Medical Stories - EOE: Hard to Swallow

Рет қаралды 36,816

Жыл бұрын

Imagine achieving your life’s dream to become a chef despite the fact that
80% of the food you prepare will trigger a severe reaction in your throat and
cause you to choke. Chef Lori lives that life. In this episode of Medical
Stories, we learn how both Lori, and Darrien, a talented student, have adapted
to live with eosinophilic esophagitis. EOE, as it is commonly known, is an
allergic condition where the esophagus becomes inflamed and does not
contract properly. Featuring renowned expert, Dr. Devon S. Delion, from the
University of North Carolina School of Medicine.
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Пікірлер: 35

@kathymorris4553 8 ай бұрын

I was told by 2 of the best doctors for Fibromyalgia. They both said it was the worse case they have seen. I have a milk allergy and the lactose was getting in my muscles why I ached all over. I switched to Lactose free and I haven’t been having all those symptoms. I also discovered I was an Empath, I would take on or feel others pain. I learned how to deal with that. It’s hard around crowds, so I put my hat on as a sign, closed for business

@Ceerads 7 ай бұрын

That’s some house she has!

@jeremywilson3684 2 ай бұрын

I have EOE after being hospitalized with aspiration pneumonia and was in the hospital for 5 days and aspirated into the wrong lung. I'm lactose intolerant amongst other things

@oceanluvngal 8 ай бұрын

The jar with all the crazing is a gorgeous find! Really enjoyed the tour at the end as well.

@leece_6702 8 ай бұрын

Even without having asthma, maybe the medication could be standard treatment for this condition for someone like Lori, so she can have a more varied diet

@SheliaRPierre Ай бұрын

Oh those fruits look sooooo good!!! I hv a procedure in July with the Gastrointestinal Specialist to see if I have EoE. I hv so many of the symptoms. Most days I feel so bad. And with Asthma and Sleep Apnea, it makes it worse.😢

@kimromero3503 11 ай бұрын

I am having a hard time finding knowledgeable doctors. Diagnosed by GI EGD one week ago. Pathologist actually diagnosed it.

@lalathebenificent1335 8 ай бұрын

Agreed!

@San-ny1pg 3 ай бұрын

@@JorgeVidel-hk3yswhat's the technic

@kathykay2010 6 ай бұрын

Has anyone tried Liposomal Taurine? It is a major anti-aging supplement and it is a major anti-inflammatory that promptly changes conditions for the better. This problem would be a major bummer. My heart goes out to them.

@janzoeteman9617 2 ай бұрын

Perhaps someday Lori could share recipes & other things that help her along in the journey. Being a chef is there a way for you to show us our enjoyment for food through her creations while on this journey?

@redredred8408 4 күн бұрын

Sensation of lump in the throat? Is that a symptom?

@faithf5846 Жыл бұрын

Sjorgren’s syndrome have similar characteristics. I wonder if pilocarpine would benefit?

@elizabethmackinnon2576 7 ай бұрын

I have had Sjogrens and swallowing problems for years. Coughing constantly when trying to eat. Dry throat & constant friction of food going down & now I have a narrowing in my gullet. I have been told liquid diet only henceforth. I have lost 10kg in 3 months because I cannot take in enough food. I have had a gastroscopy & 3 endoscopies.

@faithf5846 7 ай бұрын

Very difficult to deal with dry eyes and throat I have had a tiny amount of success with broths, tender foods, powdered Bone broth (ancient nutrition) mixed with kefir and yogurt. Eggs. Soft food s I have to be careful not to inhale my foods which can be really bad. Interesting success stories Jordan Peterson and his daughter Mikhalia I hope to try their meat diet. Even with baby food for a time 🙏❤️

@cherylkat2342 7 ай бұрын

I can’t swallow or eat haven’t after I had stomach surgery because I had a hole in it… I have a feeding tube…then on Halloween I was in horrible pain i went to the hosp the next day I had to have 2 emergency surgeries one was kidney full of stone blocked my tube so had surgery on it. Then 5 days later I had to have colon surgery 3 blockage….so that’s why my feeding tube kept throwing it out I couldn’t get but one formula in I lost a lot weight we tried getting a a iv feeding tube but the insurance turned us down till this last surgery.. these doctors got it for me so now hooked up all day to feeding pump… but I’m getting food not staving… putting back on some weight. My daughter has the same thing but she on special diet…. I dion ‘tenant her to end up like me.. at one time I weighed 300 no then I went to 113 not with feeding machine I am 118 😊 i also have 2 stomach medical problems… but PTL I’m still here!

@Katie-vy5rd Жыл бұрын

Im almost through the video and maybe they talk about at end but what about biologics?

@refugiomarisela961 Жыл бұрын

Hi Lori , My son has EoE he is very frustrated and doesn’t know what to do . He is starting the elimination diet but doesn’t have a plan . Could you PLEASE help him by talking to him . He is 36 years old and has little boy 6 years old . PLEASE help him with your experience. How can we contact you . We live in Maui . My name is Marisela

@Katie-vy5rd Жыл бұрын

Ask About biologics... most of the time if you make less than 100k /year, you can qualify for free medication.

@kricket8801 11 ай бұрын

If you look through the comments another patient recommended starting carnivore and slow adding other things in

@user-im6fy4qp6m 7 ай бұрын

first place to start is to remove all dairy from the diet. that means butter, yogurt, cheese, everything. you have to inspect every single label of food you eat. no dairy. for the majority of people, dairy is the main trigger. the other common triggers are the ones listed in the elimination diet like wheat, soy, eggs, fish, and tree nuts. tree nuts are actually the least common trigger according to the data. cutting dairy either solves the problem or gives tremendous benefit in like 90% of people with the disease. good luck

@hayabusa09 Жыл бұрын

@ 9:24 You can hear the "Bitch I told you!" in bro's voice.

@redredred8408 4 күн бұрын

The feeling of pressure in the throat like something pressing on your neck, doesn’t affect breathing at all??

@Evie_2213 4 күн бұрын

The oesophagus and air way are two entirely different pipes so no it won’t affect your breathing unless it goes into the airway (chocking)

@Evie_2213 4 күн бұрын

It can feel like it’s harder to breathe but normally it’s not actually blocking your airway

@redredred8408 3 күн бұрын

@@Evie_2213breathing isn’t affected. It’s a feeling that something is putting pressure on your throat muscle and a bit of soreness in the muscle deep down where you clear your throat afterwards, like the muscle is a bit worn out there

@emeraldkimble7602 8 ай бұрын

How far can you go in i forty to west coast we got as far as Asheville no ti visit ever. Inlaws

@wah-kengwu4483 Жыл бұрын

Check with dr robert morse at Florida. He has good herb that may help. Also fruits diet might help

@paigepoinsett8939 8 ай бұрын

I was diagnosed 7 to 10 years ago. It took 3 years of testing to diagnosing. A routine of medication and double premedication before food type events and finding out my triggers of carbonation and cinnamon helps keep it a bay. It always feels like a lump in my throat and trouble swallowing at times. I now know when it starts to acts up and and can stop it from happening about 75% of the time. Frustrating disease.

@user-im6fy4qp6m 7 ай бұрын

are you saying carbonation triggers it for you? how is that possible? are you sure its not the corn syrup in the soda or something else?@@paigepoinsett8939

@shannon6 2 ай бұрын

@@paigepoinsett8939 Gee how did you get diagnosed so long ago. It took 10 plus years for me to finally be diagnosed. Started with the feeling of a lump in my throat all the time and at the end couldn't swallow even water.