Medication and Autism: Options, Benefits and Warnings ⚠️💊

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Mom on the Spectrum

Mom on the Spectrum

2 жыл бұрын

➡️Today we're exploring a tricky subject. What are our options when it comes to medicating for relief from autistic challenges?
As a reminder, I'm NOT a doctor, and any decisions you make regarding medication should be made with your health care provider. Do not stop or start taking medications without medical supervision.
This video is primarily to share my own experiences with medication and how it has both benefitted and hindered me, in the hopes that it will help you find a treatment path with your medical provider that works for YOU.
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📱Click on the any of the timestamps below to jump to a specific section of the video and be sure to checkout the resources below that for articles and products mentioned. 🖥
⏱ TIMESTAMPS 👾
Click on any blue timestamp to jump to that section of the video.
Autism Doesn’t Need a Cure (1:01)
Autism and Finding Homeostasis (1:42)
I’m Not a Doctor! (2:40)
My Goal With This Video (2:59)
The Stigma of Medication (3:29)
Autistic Challenges that Medication Might Alleviate (4:42)
3 Types of Drugs We’ll Be Covering (5:04)
Antidepressants (5:09)
My Experience with Antidepressants (6:46)
Serotonin Differences and Paradoxical Effects of Medication in Autistic People (6:55)
Beta Blockers (10:13)
Stimulants (11:02)
Autism and ADHD (11:16)
Stimulant Disclaimer (11:32)
The Plus Side of Stimulants (12:21)
Stimulant Side Effects (12:58)
Interoception (14:02)
Dark Thoughts and Suicidal Ideation (16:30)
Mindfulness (17:22)
From Thinking Mind to Experiential Mind (18:18)
Bottom Line: You do YOU! (20:05)
✍️ RESOURCES (Articles) 📓
➡️ Temple Grandin: Inside ASD - Medication (This is the article I’m reading from in the Antidepressant section of the video where I’m talking really fast. 🙃)
www.autism.org/temple-grandin...
➡️ The serotonin system in autism spectrum disorder: from biomarker to animal models
www.ncbi.nlm.nih.gov/pmc/arti...
➡️ Paradoxical reactions elicited by diazepam in children with classic autism
pubmed.ncbi.nlm.nih.gov/2826308/
📚 RESOURCES (Books) 📖
Peace is Every Step
Thich Nhat Hanh: Peace is Every Step
www.secondsale.com/p/peace-is...
Pema Chodron: When Things Fall Apart
www.amazon.com/When-Things-Fa...
Deepak Chopra: The Seven Spiritual Laws of Success www.amazon.com/Seven-Spiritua...
Eckhart Tolle: The Power of Now
www.secondsale.com/p/the-powe...
☄️RESOURCES (Products) 😎
Weighted Exercise ball
www.amazon.com/ProsourceFit-W...
_____________________________________________
I'm Tay, a married mom of 2 who was diagnosed with Autism at 31 years old. This was after YEARS of therapy (and all of the self tests in the world!). My diagnosis has brought up questions, frustration, doubt, but most importantly, a new level of self compassion and understanding.
I'm here to share knowledge, resources, and products that empower other neurodivergents (and their loved ones) to live freely and creatively. I'm not a doctor so please speak with your healthcare providers before implementing any recommendations I make on my channel.
Females are under-diagnosed due to lack of research. Please share any videos that are helpful to you so we can spread awareness and acceptance.
Music by Milky Wayvers ("Mountain")
/ milky-wayvers-mountain
Background thumbnail Photo by Hal Gatewood on Unsplash
#autism #autistic #aspergers

Пікірлер: 211
@Tarynbreann
@Tarynbreann 2 жыл бұрын
I was on Adderall and Adderall XR, before getting genetic testing done. I found out I metabolize Adderall twice as quickly as I should, which explains why I mentally crashed everyday. I also learned which medications my body processes best. I switched to Strattera, which isn’t a stimulant!! It’s been much more helpful in regulating my thoughts and regulating my focus. I can’t recommend getting genetic testing done enough for those looking to find the “right” medicine to help!!
@allisonspencer3693
@allisonspencer3693 Жыл бұрын
Definitely agree.
@nirgunawish
@nirgunawish Жыл бұрын
when people still cant focus on stimulants tell them to try strattera yea
@jess.singswithleaves6
@jess.singswithleaves6 11 ай бұрын
Omg thank you for reminding me! I had a test for depression meds but it also listed adhd meds!!!
@Kelli5555
@Kelli5555 10 ай бұрын
Thank you. I have a fast metabolism too. I haven’t had testing done but I crash on adderall and feel increased anxiety by the end of the day.
@FerdinandMadsen
@FerdinandMadsen 10 ай бұрын
It ain’t a stimulant yet a noradrenaline drug?
@CinkSVideo
@CinkSVideo 2 жыл бұрын
Honestly, we need to have discussions regarding meds. We need to hear people’s experiences. The docs are likely not going to be helpful with this side of things. It’s difficult to know what is “normal” on the meds and what’s not. Many of us have been told that our experience is not valid so much that we think we should ignore all the “not quite right” feelings.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Yes I agree. I've had many experiences with doctors where I feel invalidated because they don't understand my perspective since it's different. They don't understand how finely tuned I am to my body and the way it perceives the world. One time our pediatrician told us that my suspicion that gluten upset my autistic son was totally off. She said that doesn't happen and it was likely something else. Didn't bother to ask why I felt that way, and I could've shown her a detailed thread of how he is affected on and off gluten based on trials I had conducted at home and monitored in regard to specific behavioral measures. So yes, I think talking about these things is key, and was part of what I wanted to accomplish by making a video about this touchy subject. Medication doesn't have to be a scary topic or taboo idea. If we can all talk about it, we can start figuring out how to better approach things for each individual person and find a meaningful path toward wholeness. As always thanks for sharing.
@sharonjensen3016
@sharonjensen3016 2 ай бұрын
My concerns about the medications prescribed by Dr. Drug-pusher (sorry, but he doesn't deserve to be called by his real name after what he did to me) were disregarded, he diagnosed me as having probable psychosis and told me I should be "grateful." What rot! He was the one who said: "Take a tablet for me" HE was the one who benefited. I didn't. Mellerill, Zyprexa, Solian and Risperdal did nothing for me except probably left me damaged in some way. I weaned myself off antipsychotics ten years ago after questioning the rather questionable medical profession. My trust has died.
@Erin-nh3tu
@Erin-nh3tu 2 жыл бұрын
Hey! Love your assessment of stimulants, it’s very self-aware. I also love that you mention the tie to eating disorders. Most stimulants up regulate dopamine. With ADHD, certain eating disorders, and other diagnoses, the person’s brain does not have enough dopamine bouncing around the right synapses. Taking a stimulant up regulates dopamine so that the persons brain is now functioning with more normal, optimal levels of dopamine (and serotonin, norepi). With my diagnoses, taking a stimulant has been life-changing. It just puts me on a normal level - able to prioritize, focus, formulate clear thoughts, AND make significant progress with my 15yr (binge-purge subtype) eating disorder . Definitely happy to go into more bio chemistry on this, but the point is - for years my brain just hasn’t had enough dopamine bouncing around to function properly. Pair this with some spectrum characteristics, and it was a recipe for (high functioning) disaster. *** SO. Point being, your self assessment of stimulants’ effects on your body makes it sound like YOUR brain probably already has enough dopamine floating around. The extra neurotransmitters made you feel really good, and made you talk a lot because for you, they were EXTRA. When you mentioned that you couldn’t sleep, that’s probably because even when half of the medication was out of your body, you still had too many neurotransmitters jumping around your brain. For someone whose brain chemistry actually needed the stimulant - well half of the medication wears off, and they’re back at a sub optimal level of neurotransmitters… And their energy level tapers off normally. Just a little extra science. But kudos to you for recognizing this in yourself, and your medical team for helping you find the paths that are right for you.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
i found this comment fascinating and informative! Thanks so much for taking the time to share!
