Meet Chelsea who has Raynaud's.

Рет қаралды 23,036

WeAreSRUK

7 жыл бұрын

Chelsea shares her story of living with severe #Raynauds. #RaiseYourHands and increase awareness by sharing.

Пікірлер: 63

@megisworthy Жыл бұрын

I see you Chelsea. Thank you for making this film and sharing your story. My attacks started in 2019 from panic attacks related to PTSD from a car accident. Now these episodes are happening multiple times a day, like you . I found so much hope in your story and appreciate you beyond words.

@shelbyshelby3936 3 жыл бұрын

Thank you for sharing your story. It makes others who suffer from this disease not feel so alone- myself included ❤️

@shepherdrubax 8 ай бұрын

I feel your pain 😢I’m a 35 year old male from the uk, developed raynauds after my Covid jabs along with severe rosecea and facial flushing. My nose and hands are mostly affected and then as I warm my nose and face flushes like a tomato. So depressed right now 😔 such a horrible miss understood disease

@thomasholden7210 4 жыл бұрын

I've got Raynaud's phenomenon I've been depressed with it but I think u wright no one understands it really

@La1hood 3 жыл бұрын

Hurts like heck. Last time was 70 degree weather and me swimming in a really cold pool. Sucks when it gets cold and im at work by the front and the door keeps opening.

@JennyontheStreet 3 жыл бұрын

You are awesome and brave. I just got it recently especially in my toes and 1 finger. Hurts so badly!

@margaritacharry605 6 жыл бұрын

I have reynauds for 20 years the only way to controlled is to live in hot weather

@ivychamberlain9842 4 жыл бұрын

What if you don’t have the $7000 needed to move yourself and two small children? It is slowly killing me.

@pamelak7924 Жыл бұрын

Have you tried L-Citrueline? It opens up your arteries I've been using it for 3 weeks big improvement This could be my best winter in years

@margaritacharry605 Жыл бұрын

@@pamelak7924 Thankyou for the information can l get that citrueline over the counter or l need a Dr prescription?

@dearstan2858 Жыл бұрын

You right. I lived in hot weather for nearly 25 years and never had such a problem but I got Raynaud when I moved to Sweden which is cold af. so the only way is to move back to my country or accept it as it is.

@margaritacharry605 Жыл бұрын

@@dearstan2858 I agree living in cold weather with raynauds is torture if we want to enjoy life and activities we have to be in tropical weather

@Wigwampig 3 жыл бұрын

I've had raynauds since I was 6.I've never taken any medication and I live in a cold place.People kept asking me if it was contagious so I said No.Thank you for sharing by the way!

@chinmoygogoi304 3 жыл бұрын

How many years are u now?

@alexkimberly7057 3 жыл бұрын

It all end with a new song, for what Dr Salami on KZfaq did to me, for helping me eradicate Raynaud's disease within 14days of using his herbal medicine, you are truly a great man. If you suffer from Raynaud's please get his natural herbal medicine because i know the pain I went through.

@barbarachipman9436 Жыл бұрын

i have not taken medication for it either

@jameswoodall9261 2 жыл бұрын

I'm 77 and just startsiing this trip. YUCK!!

@diakaheart8384 4 жыл бұрын

I had it since I was 3 years old and I live in really cold country . I am only 13 and I have been dealing with for as long as I can remember . Living in a cold country that has a lot of snow but you cant play with it , is upset especially when kids make fun of the way your fingers look when swollen .

@sylvanianstopmotionstar7827 4 жыл бұрын

chika diana ogbonna I am 14 and I have had it for as long as I can remember. I try not to let it affect me and I push threw it. I have it in my hands, feet and sometimes my lips. I am not on any medications and I hope I will never need any for it. My dad has it but it has gotten better for him as he has gotten older, I hope my gets better like him. I love going to the beach. If I go swimming at the beach even if it’s summer and I am wearing a wetsuit I still get attacks, I go home and have a shower after but I have to have long showers because for the first 3 - 5 minutes depending on how bad my attack is, I can’t feel the water because my whole body is numb. Once I can feel the water with my body my hands and feet take ages to not be numb. For me having a shower helps with attacks but the problem is that it is so painful to turn on and off the taps.

