Living with Multiple Sclerosis - Social Security Disability and Medicare

  Рет қаралды 2,094

Lauren Parrott

Lauren Parrott

Күн бұрын

I recommend contacting the MS Society if you have any questions about Social Security Disability and Medicare!

Пікірлер: 56
@juliogutierrez4304
@juliogutierrez4304 2 ай бұрын
Thank you very much! Hearing your positivity through all of the frustration makes this overwhelming process seem so much more approachable thank you 🙏 🧡
@LaurenParrott
@LaurenParrott Ай бұрын
Thank you so much for writing!! I hope you are doing well!!
@freethinkeralways
@freethinkeralways 3 жыл бұрын
Thank you, Lauren! You are the most positive person! I can't handle the frustration as well as you do. Over the years I figured one needs to b very healthy for all the burocracy that comes with MS.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thanks for writing! Aww, thank you! I agree, one needs to be healthy. I wish you the very best!!
@stephenyahn6255
@stephenyahn6255 3 жыл бұрын
Always nice to hear from you Lauren. I have applied for SSDI just this July all of it is very confusing. I can sympathize with your frustration. Dogs are great friends they will always be there for you. Take care
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thank you! Yes, I'm so glad you can relate! Dogs are amazing and I feel so blessed to have them! Take care!
@gabbyfranks78
@gabbyfranks78 3 жыл бұрын
It's very frustrating. My MS was onset. But I'm blessed mine was approved. It can take years for some to get it. I didn't even need an attorney. Anyway thank you. Great info Lauren. Those Fur kids are beautiful.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Gabby! Yes, it is so frustrating! I'm so glad yours was approved! Thanks for your comment! I love the dogs so much!! :)
@alrightwithms845
@alrightwithms845 3 жыл бұрын
Thanks for sharing. It’s different here in Australia too! Best wishes. Good luck 🤗
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thanks for writing! I hope things are going well for you in Australia!! Best wishes and good luck to you!! 🤗
@jabold
@jabold 3 жыл бұрын
Hi Lauren Glad to see you are doing well, glad your dogies were there to help you out! Your situation sounds very similar to mine. You did a smart thing contacting NMSS for help. This is way too much to figure out. Been on SSDI/Medicare since '99. I dropped down to 60% of my old salary. It is enough to live on. Selected Anthem as my "Medicare Plus" insurance. When you go in front of the administrative law judge to get social security, having PBA will help by turning on the waterworks (tears). I bumped a wrong key on my computer and wiped out a lot of what I just typed. As you said, everything will work out. Take care. Love your videos!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey!! It's so good to hear from you! Thank you! Yes, my dogs have been amazing for me. I totally agree about how having PBA is helpful when you go in front of the administrative law judge...it helps! Everything will work out and we will be ok! Take care!! Wishing you the best!
@Gabriellabonanno
@Gabriellabonanno 3 жыл бұрын
Miss Pretty is back!! Sending prayers
@LaurenParrott
@LaurenParrott 3 жыл бұрын
You are so sweet Phil! Thank you!
@atypocrat1779
@atypocrat1779 3 жыл бұрын
You look and sound well. Hope you get it all figured out and can relax.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thank you so much Andy! I hope you are well!
@bsnsgoodwin6261
@bsnsgoodwin6261 3 жыл бұрын
Lauren, thank you so much for sharing this information. I am not quite to the point of "needing" Ssd but am starting to gather all the information about so it's not so confusing or overwhelming when I am ready to apply. I've been following your channel for a long time now and always love to hear about your journey. Love and hugs. 😁
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hello! Thank you for your comment! I'm sending love and hugs!!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thank you so much for your comment!! It means a lot! I wish you the very best!! :)
@christinedavi
@christinedavi 3 жыл бұрын
