I'm feeling great on Ocrevus! I still have symptoms, but I'm looking forward to an update on my MRI!
Пікірлер: 75
@mvcw896 жыл бұрын
I start ocrevus soon I’m nervous but also excited, I’m glad your having luck with it Lauren 🙂
@meshiabean28655 жыл бұрын
@@LaurenParrott same with me I have been diagnosed for 10yrs now🙏💞
@marktwained6 жыл бұрын
Continued prayers for you, young lady. I’ve followed your journey. Stay positive and keep posting. You have helped me in dealing and understanding more about MS. Thank you
@LaurenParrott5 жыл бұрын
Thank you so much! I'm so glad I have helped you! I will stay positive! Thanks again and you'll be in my prayers!
@numbr66 жыл бұрын
You're MRI will be unchanged, I'm willing to bet. I've got 9yrs of MRI history while on Tysabri, and one MRI after changing to Ocrevus. They all look the same, no progression. I've noticed I feel more "certain" when walking now I'm on Ocrevus. Yesterday, my wife an I hiked down a rather steep trail to the bottom of Snoqualmie Falls, which was the easy part. Hiking back up everyone on the trail, except 6yr old kids, where pacing themselves and struggling. I made up fine, no falls, not overly tired or sore the next day. Working against me is my lack of daily exercise. I really have no excuse there, as we do have a working elliptical exerciser. I do have a large field of grass to mow, which is exercise enough, I think. :)
@kelseyparker77376 жыл бұрын
I'm GLAD you're feeling great! You are really starting to change now. I do not have the Ocrevus. I have autism! I don't enjoy the heat either...there's gross water that comes out of your skin. It's called sweat. Well, it's horrible. I prefer cold weather. How about you?
@stephenyahn62556 жыл бұрын
Great to here you are doing so well. Look forward to your next video. Try to stay cool and have a good summer.
@andrewreisinger68605 жыл бұрын
Hi Lauren! I will hopefully be starting Ocrevus soon!! Glad you are happy!
Hi Lauren! Thank you for sharing. I’ll be starting Ocrevus soon so it’s good to hear another person‘s experience and find out how you’re doing.😊
@Kirarachu6 жыл бұрын
I'm so glad to hear you're feeling well on Ocrevus with improved symptoms. I also suffer with heat sensitivity and I have the feeling that it can't really be helped until scientists find a way to repair myelin. It's a great shame though as it does affect a lot of us for a decent period of time each year. We have winter in Australia at the moment and I'm enjoying the cool weather and not sweating all the time! I'm pleased to say that I had my yearly MRI in May and it showed no new lesions, I'd also had no relapses in that time. It's wonderful to be in a part of the MS journey where things are stable! Wishing you all the best with your MRI, Lauren. xx
@maddyf19856 жыл бұрын
Its great to see you so glad lauren. I'm so happy that you are so happy with ocrevus. At the moment I'm doing my driver licence and i'm very happy about it. Sometimes it is hard but i do my best to learn it. I wish you the best lauren 😘
@richardwilliams46895 жыл бұрын
God bless you and stay strong, and thank you!
@SHAIsMSWRLD6 жыл бұрын
happy for you ❤️ ocrevus helping you
@megd75936 жыл бұрын
So glad you’re feeling great! Hopefully even more infusions will bring even more relief from more symptoms. 😊
@MarcyMcCallum6 жыл бұрын
On Ocrevus as well and found improvement with my symptoms, including dealing with heat & humidity following my 2nd full infusion. Best of luck!
@dougnorwood54476 жыл бұрын
Lauren, good to hear from you again. I know it's easier said then done, but hang in there! You're young, you're strong, you have the right attitude and you have a whole bunch of good people that care about you and are watching over you! Easy on the spirits though...
@brads.1596 жыл бұрын
Great to see that smiling face again Lauren. Happy to hear you are doing well...enjoy your Summer and and hopefully stay cool...heat intolerance sucks😓
@jernejagregorc33204 жыл бұрын
I am starting with this medicine soon. Thank you for every video 🥰
@wlrcrash6 жыл бұрын
Hi Lauren - Look at you gorgeous girl, so glad it is working for you. It is doing it's thing for me as well. I am waiting on an MRI too. I just had my 1st full dose and all is good. Lets just hope the more infusions we have the better we feel each time. Keep well and keep smiling Wendy x
@jabold6 жыл бұрын
Yay Lauren! Glad it's working for you. :) You look and sound great. Good luck with the MRI. If you feel like you're doing better, I can almost guarantee that the MRI results will show this. Yes, alcohol can be tough with MS. Just one drink effects my speech/balance like having six. I too had my nephews wedding to attend down in N. Carolina just two weeks ago. Bladder issues made it tough. Took some planning/discipline on my part, but I managed. Good luck, can't wait for your next video!
