Living with Pancreatic Cancer - the Patient Perspective

Рет қаралды 51,266

2 жыл бұрын

Watch this recording of Patrycja Rzadkowska, Patient Expert & Pancreatic Cancer Patient Advocate from Poland at the Digestive Cancers Europe ‘Insights into Pancreatic Cancer' at our 2021 Virtual DiCE Masterclass. The Masterclass is a series of sessions designed to educate and share best practice among Members - patient organisations dedicated to improving the quality of life of digestive cancer patients and helping to save lives across Europe.

Пікірлер: 69

@doreenwhitehead4224 2 жыл бұрын

You did well. As a nurse, I worked oncology for 8 yrs and also had uterine cancer when I was 59 yrs old. I was a lot luckier so to speak than you. Surgery was easy as they used robotics, almost no pain. No spread, 3 radiotherapy treatment and follow ups. I have been cancer free for 11 yrs. So far so good. Your situation was much worse and you were so young. Wishing you the very best in everything. Your work with the various organizations is very generous of you. Keep up the good work. And, one last thing, you are so very right in that the mental health of people who had or have cancer is most important. Actually, everyone's mental health is important.

@schoomzer 2 жыл бұрын

You and she are awesome. God bless!

@denisepaulsenful 2 жыл бұрын

You are such a beautiful person. 😻 infinitely loveable. I am so very sorry about your diagnosis. It should never happen to anyone.

@cynthialewis2096 2 жыл бұрын

My friend was diagnosed 6 years ago, and she is still alive. I am in awe of her and you.. tough ladies!!

@Kazilikaya 2 жыл бұрын

She’s incredibly lucky. 90% of pancreatic patients die within 1 year of diagnosis.

@cynthialewis2096 2 жыл бұрын

@@Kazilikaya I know... as I said, you ladies amaze me!

@oldonetwoable Жыл бұрын

It seems to have a lot to do with what end of the Pancreas the cancer starts. My Sister lived with no treatment for 5 years and she was not too bad for most of those 5 years.

@calciofan828 9 ай бұрын

⁠@@oldonetwoablewhat do you mean at what end the cancer starts on the pancreas, I guess it’s either the head or the tail of the pancreas. But what difference does it make?

@caroltrudge1389 7 ай бұрын

There is no way you would servied that amount of time no way .. I know.. To close to home.

@fundacjaeuropacolonpolska9738 2 жыл бұрын

Well done Pati. You are a star. We love you. You give hope to other patients. At the same time you show how hard pancreatic cancer can be but how human beeing is amazing in fighting for life and happiness.

@bobmcnelis3648 2 жыл бұрын

You are a brave and strong young lady! You have a great outlook, and support group. I am so very proud of you! Love, from America.

@somebody7270 2 жыл бұрын

Praying for you ma’am.

@linda2468lou 2 жыл бұрын

Praying for you. Many blessings to you.💕

@kristycannon7923 2 жыл бұрын

Can you provide us with a new update? You are so brave to share all of this with us. Thank you and may God bless you 🙏

@kate4biglittlevoices 2 жыл бұрын

Young people , especially women, are now the largest and fastest growing group for pancreatic cancer- used to be elderly, and mostly male - now, we see it more and younger - my father passed w it, and my best friend she was just 40 and healthy before she was diagnosed weeks prior to passing

@lauraamante7005 Жыл бұрын

It’s our diet. So much chemicals in the foods and high fructose corn syrup. High insulin puts a strain on the pancreas & liver. Very scary but people need to watch their diet

@marzenapancutt8102 Жыл бұрын

For all those who are so shocked the girl had pancreatic cancer and she's still alive and well. She did not. Most people when they say pancreatic cancer, they mean pancreatic adenocarcinoma, a very deadly cancer with absolutely dismal prognosis. As she states in another video she had solid pseudopapillary tumor, a completely different disease with very good prognosis. Stop confusing people, the only thing in common between these 2 diseases is that they both start in pancreas but apart from that they have nothing in common. Her tumor was over 10 cm in size and no metastases, this would never be possible with adenocarcinoma, you would be long dead by the time tumor reached that size

@almcdonald8676 8 ай бұрын

Agreed. Thanks for that. Was it head or tail?

@arthurdomal5053 7 ай бұрын

@@almcdonald8676 pancreas is divided into head, body and tail...the adenocarcionoma affect the head most and is more than 90% of the cases are extremelly deadly, 95% of mortality in a 2 years window after prognosis.

@marzenapancutt8102 7 ай бұрын

@@almcdonald8676 Not sure but it makes no difference. With adenocarcinoma, because of its invasiveness anything above 3 cm is usually unresectable regardless of the location. And once it's uresectable, it's a certain death sentence sooner or later (usually within a year with treatment). Even for those that caught it early and had surgery, prognosis is poor with only 15% surviving more than 5 years. The tumor this lady had is borderline malignant (so not a typical cancer as such) and does not invade blood vessels and nearby organs so it is possible to resect it even when it's that big

@da4441 2 жыл бұрын

Wow. 4 years with Pancreatic cancer and still alive?!?!?

