At any one time, at least 30,000 people in the U.S. are living with amyotrophic lateral sclerosis (ALS), a rapidly progressive, fatal neurological disease affecting individuals, caregivers, at-risk genetic carriers, and others. In this video, committee members behind our 2024 consensus study report, “Living with ALS,” including an expert with lived experience, explain their vision for making ALS a livable condition within the next decade. To access the report and its supporting materials, including a highlights document, policy briefs for Congress and key agencies, action guides for researchers and other stakeholders, one pagers, an infographic, and more, visit www.nationalacademies.org/Living-with-ALS.