven't seen mentioned. Every textbook on orthomolecular medicine, and many medical descriptions of ME have said "alcohol intolerance" is a symptom of ME/CFS. What that means is, if I drink even one beer or wine or two shots of liquor, I feel, within 30 min, that I have been run over by a truck. My body bursts into pain as if into flame. I walk stiffly if I can walk at all and I end up lying in bed wishing I was dead. Notice that's one or two drinks. You won't find any alcoholics among ME/CFS patients. It hurts too much.

Fantastic interview I think as a start and really nice to see Dr Charles with Jennifer Brea together , thanks so much for this magnanimous effort , I'm so grateful personally thanks

It's interesting that I have read so many differences from people with it here, and am able to make new links than I have been given information by any doctor including a world known ME doctor. Still parts of it are being kept secretive from us. I am also glad to see references from people here that there are different 'versions' of this illness, which is what I have been saying for years. I also am angered as to why 'professionals' do not listen to me when I am the one experiencing it. It is such a complex illness, very few will be able to grasp. Each day is stopping yourself thinking about being dead is better, and having to silently deal with it. I'm lucky I am so strong minded but I feel empathy so much with those who are not.

❤️❤️🙏🙏✊✊❤️❤️💪💪❤️❤️Dankeschön für dein Mut, Kampfgeist!!!!!👏👏👏 großartig!!!

Omg I've been sitting that way for years! It helps with the back pain... I rarely see anyone else sit that way

More. Thanks!

she's awesome

I did hard time with this mysterious illness for over 20 years, My biggest break through was having a deliverance and learning spiritual combat.

Exactly Doctor it is actually NOT fatigue. It’s just the easiest way to say it.

I'm so glad she is feeling a bit better

I was 34. I believe my illness (ME/CFS) started after the 3 part series of Hep B Vaccines, after exposure to blood, as a RN. I had not had a flu. But another possible factor was a pesticide that was being heavily sprayed in the apartment complex where I lived. It was when Dursban was being used, but once I found out about that, this apartment manager said, "We are under new management and we do not have that information." Meaning, who was doing the spraying, and what they were using, they weren't going to tell me. I called every pesticide company around and NONE OF THEM would admit to having the contract for that place. So did they do it themselves? It smelled like black pepper. This info is just for those who care to know how I got it. These are my theories. For 11 years, I was told I had "Conversion Disorder," like Jen Brea, then just stress, depression, and then bipolar disorder type 2. Even though I was never manic, I would be "OK" in the morning, go to class (as I could not be a nurse anymore and tried going back to school), go home and crash, get up feeling somewhat better, then crash by bedtime. So that's why my psychiatrist said it was bipolar type 2. Ridiculous! She finally admitted that they didn't KNOW WHAT WAS WRONG WITH ME, THEY HAD TO PUT SOMETHING ON PAPER SO THE INSURANCE WOULD PAY. Well, at least she was honest. Finally. In 2001, I moved to Birmingham, AL, where there was a brand new CFS clinic, and the doctor said after a 45 min. talk and 15 min exam, that it was his opinion that I had ME, and Fibromyalgia. And I have to tell you this, I was crying out to the Lord saying, WHAT IS WRONG WITH ME? I FEEL LIKE I'M DYING OF BONE CANCER. AND I CLEARLY GOT THIS THOUGHT IN MY HEAD: GO LOOK UP THE EPSTEIN BARR VIRUS ON YOUR COMPUTER. I knew it was the Lord, Jesus. But I went inside, and got distracted, and actually forgot. That's how bad my memory is and was, even back then. I went to church two days later, for Wednesday night service and went to the altar for a healing, hopefully. But no one came to lay hands on me. And I heard it again: GO HOME AND LOOK UP THE EPSTEIN BARR VIRUS ON YOUR COMPUTER! (more firmly). So I nearly ran out of there, and got on my computer, and found that Epstein Barr, at that time, was thought to be the cause of CFS, then a link took me to info on ME, and I had the symptoms more for that, and then (long story) the Lord led me to this new clinic, which wasn't there long, and didn't stay long either. The treatments were not insurance approved. So I guess not many could afford it. One was IV vitamins, and IV hydrogen peroxide. There are videos on here about using medical grade hydrogen peroxide, which I just learned about, and will be getting some any day now. Maybe it will help. God bless each and every one of you with this, or who works with this, or takes care of someone with this!

I have pots! I’m so glad she mentioned it!

Great interview! :) Added German subtitles.

I love my doctors but even they don't know what to do with me anymore. Me neither😢

I have very serious autoimmune issues that my doctors have been unable to diagnose. I also noticed that in all her interviews, Jennifer is always sitting Indian style. I have always done that, it's the only way I can sit comfortably. I cannot bare for me feet to touch the floor, but it's not something I have ever noticed or been concerned about. Now I'm wondering if there is a connection there!

Has anyone done a survey to ask if these patients have ever been given a Fluoroquinolone antibiotic BEFORE their chronic fatigue syndrome? Antibiotics like Cipro and Levoquin are commonly given for simple urinary tract and sinus infection to otherwise healthy, young, active people. These people suddenly or even months later experience symptoms of chronic fatigue, joint pain, tendon tears, nerve pain, disability, and neurological disorder and autoimmune disorders! These symptoms seem to appear out of the blue because patients and doctors don't connect the dots!

I have pots and ME

What treatment did you receive?

What treatments are she using to get better?

@Jan Hansen-are you a physician, PA, APN?

J habite en Suisse et je suis atteinte de cette maladie et point de traitement pour le moment ,j epuise car je fais infections virales a répétitions

How can i talk with jenefer ??? Her facebook?whatsapp? I have this sick

Could M E be undiagnosed adenomas or carcinoid? Just a thought.

ive got it but doctors say im fine

heard about this for Sooooo long. Very common in the middle aged literary set

The presenter looks like Myra Hindley.

blows my mind me only human as an old school neighborhood public Health service family doctor in the history of humanity figured out PREGNANCY is fatal to females sexually transmitted disease neuromuscular metastatic malignant cancer ... thank Mother Nature God the cures for pregnancy are already built in working perfectly miraculously no human intervention required once a 9-year-old is impregnated by her father! she is obligated to carry that child through Labor and delivery and forced to nervous that child until she falls over dead of malnutrition vitamin mineral depletion copper zinc selenium lithium magnesium iron postpartum depression anxiety Neurosis psychosis hallucinations complete neuromuscular collapse organ failure which is equal to that of shell shock battle fatigue combat stress ...

Chronic Fatigue Syndrome does not stand for M.E.

What if she just *wanted* to sit like that???

Farmvillemyalgia

VACCINES Hhn6.

Hikayesini Netflix'te izledim. Kendisine nazar değmiş olmasın??? Allah şifa versin

Maybe they should prescribe TV interviews to all the patients so they can out of bed and get dressed.

The cause of this illness is chronic psychological stress

I have now a lot of balance coordination problems. I have been about to fall many times.l'm worried about😢 But there's nothing I'm afreid but a stick maybe!