@ladyatlarge38446 жыл бұрын
YAY! :) I'm so excited for you. I haven't seen a change in my self, which is actually good enough for me. I just didn't want to get worse. Heat is the worst still for me too.
@tammycondray11495 жыл бұрын
My MS doctor recently had me start Ampyra off-label for heat tolerance. It’s normally given for walking/gait assistance, but they told me that for some reason that they are not certain of, it is helping patients tolerate heat. And it really works. Just something to perhaps discuss with your doctor. Thank you for sharing your story, I just had my first infusion of ocrevus myself! (I’m in Dallas, btw, and it’s been a long, hot summer)
@teresahorner70653 жыл бұрын
Just started I love it so far! Love your video 😁 ❤️💞
@LaurenParrott3 жыл бұрын
Hey Teresa! That's wonderful! Thank you so much!
@BornAgainFarmGirl6 жыл бұрын
So glad for you Lauren . Tecfidera has kept me fairly stable .
@duncansbuddy6 жыл бұрын
Lauren has been an inspiration, I'm glad for her as well. I'm in the beginning process of taking Tecfidera (if they can get the cost down). The more I learn regarding possible side effects,, the more I question it all. Are you having any severe side effects w. Tecfidera?
@BornAgainFarmGirl6 жыл бұрын
duncansbuddy Hello 👋, I’ve only gotten flushing from the Techfidera , everything else has been fine . My previous therapies were (in order) Avonex , Tysabri, Gilenya , Tecfidera . The Tecfidera has been the most effective therapy so far . Hope you get something that works for you soon . ~ Tracy
@meshiabean28655 жыл бұрын
Tecfidera did not work for me but we keep on fighting 💪
@jeffkeith6376 жыл бұрын
Thanks Lauren. That's a great perspective to have. Any reduction in effects is a bonus, indeed. Looking forward to the results from my last MRI, just completed my first year on natalizumab. More mature? 30, tops! Take care.
@SO-te5cl2 жыл бұрын
kzfaq.info/get/bejne/e66Gi62hqajHnYk.html Alan Macdonald: Multiple Sclerosis is a parasitosis
@liznitu66525 жыл бұрын
I like that you're always smiling in your videos; it's really inspirational. I wanted to ask how does Ocrevus feel like? Is it better than tysabri? anways continue making videos. I find them really helpful!
@jernejagregorc33204 жыл бұрын
Thank you ❤️
@imaneomar55126 жыл бұрын
God bless you lauren
@joyceadair30036 жыл бұрын
Lauren I’m just wondering how you’re doing today. I wanted to check in with you because I’m getting ready to start my treatment Thursday, August 9. I hope you’re doing great with continued success.
@notme4116 жыл бұрын
Great to hear it’s working great
@notme4116 жыл бұрын
Lauren Parrott I’ll have another infusion next Monday
@matarazzo2096 жыл бұрын
Hi Lauren, I’d also had ms pretty much as long as you. I only want to say enjoy the very best of your life, don’t stop drinking if that makes you happy of course with moderation. My symptoms aren’t too bad right now I tried alternative medicine for a good while now I’m giving a try to aubagio but I get my good days I enjoy and have some drinks once in a while with my friends and have an amazing time and I don’t think I offended God in any shape or form, my advice is enjoy the very best. And keep fighting the good fight. Btw try earthing that really made a huge difference for me, as a fellow MSR please give earthing a try.
@elizabethwutzke90404 жыл бұрын
She's so sweet
@willpan66596 жыл бұрын
Going in for the second part of my first infusion and waiting to see if something positive shows up on the MRI after seeing new lesions following no treatment... btw you should really model
@kendallp35776 жыл бұрын
I get my first infusion in 2wks I'm hoping to smile as you are 👊#warrior
@tmaze74876 жыл бұрын
Thank u
@enajenaj68415 жыл бұрын
I use to drink a lot & smoke thank god I was able to quit both been three years now best for people with MS avoid smoking & alcohol & make sure you are taking a DMT
@MSman776 жыл бұрын
Hay Lauren you really look great 👍 congratulations honey & wish you the best 🌷🌷🌷
@LaurenParrott5 жыл бұрын
Hello! Thank you so much! I hope you are well!
