Don't worry if you have to wait for your Ocrevus infusion...you will be fine!!
Пікірлер: 73
@megd75933 жыл бұрын
Glad you’re feeling better!
@LaurenParrott3 жыл бұрын
Hey Meg! Thank you so much!!
@poke_wounds91753 жыл бұрын
I'm so glad it helped you so much Lauren.
@LaurenParrott3 жыл бұрын
Thank you very much!!
@Catmandude3 жыл бұрын
Much love back at you Lauren.
@LaurenParrott3 жыл бұрын
Thank you so much for writing! I hope you are well! :)
@supertransformations90873 жыл бұрын
Glad to see you are doing good as well
@LaurenParrott3 жыл бұрын
Thank you so much!!
@Asagai Жыл бұрын
You're encouragement and words really help.
@LaurenParrott Жыл бұрын
Thank you very much!! I'm so happy I can help!
@mattz52753 жыл бұрын
Hi pleasure to see you Lauren. Glad you're doing well
@LaurenParrott3 жыл бұрын
Hey Matt! Thank you so much!
@desmur363 жыл бұрын
My wife and I love you Lauren! So glad you were finally able to get your infusion. Ren and I were so worried about going to the Cleveland Clinic hospital to get her infusion because of COVID-19. After all, Ocrevus is an immunosuppressant! We spoke with Genentech and they suggested we should ask the Clinic if they do home service. We did, and to our surprise they were set up to do that. The IV equipment arrived a day before (with all the medications) and we were instructed to keep it in a refrigerator for a bit. The nurse showed up the next day, set everything up and gave Ren her infusion. It was so easy. The Clinic wanted us to just store the infusion equipment and they will contact us in again in six months. This helped us a lot in scheduling and getting over our fears from SARS-CoV-2. Stay safe and love ya!
@jeffkeith6373 жыл бұрын
That's a great service, very worthwhile.
@LaurenParrott3 жыл бұрын
Hey Mike! Thank you so much to you and your wife! Wow, I'm so glad Genentech made that suggestion to get the infusion at home! I'm so glad the clinic was set up for it! It sounds like the nurse was wonderful and you're all set up for the next infusion! I wish you both the very best!!
@jeffkeith6373 жыл бұрын
Great, thanks for the update how you're going and the notes about Ocrevus not going to planned. Doing good.
@LaurenParrott3 жыл бұрын
Hey Jeff! I hope you are staying safe and doing well!
@danasmith53783 жыл бұрын
I’m glad you’re back to normal after your infusion! It’s always nice to see an update from you.🙂 You were one of the first people I started watching on KZfaq after my diagnosis.💐
@LaurenParrott3 жыл бұрын
Hey Dana! Thank you so much for writing! I'm so glad you found my videos! I hope you are doing well!
@BernardAsagai Жыл бұрын
Thank you, waiting for my first infusion and your video helps. My nerves are crazy!
@LaurenParrott Жыл бұрын
I wish you the very best!!
@AJHR773 жыл бұрын
Yes,I've been ok. Thanks for making this vlog. I'm on a monthly infusion and i haven't been back since the pandemic. Keep moving warrior!
@LaurenParrott3 жыл бұрын
Hey AJ! Thanks for writing! I wish you the best with everything!
@davidgilbertson893 жыл бұрын
I'm glad I watched this video as I'm getting my first (1/2) infusion tomorrow.
@LaurenParrott3 жыл бұрын
Hey David! Oh wow, good luck! You'll feel great!
@Asagai Жыл бұрын
Was prescribed the same medication and I hope everything works out for you.
@LaurenParrott Жыл бұрын
Thank you! I hope everything works out for you as well!!
@richardwilliams46893 жыл бұрын
Thanks for sharing. God bless
@LaurenParrott3 жыл бұрын
Hey Richard! God Bless You!!
@TomDobyMowerRepair3 жыл бұрын
wow you look amazing, its been a dozen years since i chatted with ya, i was the one crying about spending an hour and a half in the MRI haha, you're a real inspiration
@LaurenParrott3 жыл бұрын
Hey Tom! Oh my gosh you are so sweet, thank you! I remember your comment about being in the MRI for so long...how annoying. You are so kind! Thanks for your comment!
@imaneomar55123 жыл бұрын
Nice to see you dear Lauren , I m glad you feel better, I love OCREVUS , it works for me , I thank god for it , it is a miracle from GOD. Stay healthy and safe, we love you.
@LaurenParrott3 жыл бұрын
Hey! Thank you so much! I love Ocrevus too! It is a miracle from God! You are so sweet, thank you!! Be well and stay safe!!
@MSVlogSupport3 жыл бұрын
Hi there! I had the same thing happen and was almost a month late for mine. I started having really bad headaches and bad fatigue. I managed to get my workout done every day and I think it helped. I did feel so much better once I got it done 🙂. First time I had any kind of slump, I did fine with Tysabri and steching it out. This was the first time having Ocrevus late and now I know what to expect. So glad that you bounced back fast!!
@LaurenParrott3 жыл бұрын
Hi Andrea! Good for you - you are so strong to be able to get your workout done every day...especially in those circumstances!! I felt the same way as you with Tysabri - I did totally fine with stretching out my dosage. You're right, now I know what to expect. I did bounce back fast and I'm so fortunate! I wish you the very best with everything!!
@BernardAsagai Жыл бұрын
It does help, it's just sad that companies wait so long. There are many that don't really take the sickness serious enough.
@Godzilla_fan1233 жыл бұрын
I just got my Rotuxin infusion after being 6 months late! I have little tremors in my hands but other than that I have no symptoms. I hope you never have to be without your infusion again! Sounds scary!❤️
@LaurenParrott3 жыл бұрын
Hey Ashley! I'm so glad you got your Rotuxin infusion! Thank you so much, I hope I never have to be without my infusion again, too! I wish you the best with everything!!
