Living with Multiple Sclerosis - Employment

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Lauren Parrott

Lauren Parrott

3 жыл бұрын

Do you talk about your MS at your job?

Пікірлер: 62
@imaneomar5512
@imaneomar5512 3 жыл бұрын
My comment after watching the video: you always give us a positive energy dear Lauren you are a strong person. Honestly, I don’t tell anyone that I have MS , only my family and one of my best friends who knows.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Imane! Aww, thanks so much!! Yeah, I think most people don't say too much. I wish you the best!
@AJHR77
@AJHR77 3 жыл бұрын
Hi there,glad to hear your update!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi AJ! Thanks for writing!
@msyaogi
@msyaogi Жыл бұрын
hi! came across to your video and it really interesting. got my MS in early 2021. I do work as an software developer cause I can't do physical work. I’m really happy to came across to this video, it really help me to stay strong and believe in myself that I can go trough with MS, thank you!!
@LaurenParrott
@LaurenParrott Жыл бұрын
Hey! I think it's amazing that you are a software developer!! I hope you are well!
@imaneomar5512
@imaneomar5512 3 жыл бұрын
Like before watching the video , nice to see you dear Lauren , GOD bless you
@LaurenParrott
@LaurenParrott 3 жыл бұрын
God Bless You!!
@richardwilliams4689
@richardwilliams4689 3 жыл бұрын
Bless you for sharing. I'm so fortunate to have found your channel. God bless and stay strong.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Richard! Thank you so much for your comment! God Bless You!
@MsIrish1959
@MsIrish1959 3 жыл бұрын
Great to hear your update, sorry that your dream job ended. :( I hid my MS from people I worked with for 8 years back in 2007 & only boss knew. Mine was in HR & as years went by it became difficult to keep up with essential duties of my role as a Manager. I worked at another place & then as a Contractor for awhile. So many more opportunities are available now to work at home in many different industries. I think u will land on your feet (or computer lol) in a career that meets what u are looking for. Use your connections to land/hear about something new. Good luck.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Angela! I could see how it'd be difficult to keep up with essential duties as a Manager. We are fortunate that more opportunities have become available from working at home! I'm hoping for the best! I wish you well!!
@charlesdonahue
@charlesdonahue 3 жыл бұрын
Lauren, it's great to see you (albeit virtually) and thank you for sharing your vulnerability and lived experience on a very important topic that is not often discussed - MS Disclosure and it's impact on employment. This year at ACTRIMS, A study by Anne Kever, PhD was presented which highlighted the association between multiple sclerosis diagnosis disclosure and concealment behaviors with increased anxiety and depression. Very interesting study and findings if the topic interests you. Also, the NMSS has some great resources that also addresses this topic. Sincerely, thank you for being such a valuable resource to the larger MS community. You are just wonderful, and I hope you are exceptionally well :)
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Charlie!! So great to hear from you! I will absolutely read about Dr. Kever's study! I would then love to interview fellow patients on their beliefs and behaviors! I wish you all the best! We should chat soon!!
@StephenChad24
@StephenChad24 3 жыл бұрын
I'm happy to see you're still making videos :)
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thank you Stephen!
@danasmith5378
@danasmith5378 3 жыл бұрын
I work with my husband, so of course he knows about my MS.🙂 Nobody would know I have MS by looking at me unless it was a hot day or they saw me get out of a hot shower because my legs get shaky when I’m overheated. I do struggle with brain fog and fatigue, so I have a hard time staying on track with work. Luckily, we’ve been working at home for a few years before the pandemic, so the pandemic didn’t change the way we work. If I had an outside job I would have quit to stay safe. I’m afraid of Covid causing a relapse so we’ve been very careful. I get my second dose of the vaccine in a few days and then our whole household is fully vaccinated. It’s great to see an update from you!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Dana! It must be nice to have such an understanding "co-worker"! My legs are the same when I'm overheated. Wow, you got lucky being able to work at home even before the pandemic! I'm so afraid of having a relapse from Covid. I'm so happy your household will be fully vaccinated! I wish you the best with everything!!
@bigrigchristfollower9020
@bigrigchristfollower9020 Жыл бұрын
I have the same issue when I take a hot shower because I like my heart when I get out my eyes are fuzzy I have to close it and sit down for a minute I have a hard time walking even to go and sit on the bed I can't even get dressed when I'm in the shower I have to get out and go lay down on the bed for a minute even if I'm still a little wet I will take a towel with me to try to keep the bed from getting too wet but thank you for mentioning that because that is my same issue now it is all starting to come together I was just diagnosed with MS and I subscribe to this channel now, I pray for all of us in Jesus Precious Holy Name and to be able to help each other.
@jasonoregan3661
@jasonoregan3661 3 жыл бұрын
Thankyou for the upload Lauren you are amazing and always with a positive. My partner has MS for about 6 years and on tysabri infusions she told her employer when she was first diognosed... She has cut down her hours from 30 hours a week to 15 hours as her job is very demanding.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Jason! Thanks for your comment, you are so sweet! I'm glad your partner listened to her body and cut down her hours. It sounds like her boss was understanding. What job does she have? I was on Tysabri for 10 years and loved it! I really hope you both are doing well!!
