Living With One of the World's Rarest Diseases - My Story
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4 ай бұрынI'm Jack, and this is my rare disease story. On July 5th 2012, I was diagnosed with Tricho Hepato Enteric Syndrome, a condition which effectively means you do not have a funtioning immune system. I have battled this conditon my whole life and learning to live with it is incredibly challenging.
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@GoodFriday2024 4 ай бұрын
You’re a warrior and an inspiration mate. I’ve had 3 bowel surgery’s and have a stoma so I know all about the colonoscopy’s etc but you’ve really suffered. As a Christian I believe in Jesus and an afterlife so I will pray for you. I don’t know what you believe but knowing that your life expectancy is likely to be shorter than most I would seriously consider thinking about this. Hope we can beat Cardiff. Thanks for sharing.
@JillJones-el7gz 4 ай бұрын
That was such a brave thing to share , so proud of you ❤
@bobbylostandfound 4 ай бұрын
Thanks for the info buddy. Your a great young man especially all you’ve been through. Keep laughing through life. Your syndrome is rarer than bcfc centre forward goal so very rare!!
@Tipps72 4 ай бұрын
Keep your head up Jack, good on you for being brave enough to open up & speak so openly about what you’ve gone through. Puts life into perspective.
@iangilmore6824 4 ай бұрын
You are an inspiration Jack, incredibly brave. Love watching your City blogs as well.
@stuarteccles6771 4 ай бұрын
Amazing video and what an insight, brilliant and you have a great channel
@Henry-xh8yq 4 ай бұрын
Thanks for sharing Jack.
@Sam.Gaming 4 ай бұрын
Hearing your story takes me back to the time when i had Leukaemia i beat it and i know things will get better for you Jack
@seanmcgonigle7610 4 ай бұрын
do you feel better Jack see you at the game
@Rowster4 4 ай бұрын
Let's Get The Three Points On Saturday For You
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