Although there is a substantial amount of research material on KS, it does not appear to be reaching medical professionals. As someone who has been diagnosed with KS as an adult, I have found that apart from my endocrinologist who is treating me with TRT, none of the medical professionals I have come into contact with are familiar with the condition or its symptoms, particularly the early symptoms that can have a significant impact on a boy's social and academic development if left untreated. These medical professionals include psychologists, psychiatrists, and general practitioners.

I’m doing extensive research about chromosomal abnormalities (intersex) for an OC i’m making, even though this OC will never see the light of day, i still want to represent them in the most respectful way possible, plus, i love learning about things like this, it’s interesting.

I played this at 0.75 speed and it was still pretty fast! If you want people to learn something new you need to slow down. (hint: KF individuals also have ADD and comprehension difficulties. Please slow down)

its quite sad that the knowledge about KS is so limited even for the specialist on this area. they dont want to know about how to control this diagnos with other ways than TRT

Great video!

Wondering if there's a big undercount. During the 80s I realized I had all the symptoms but all doctors I've consulted since then have told me that testing for it is "medically unnecessary"; 3 endocrinologists, 2 urologists, multiple generalists, and 1 rheumatologist.

was just relearning about genetics earlier, amazing video!

I needed this info in the 80's- 😊

Obviously, there is the medical student syndrome where once we hear of the symptoms, we have a tendency to believe they fit us closely. What response would we get if we asked our Doctors for a karotype test, is it a test that would commonly be covered by insurance or a test that is affordable if not covered? Would a Doctor try to downplay it as unlikely or because the treatment options are obviously less later in life? Clearly, even asking about this would be embarrassing, would Doctors be trained to make this less so? I've heard that karotype tests on children are more the norm now so future cases are less likely to be undetected but with 75% never diagnosed, there must be plenty of adults over a certain age that have it and was never tested.

Hi

Abouf 65% of men with Klinefelter Syndrome are never diagnosed (more than half). That probably includes many gay and trans men who never realize why they are what they are, and who are made to go through life, brainwashed that they are "sinful", and experiencing a great amount of sadistic cruelty.

dice giyyadam nerchuko amma