@diakaheart8384 4 жыл бұрын

@@sylvanianstopmotionstar7827 Yeah I know, the doctors told my that when I get older it will get better but it is affect other parts of my body, like writing , my hand writing is horrible and my feet is also affected. I usually take pain relief. I'm an out-patient in the hospital and they try to help and understand, right now because of quarantine, I just have to keep warm. It is nice to know that your not the only one suffering. I hope you are good and well.

@smruthirangarajan9652 2 жыл бұрын

More power to you, you got this! :)💙

@Redmellibean Жыл бұрын

I have it and have never been given any medication for it. I was told there wasn't any.

@sandracook7788 2 жыл бұрын

Congratulations…you’re doing a great job and a inspiration to me

@WeAreSRUK 2 жыл бұрын

Chelsea's amazing, just like the rest of our community! Do let us know if we can do anything to support you Sandra :)

@plarkin9544 4 жыл бұрын

Ive researched this...my son has it and I have NCGS non celiac gluten sensitivity and this may cause it just stop eating gluten and see if you feel better Lord Bless You

@bethdavidson2274 4 жыл бұрын

p larkin I believe this gluten makes me feel worse

@Livelife574 2 жыл бұрын

I have Raynaud's and I feel like I look like a monster because it's so hard people are disgusted to contact me They think there's something contagious

@ams1890 3 жыл бұрын

I’ve had it for years. No doctor has ever given me meds for it. I have really bad too. Wtf 😬

@michealben6592 3 жыл бұрын

I was once a Herpes patient, but now I have finally got rid of it with the help of Doctor Salami on KZfaq he is a great traditional doctor you can also get your self cured with this same remedy for any disease stay safe.

@oneseeker2 3 жыл бұрын

I wish the interview would have started with what Raynaud's is,what it does, how it feels ECT.

@bernicebirks7731 3 жыл бұрын

Chelsea I am 62 and have had Raynaulds since i was 11 but they thought it was gout. My daughter started with it when she was 11 too and basically doesnt go out of the house. She is un employable but can not get any help with money to live on. She is trying to do a business from home using her talents as an digital artist. She went through wanting to cut her feet off depression and wanting to die. she hasnt had much of a teenage life and was home schooled. she is in fear of cold weather wind or even the freezer. Don;t despair you are not alone. if she takes meds it sends her loopy and she can not function normally.

@alexkimberly7057 3 жыл бұрын

@julianameira3309 2 жыл бұрын

@@alexkimberly7057 where do i buy this product?

@helenjohnson7021 3 жыл бұрын

Raynauds is new for me since November 2020. Began with a low grade temp for two weeks the trip to Several doctors followed. Several health issues now. Just healed from two digital finger ulcers. Taking HALF of 2.5mg (1.25mg) BP med. to keep blood flowing easily to fingers. I take half because any higher dose the meds drop my BP. Summer has also helped the Raynauds to only appear during contact with extreme cold. I'm having a colonoscopy and upper endoscopy this morning due to bowel and swallowing issues. May possibly have celiac disease also. Best wishes to all and stay HOPEFUL 💕

@julianameira3309 2 жыл бұрын

what is the medication?

@joycegoldie2187 2 жыл бұрын

Raynauds is unpredictable! I didn't know much about it but I think people are more aware nowadays. Extreme sensitivity to cold weather , white finger tips turning red then blue or , not returning back to normal colour on return inside is not normal! You can also have blue lips or a bright red face when outside in the cold simply due to blood flow within your body! This is a very informative video ! I hope more treatments can be found in the future to ease the pain endured by so many people in future years! 😊🤔

@jillalexandra9269 3 жыл бұрын

I have Raynauds and when I was in the 7th grade I went mildly hypothermic in a class room cause of the AC

@michealben6592 3 жыл бұрын

@Crystal4RealHealing 3 ай бұрын

I hate that i have Raynaud's 😢 its ruining my life and makes me hopeless

@meghancarlson1360 3 жыл бұрын

I’m 28 and have Raynauds

@Tsagkaraki82 4 жыл бұрын

Raynaud means cold is pain..I am wondering isn't there any drug available yet?