@wojciechdubaniewicz25883 жыл бұрын
You arę so positive.I know your problems iam ill for 20 thy Yeats.I AM with you be close to yours breathe sorry for my poor english
@LaurenParrott3 жыл бұрын
Thank you! Where are you from?
@wojciechdubaniewicz25883 жыл бұрын
I am from Warsow in Poland
@opalsmith71753 жыл бұрын
I'm so happy Ocrevus worked for you! I loved how it made me feel but I had too many of the side effects and had to stop!😥 I pray for your continued positive progress!👍🏽😊
@LaurenParrott3 жыл бұрын
Hi Opal! Thank you! Oh gosh, I'm so sorry you had too many side effects :( I pray for success for you! I wish you the very best!!
@opalsmith71753 жыл бұрын
@@LaurenParrott Thank you Lauren!
@hazmughal86763 жыл бұрын
Hello Lauren, thats great to know its working for you. I have a question what are the differences that you feel coming off tysabri and going on Ocrevus? Any improvements like walking, cognition improvement, and more? Thanks Haz
@katieb7773 жыл бұрын
Hi Lauren i felt the same way like i felt it immidiatly working during and after my first ocrevus infusion 2 months ago i was like WOW i can walk NORMALLY now !
@LaurenParrott3 жыл бұрын
Hey! Yes! I felt the same way! I still have symptoms, but I've never felt better while living with MS!
@katieb7773 жыл бұрын
@@LaurenParrott *sigh* im not sure if i sprained my ankle bad but the the past week or so ive felt alot alot of pain on one ankle :( im sure you noticed how ms makes walking difficult i was walking in bad terrain and my foot suddenly goes like this / and OUCH it makes me fall down that tends to happen 2-3 x a week and now the pain has been lingering :(
@BornAgainFarmGirl3 жыл бұрын
The best advice I can give is try not to get worked up emotionally when your routine gets disturbed, whether it’s infusions or other complications. M.S. can be triggered into exasperation’s by less , so keep focus on staying as calm as possible. Chamomile tea kept me out of the hospital for two years while waiting for my S.S. Disability waiting period to end .
@LaurenParrott3 жыл бұрын
Hey Tracy! That is awesome advice! Thank you! I hope you are staying safe and doing well!
@BornAgainFarmGirl3 жыл бұрын
I’m having the best year since my M.S. diagnosis @@LaurenParrott thank you 😊. Controlling our emotions is key to a healthy life holistically, everyone find your way too rest on a truth that speaks to you and you’re going to feel much better !
@supertransformations90873 жыл бұрын
I'm on tecfidera and have been for almost three years now no new symptoms atm but ocruves sounds pretty great probably what I'll switch to in the near future
@LaurenParrott3 жыл бұрын
Hey! Have you talked to your doctor about it? I love Ocrevus because it works really well for me! Good luck!
@supertransformations90873 жыл бұрын
@@LaurenParrott I'm planning on doing it in January I've noticed some tremors lately and my vision has been kinda wonky so maybe I should give it a shot with the pill I'm forgetful sometimes and find myself counting the whole bottle to see if I've had my second dose or not lol
@LaurenParrott3 жыл бұрын
@@supertransformations9087 I would definitely consider it! When I had to give myself shots, I'd forget when I did it...it was horrible. I wish you the best!
@VeganSonja3 жыл бұрын
Hi, in Holland we have to give Blood Every month to see how the b cells Count is. I had to have my infusion in July, but my Count was Still to low, and since then I let them check it every month. So my last infusion was in January and I don't know when I need the next one. Did they check Yours before You got a new infusion?
@LaurenParrott3 жыл бұрын
Hi Sonja! You know, my neurologist and I didn't talk about checking my b cells....thank you so much for telling me! I am definitely going to talk to my neurologist about it. Thanks so much for the heads up! I hope you are doing well!!
@lotusesprit383 жыл бұрын
Hello Lauren how are you now, hope you fine...i have fingolimod, because i can't have the infusion drug because i have tested positive John Cunningham virus and i could get(PML). Stay safe from Covid and MS.
@LaurenParrott3 жыл бұрын
Hey! I'm doing well! I hope you are also staying safe!!
@matarazzo2092 жыл бұрын
I been on ocrevus for almost 3 years i only get it every 8 months now I guess the medication stays in the system for a while and when I get the infusion i can't sleep for like a week straight to figure
@LaurenParrott2 жыл бұрын
Hey! Oh ok, I go every 6 months. I've never heard of someone not being able to sleep for like a week. I wonder why?
@NB-vd6lm3 жыл бұрын
Seems like your hand is still shaking, sorry Lauren that you have been living with MS for 13 years now.. I have MS too and I hope they will make the new treatment with mRNA technology a reallity asap, take care of your self :)
@LaurenParrott3 жыл бұрын
Yes I still have tremors. I'm sorry you have MS too. I'm really looking forward to the mRNA technology! But I know it's going to be a while. I hope you take care of yourself!! :)
@NB-vd6lm3 жыл бұрын
@@LaurenParrott thanks :)
@slonchka3 жыл бұрын
I was denied by my ins and im 7 months past due
@LaurenParrott3 жыл бұрын
Hey Kristy! Oh gosh, I'm so sorry you were denied by your ins. Have you thought about contacting the pharmaceutical company that makes your medicine? I wish you the best!
@andrewreisinger68603 жыл бұрын
Ah...the famous "crap gap".
@LaurenParrott3 жыл бұрын
Hey!! It's so great to hear from you! Yes, the "crap gap" is the worst!!