I’ve been preliminary diagnosed with MM pending a bone marrow biopsy next week. I’m a Hodgkin’s lymphoma survivor, had it in 2001. I’m pretty terrified right now. I started having back pain, and increased diffuse pain in my knees and elbows. My pain doc did an MRI during which they found masses on 2 levels. A bone scan showed uptake in those lesions, but no more. Labs were positive for the M spike protein. I kinda always knew it would get me again, but I’ll fight just just as hard at 51 as I did at 30.
@littleme359710 ай бұрын
Stay strong. I am a survivor of breast cancer. I know it is all different but that was 30 years ago! STAY POSITIVE.
@leena67549 ай бұрын
hope you're doing okay Amy
@dplmccarthy8 жыл бұрын
I was diagnosed with MM in March 2015, aged 45. Had stem cell transplant Nov 2015 and doing okay at the moment. Well done on this and best wishes.
@19VOLT975 жыл бұрын
How are you today??
@itsjustrenee13205 жыл бұрын
Can I give my son stem cells?
@itsjustrenee13205 жыл бұрын
i sure hope you are okay.
@Lulu-kt6gr2 жыл бұрын
Follow up?
@johnnyloungejazz5477 Жыл бұрын
Sir your video is very inspiring, Your not the type to give up and that’s the attitude you need. I was diagnosed with MM in Sept 2020, Had the stem cell transplant in March at The Vanderbilt/VA University in Nashville. I was there for 6 week’s, 2 weeks out patient with tests everyday , 2 week in patient with the Transplant and 2 weeks post transplant. Everyone asks if the Transplant hurt, No it was nothing , even the large dose of Chemo didn’t affect me at all. The first 4 weeks were nothing, but the 2 weeks after the Transplant were the worst days in my life, Not Sick or nauseous just absolutely spent and so weak and tired I could barley tie my shoes or get dressed, I told my wife if this is how I’ll be feeling then kiss my rear goodbye, it was awful. I’m a chef and couldn’t work or enjoy all the sports I loved to participate in, it was a year and a half getting stronger day by day. Luckily today I’m in complete remission , working , walking and golfing but without the same energy and skill’s I had, but it’s not bad. I’m still taking Darzalex IV monthly and Revlimid pills 21 days a month for now . I feel like I’m getting better even today. My attitude from the day I was told was. “The hell with it” it is what it is, I’ll play the hand I was dealt. But there’s hope for MM keeping the right attitude and never start feeling sorry for yourself is important. I was 74 when diagnosed , I’ve seen kids in their 30’s that have to deal with this their entire life. Sad…
@peterrush2693 Жыл бұрын
A story that I can relate to, as a cyclist and somebody that was diagnosed with Myeloma on my 64th birthday, 11 days after my 35 year old daughter was diagnosed with breast cancer. We are both fighting it.
@dangrimes5078 Жыл бұрын
I've had MM since 2009. I've had many different treatments. I've seen a few friends die from his terrible disease.
@beinghuman12349 Жыл бұрын
@@dangrimes5078 You have resisted MM for 14 years
@dangrimes5078 Жыл бұрын
@@beinghuman12349 yes
@beinghuman12349 Жыл бұрын
@@dangrimes5078 I am from INDIA My mother has been diagnosed with MM last week We are in panic situation Please provide me some information So that I can help my mom to fight it well Please Please..........😭😭😭😭
@dangrimes5078 Жыл бұрын
@@beinghuman12349 I would help you in any way I can. If you keep sending me messages I will keep responding. You have to find out if your mother has high risk traits. In my case I didn't. This can make a huge difference in her prognosis. I have light chain myeloma. That just has to do with what part of the cell the cancer is in. The first treatment I got was a drug called Velcade. It worked very well. The next thing I got was a stem cell transplant. That was a terrible experience for me. There are many new drugs approved by the FDA now from when I was diagnosed. The problem is that I don't know what is available in India.
@heru-deshet3593 жыл бұрын
I was diagnosed with MM at age 65 after having my right shoulder looked at for severe pain. Turned out it was a tumor that caused my clavicle to break. They removed a third of it 10/2019, did radiation, placed me on chemo for a year and got the stem cell transplant 11/2020. It's been in remission. Everything looks good with regular testing. I'm just having physical issues due to so many meds and maintenance chemo therapy. Hoping to get physically stronger and with less pain. Blessings to all my fellow warriors fighting this foe.