@mariannatatarska1140
@mariannatatarska1140 Жыл бұрын
I was about to write the same thing! Stimulatnts work well only if you have deficiency of dopamine. Also aderal is waaaaay to strong of a thing for the 1st time, realy that's overkill
@nirgunawish
@nirgunawish Жыл бұрын
so many people need a stimulant to have the same amount of neurotransmitter that neurotypicals have
@fikitoification
@fikitoification Жыл бұрын
That sounds pretty accurate. I take lisdexamthetamine and it does not elevate my mood in the slightest. It slows me down and relaxes me and I don't find it difficult to fall asleep at night. I do have to add is that, depending on the time of the month, I have to adjust my dosage. I take 30mg when ovulating and 50mg just before, during and after my period. Progesterone interferes with it somehow and makes it less effective!
@adhritghosal
@adhritghosal 10 ай бұрын
​@shitukabir1635k
@stacyaugust331
@stacyaugust331 2 жыл бұрын
Great talk here. I have tried antidepressants since my 20s before I realized I was autistic. I end up feeling blah and flat, which I hate. Stimulants help me also socially and with social awkwardness and to feel less sad and fatigued.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Thanks for sharing your experience! I believe it’s important to talk about this stuff.
@pdpUU
@pdpUU 2 жыл бұрын
I’ve seen atypical antipsychotics and benzodiazepines used to treat ASD with mixed results. Both can have common, significant side effects. A THC:CBD blend in a 1:1 or 1:2 ratio has been shown to be beneficial in some autistics, moreso than CBD alone. High THC only was linked to increased anxiety/agitation, CBD only didn’t have a robust impact. I think beta blockers get overlooked for anxiety in autism! I was told a lot of my performance anxiety was mental, CBT was suggested. But I wasn’t really worried about performing, my body’s response was just overwhelming me. So beta blockers were perfect for those occasional “can’t calm down” moments. Thank you!!
@julie8234
@julie8234 2 жыл бұрын
I really appreciate this video, I'm trying to get an ADHD assessment, as an Autistic person, and a person with (sporadic) anxiety & depression. I can't imagine having an excellent, caring conversation with my GP about all of this, relevant to my autistic self.
@Mseguin6
@Mseguin6 Жыл бұрын
I went to type a comment and it turned into a whole journal entry so here's the gist: was diagnosed with ADHD in my early 20s, have been on a very low dose of stimulants since. It's been helping me tremendously, notably with sleep since it quiets my overactive thoughts. I still feel like there's a peice missing though and even with the help I get from medication, I feel like I struggle to thrive. I've been suspecting comorbid ASD for a while now, but your video on ASD in women connected some dots for me tonight. So thank you for what you do, your work is important and helpful to at least one other person (and many more I'm sure).
@TheDarwinProject1
@TheDarwinProject1 2 жыл бұрын
Your experience with stims certainly is abnormal, especially for someone with ADHD, so I'm glad you clarified that. ADHD stims are only addictive to those with ADHD at higher than therapeutic doses, though. Some side effects, like tics, can be reduced by combining stims with clonidine or guanfacine. Your adderall experience does sound a lot like mine, so if you haven't already, I highly recommend you get a pharmacogenomic test done. Its just a cheek swab & it is covered by some insurance companies. I've had a lot of issues with medications, especially psychotropics, & my doctors would dismiss me when meds either didn't work or had "rare/weird" side effects. After I had been on Adderall for a while, my psychiatrist ordered a pharmacogenomic test for me. Would have been nice if it had come in BEFORE I was up for 3 days straight hyperfocusing on a science project where I, unnecessarily, calculated & compared the average pH & duration spent in each part of the GI systems of deer, rabbit, & humans. Instead of just using the info provided, I scoured Google Scholar for decades old research papers to find the info. On the 3rd night, after I finished the project & before I passed out from exhaustion, my toes were purplish & face jaundiced. I tapered myself off from the adderall the next morning when I, luckily, woke up feeling much better. The pharmacogenomic test showed that I didn't have an active metabolism (CYP2D6 4/4) that was needed to rid myself of adderall effectively, so it builds up & becomes neurotoxic. The same metabolism is needed for most psychotropics/migraine meds, which caused a paradoxical effect when I took them. When I switched to methylphenidate (currently on an oral dissolving form, Cotempla 25.9mg & 8.6mg) & guanfacine 4mg, my side effects disappeared & its fairly effective as far as stims can be. My memory is still shit, but I also have doctors gaslighting me pretty constantly & am on muscle relaxers, both of which can cause poor memory, especially in addition to chronic pain & autistic burnout. I'm not sure if you mention pain meds elsewhere, but feel they should be discussed in addition to self medicating if you're willing to put in the research. With 2/3rds of autistic women (1/4th of autistic men) suffering from chronic pain, which is the same percent of all autistics who experience homelessness & suicidal thoughts, it seems like a significant comorbidity. Not only do autistic adults have very little if any specialized care, but most health care providers don't know about autistic burnout, which is a major source of chronic pain conditions including migraines, but they also don't know about autistic hyperesthesia. Healthcare also tends to be very opioiphobic, which means that research like the µ opioid balance model that shows autistic traits are associated with either excessive µ opioid activity (high pain tolerance, social indifference, low social reward) or blunted µ opioid activity (low pain tolerance/hyperesthesia, social anxiety, low social reward), isn't likely to reach medical educational institutions. The opioid system effects more than just social/physical pain (ex. learning, stress response, & reward mediating for food intake) & works synergistically with the dopamine/noradrenaline/adrenergic (ex. Executive functioning, memory, learning, & another pain regulation system), hormones (ex. Vasopressin & oxytocin, which are also involved with social bonding/trauma), Orexin/Hypocretin (ex. Narcolepsy/wakefulness, arousal, appetite)...essentially the many internal systems that autistics have issues/conditions associated with. Adult autistics could have many of our comorbidities reduced by more research into the BENEFITS of long term opioid therapy, but it's essentially forbidden because opioid agonists, like stimulants, *can* be abused despite research showing 92% of those who abused prescription opioids already abused other psychoactive substances (their brains were already rewired by a substance like alcohol/nicotine/meth/cocaine/heroine to be hypersensitive/inclined to abuse substances/behaviors that people wouldn't normally get an adrenaline rush/"high" from otherwise & they'd still have to knowingly take a substance at a higher than prescribed dose or do a behavior at higher risk/frequency than normally recommended).
@remygallardo7364
@remygallardo7364 2 жыл бұрын
I have always viewed medication for mental conditions as an as-needed basis. If you are struggling and it is preventing you from accomplishing basic life functions or working it is absolutely worth considering medication in the short term to get to a better place. And some people will need medication for life to help regulate extremes that can be disastrous for them. Your individual needs are unique and need a solution specific to you. I had an unrelated medical condition for most of my life that obscured my autism and once that was treated I was overwhelmed with finally experiencing the world fully from an autistic perspective without the energy to push through it. I went on SSRIs in the short term until I could get diagnosed and discover I was autistic and begin to adjust my life and expectations to create a situation where I was comfortable exposing myself to the world and learning to live with my autism.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
You worded this in a way that really resonated with me. I feel like the couple of times I've started a stimulant, I was in a really tough place that, looking back, required almost a kind of kick start to get me back to a place where my mind could function as it was supposed to. But after a while, my body started telling me I didn't need it anymore. Totally agree that medication can be helpful in the short term to get you back to a place of improved mental clarity and fortitude. Thanks for sharing this, Remy.