Hello Lauren, great advocate for yourself. Always have an advocate always. When you're going through this time of SSDI in my go through boring time for a couple of years. I even got mad when I was denied SSDI could not believe it. If you have to and you have the funds you might have to turn into a fighter for yourself and hire a lawyer to make sure you get that benefit. The MS society helped me. The social worker helped. If you ever decide to about getting vocational therapy and a job again.You might have to wait some time but it's possible. I have had a job for almost 13 years after getting bored of being on SSDI. In the meantime enjoy those dogs. The MS Society even bought me a gym membership with a personal trainer. Hopefully this pandemic will pass and you look forward to something your MS navigator can advise you down the road. Stay healthy and strong and think of ways to keep yourself strong physically and mentally with that computer you have in your lap. That might be just the way you can use your charming personality. Your friend, Christine Davidson P.S. If you ever find yourself needing help from the state you will also probably need to hire an attorney to advocate for you. Your independence and future are worth it! Find out what district do you live in and have the representative come to any meeting you need them to. Someone will help. Disability lives matter!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Christine! Thank you so very much for your kind comment!! I hope you are well!!
@poke_wounds9175
@poke_wounds9175 3 жыл бұрын
Don't forget the first two years of being on SSDI you get Medicaid and then it switches to Medicare. I love your videos keep making them and I hope you are doing well.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Thanks for writing Josh! I hope you are doing well!
@zPhantomx
@zPhantomx 3 жыл бұрын
Hi I have MS and I live near Troy MI. Thanks for the videos.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Phillip! Thanks for writing! I hope you are doing well :)
@zPhantomx
@zPhantomx 3 жыл бұрын
@@LaurenParrott I'm doing good. I'm on my 3rd dose of Ocrevus and it has helped me tremendously.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@zPhantomx That's wonderful news! Ocrevus has helped me too!
@CandyMalpicaOfficial
@CandyMalpicaOfficial 3 жыл бұрын
Hi Lauren, I've seen couple of your videos and at least to say my heart goes out to you for having the strength to share your MS journey.. I was diagnosied in 2017 and today actually a few minutes ago I recieved my Jcv results and came back positive.... I was crying, overwhelmed and Prayed to God and afterwards I came to search for information on that JCV and came across your videos which are heartbreking beacuase i can relate but most of all motivational ❤ becaue I know I'm the only one alone in this... And With this video I wanted to know when can a person apply for help such as social security disability and stuff like that? Can it be at anytime with a person who has MS or do you have to be bad health due to MS in order to apply amd get approved... I haven't done it because im afraid of being denied. I have 4 kids and work as a Special Education TA which is very crucial and hard on my MS and the symptoms get worse because of the stressful enviorment... Been on couple of treatments and all were bad on me... Trying Physical Therapy now before going on infusions or any other treatment ...today was my first day ... I would just like it if i can alieviate the tension im under which makes my MS rise high and I thought about getting on dissability for a while now but i dont know if im able to be eligable for it... Im new to all this and still learning along the way everything new that happens with my health... Thanks for your videos and hope you can respond to this messege when you see it .. 😊
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Candy! I'm so happy you found my videos! You can apply for social security disability, or any kind of help anytime. I ended up hiring an attorney just to alleviate the stress that goes along with everything. I knew if I hired an attorney, they would do the work that needs to be done. If you are officially diagnosed with MS, you will NOT be denied. If you can prove that you've been diagnosed by a neurologist you won't have any problems. Even though I believe physical therapy is incredibly important, I think that being on a medication is most important because it slows the progression of the disease. Stress is awful for everyone, but stress can make MS get worse. Please write to me anytime! I wish you the best with everything!
@Mj-dc7lu
@Mj-dc7lu 3 жыл бұрын
Hello Lauren , happy to see your doing well🙂. I can't really relate to your situation because in my country all medications for all diseases are 100% free ! ... Anyway , if it's ok with you could you please list your mids for us so we can try and see if they may be any help ? ( I'm on tysabri for years now with no attacks but still gradually lost ability to walk 😔) Thank you sweetheart ,best wishes.👋🙂