@matthewsmith77614 жыл бұрын
On September 17 is a day i won't forget. I got my 1rst Ocrevus infusion on that day
@andyzabb18554 жыл бұрын
How do you feel now?better?
@joyceadair30036 жыл бұрын
Hi Lauren I want to let you know that I had my first infusion a week ago and I did great. I didn’t have any side effects during the infusion. However today I’ve had a heaviness in both legs and it’s been really difficult to move and walk. Has anyone else experienced this.? I hope you’re doing well thanks.
@tiffanydawn48866 жыл бұрын
Hi! Have you tried a cooling vest? The MS Society provides them for free 😊
@chancho22235 жыл бұрын
In Canada?
@ldjt61845 жыл бұрын
How often are the infusions, Lauren? Once a month?
@jasonc52896 жыл бұрын
HSCT reboots your system. No longer required to stay in inside.
@Thisbook20225 жыл бұрын
Easy to say
@poke_wounds91753 жыл бұрын
I learned the alcohol lesson really hard. I noticed my hangovers got way worse and then I noticed I would just go straight from sober to sick, I couldn't get to that fun, silly stupid drunk mindset nor could I even get buzzed. So the last couple of years I put a 2 drink limit on myself and I've stuck to it like 99% of the time and I think It's been close to a year since I've had a single drink. It's just so not worth it and with all the medicines we are on It's even more of a mess.
@LaurenParrott3 жыл бұрын
I totally agree!! I've noticed that it really affects me if I haven't eaten very much. I put a limit to1-2 drinks. It sucks, but it's really not worth getting wasted. I hope you are doing well!!
@poke_wounds91753 жыл бұрын
@@LaurenParrott Exactly, It's just not worth it anymore. I'm doing okay Lauren I hope you are well.
@ldjt61844 жыл бұрын
HI Lauren, so this is after the first 2 halves?
@larsonlocklin604 жыл бұрын
I started it last month. It hasn’t been good to me so far. My walking is worse now than ever. Maybe it’s just me? Copaxone put me in ICU for two days last year. I’m special I guess.
@dougnorwood54476 жыл бұрын
Hi Lauren, hope you're feeling well. Have you had your MRI's yet? Did you say you're getting one MRI or multiples, w & w/o contrast?
@LaurenParrott5 жыл бұрын
Hello! Thank you, I hope you are also doing well! I have had a few MRIs now with contrast. There is NO progression!
@jasonc52896 жыл бұрын
Have you heard of HSCT?
@syndigriner-owens43516 жыл бұрын
Hi, I am 34 , I have MS and the issue with handling heat poorly. I have heard of a Japaneses produce that helps you stay cool. There is a gel and foam, I have not found a place where I can order it online, but if anyone finds a place, or if I do, please share it. They are called Cool Foam, and Ice Spark Cooling Gel.
@syndigriner-owens43516 жыл бұрын
I hope we can find it, it would be awesome to help others like us
@OlgaMesh6 жыл бұрын
You shouldn't drink at all! I don't. We have more than enough problems with MS.already.
@megd75936 жыл бұрын
Also, I was wondering what medication you use to help with tremors?
@SandraWatts6 жыл бұрын
I wondered the same thing!
@BeachBabby2336 жыл бұрын
Have you considered or tried CBD oil, or marijuana?
@jasonc52896 жыл бұрын
Why is slowing down acceptable? Why not stop it? HSCT.
@jasonc52896 жыл бұрын
Lauren Parrott 40% gives you an improvement. 40% you stay the same. 20% shows you slip. Seems like a no brainer. I'm going in less than 12 days. I'm not going down.
@sonsofanarchy53165 жыл бұрын
You are very Lucky you maKe infusion with ocrevus i, m not ocrevus i need ocrevus în România i hope give ME my dr my ocrevus many patient like with ME maybe bless you i have a treatment with seizure rivotril and gabaran but is not for ms pp
@LaurenParrott5 жыл бұрын
Hi Corina! Yes I am very fortunate. I will keep you in my prayers...I hope you get everything you need in Romania! God Bless!
@sonsofanarchy53165 жыл бұрын
@@LaurenParrott i hope to be fine on MOnday. Due to lack of treatment I was hospitalized thank you
@CHRISRepAZ6 жыл бұрын
You look good, your face is really red, though, is that from the drug?