@mochayeroc7598
@mochayeroc7598 5 ай бұрын
I tried antidepressants for the first time with Prozac last year at age 42.- the start of my mental decline. They increased doses, stopped and started new meds and I continued to spiral. Then realized it’s the freaking meds!!! I think some adults with asd are more sensitive to these types of meds. But as a black woman with asd, our self reporting is usually brushed aside. I’m a nurse and decided I’d wean myself and my mental health has stabilized.
@mpat100
@mpat100 4 ай бұрын
Blessings for you and your health
@kestrelpounces
@kestrelpounces 2 жыл бұрын
I haven’t finished the video yet because the ~15 seconds starting at ~1:20 blew my mind completely. As an ASD family we are still early on our journey of discovering what an autism-positive point of view might look like as we navigate an NT world. I had to stop and replay this just to capture these beautiful words. I’m genuinely tempted to post them in every room of our home so that each member of our family can read them every day. Thank you so much. ❤️
@chickadee893
@chickadee893 2 жыл бұрын
Thank you!! Thank you thank you!! My name is also Taylor and I think we are close in age! You know what, I feel a bit silly because I am a pharmacist and never really knew just how differently psyche meds affect the autistic brain. I never thought autism would affect that! They did not talk about autism and reactions to medications in our general course of learning in pharmacist school. Maybe they went over it in the psyche elective but I didn’t get into that class. (It filled up fast 🙃) thank you for posting research links. I know what I’m going to be doing all day now. And also going to bring this up to my psychiatrist
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
It is not well researched and there isn't a whole lot out there to go off of, just a few studies here and there. Would love to hear if you find anything helpful to you as a pharmacist in better understanding this relationship!
@miezepups15
@miezepups15 6 ай бұрын
Taking low dose pregabaline was a total gamechanger for me. My anxiety became tons more manageable, taking depression down with it.
@chloechristodoulou7025
@chloechristodoulou7025 2 жыл бұрын
I was recently prescribed an SSRI for PPD and it made me so so so much worse. Like dangerously worse. I didn't realise until my brother told me that they affect an autistic brain differently. My mum went through a nightmare trying different medications and having after side effects. I wish more doctors understood this anomaly. I actually have found that taking CBD capsules has the best and more stable affect on me with zero side effects. And I take valerian to help with sleep. That combination has been wonderful for me.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
thanks so much for sharing your experience here! I think others will find it helpful
@sharonjensen3016
@sharonjensen3016 2 ай бұрын
Doctors know nothing about autism.
@butterflynerd0078
@butterflynerd0078 Жыл бұрын
I love your bird shirt! I was diagnosed by a dr who knew a lot about girls/women on the spectrum, and also specialized in pharmacology. She doesn't prescribe my meds, but she did talk about how we generally do need lower doses because we have the pardaxol effect. I didn't know it was because of serotonin levels in the brain so I learned that in this video, and neurotransmitters are a special interest for me so thank you for sharing that! I also have ADHD, and am on a stimulant. It's so interesting to hear how you talked more, because I didn't connect that to the medication. I will talk my hubby's ear off about research lol and I used to be so shy. However I've also done a lot of therapy and mindset work around letting others see myself for who I am and I'm most comfortable unmasking around him. I went on a depression medication before the stimulant, a few months before, and sleep much better now. I noticed after adding the stimulant that it affected my sleep a bit, but after getting used to it, I was actually okay. That said, I am on the tiniest dose, and I take only part of it. The downside I have is being unfocused and hyper when it's worn off which can be very hard, but that's not the medication, that's hyperactivity unmedicated lol.
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
Thanks so much for sharing this!
@virgofairy88
@virgofairy88 Жыл бұрын
I’ve known about being autistic since I was 18, and for my whole life medication is not great for me. My original diagnosis was Multiplex Developmental Disorder (which is no longer used and was supposed to bridge autism with schizophrenia). I definitely have never had signs of schizophrenia at any point in my life, but the autism resonates with me big time. My parents tried Zoloft and adderall with me as a kid, and Zoloft just made me absolutely hyper. Adderall made me jumpy and twitchy so when I was in 6th grade I asked to stop taking it and my parents also backed me up. Even now things like Benadryl, alcohol and marijuana affect me much more than most people. I’ve been called a lightweight and the worst medication trial was birth control pills. Worst experience ever-it exasperated my anxiety and I was constantly on edge and would have more meltdowns-so I threw them out. Even anaesthesia hits me pretty hard and I often vomit after I wake up. Long story short most medications and I do not mix and I prefer that way. I don’t even drink coffee anymore because it increases my anxiety and makes me spiral-it’s awful.
@attackingthehunter
@attackingthehunter 11 ай бұрын
I feel this so freakin much. Thank you for sharing. Im on Zoloft now and im only 7 days in and I can tell this is not for me. I have tried so many anti-depressants and they all make me feel that way and my anxiety has skyrocketed
@Kelli5555
@Kelli5555 10 ай бұрын
You are truly amazing. The way you present information while Including links is very, very helpful!
@neurodimensions7509
@neurodimensions7509 2 жыл бұрын
I have had an experience somewhat similar to yours with stimulants, but mine was just with caffeine. Even drinking caffeinated beverages made by thoughts so much clearer and it was easier to think of things to say during conversations. I felt like I had more energy I could push outward. Typically a lot of my energy goes toward my internal world and it’s harder to gather my thoughts. I loved this feeling but felt tired and had mood swings when the caffeine wore off. So now I cut back a huge amount
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
I can understand this struggle somewhat too. There was a period of time where I drank a lot of caffeine and loved the focus it gave me, but it led to other medical issues like bladder infections. It's challenging for me to find interventions that work for the long haul! I feel like any type of medication or "drug" i.e. caffeine always creates some type of considerable complication in my life.
@adrianopper9472
@adrianopper9472 Жыл бұрын
It's so important to hear these stories. Especially what you said about stimulants. Thank you for speaking on this!
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
You're so welcome!
@GoodTrebleStudios
@GoodTrebleStudios 11 ай бұрын
Thank you so much for this! There are so many people who make you feel bad or wrong for choices you make about what to put into your body. It is your body, and only you know how those medications will affect you. I appreciate so much how you have been so honest and so open with the struggle. I'm late diagnosed myself along with having ADHD and believe me everyday is a damn roller coaster hahaha. But I believe that whatever works for each individual is the best thing for them. Thank you for sharing your thoughts on this too because this is what I've been waiting to hear💖
@DavidGonzalezSamudio
@DavidGonzalezSamudio Жыл бұрын
Atomoxetine (Strattera) helps me a lot. I'm overweight , so now I'm losing weight as I can control my eating impulse and stop eating after is enough. I does not have any mood effects on me, it helps reducing sensory hypersensitivity a lot, and regulating my emotions. Totally helpful on the inner multi-chattering, now is single chattering, but way more manageable. Talking to people is really easy, barely an inconvenience. Now doing CBT effectively, too.
@gwengeiss104
@gwengeiss104 5 ай бұрын
Thank you so much for posting this. I am diagnosed adhd and think also Autistic. Our 9 year old daughter got diagnosed, and she doesn't want meds. Myself and her little sister use stimulates, but no idea for oldest.
@tamberjune
@tamberjune 2 жыл бұрын
I've tried and had reaction to antidepressants but I found a different mood stabilizer that has been helping for a long time. I also have ADHD and autonomic dysfunction so homeostasis is rare and fleeting for me, but I'm glad mindfulness helps you too! I hold a lot of anger and tension and stress in my muscles, so progressive muscle relaxation and listening to music and just trying to not do anything physical really helps. When I took yoga that was great too. I'm glad you have found things to help Your cat is so beautiful!
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Thank you for saying that about my cat! I’m pretty biased but I think so too. 💞 also thanks for your comment.