@Jenkinz20092 жыл бұрын
How did you manage to eat after stem cell transplant?
@xiylo.2 жыл бұрын
How are you now?
@beinghuman12349 Жыл бұрын
I am from INDIA My mother is diagnosed with Multiple Myeloma & Kidney damage too Can you provide me some information please please 😭😭
@theheberalchic6517 жыл бұрын
My mom has MM we are praying for Gods complete healing. Thank you for sharing and giving us hope! May God bless you!
@veronicachristopher-fellow58663 жыл бұрын
My sister I am praying too
@nehamalviya20523 жыл бұрын
How's your mother now
@xiylo.2 жыл бұрын
How is she now
@oniveditz2 жыл бұрын
Hii what is the symptoms your mother got
@itsjustrenee13205 жыл бұрын
My 41 yr old son diagnosed today. I am devastated. This man inspires me.
@TheLeukemiaLymphomaSociety5 жыл бұрын
Hi Renee, we are so sorry to hear this. We encourage you to contact our Information Specialists, who can answer a wide range of questions around diagnosis and treatment. You can reach them here: bit.ly/IRCLLS
@WhomDoctor4 жыл бұрын
Hoxsey in Tijuana, God bless.
@dangrimes50782 жыл бұрын
Yes it's scary but I'm past 12 years and my cancer had never really gone into remission it's just somewhat stable. I feel as good now as anytime during the last 12 years. I hope this helps you.
@venomx4093 Жыл бұрын
@@dangrimes5078 Did you have chemo or stem cells?
@dangrimes5078 Жыл бұрын
@@venomx4093 With mm you don't actually receive stem cells from a donor. What usually happens is they harvest your own cells. You get a massive dose of chemo and then your cells are thawed out and put back in your body.
@okienurse77593 жыл бұрын
Written by her son. (She fought so hard and lost her battle, passed on November 20th, 2020. She tried so hard but never gave up even in the end she thought she could win) to anyone that has survived i bless you in winning your incredibely tough battle, to those that have joined my mother wherever she may be, my condolences and blessings upon you all and their friends and family.
@syamalsen55312 жыл бұрын
Future is determined by future .every moment is becoming past.so we are striding through future always. Which is unknown is called God. Thanks.
@arpijoy2 жыл бұрын
Andy you are blessed. My mom was diagnosed with MM at 75 last year in September, she tried very hard, worked hard to win this tough battle, and never gave up until her last unconscious episode, 911 came 13min late, I gave her CPR, my children and husband gave her CPR, but we could not revive her and lost her. Please carry on the fight to find a cure, God bless you!
@michelsooriah6922 жыл бұрын
Blessings and greetings from mauritius. Sympathy. I am on remission now, diagnosed in aug 18 and BMT in india, oct 19
@jamesthosbaker5 жыл бұрын
“Every day I’m vertical is a good day.” How true.
@elantra454 жыл бұрын
My heart is broken right now. I just lost my father to this 5 days ago. He fought long and hard. 😪
@francesconicolai4 жыл бұрын
J B I hope you are doing better now. Stay strong!
@tashjohnson87104 жыл бұрын
Same
@veronicachristopher-fellow58663 жыл бұрын
Oh no sorry
@heru-deshet3593 жыл бұрын
God bless you. I lost my dad last year from a heart attack fighting cancer, my wife's uncle from leukemia and my sister in law 10 days ago from cancer.
@Lulu-kt6gr2 жыл бұрын
I’m sorry. Do you mind telling me: How long did he live with it?
@amberlysantos85755 жыл бұрын
This disease took my grandma Mary on May 14 2019. She fought hard for 1 year and a half. I miss you my angel.
@randypalazzo14212 жыл бұрын
Your a hero, and so are the researchers that are getting close to a cure.
@davidrosenman18894 ай бұрын
Extremely moving so far. When he started talking about his wife, I started to cry.
@ubavec52 жыл бұрын
Yesterday i lost my father from this disease. He found it late and he lived with this diagnosis 2 weeks. We are all broken. We all fight with him and we lost.
@xiylo.2 жыл бұрын
I’m sorry for your loss.