@caroltrudge1389 2 жыл бұрын

Wow. 4 years???!!!!

@caroltrudge1389 7 ай бұрын

No... You need to get it right.

@vkkna Жыл бұрын

Thank you very much for sharing your very personal story

@margaretwallace2021 6 ай бұрын

You are very brave.God be with you

@lucyhume718 Жыл бұрын

Thank you for sharing your stories. You have and are having a tough time. You are so brave and a very strong lady. Mental health is so important, such a valid point xxx

@gailjones6925 2 жыл бұрын

Thank you for sharing!

@winsomeblair42 2 жыл бұрын

thanks for sharing your story

@dianajames4717 2 жыл бұрын

hope and pray you are still dong okay wishing you the very best always

@wladyslawkoros7245 11 ай бұрын

Praying for you from Australia❤❤❤❤

@weizerthanbud2989 2 жыл бұрын

Stay strong!!... one luv! 🙏

@giannij.centenocenteno6675 Жыл бұрын

Thank you for doing this. How are you feeling now? I hope all has improved and you’re feeling much better.🙏🏽❤️

@mrbillga3572 2 жыл бұрын

God bless you

@Tyler.flynn.16 9 ай бұрын

My mother battled this nasty cancer for 2 years. The end was nothing I could of prepared myself for. Good luck against this nasty shit! Cancer sucks!

@angelaknight7184 2 жыл бұрын

All the best to you

@mcennerney Жыл бұрын

God bless you 🙏❤️

@antoanetaslavescu2086 2 жыл бұрын

I will pray for you.

@lisawhite3648 2 жыл бұрын

Philly Lisa here.I will pray for you honey.Very brave an way to young for this Bullshit.God Bless you❤❤

@Kazilikaya 2 жыл бұрын

She had PaNET rather than PDAC. The former is far more survivable.

@marthalilly3689 Жыл бұрын

That is what I believe too

@jackson24241000 Жыл бұрын

Awesome, you rock

@mariahbanke1795 2 жыл бұрын

My husband was diagnosed last April 8,2022 of pancreatic cancer stage 4, base on ct scan. Hes very mobile and very alert. But when pain takes over, its screaming pain, it is horrible, 🥺🥺🥺. April 18, biopsy was done no result till now, for now hes in pain. And was hospitalized 4.19.22 due to small blood clot in the lungs. I am lost🥺🥺🥺. Still waiting for the biopsy result.

@josephdockemeyer6782 2 жыл бұрын

Cancer is very hard on loved ones. It turns our world upside down. This won't be easy for you to deal with and I'm so sorry for that. Life has changed forever. Please know that you are not alone. Stay strong.

@tommyroche9142 2 жыл бұрын

Sorry to hear your family has to go through this.

@lisawhite3648 2 жыл бұрын

@@josephdockemeyer6782 Think its worse for the person.Unless like me its their child.My Nick had the"good kinda thyroid".It came back once he is fine now.Godbless you young lady.You are in my prayers.Philly love USA.Love from afar💜💜💜💜💜

@josephdockemeyer6782 2 жыл бұрын

@@lisawhite3648 So true. I had thyroid cancer in 2004. The good kind: papillary carcinoma. My dad died from lung cancer in 2001. He stopped smoking in 1987.

@favour7944 11 ай бұрын

I love people like you you have faith in Jesus life thank you sweetheart in everything thank you lord Jesus Christ

@mariahbanke1795 2 жыл бұрын

What stage was your diagnosis?

@maldini9487 11 ай бұрын

does pancreatic cancer develop yellowish eyes starting from the outskirt of the eye white spreading gradually towards the pupil at the centre?

@missmarielyne6697 Жыл бұрын

she still ok !?

@trinamartinez4669 2 жыл бұрын

🙏🏿♥️

@traceysutton6288 2 жыл бұрын

My kidney cancer metastasis into rt lung. 4 months on chemo pill. It cured in lung in 3 months time. But it may to my pancreas. It was Biopsy it is kidney cancer in my pancreas. Nobody has heard of this kind? 1st yr we try immunity it worked for a short while. 2nd yr we try reg chemo. No. Now onto radiation 2out of 5 radiation. Scared...

@mikepict9011 2 жыл бұрын

Hydrogen therapy. Personally I'd be guzzling platinum nano / gold particles too with high dose Hydrogen. As a catalyst

@johnjarvis2168 2 жыл бұрын

Please research Rick Simpson oil. We have been treating people for 8 years and we have witnessed miracles. Please research it, please.

@Alwayslearnimg 2 жыл бұрын

How are you doing now?

@JerryObiyor Жыл бұрын

Hey how are doing

@user-vy7bs9oc3s Жыл бұрын

السلام جمل جيداالبرنمج العندكم والتعليق وهواتف صلى مباشرفي ذالك الحسن

@user-vi5to5wp2l Жыл бұрын

I did not know I had pancreatic cancer wow dignosed in 1997 Kaiser Permanente see they never told me this crap ok I was still a kid back then just graduated high school wow at time ok no wonder have unbearable stomach pain ok