@constructor5008
@constructor5008 Жыл бұрын
What type of med are those mood stabilizers you were talking about?
@leeboriack8054
@leeboriack8054 Жыл бұрын
Your podcasts are a key to unlocking so many mysteries.
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
I'm so glad to hear they are helpful! Let me know if you have any suggestions for future videos. I would love to hear them!
@heyugoofball5681
@heyugoofball5681 10 ай бұрын
THANK YOU, MISS TAYLOR!! This info helps a lot & I'll also pass this info & the video link onto some other people for they &/or their family members/ friends/ co-workers, etc. I tend to overload some people with info, but will try to slow down when speaking about whichever subject. Thank you, again!! LOVE, HUGS, BLESSINGS, HOPE, COMFORT, HEALING, UNDERSTANDING, PEACEFUL MINDS & PRAYERS FOR EVERYONE, ALWAYS!!!! ♥️♥️♥️♥️♥️🤗🤗🤗🤗🤗🌈🌈❇️❇️❇️❇️❇️
@stella-bk3st
@stella-bk3st 10 ай бұрын
My new psychiatrist has suggested i start antidepressants to manage my stress tolerance with autism, so i can get through the day with less challenges etc.. i am on the fence and trying to do my own reseach to find how other autistic have experienced antidepressants so i found this video really helpful!!!
@zoebowler5664
@zoebowler5664 2 жыл бұрын
As a teenager I took street stimulants for many years. This explains why it seemed to fix me…. Before it totally broke me….
@Askalott
@Askalott 2 жыл бұрын
Right, at first I thought I was fine, but over time I started to crumble.
@zoebowler5664
@zoebowler5664 2 жыл бұрын
@@Askalott I hear you ❤️
@Ghoulbum
@Ghoulbum 5 күн бұрын
I really appreciate your unjudgemental view on medication. I take anti-anxiety meds, but I'm not sure how helpful they are as I am still anxious, just to a milder degree. I like that trying something and deciding if it works for you is something you promote. I think that's the best way to live.
@Kelli5555
@Kelli5555 10 ай бұрын
I felt absolutely amazing when I first started stimulants. It helped with sensory triggers and overload. Along with social anxiety & burn out. However, the side effects are not pleasant & I agree that it only masks sensory triggers.
@robertnewberry7799
@robertnewberry7799 9 ай бұрын
Hey Taylor! Couldn't agree with you more! I agree 100%. I will say, after being mis-diagnosed with bi-polar as a young boy, imagine being autistic in the 80's, going through several years of electro-convulsive therapy on a weekly basis, and going through about EVERY common anti-anxiety, anti-depressant and anti-psychotic you can think of, because I was autistic and NOT depressed or bi-polar, trust me, these prescription drugs only make it worse. What happens is, at first they turn you into a zombie, then you need to keep inreasing the dosage because they stop being effective, then they will prescribe other drugs to take with the original drug prescribed when you reach max dosage. So, all of a sudden you're taking a half dozen different drugs, at all different dosages, while being electrocuted to the point of hallucination every week. It was torture. It was dark ages torture, of a young child with no advocacy to speak of and being completely misdiagnosed. Marijuana is great for relaxing, for being creative, and to help you sleep. Everything just comes with understanding what autism is, and how powerful if is, and how your autistic mind is SUPERIOR to theirs, in every way.
@CinkSVideo
@CinkSVideo 2 жыл бұрын
Medications and I are not friends. I tend to have major side effects from the smallest dosages. It has been a struggle trying to find something that treats my migraines that doesn’t leave me non-functional dizzy and/or drowsy. I also tend to have the opposite experience from what most people have. I’m allergic to many narcotic pain killers. The few I can take don’t give me the euphoria that most people experience. I feel like Every cell in my body is being crushed. So…post-op meds for me is only Tylenol. I’ve never wanted to take antidepressants or things in that psycho-pharmaceutical arena because of this. One Sudafed will have me not sleeping for a couple of days. :/ Better for me to sit. Breathe in. Breathe out.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
I hear ya. My list of medicinal allergies seems to grow as I age. I have adverse reactions to things I put in my body and sometimes it's hard to keep up.
@CinkSVideo
@CinkSVideo 2 жыл бұрын
@@MomontheSpectrum even more difficult when doctors won’t listen when you tell them.
@billybandyk0720
@billybandyk0720 4 ай бұрын
​@@CinkSVideoThat's an understatement. The sheer ignorance by medical personnel (especially w/in the mental health system) only perpetuates the problem.
@delilahhart4398
@delilahhart4398 2 жыл бұрын
I'm on the autism spectrum, and I have chronic depression, generalized anxiety disorder, social anxiety, and ADHD. I take fluoxetine for depression and anxiety, propranolol for hand tremors, and Strattera for ADHD. If it weren't for my medication, I wouldn't be able to function.
@whitneymason406
@whitneymason406 2 жыл бұрын
So many things you mentioned I really relate to and you discussed it beautifully! I was diagnosed with depression and social anxiety in 8th grade and started medication shortly after. I disliked it in the beginning because I did feel a bit like a guinea pig trying one medication after the other and experiences side effects. Eventually we tried Prozac and that has really works for me coupled with therapy. I actually have S.A.D. (Seasonal Affective Disorder) so oftentimes my doctor accommodates by having me reduce how many milligrams I take in the spring and summer and increase it in the fall and winter. I'm much happier when it's sunnier out so I might need to get a S.A.D. lamp as the seasons are starting to change! Thanks for sharing your experience and research. I'm a big fan of mindfulness too! Take care :)
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Thank YOU for sharing your experience here! I think its so important that we talk about these things to help de-stigmatize and also to help each other learn which types of approaches are helpful for people on the spectrum. We need more info and more shared experiences. I do have an indoor sun lamp and it does seem to help me in the winter! Even just a few minutes of it seems to be a good mood booster. You can find them on amazon for a pretty affordable price. Hope you find some relief this season as you continue exploring what helps you find peace and wholeness. Thanks again for sharing your thoughts here, Whitney.
@Askalott
@Askalott 2 жыл бұрын
Thank you so much for talking about the dangers of medication. I also don't want to perpetuate stigma, but I continue to see people online advocate for the use of medication, especially antidepressants, and I find that to be a little irresponsible. Drugs like Lexapro and Wellbutrin are not harmless. Antidepressants made me detach even more from myself and they made me complacent with things I wouldn't normally be okay with. I didn't notice that at first though. In the beginning, I was convinced they were saving my life, and I was the first to recommend them to others. Over time, that changed. The reason I felt better initially is because I was numb. But when you're numb, you don't usually know it, for the simple fact that you're numb. After being off them for many years, I can now see the true effect they had on me, and it wasn't good. Being on them didn't allow for any growth to take place, and I became someone I really didn't like. I realize now that there wasn't actually anything wrong with my brain to begin with, I just grew up in a very toxic household and I was gaslit into believing I was mentally ill. Once I understood that, everything changed for me. I had a few different psychiatrists over the years, and I wish they had asked me some more questions before giving me medication. I was so young when I first went on meds (about 18), and I'll never know now how much smoother my 20s could have gone had I not gone down that path. I feel pretty betrayed by healthcare professionals to be honest. They all missed the signs of what was really going on. Brain chemistry isn't something you want to mess around with--it can have devastating impacts on a person's life. In regard to what you said about mindfulness at the end, I totally agree. For a long time that made me roll my eyes, but it's powerful and it's real.
@PraveenSrJ01
@PraveenSrJ01 2 жыл бұрын
Great topic Taylor!!
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Thank you Praveen!