@30lifeafterthirty38 Жыл бұрын
I am really sorry for your loss currently my dad diagnosed with MM and looking for some people opinion who experience it and to find out how we can help him to go through it 😢😢😢.
@thetruthalwayswins340 Жыл бұрын
@@30lifeafterthirty38 how is your father doing. Is he getting a treatment for multiple myeloma
@sergerosenbaum2771 Жыл бұрын
"If I am not for myself, who will be for me? And being for myself, what am I? ... Hillel the Elder.
@bakrelafifi56622 жыл бұрын
Dear Andy, Many thanks for sharing your experiences with MM you extremely gave me more and more power to keep fighting against that disease where unfortunately I got it at the age of 60 and back again right after recovery for the second time in less than one year with the same horrible symptoms, the immunology doctor treated me with “Vanked” in addition to some other drugs. The MM directly affected the performance of my kidneys as well so I’m going for renal dialysis three times a week for a certain period of time until they get back to work. I wish I go back to my normal life again soon, swimming, gym activities that I used to practice all over my life. Many thanks for the great support of my wife, friends and family and I wish if you tell us how things are by now with you right after the 6 years of recovery🌹👍
@xiylo.2 жыл бұрын
How are you now?
@duckdodger3080 Жыл бұрын
When someone dies from cancer, they did not lose the battle! They aren't with us anymore, but they have no more cancer, no pain, they are at peace and that's a winning battle!
@jaynec749912 күн бұрын
I was diagnosed from one blood test. This test should be part of the ACA 100% covered preventive screenings! People w MM suffer broken bones including spinal fractures, kidney failure etc. before they get diagnosed.
@johnneff91758 жыл бұрын
Well glad he's doing so great. I have MM in remission but my life is over thanks to peripheral neuropathy. My day is spent popping Percocets and feeling like crap. Also, stem cell transplants are not the super treatment they want you to think. I pressed the expert in Atlanta and he finally admitted that the survival rate between meds ( Revlamid) only and transplants is comparable. No transplant and giant bill for me.
@venomx4093 Жыл бұрын
A buddy of mine had a lot of chemo for leukemia. $1.6 million debt. No insurance. He died. I do have insurance with a fairly low maximum out of pocket expense, but I would most likely refuse chemo. I'm down with stem cells though or Fenbendazole.
@Jack-hy1zq Жыл бұрын
@@venomx4093 I'm expecting my first delivery of fenbendazole and tudca etc. I'm going to refuse chemotherapy at my first oncology appointment next week. Good luck, friend 👍
@venomx4093 Жыл бұрын
@@Jack-hy1zq Best of luck and put your faith in the Lord. Stop ALL sugars in all forms. Look into Glutamine blockers as well. Start fasting to starve cancer. Cancer needs glucose and glutamine to survive. Our normal cells also live on Glutamine, but can adapt to ketones for fuel. Cancer can't live on ketones. Chemo is a Glutamine blocker, but you can find natural ayurvedic glutamine blockers as well.
@venomx4093 Жыл бұрын
@@Jack-hy1zq After reading comments on Fenben alone, it doesn't work without vitamin E. There is a study on Fenben with and without vitamins that you can find.
@HiddenHandMedia9 ай бұрын
@@Jack-hy1zqcan I ask why you refused chemo. I was recently diagnosed and am preparing for a stem cell treatment.
@Aliiloa20104 жыл бұрын
Thank you Andy! I have Multiple Myeloma. I will be attempting to move back to Arizona in 2021. I will send you a message when I leave.
@daisyvalentino24146 жыл бұрын
my Father is fighting MM right now he was diagnosed a few months ago.
@kl36254 жыл бұрын
Joe Schmoe is your father ok? My husband just got diagnosed he’s 51.
@mrbarranquilla546 жыл бұрын
My empathy and best wishes to you. You are a great exaple of figthing spirits.
@vndvr787 жыл бұрын
This disease took my fathers life on 3/30/10. He fought hard for 3 years.
@TheLeukemiaLymphomaSociety7 жыл бұрын
Andi, we are so sorry for your loss. Please know we are working on your father's behalf for a cure. Sending our best to you!
@seaya35936 жыл бұрын
Same :(
@pgk-wv4ku2 жыл бұрын
my mom just passed away last week with MM, she battled with it in 29 months.
@brent47705 жыл бұрын
I have smoldering MM and I'm waiting for the other shoe to drop. It's torcher and you think about it 24x7. I'm 56.