@jasonoregan3661
@jasonoregan3661 3 жыл бұрын
@@LaurenParrott Hi Lauren thanks for the reply yes she's in Hospitality so always on her feet and working a million miles an hour 😳 had to slow down. Hope you are all good and your family is safe 🤗 best wishes from South Australia
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@jasonoregan3661 Oh my gosh, she would certainly be on her feet and working really fast in hospitality! I really hope you are all staying safe and doing well in South Australia!!
@Mj-dc7lu
@Mj-dc7lu 3 жыл бұрын
Hi Lauren .. it's always good to see you , and I'm happy to hear that your doing well.. . finding your place in life isn't easy with all the challenges we face, but it's not impassable nether . you just need to look deep into your interests and choose something your pationat about. Mine is language translation , it's easy , simple,pays good,and i can do it from the comfort of my house . Good luck 👋🌹
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hello! Thanks for writing! You're totally right, I'm just looking into my interests and following what I'm passionate about! I admire your ability to translate! Thanks for your encouragement. I wish you the best!!
@TomDobyMowerRepair
@TomDobyMowerRepair 3 жыл бұрын
i took my last job in 2001, which i fell in love with, working with people that have been there 30 and 40 years, over time i told them and my boss was very supportive, he retired and we have a new regime now for the last 5 years and it has become very stressful and not as enjoyable, but i have 6 years til my retirement is vested so i'm gonna try to hang in there, great subject Lauren!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! My situation was extremely similar to yours. I'm sure you can make it 6 more years! I wish you all the best!
@soon1429
@soon1429 3 жыл бұрын
you're so beautiful n I don't tell a lot of people about MS, like to keep it lowkey you know. I have my issues but it's alright
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! Aww thank you so much!! Yeah, I think it's good to keep things low key!!
@bigrigchristfollower9020
@bigrigchristfollower9020 Жыл бұрын
I just got my diagnosis yesterday after I came to the Emergency Room because couldn't keep doing what I was doing which was Truck Driving. Before I became a driver I was in the health care industry myself and I have a mother who is a retired Nurse so even with the background in health care it wasn't discovered that is what it was because back in 2018 I had an MRI done and had two ruptured disc in my back and they wanted me to get a Spinal Fusion done but with the experience in the health care industry I didn't want to do that because my experience with anyone getting anything to where they put unnatural things in your body is not good so I put it off until 2021 when I started having balance issues and losing strength and getting dizzy. I was thinking this was all coming from my nerves being pinched because of my spine because when you have spinal issues bone spurs begin to grow and start to pinch your nerves so that is what I thought all of this was coming from so I ended up having a surgery what they call a laminectomy which is all they do is it's a minimally invasive surgery where they scrape off the bone spurs that are pinching your nerves so I was thinking after this I would start to feel better unfortunately I just kept getting worse so that is why I came to the emergency room and I thank God there was a lady doctor here and she already knew more than likely what it was so she did CAT scan drew Blood and urine so after that she came back with saying she it is MS and she got in touch with the on call Neurologist and now going to test me more so I can have all the documents to file for Disability. I will say I am not ready to give up my Independence and I am not that old so I'm looking into everything I can that I can be able to do to continue to work and I am glad you mentioned about the shoe or whatever for your left side because I have that same issue with my left leg so I will be looking into that and thank you for mentioning it and I have subscribed to your Channel, have a Blessed Christmas and I pray the Lord gives us wisdom, knowledge and Power to get through this.
@human-pm2kv
@human-pm2kv 3 жыл бұрын
Lauren parrot you're f****** awesome and strong!❤️❤️🖤🤘🏻
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Awww!! Thank you so much!
@KCOMSUPPORT
@KCOMSUPPORT 3 жыл бұрын
You are brave and I wonder if you were diagnosed in 2007...??? Please breathe and smile as you respond... Thanks much...
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! Thank you! I was diagnosed in 2002, but I had a relapse in 2007. I did breathe and smile as I responded! :)
@austinjohnson7746
@austinjohnson7746 3 жыл бұрын
a great video thank you for sharing your story! Luckily / unluckily I was working while getting my diagnosis for MS. this has not affected my employment and working with my HR department they have actually help me with my work. I do wonder if I was diagnosed before or if I needed a new job now how it would be with my diagnosis
@austinjohnson7746
@austinjohnson7746 3 жыл бұрын
also my Ms isn't as noticeable unless you spend a lot of time with me other than that I think people just think I'm weirder than I actually am
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@austinjohnson7746 Hey Austin! Thank you! I'm so glad your HR Department helped you! It sounds like we are very similar. I wish you the best!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