@mosschamp7600
@mosschamp7600 Жыл бұрын
the stimulants part was very relatable well all the video was thanks for sharing this
@professorg7387
@professorg7387 2 жыл бұрын
We were medicated at age 12 after being diagnosed with PTSD. In the reality, we now have cPTSD. We went through the gauntlet of medication with devastating results. The one we were able to tolerate for a long time (2 years) was called straterra. It’s suppose to be for ADHD but e had extremely bad results with all antidepressants, including mania and violent outbursts. The other drug we had moderate success with was lorazepam for our panic attacks but that was more to treat our OSDD than the ASD.
@bryanmerton5153
@bryanmerton5153 2 жыл бұрын
Hi Tay, thank you, thank you, thank you! Wonderful information. I think I have said that I was diagnosed with ADHD way back when dinosaurs roamed the earth and life was simple and it was called Hyperkinetic disorder😂. Anyway I have lived with it for 50 years and lately it has been more burdensome then usual so I have been thinking of trying some medication. I have a friend with ADHD who is on Adoral and loves it. I have done my usual obsessive research and decided it was not for me. Your amazing descriptions of your experiences sort of put me over the hump. I realize that everyone is different so I know my experience could be different than yours, but it helped me decide anyway. Sometimes my brain is a nuisance but sometimes its wonderful! For the most part I like me and I am comfortable with all of my quirks. I have decided to get more into mindfulness. I meditate regularly and it has helped immensely. You said you were going to do a video about it so I am looking forward to it. I also like how you have seasons as I feel the same way. Having Autism and ADHD can be a complex mess. Sometimes I feel they are in concert with each other and other times they are at war with each other! With all that being said I don’t think I would change a thing🤪. Like you said there are many advantages to these conditions and for me medication just might change things too much. Wow again I have written a short novel! Thank you again for your channel I am learning so much. Congratulations on 700!
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Bryan I've been meaning to tell you - your personal voice comes through so strongly in your writing! It always makes me smile and I feel like I'm sitting across from you listening to you share. Love that you said "for the most part I like me and I am comfortable with all of my quirks." That is what I'm hearing the loudest in all of these comments! So cool that we're all learning to love and accept ourselves as we are. As always thanks for sharing your experience. I have on my list to make a video about ADHD + autism. Totally agree - sometimes they work great together. For example, for me, I feel like it keeps me from hyperfocusing on one special interest for hours and hours. I have SO many interests and get bored easily, but also easily get sucked into a black hole where the rest of the world disappears where I can intensely research/learn/study/play music. But sometimes the combo makes things super frustrating and upsetting. Like keeping a steady job!! Oy vey. Have a great day, Bryan!
@bryanmerton5153
@bryanmerton5153 2 жыл бұрын
@@MomontheSpectrum Thanks Tay! I will be looking forward to your ADHD/Autism video. I hope you are having a great day as well!
@sueannevangalen5186
@sueannevangalen5186 2 жыл бұрын
Thanks for this video, Tay. The only category of medication that I have any experience with is antidepressants (SSRI's). I didn't know they affect autistic brains differently. That's worth thinking about and researching.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Yes my psychologist shared this with me and it seemed to line up with the experiences I had had so far. Sounds like others commenting on this video have had similar experiences!
@s.b200
@s.b200 Жыл бұрын
I learned so much from this video, thank you Tay! Im autistic and on a 'new' medicine which has helped immensely the last two years - its called Wellbutrin, or Bupropion and is an antidepressant which is more activating than numbing (Wellbutrin belongs to a drug class called norepinephrine-dopamine reuptake inhibitors (NDRIs), which works to increase levels of dopamine and norepinephrine in the brain by inhibiting this reabsorption, or “reuptake,” process), without classifying as a stimulant. It is also used to treat people with ADHD who dont tolerate stimulans. I dont have ADHD but this is the first medication that really helped me stay out of depression and cope with difficult situations - as well as energizing me enough to prevent- and not stay too long in my autistic shutdowns. It somehow has helped with my executive functioning. I have had a low dose for 2 years now and it still helps me without major side effects=) Just a tip to check with a doctor perhaps, for those who dont tolerate stimulants - and feel numb by regular antidepressants.
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
Thanks so much for sharing your experience! Glad to hear your situation is working out for you.
@part0fspeech
@part0fspeech Жыл бұрын
Hey! Thank you and everyone in the comments for sharing. Could you please also make a video about nutritional supplements for people on the spectrum? Do you have any experience with it? I’ve recently started taking fish oil and vitamin D, and am waiting to experience the effects (or lack thereof 😅)
@arokiingaming8847
@arokiingaming8847 8 ай бұрын
Thank you for this video
@andreawisner7358
@andreawisner7358 6 ай бұрын
Thank you. This 😂is what I was looking for - the links you provided, also.
@MomontheSpectrum
@MomontheSpectrum 6 ай бұрын
So glad it is helpful! Thanks for your comment.
@shelleyelli
@shelleyelli 2 жыл бұрын
I have had a very different experience with all of those drugs. It's very interesting to me how different each person is!!
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
It really is! That's part of why I wanted to share Temple Grandin's experience too. Totally the opposite of mine, but her testimony is very strong and powerful! The changes she experienced as a result of the medication are truly wondrous and worth exploring.
@passaggioalivello
@passaggioalivello 2 жыл бұрын
Hi Tay, thank you for this video, it's very important and I love it. I never took medications despite I'm autistic with c-ptsd, because I don't think they fit to me. I'm autistic and I love it. It makes me who I am. I know the stigma about take (or don't take) medications, but it's a personal choice and judging it is unfair. P.S. Sorry if my English is worse than usual, it's late night here.
@T.T.M.60
@T.T.M.60 2 жыл бұрын
I love being autistic as well and taking medication is definitely a personal choice. I have found coping skills over the years that really help me so that’s what I do instead of taking medication.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
@passaggioalivello Your English is wonderful! Thanks so much for sharing this. Sounds like you are working hard to take care of yourself in important ways and that is something to be proud of, my friend!
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
@@T.T.M.60 So great to hear you've found coping skills that work for you! Would love to hear more anytime you feel like sharing.
@passaggioalivello
@passaggioalivello 2 жыл бұрын
@@T.T.M.60 Thank you. I found some coping skill as well.
@passaggioalivello
@passaggioalivello 2 жыл бұрын
@@MomontheSpectrum I'm working on it as long I remember. Thank you Tay, especially for the word "friend".
@JessieCarty
@JessieCarty 11 ай бұрын
Thanks for this info and the discussion in the comments so far! I'm dealing with long time insomnia and recent mild sleep apnea diagnosis. I've tried a few meds for that with very few "working" and now I'm trying a CPAP that I think I hate LOL It does nothing for the insomnia, and I am still waking up tired. I really want to find something effective for the insomnia. I feel like it is at least partially related to delayed processing that keeps my thoughts going all night.
@HugeHeart13
@HugeHeart13 Жыл бұрын
I appreciate you. Thank you
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
You’re welcome
@PraveenSrJ01
@PraveenSrJ01 2 жыл бұрын
I rather not have my autism cured and love ❤️ the way I am and my unique strengths that I offer the world and the planet 🌍
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
💞
@emmalove5080
@emmalove5080 Жыл бұрын
Prior to my autism diagnosis, I was on SSRIs for depression
@xxoldgreeneyesxx
@xxoldgreeneyesxx 2 жыл бұрын
This is incredibly interesting. I’ve tried many antidepressants and they’ve all caused me to just be super irritable so I just told my doctor I wasn’t doing it anymore.
@Kameleont-konsulten
@Kameleont-konsulten 2 жыл бұрын
I really like your channel but I need to point out that some of the information about stimulants a little incorrect actually.
@Sarah-ht7cs
@Sarah-ht7cs 2 жыл бұрын
Agreed. For instance, many of us sleep better with a little stimulant because it calms our racing thoughts. It has no effect on my sleep either way. I sleep like a baby with or without. Also worth noting, I find I actually have less side effects with Adderall than I do with caffeine.