@itsjustrenee13205 жыл бұрын
How are you doing Brent? I hope you find good health and long life. Maybe there will be a stunning cure. We can always hope.
@charliehandy63 жыл бұрын
I was diagnosed with SMM 2 years ago.i got into a clinical trial at NIH. Reached a MRD level of 0. I urge you to look at clinical trial for SMM, before your MM goes active
@brent47703 жыл бұрын
@@charliehandy6 I lost my PPO and I'm using the my VA benefits. VA is extremely passive and don't like doing anything they don't have to. Market Place insurance was $800 a month for a decent plan and I couldn't afford it. I did do a clinical trial 2.5 years ago and it did help. My M-spike is only at 0.68. It was 1.4 going into the trial. I will still keep looking for another trial though. MD Anderson won't take market place insurance so I'll have to look else where.
@charliehandy63 жыл бұрын
Brent: My research included Spark Cures, a site that lists all the various MM Clinic trials. Their site allowed me to plug in certain variables which brought up trials that fit my situation. They then help steered me to NIH. I had no out of pocket fees as it was a trial. Hope this helps and stay strong
@luciferr098 жыл бұрын
My mother was diagnosed 8 years ago with multiple myeloma. she went into remission for a year and it came back. Since then, she's been fighting it with the help of whatever they can find will help it. I'm so scared.
@visilencer72197 жыл бұрын
Athaina how she doing now
@seaya35936 жыл бұрын
Update?
@jeffreyhill39606 жыл бұрын
Keep up positive energy..cure will come. I was diagnosed in 07 . Had transplant in early 09... still in remission... Thalidomide was the pits but it worked for me....along with steroids....lots of side effects though..better stuff is available now. Keep up your spirits..
@scuddrunner15 жыл бұрын
If you can, contact Dr. Kumar at the Mayo Clinic Rochester MN. He knows all the tricks, great doctor!! Keep a positive attitude! Don't sit around the house.
@surenderjaiswal38094 жыл бұрын
@@jeffreyhill3960 wat side effects u hav?
@carolehaines13212 жыл бұрын
thank you
@BityKfemcee6 жыл бұрын
Can you please give an update on Andy? Is he alive and well..I hope so.
@laurilackey22356 жыл бұрын
How is this man doing today, Dec 2017? Prayers...
@Lulu-kt6gr Жыл бұрын
How is it possible that would be a coincidence? Is it possible that the two of you were jointly exposed at the same time to a toxic substance? I’m very sorry to ask such a personal question.
@bobbymoncada68614 жыл бұрын
You are owsome and God bless
@wendyeesue2 ай бұрын
Ive got different symptoms, Top of my head very sensitive when i wash my hair, never there for years now starting to bother me. My upper right side of my gums is sore to the touch when I brush my teeth, Dentist did not know what it is. It is my bone in my gums..My left hand index finger knuckle burning like a lit match inside. Im awakened in the middle of the night with a burning sensation, again, like a lit match running accross inside my leg..There is a red bump at the spot where the burning sensation stopped. Ive got red dots all over my legs which recently was told by the Doctor its caused from Low Platelets...I start a Bone Marrow Biopsy June 4th 2024. I believe this all start 1 year ago when I accidently Breathed in Carbon Monoxide...
@natashab34122 жыл бұрын
I've seen at least 3 cases of family members both having mm. What is that about. I wonder..
@saranagh70978 жыл бұрын
We've come this far by FAITH, leaning on the LORD. Hang on his Holy word He NEVER FAILED ME YET. Thx for this video.
@dianewolfthal17384 жыл бұрын
Please rely on your doctors, and be thankful for science. (Wife of patient with multiple myeloma.)
@heru-deshet3593 жыл бұрын
@@dianewolfthal1738 God provides them for us. Blessings to you and your family.
@jameswebb81626 жыл бұрын
Hi, my name is James and I was diagnosed with multiple myeloma in August of 2013 at the age of 41. I have had 2 stem cell transplants and so far I have been in more or less remission. It's strange that when I get my blood checked it's like those old jack in the boxes where you turn the handle waiting on it to jump out. Every 6 weeks I get my numbers checked and it feels like I am turning the handle. Does any one feel the same way?