HarmonicaPants I was diagnosed in 2001 when I was a Junior in High school. I was outgoing, multiple jobs, was getting A's in school, did professional ballroom dancing. After HS I went to college, graduated and was a manager. After only a few months my body gave out, a couple weeks went by, and now I had to retire. I had been using a ca...e for years now.......I get blessed to marry my best friend (she has known of my MS). Just a few years ago my RRMS got so bad my Nero had me in in-patient for a month, I was then given the new diagnosis essive of SPMS and with that I got a power wheelchair! (Sorry kids, it's not as nifty as the hot wheels we played with as a kid). Now I get doubly blessed to not only have SPMS, but Doctors have found I have CIDP. Anybody know what the odds are of that?
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! It sounds like we have very similar stories. You are so blessed that you were able to marry your best friend! Hahaha...I'm sure your kids love being with you! I have heard of CIDP. I'm hoping that you are doing well with your lovely family!
@bigrigchristfollower9020
@bigrigchristfollower9020 Жыл бұрын
I know this video is old but I wanted to let you know that I was diagnosed with Multiple Sclerosis in December of 2022 after going to the hospital because I had back surgery due to my L4 and L5 so I had a Lumber Laminectomy done July 14th but after I still was having balance, fatigue and blurry vision issues which I thought would have been fixed when I had the Surgery but it wasn't. At the hospital I told them my symptoms so the doctor ordered lab work and did a CT scan and she transferred me to another hospital where they did MRI'S and more lab work, the Nuerologist came in and said I had lesions on my brain and it looked like Multiple Sclerosis. Well, fast forward I have had been having more issues with balance, walking and Cognitive issues so I kept researching everything and I have to let you know I was a Medical Assistant and my mother is a retired Nurse, well I heard about taking Vitamin D3 in high doses to help with Multiple Sclerosis it started with a Doctor in Brazil and it is called the Coimbra Protocol. I don't take the high doses like it was talking about because you really need to be in close care with your doctor to do that but I have been taking 5,000 IU of D3 and 600mg Calcium with 125mcg D3 and I have been seeing a big difference in my fatigue, cognition and walking so I wanted to share and also I am not on any DMT yet.
@LaurenParrott
@LaurenParrott Жыл бұрын
Thank you for writing and offering that advice about vitamin D3 and Calcium. I hope you are doing well! I do recommend getting on a DMT soon. Everyone is so different and the medications work differently for all of us! I'm sure your neurologist can help you decide what would be the best medication for you. I wish you the very best!
@danieljunker5198
@danieljunker5198 Жыл бұрын
hi are you still doing videos?
@LaurenParrott
@LaurenParrott Жыл бұрын
Yes! I'm still doing videos!!
@danieljunker5198
@danieljunker5198 Жыл бұрын
@@LaurenParrott Good 👍, My story is I have had MS since 2001, and had a series of strokes in 2022, that kicked me down much more than MS ever did. I'm disabled now.. 😕 it's ok I'm dealing with things as they appear
@LaurenParrott
@LaurenParrott Жыл бұрын
@@danieljunker5198 I'm so sorry to hear about the strokes. It wounds like you have a good attitude. I wish you the best!
@danieljunker5198
@danieljunker5198 Жыл бұрын
@@LaurenParrott Thank you. Wishing you the best as well.
@jabold
@jabold 3 жыл бұрын
Whatever I said that made you delete my comment, I'm sorry.
@heatherbauer2387
@heatherbauer2387 3 жыл бұрын
Me too. I got deleted after pouring my heart into it.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! I didn't delete your comment!! I promise!! I have ads now on my videos that I didn't approve! Something is going on! :(
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@heatherbauer2387 I did not delete any comments!! I'm so sorry!! It wasn't me...I swear. I NEVER delete comments!!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Heather, I would love to know what you said! You can email me at wardance32@gmail.com (Please forgive the name..I made it at my last job)
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Joseph A Bold Hi Lauren, glad to see you doing well. This could be a long story... I was a computer programmer at an Insurance Company in the '90s, my first job out of college. Diagnosed with MS in '92. Everything was going good until I let a call from a headhunter talk me into leaving for a better job in '99. I had been in remission for a number of years and thought I was OK, so I took the new job. I wasn't OK, MS had been working behind the scenes. Diminishing my cognitive ability. Things were going OK until my vision suddenly got worse and I couldn't drive in rush hour traffic. I told them I needed to go on Short Term Disability and took a week off. I don't think they liked this, I was only about a year into this new job. They didn't know I had MS, I never told them. I gave them permission to contact my doctor. So when I came back, they put me on Long Term Disability. Eventually, the job ended. Their LTD policy kicked in and Cigna Ins. sent a lawyer to represent me at a hearing in front of an administrative law judge in order to get Social Security Disability Insurance. In total, I am still receiving 60% of my old salary: SSDI pays 60% of that; LTD from Cigna Ins. pays the other 40%. So I indirectly those bastards are still paying me. It's enough to live on, I've been living on it since '99. I've given up trying to find a job, I can't hide my speech difficulty. The way I look at it, they're paying me NOT to work. I consider my job now leading the Strongsville Ohio MS Connection Group and I'm fine with that.
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