@mementomori6585
@mementomori6585 Жыл бұрын
Thank you.
@delilahhart4398
@delilahhart4398 2 жыл бұрын
When I took Adderall, I often had visual hallucinations when I was between sleeping and waking states. I got off of it and opted for a nonstimulant alternative.
@robertsweet4112
@robertsweet4112 Жыл бұрын
Thank you
@sheaballard3022
@sheaballard3022 9 ай бұрын
I’m on Prozac and a beta blocker for anxiety and I find it really helps me. I’m not having panic attacks anymore. I’ve not tried any stimulants, though, so I can’t speak to the effects of those.
@T.T.M.60
@T.T.M.60 2 жыл бұрын
I really relate to having seasons with managing things. It would be nice if there was something you could take for those times that worked right away but not an every day medication.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Yep. Totally agree. Others have mentioned the seasonal management challenges as well. Just didn't feel like a long term medication fit the bill for me, at least at this point in my life.
@T.T.M.60
@T.T.M.60 2 жыл бұрын
@@MomontheSpectrum 😀
@AmyElizabeth123
@AmyElizabeth123 10 ай бұрын
It’s no different than someone with diabetes being “dependent “ on insulin. Without my two antidepressants i would not be here today. I cant take stimulants because i have too much anxiety and it increases that plus i have tachycardia so thats not an option for me. My 12 year old Is on meds for anxiety and its changed her life and enabled her to stay in school. We both have diagnosis if adhd and autism and generalized anxiety disorder
@urseliusurgel4365
@urseliusurgel4365 2 жыл бұрын
I tried Sertraline, which affects circulating levels of serotonin. I have very occasional migraines preceded by visual aura; by occasional, I mean I can go years without one, and, had never had more than two in any one year. Taking Sertraline I reached day 10, by which time I had experienced 5 migraines with increasing severity. I then stopped taking the drug and had 3 more migraines, one a day, for the next three days, with decreasing severity. This was about 5 months ago and have not had a migraine since. Sertraline had no noticeable effect on my mood. Sertraline can be very effective and often has negligible contraindications for most people. However, as you say, autistic brain chemistry can be quite diverse and it is useful to treat any newly prescribed medicine with some caution, until the indvidual becomes aware of its specific effects on his or herself.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Thanks so much for sharing your experience, Urselius!
@FirstmaninRome
@FirstmaninRome Жыл бұрын
Interesting, I was on Tofranil for 16 years for depression, but that was 10 years before I was diagnosed autistic. I was finding drinking worked better, stopped that, trying welbutrin at the moment.
@Countering69
@Countering69 11 күн бұрын
If you are just autistic, the stimulants have nothing to offer. But, if like me, it is ADHD and autism, then stimulants can help a lot. There are 3 different formulas, and different types of delivery. Take long time sore some to find the right ones. Again, only if ADHD is involved. Since i have autism in the mix, it is certainly not magic, but helps to get at least some things done.
@forge5825
@forge5825 Жыл бұрын
CBD and Medical marijuana make life tolerable by toning everything down and turning down the volume, but everyone has to pick what works best for them
@RisaPlays
@RisaPlays Жыл бұрын
ADHD and Autism here. My first time trying anti-depressants did nothing. My second time, the new doctor increased the dose very high very quickly and I could barely stay awake. I'd be awake maybe for 30 minutes at a time then pass out again. I tried 3 different stimulants after that: vyvanse, adderall, and concerta. Vyvanse was also increased too much too quickly (they kept doing this because of my weight). The lower dose of vyvanse seemed to be positive but I wasn't sure if it was placebo or the actual drug, the higher dose gave me symptoms of depression I didn't have before. Switched to adderall and completely lost all interest in food. Eating was the biggest chore. The higher dose gave me bad headaches. Switched to concerta and I got my appetite back, had less social anxiety and was able to feel like I could be myself around my friends again. I'm still on concerta at least 5 years later. It doesn't give me mood or energy boosts, doesn't help me focus. It just helps me feel a little less anxious, mostly socially, so I can be more my authentic self with my friends instead of hiding and masking too much.
@itsjomckinlay8160
@itsjomckinlay8160 Жыл бұрын
There is so much that I could reply to as usual but wanted to say the best thing I have found for mindfulness is an app called headspace and worked miracles for me and you have just reminded me that I haven’t used it for a year and it was a year ago almost that I was diagnosed and I do realise I’m finding this video later than it’s posted but just wanted to say thank you
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
you're welcome! And thanks for the comment - I love headspace! There are actually some headspace videos on Netflix with very pleasing visuals and meditations.
@itsjomckinlay8160
@itsjomckinlay8160 Жыл бұрын
@Mom on the Spectrum Yes I'm aware, thankyou🙏🏻That and my cat are my saviours! (&my family) Along with all my new sensory toys and weighted blankets (just need the weighted eye mask with bluetooth😂)THANKS TO YOU❣️🙏🏻🙏🏻🙏🏻I've used headspace for 5 years except the last year. I'm only nearly 1 year diagnosed with autism, have horrific Gastro and immuno problems, and dismotility, and am diagnosed with many more conditions(however I'm unsure if some are just autism now😞), I've been on 90 tablets a day for over a decade and much more medication for over 15 years. I'm trying to change that now! But it involves another one🤦🏼‍♀️. Which I've no choice about! 🥺 I've learnt from you about autistic inertia and about paradoxical reactions, which one of my new ....supposed 'saviour' medications has the opposite effect on ME! I knew NONE of this that you've taught and it's really helping my husband to understand me! Gutted I missed yesterday's workshop😱 Anyway, I cannot remember the last time I slept for a night before the early hours and wasn't up early. I just want to switch off from the world as I'm questioning my whole life. I've had it extremely tough from age 3! worse actually! And have CPTSD. I feel lost. I know you won't have time to reply, but I needed to vent to you and the community... so thanks🙏🏻 I watch EVERY video😆👏🏻love and luck to you🙏🏻💞
@msbrennamac
@msbrennamac 7 ай бұрын
I’ve been on Concerta for 5 months. I found that the lowest dose worked great until the late afternoon when I would hit a wall (overstimulated, headache, unmotivated). When my dr upped my dosage it made it last longer and deal with the “wall” way less frequently. I’m able to concentrate so effectively and it helps me not go into freeze-mode where I cant seem to start a task. The only big issue is that it makes my anxiety way worse, which makes me want to take it less frequently.
@Hi_Im_Akward
@Hi_Im_Akward 3 ай бұрын
Stimulant meds can vary a lot from person to person. Personally have tried all the different classes of antidepressants with bad outcomes. I've been on Adderall for about 9ish months now. The initial first few months was really difficult to deal with because it was such a strong experience. I did not feel euphoria. It was the same kind of feeling as being on an airplane and feeling all the forces of it taking off, and then once you are in the air you don't really realize it except for turbulence. I had to troubleshoot eating times (mostly because id forget) and drinking water (because id forget) and not having food or water make me feel really anxious and less focused. Now that i am established on it, i do not feel cravings for more. I feel good on the dose that i have. I do feel frustrated that its a) not sustained at all times. When it starts to wear off between doses it sucks. When it wears off for the day I feel useless. I also feel frustrated about the weekend breaks. b) dealing with the regulations around it are not ADHD friendly, and i have on more than one occasion had to ration so i could make it to the next refill. Shortages have made this worse. I like it because a) it is the only thing that has genuinely addressed my depression. Its like a breath of fresh air. b) i feel semi normal on it. It would suck to go off it. Withdrawals are real. I have already gone through several rounds of withdrawals because of shortages and such. Honestly, i don't crave it like I've been told addictive drugs make you feel. I mostly just want the withdrawals to stop. But if i had to go completely off it for whatever reason, i don't feel like gollum from LOTR obessed with the precious. I feel that way about my coffee, but i have contemplated going off it and trying other things because of the nature of how the drug works and I just wish i wasn't depressed on the weekends and after 6pm because the meds wore off. I have talked to several other people on/have been on stimulant meds and the experiences seem to vary a lot. Some people don't get effected at all, some people get real tired, some people feel closer to how I do which is just having that internal voice go away and feel "normal" some people have increased anxiety or medical side effects and some people get severe rage on it (something I had the first few months before my body adjusted). I've also heard people talk about going off it, and tapering off slowly and the only real shitty things is the expectations are still there but no meds to help them out. Edit to add to respond to her thoughts on stimulants: i don't feel like i am masking more or the med is masking me. I do have adhd so maybe that is part of it. But i feel like i can be more authentically me, and have some intrests come back, where I've been dealing with severe depression since i can remember and apathy has been a big lifelong issue. So the meds benefit me most because it is treating my depression.
