How are things going now?

How did it turn out for you?

Very sorry for your loss. Can't even imagine how difficult that must be.

Basically he's been living in hell How the fuck can you enjoy life like that? And l am starting to feel tired all the time because of my cardiomiopaty

Hi Noboru, sorry for the delayed response, we didn't get notified of your comment! There are a couple problems with recommendations about exercise selection. 1. It depends on where your leads are placed. A popular option is the subclavian vein which is a higher risk for lead fracture. 2. It depends if your pacer is sub pec or subcutaneous. If it is sub pec (under the muscle) it will be more protected 3. The number of leads you have makes a difference. A single lead is safer than a dual lead is safter than a triple lead. There's only so much space in there, so more leads=greater risk of fracture. 4. Your personal anatomy. The shape of your body will make a big difference. Some people have been able to make zero modifcations to their exercise routines and have had no issues. Others have fractured leads very easily (like me). In general I would avoid anything repetitve overhead (like military presses, pull-ups, lat pulldowns, etc...) and also any chest exercises like bench press, push-ups, etc... The other down side is that pacing isn't that commong. Roughly 350k people in the US, which is a drop in the bucket in the medical world. Couple that with the fact that more than 95% of people with pacers are over the age of 50. The 50+ community isn't a population that is commonly involved in strength training. So there isn't much data. Fortunately leadless pacing technology is on its way, and should be a viable solution for most people in the next 5-10 years.

@@ArkitectFitness thanks plenty for the response!! Very insightful and Helpful. I guess were all unique. I have one icd lead subcutaneous and pretty sure it’s not via the subclavian vein. I guess it’s a bummer that repetitive exercises over the head and chest is not recommended. Let’s hope technologies keep on improving for both pacemakers and icds. Thanks again!

Hello I’m in the same boat as you right now. I had my av node damaged in an WPW ablation. I’m playing college baseball and just found out after not feeling well that my ejection fraction has dropped from 73 to 40 in 7 months. It’s stressful! I’m looking into getting the new leafless pacemaker called “Micra av”. It is put into the area where the av node would be at and helps with synchrony with the ventricles. If I decide not to get that then I’ll get the third wire. I just want to get better ASAP for baseball. I hope everything is going well. The doctor I will speak with is close to being able to regenerating the whole av node with gene therapy. His name is Dr. Cingolani! He’s great and I see him tomorrow. Maybe we can help with funding for the biological pacemakers to be available soon. If you want to chat you can email me @rhettwalker11@gmail.com Thanks, look forward to hearing from you!

Any updates on this? How did it turn out?

@@ArkitectFitness It's still very bad. I'm on medication again twice a day now. Still think it doesn't work. For now i'll leave it as it is. Maybe someday i will go abroad to see if there are other options for me, cause i heard in the country next to me, they are more specialized in pacemakers etc. Hope your doing good as well