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Living with PNH: Sharon's Story
Рет қаралды 291
Күн бұрынPNH Patient Sharon Telesford shares her experience with PNH and how it impacted her work life and family life. She offers encouraging guidance for patients for their health care and quality of life.
To find out more about treating PNH, please visit www.aamds.org/...
@JoJo-iy9lv 8 ай бұрын
Thank you❤️
@damiettes7140 10 ай бұрын
You are so lucky that you could bring 10 loved people to the conference. A support network is so important
@SwitTuazon Ай бұрын
Anxiety attacked for me when i diagnosed pnh
@vishalrathod3371 2 ай бұрын
I am also PNH,diagnosed in 2006.FROM INDIA GUJARAT STATE
@bagdharahandicraft9202 19 күн бұрын
Pls inform me about all information,pls plsss😢
@vishalrathod3371 18 күн бұрын
@@bagdharahandicraft9202 ok
@ssss-ub6xu 26 күн бұрын
Is there any treatment for pnh
@AAMDSIF 22 күн бұрын
Yes, there are treatments for PNH. None cures the disease but they help patients live a full life. You can find more information from this recent recording: www.aamds.org/webinar/pnh-2024-philadelphia-patient-and-family-conference
@rahatali441 10 ай бұрын
Hi my husband is 30 years old and he is pnh paitent
@AAMDSIF 10 ай бұрын
What type of information do you need? Here is the section of the website that will answer many of your questions: www.aamds.org/diseases/pnh. You can also send an email to help@aamds.org where Patient Services will be happy to answer your questions.
@vishalrathod3371 2 ай бұрын
Same here
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