@boxer_puncher
@boxer_puncher 2 ай бұрын
Stimulants gave me a depression which lasted almost 1 year. They help but there are also downsides.
@Elianalivinglife
@Elianalivinglife 4 ай бұрын
Prozac was the only one I didn't react to before I knew I had ASD and ADHD, others made me get insomnia instantly, and suicidal. Anxiety meds taken only when a meltdown came, worked better, back then I didn't know it was neurodivergent meltdowns I thought it was anxiety attacks. ADHD medication has a better effect to help me deal with my ADHD then my sensory triggers are not overworked all the time. As an AuDHDer I differently need these in my state of life, as my health complications if not taken are more damaging and possible life-threatening than taking Ritalin. Where I live Adderall is not prescribed as ADHD treatment, due to what you express and more.
@echase416
@echase416 9 ай бұрын
Years ago, my neuropsychology prof said: ‘brains are as individual as faces’.
@wakingcharade
@wakingcharade Жыл бұрын
I know this is an old video but if you (or anyone else) is willing to share, which stimulant caused 'dark thoughts' im trying them again (after them not working well before) and i'm trying to figure out if its affecting my mood or its a coincidence and i'm not finding much online about this
@jrenee_25
@jrenee_25 Жыл бұрын
I was on clonazepam for 7 years (at 1mg daily average)had to stop due to moving states. About 3 years ago, and about a year and half ago I first started to realized the BPD diagnosis given years ago was not correct and I started to look into autism and everything 100% clicks. Unfortunately, it was the clonazepam that was allowing me to work jobs, attend school,be social, and want to go out and do things. Now I’m in yet another state and can’t find a primary who will listen and on many wait lists for a proper diagnosis. Stimulants help, but they cause me terrible painful acne and I can’t. The closest I can get is adipex. Most Dr’s don’t want to prescribe benzos but they truly are the only thing that work for some people & it’s unfortunate I’m almost 35, misdiagnosed & not properly medicated still.
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
Thanks for sharing your experience. I have heard from many people in the community at this point who have been incorrectly diagnosed with BPD.
@cassandrar5127
@cassandrar5127 Ай бұрын
I had negative reactions to Wellbutrin, Zoloft, Celexa. But Prozac (Fluoxitine)works really well for me. I've tried stimulants as well but have bad reactions to them, like increased anxiety. I'm taking mirtazipine (Remeron) at night and Prozac at day time. This balance seems to work for me with minimal side effects. My psychiatrist had me take a genetic test to help with figuring out medication, and it seemed to help a lot to narrow things down. I've considered Straterra because it seems to help people that can't take stimulants but I'm not sure, three medications seems like a lot.
@spotandgarfieldsadventures6331
@spotandgarfieldsadventures6331 8 ай бұрын
Any naturopathic or homeopathic remedies to help with autism? I am on enough meds for OCD/Depression/ADD.. don’t want to be on any more Big Pharma meds.. too many side effects 😢. I eventually want to fully go naturopathic, baby steps here..
@AuditingWithAutism
@AuditingWithAutism 3 ай бұрын
Word! Every one. So good.
@rachelb4235
@rachelb4235 8 ай бұрын
I talked to a doctor about a medication that helps with stimulants. It also treats autoimmune disease. The doctor told me I wasn't autistic (even though I have an official diagnosis.) He also said the medication was only tested on children with autism. (Because I guess in his mind, we grow out of autism? lol) I was very frustrated with the experience and I am having symptoms that I believe are autoimmune. Normally, I take no medicine but the low dosage part made me more willing to at least try it. Oh well.
@TRXST.ISSUES
@TRXST.ISSUES 2 жыл бұрын
🔥🔥🔥
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Thanks, friend! I meant to email you yesterday. Just wanted to let you know I was thinking about ya and I hope you're doing well.
@christopherarmstrong2095
@christopherarmstrong2095 6 ай бұрын
I like weed! It’s natural and peaceful and soothes the brain If you are not a paranoid person. You will be able to sleep peacefully and Food is the stimulant, it makes anything you eat taste better than it ever has before. Turn on some music. If you don’t like weed, CBD Gummy’s. No side effects except hunger and laughter.
@MomontheSpectrum
@MomontheSpectrum 6 ай бұрын
It makes me paranoid :( but many people in the autistic community have a positive experience like yourself
@vickyv903
@vickyv903 2 ай бұрын
when you are not cared for as an autistic person for most of your life (being expected to handle things as if you did not have a disability) you might live with comorbidities that will have to be treated medically for the rest of your life. i dont treat my autism, i treat the other things so I can handle being autistic
@constructor5008
@constructor5008 Жыл бұрын
I found the video very interesting but talking about stimulants I don't agree at all... It might be your experience but not for everyone. It helps me to connect with my body, in part because it allows me not to ruminate day and night. It regulates my appetite... It might be because I have adhd. But my feelings are just the opposite.
@keyc.1109
@keyc.1109 5 ай бұрын
What kind of magic Adderall were you on? Addictive? I forget it regularly. I have never heard anyone describe stimulants like you have and my husband and his whole family have adhd. Stimulants just seem to help me organize my thoughts and help my body keep up with my brain. Although here lately its mostly just keep me awake.
@MomontheSpectrum
@MomontheSpectrum 5 ай бұрын
i think one interesting thing is that many autistic people metabolize drugs differently, so my body was probably having different effects than others might have had on the same medication.
@keyc.1109
@keyc.1109 5 ай бұрын
@@MomontheSpectrum Thats a valid point. My sister barely reacts to medication. She has a hard time even getting drunk.
@brandalyn8298
@brandalyn8298 9 ай бұрын
I have adhd and stimulants don’t effect me like that. I don’t want more than the amount that help me focus. They quiet me brain, and even help me sleep. Sometimes I just take my non stimulant meds if I don’t need focused attention
@brandalyn8298
@brandalyn8298 9 ай бұрын
It’s wild because I would forget to eat before I started taking stimulants and then my tummy would be MAD upset. They helped me remember to eat but I prefer them with Intuniv which counter they’re effects
@gaelle4328
@gaelle4328 Жыл бұрын
Interesting, I’ve tried ritalin and did absolutly nothing to increase energy/ stimulant what it did was that my brain went quiet and I could sleep. My guess if that you are having that ” fun” side of stimulants you have been given a way to high dose or the wrong one. Or it could just be that it really isn’t for you it’s interesting though.
@EpiicxFuziion
@EpiicxFuziion 6 ай бұрын
I cannot access a psychiatrist as I’m unemployed
@sneakerbabeful
@sneakerbabeful 2 ай бұрын
I have a lot of irritability and will be going on medication to control that. *I can't function or have relationships with this irritability* I wish I didn't have to deal with this awful condition. 3:28
@M.Shepardbee
@M.Shepardbee Жыл бұрын
Adhd stimulants- the addiction isn't so much the drug then your removal of certain stims. Your stimming all day everyday then someone gives you a drug and you feel euphoria. The drug replaces some stimming and you can focus better, you feel like its not as effective because you have stopped adding to the drug. You go off the meds stimming 70% less, then your mindless movements require attention to balance yourself. Thats not an addiction, it's a social wheelchair.