@Questinia13 жыл бұрын
I hope you're well, James. I wonder if you still need yourself checked every 6 weeks?
@dangrimes50782 жыл бұрын
I don't even know what the hell you're talking about but I hope you're doing well. From one survivor to another.
@venomx4093 Жыл бұрын
Did you have to get chemo first?
@christopherdelacruz1598 Жыл бұрын
hi! i need to know where did you consult reagrding stage 3 multiple myelome right now may relatives have stage 3 multiple myeloma this is her second opinion were here at PIH Hospital in whittier almost 1 1/2 years fighting foe that cancer and now the doctpr said is not curable because stage 3 already they took chemo for her Bellgate, Kyprolis and Revlimid now she is bed ridden can you recommend me where is that place and who is your doctor.. Im begging you pls save her..her heart is good condition, she can breath at her own without tube.. can you give me the address and the place where is that???
@binflynn13 жыл бұрын
Every day is the best day , keep her lit 👍
@jennycarlsso5 жыл бұрын
How is he today?
@Nika-co9nx2 жыл бұрын
My dad has his last minutes. He has myeloma all his bones broke
@jameshenry60985 жыл бұрын
God bless
@thomasmichaelpenders4 жыл бұрын
I am 42 years old and I was a greenskeeper 20 years ago using agricultural strength glyphosate which is generic roundup. 4 months ago I had testicular cancer and had one removed. After going back to have a ct scan they said they saw 6 inches of my pelvic bone eroded away. They did the biopsy and found myeloma. What's next?
@geomancer63714 жыл бұрын
Speaking from experience (I have MM, biopsy revealed 4 months ago), some tests for prognosis and to determine the treatment. You'll be given the choices for chemotherapy, depending on your current and existing health condition. Good luck and do not stress yourself out.
@veronicachristopher-fellow58663 жыл бұрын
@@geomancer6371 my sister too has this praying for a mircle for you both
@geomancer63713 жыл бұрын
@@veronicachristopher-fellow5866 Thank you for your thoughts and prayers. My cancer markers have been going down as a result of chemotherapy and lifestyle change, especially the removal of sugar and simple carbs from my diet, eating only whole, non - processed foods and walking a lot under the sun. Still quite a ways to go, but at least progress is seen in the right direction. Hoping for the same or better results for my fellow MM patient above.
@tashjohnson87104 жыл бұрын
I lost my father to this April 24,2020
@Lulu-kt6gr2 жыл бұрын
How are you doing today??
@bakrelafifi56622 жыл бұрын
Dear Andy, Many thanks for sharing your experiences with MM you extremely gave me more and more power to keep fighting against that disease where unfortunately I got it at the age of 60 and back again right after recovery for the second time in less than one year with the same horrible symptoms, the immunology doctor treated me with “Vanked” in addition to some other drugs. The MM directly affected the performance of my kidneys as well so I’m going for renal dialysis three times a week for a certain period of time until they get back to work. I wish I go back to my normal life again soon, swimming, gym activities that I used to practice all over my life. Many thanks for the great support of my wife, friends and family and I wish if you tell us how things are by now with you right after the 6 years of recovery🌹👍
@bakrelafifi56622 жыл бұрын
Dear Andy, Many thanks for sharing your experiences with MM you extremely gave me more and more power to keep fighting against that disease where unfortunately I got it at the age of 60 and back again right after recovery for the second time in less than one year with the same horrible symptoms, the immunology doctor treated me with “Vanked” in addition to some other drugs. The MM directly affected the performance of my kidneys as well so I’m going for renal dialysis three times a week for a certain period of time until they get back to work. I wish I go back to my normal life again soon, swimming, gym activities that I used to practice all over my life. Many thanks for the great support of my wife, friends and family and I wish if you tell us how things are by now with you right after the 6 years of recovery🌹👍
@michelsooriah6922 жыл бұрын
Full support from mauritius. Diagnosed in aug 18. BMT in oct 19, India. Remission now.
@kharinaricasio1921 Жыл бұрын
I wish we had enough money for my farher so his doing stem cell but we dont have enough money for this kind of medication😢
@christinan0054 ай бұрын
I was diagnosed with multiple myeloma in march with kidney failure. Had to have 2 blood transfusions within 3 week of eachother im very anemic. I'm fightingbtho😢 I jst turned 42 yrs old three week ago