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! Wow you are fortunate to have all of your medications free! Here are my other meds: Modafonil (I take for fatigue) Clonazepam (I take for tremors and anxiety) Nuedeexta (PBA - Pseudobulbar Affect)
@AmberlyKay
@AmberlyKay 3 жыл бұрын
Hiii I jus did a video on me having MS .. but keep pushing 🎀✨
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Yay! I'll check it out!!
@AH-ev3uy
@AH-ev3uy 3 жыл бұрын
♥️
@Damian6Robin
@Damian6Robin 3 жыл бұрын
Took me 3 months to start receiving social security but before that I didn't had a $1 so figure to get things going and payed go figure
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Oh I totally understand - I'm so glad you are all set now!
@katieb777
@katieb777 3 жыл бұрын
I got approved SSI Disablilty around 18 months ago i applied for it in 2018 since i was diagnosed with MS in early 2018 . i hav blue cross blue shield i feel like a burdon to my parents that pay it since its around $700 a month . i think you have to have disaiblity years to get medicaid ? and right now blue cross covered 100% of the ocrevus infusiions i take in the past they covered 100% of the glatirmirer acetate ( copaxone)
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Katie! I feel like a burden too. I'm so glad that Blue Cross covered 100% of your medication. I hope you are feeling well!
@nicki1739
@nicki1739 3 жыл бұрын
Hi Lauren. It sounds like all is well, I hope so! I have a question. I’ve heard Medicare doesn’t cover ocrevus- other treatments yes, but not ocrevus. Is that why you need supplemental insurance, to continue with ocrevus, or will you be changing treatments? ❤️ Nicki
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hi Nicki! From what I understand, Medicare DOES cover Ocrevus at 80%, and then the company that makes Ocrevus, Genentech, offers at co-pay card that covers the rest. You may have to pay $5.
@nicki1739
@nicki1739 3 жыл бұрын
Lauren Parrott that’s good news. I also thought you had to have private insurance for the copay card to work (I use it now). Maybe Genentech has another copay card I don’t know about. Thanks for getting back to me. BTW, how is ocrevus treating you?
@LaurenParrott
@LaurenParrott 3 жыл бұрын
@@nicki1739 From what I understand, you don't need private insurance in order to receive the co-pay card. If you have questions, maybe you can call genentech. Ocrevus is working great! I feel so blessed!
@kentucky8554
@kentucky8554 3 жыл бұрын
Hello, I was just wondering how you've been since on Ocrevus & how the side effects were? Ive had rrms for aprox 14yr and now ppms my Dr wants to start me on Ocrevus but, im extremely hesitant about it. Any assistance info would be greatly appreciated! Thank you in advance.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! I've been on Ocrevus for 4 years and I love it!! I don't have any side effects. The only thing I noticed that is different revolves around alcohol. I don't drink that frequently anyway, but when I went to a wedding, I had 3 glasses of wine and I felt completely intoxicated. So I just have to be careful about how much alcohol I drink. That's the only issue I've noticed in 4 years and I feel great!! Good luck!
@kentucky8554
@kentucky8554 3 жыл бұрын
@@LaurenParrott thanks
@deecats5768
@deecats5768 2 жыл бұрын
Do you need to have a Lawyer to receive Disability and Medicare benefits?
@LaurenParrott
@LaurenParrott 2 жыл бұрын
Technically, you do not need a lawyer to receive Social Security Disability. However, I was told that hiring a lawyer makes the process much easier. I did hire a lawyer and it was great!
@paprikafafaron57
@paprikafafaron57 3 жыл бұрын
How are you?I have ms.
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey! I'm doing well! I hope you are too!
@kelseyparker7737
@kelseyparker7737 3 жыл бұрын
Well, hello, Lauren! Peanut Butter doesn't like dogs! He's interested in them! Squeaky would bite them! He's going to have to learn VERY soon that dogs bite back! Peanut Butter wouldn't bite them. He's not a fan of dogs!
@LaurenParrott
@LaurenParrott 3 жыл бұрын
Hey Kelsey! Oh no...I'm sorry Peanut Butter and Squeaky are not fans of dogs. They are my best friends!
@kelseyparker7737
@kelseyparker7737 3 жыл бұрын
@@LaurenParrott not even a tiny little bit...
@human-pm2kv
@human-pm2kv 3 жыл бұрын
❤️🖤
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