@julesbellucci2863
@julesbellucci2863 Жыл бұрын
Nothing works for me
@cindylica
@cindylica 8 ай бұрын
Video starts at 5.04
@gigahorse1475
@gigahorse1475 9 ай бұрын
Stimulants increase the dopamine, not serotonin in the brain. Some also increase norepinephrine! I was surprised you are more wary of stimulants than antidepressants. I tend to be fearful of antidepressants even more since they require you to take them long term to see if they even work, and their side effects seem to be worse. Stimulants are scary for me because I have psychosis. If I take one I often lose my ability to speak as well. Stimulants and psychosis do not mix well. I have heard often times psychiatrists start with too high a dose for people. For many the lowest dose needs to be cut in half. Maybe your dose was too high and that’s why it greatly affected your sleep. Sorry for all these thoughts, I just think it’s interesting.
@sueannevangalen5186
@sueannevangalen5186 2 жыл бұрын
Great cat! What's his name?
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Thanks! He's my youngest child. :) My daughter named him after an American baseball player, Adrian Beltre, so his name is Beltre and we call him Belts. Kinda strange but at the time we thought we were being super cool parents by letting her choose the name, and also that everyone would know the name "Beltre" because he was such a famous player. He ended up retiring that year. LOL! And now everyone tilts their head whenever we tell them his name. Oh well! He's our belts and we love him. He's spoiled rotten and he never leaves my side. Sleeps on top of my weighted blanket every night and the weight combo leaves me paralyzed! Wouldn't have it any other way.
@sueannevangalen5186
@sueannevangalen5186 2 жыл бұрын
I love it when names have a story ❤️. I think my husband will appreciate hearing that one about the cat named Belts (even though we live north of the border, he's into baseball not hockey. I had heard of Adrian Beltre even if I can't tell you who he played for. He must've been really good). Also, I find watching cats move around very relaxing. And mesmerizing.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
@@sueannevangalen5186 haha ok good well SOMEONE knows who Beltre is :)
@jasonneugebauer5310
@jasonneugebauer5310 Жыл бұрын
For me, stimulants suck. They just don't help One stimulant that actually works good for me is Sudafed it is available without a prescription at the farmacy counter. I take it as the box indicates for allergies starting when I wake ending 6 hours before bedtime. Every few weeks, I will start to get cranky if I am talking Sudafed every day. I stop for about 4 days and then start again. Sudafed is awesome. It really helps me with anxiety and allergies. Now I only take it when I am feeling sick, which is often, but it helps a lot. When I was a kid, I took it every day, and it helped. Amnitriptiline is good before bed. CBD 10-20 mg micro dose is good when you get home in the evenings. Valium takes away all my anxiety and calms my thoughts, but it is addictive and no one wants to prescribe it. Thanks for the video.
@lizzyumoh
@lizzyumoh 3 ай бұрын
Magnesium
@KideaRock
@KideaRock 2 жыл бұрын
I take medication with doctor prescription and I don't like it. I don't like to take those pills, to manage time to take them and don't like the fact that's not a season or moment thing, is forever, because I'll forever have sleeping hormone problems, 'cause my body doesn't produce much of it. But I do like the fact that when I do take then, I feel more calmer, more centered and more stable. My medications is mainly for anxiety and sleeping.
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Thanks for sharing your experience Orquidea! Please let me know if there are any other video topics I can cover that might be helpful to you.
@KideaRock
@KideaRock 2 жыл бұрын
@Mom on the Spectrum can you cover more of relationships and being on the spectrum? Could be with your children, how you deal with their necessities and yours, like, my main difficulty is make my teen girl understand that sometimes I need silence and it's not because I don't want her around me, it's because I'm exhausted by sensory input. But I do want to know more about how to manage your romantic relationship and your own needs, but since you already did one about it, I suggested first one about mom on the spectrum and kids :P
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
@@KideaRock yes i'll add this to my list! For now I would say that what you have shared with me might be helpful to also share with your daughter! Have you let her know that when you're exhausted it is because things seem too loud or bright or x.y.z? Since you are on the spectrum, chances are your kiddos might show some elements of it as well. I am trying to teach our kids that our brains are wired differently and that we have different needs. I try to talk about it out loud when I can see that my daughter knows she's frustrating me. I try to let her know that it's not her fault that my brain is just really working especially hard against me right now. She seems to be able to understand it more for herself when she encounters similar challenges as well. Anyways, I hope this wasn't too much unsolicited advice or input. Just a thought I had while reading. I'll try to plan out a more in-depth video response.
@KideaRock
@KideaRock 2 жыл бұрын
@@MomontheSpectrum actually, your thoughts are very helpful, thanks for this insight! I'll try it, I wasn't looking things that way, my kiddo might as well struggle just like me or more subtle like me, so she can understand me, I just need to try. Again, thanks
@MomontheSpectrum
@MomontheSpectrum 2 жыл бұрын
Sure, glad you think it might come in helpful for you and your daughter. My daughter and I have similar conversations all the time. 💓
@ImEdibleCandle
@ImEdibleCandle Жыл бұрын
I personally stay away from stimulants they are way to harsh on my heart ❤
@susyQ564
@susyQ564 10 ай бұрын
Temple Grandin says a very low dose of anti depressants helps her not be anxious 😊
@MomontheSpectrum
@MomontheSpectrum 10 ай бұрын
Yes I’ve read her thoughts on it! So helpful.
@miriampassman9577
@miriampassman9577 8 ай бұрын
Hi
@tanyaerickson612
@tanyaerickson612 Жыл бұрын
I couldn't be tested because I'm on anxiety meds grr waah
@ellen_3
@ellen_3 Жыл бұрын
💛💝💛💕💛
@finitesound
@finitesound 4 ай бұрын
Overall a decent video, however the section on stimulants is largely misinformation. At medicinal doses addiction is INCREDIBLY unlikely. Additionally the "sense of euphoria" you describe does not happen for everyone, and almost always goes away within a week or two at most. Medicinal dosing of stimulants will not allow for that feeling to be sustained as doing so requires a constant increase in dose, which is inherently not viable given there is a relatively low maximum prescribed dose allowed for stimulants. Yes, they absolutely can have side effects, but a feeling of euphoria or needing more is generally not one of them for people with ADHD.
@laurainrevison1162
@laurainrevison1162 Жыл бұрын
If the meds don't work...none of them...tca, ssri, srni, antipsychotics, amphetamines, and maios. Lastly, anxiety meds. Then what?
@MomontheSpectrum
@MomontheSpectrum Жыл бұрын
I would suggest working with a psychiatrist if you have not already, and also investing time in mindfulness practices: meditation, journaling, being in nature. I know it's not a quick fix but I have found them to be more lasting. Be kind to yourself!
@laurainrevison1162
@laurainrevison1162 Жыл бұрын
@@MomontheSpectrum Already done all of those and most regular drs would not prescribe antipsychotics fyi. Yeah...not a fix. Doesn't work overall and nothing ever changes. The system is broken.
@laurainrevison1162
@laurainrevison1162 Жыл бұрын
Oh.yeah beta blockers too don't work on me.
@reneedwards1082
@reneedwards1082 Жыл бұрын
Anafranil and tofranal,
@reneedwards1082
@reneedwards1082 Жыл бұрын
R they weight gainers?
@GeeGnebAb
@GeeGnebAb 2 ай бұрын
I'm tired of the so called challenges tbh..
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