@annetierney42 Жыл бұрын

Try classic conditioning. It worked for me. I got naked, openened the window, put my hands in very warm water. I breathed hot air to my fingers & breathed relaxation to my hands. Did this many times. My mind & fingers got the message. Haven’t had a recurrence in sooo long. No shit! It worked. I thought it was a Stupid idea at 1st. I tried in desperation. It also worked for my father. Free to try it & better than medicine Good luck. Feel better

@oliviarowhm9281 5 жыл бұрын

I have raynauds it sucks it feels like little needles going into you

@alexmarlett865 2 жыл бұрын

I got this when I was 25 came out of nowhere one day it sucks

@WeAreSRUK 2 жыл бұрын

We're really sorry to hear that Alex! Early-mid twenties is when a lot of people start experiencing Raynaud's for the first time. Let us know if we can offer any support - our site is a good place to start if you're feeling a bit overwhelmed! www.sruk.co.uk

@Paarthurnaxdova Жыл бұрын

Nobody explains how Raynalds starts. Is it itching? Is it numbness? Or does your fingers just go white and blue only?

@WeAreSRUK Жыл бұрын

Hi, a Raynaud's attack can vary from person to person. Usually there is either a colour change (to white or blue, then red when the attack dissipates) or numbness, tingling or pain in the affected area(s), or stinging/throbbing when the attack ends. Raynaud's can affect many areas of the body, including hands, feet, nose, tongue and nipples.

@megisworthy Жыл бұрын

For me, it starts when I touch something cold like food from the freezer, go into the ocean on a cold day, walk outside for ten seconds with my dog at night without gloves. It can even start in the morning when I'm waking up and typing in a cold room. My fingers start to loose their sensitivity, if I can get them on my neck, belly or armpits then it can arrest any further blood loss. If I don't do something immediately, they turn white and go numb. I have to stop everything to take care of this and often makes me late for work, meetings, appointments. In the grocery store I have to stop everything especially if I'm carrying heavy bags that stop blood flow to my fingers as well. Even the pull of a dog leash can trigger an attack.

@nataliemay415 Жыл бұрын

I hate the cold, you couldn't pay me to put my hands in cold water.

@alienfrommars6373 4 жыл бұрын

I'm 11 and I've got it. No 💊medication. ☺

@merrymeditation 4 жыл бұрын

Stay that way little man :) Think low carbish life, not being overweight, being honest and living a grateful based life make things ....cool, lol. I have a few autoimmune illnesses, am on no meds currently and I will be 50 this year. Raynauds has been the least serious tbh, even though it is def weird and annoying for sure. PS: my only tip is mittens work way better than gloves for me!

@sylvanianstopmotionstar7827 4 жыл бұрын

I am 14 and have had Raynaud’s for as long as I can remember. I am not on any medications and I don’t let it stop me. I go to the beach in summer a lot and even when I am wearing a wetsuit and it’s the middle of summer I always get Raynaud’s attacks. I try to just ignore it though, I am lucky that most of the time it doesn’t hurt to much but my hands go really numb and sometimes I can’t move them. That is really bad at school especially when I have to write a lot because I can’t move my hands. When I am at home if I get an attack I have a shower because that helps but the only problem is that it hurts to turn the taps on when I have an attack.

@kajaluprerti739 2 жыл бұрын

How did you treat yourself without medication ?

@mattslivar5174 3 жыл бұрын

The disease isn't rare 100.000 people a year get diagnosed with it and my doctor sad it's nothing Sirius

@alexkimberly7057 3 жыл бұрын

@julianameira3309 2 жыл бұрын

@@alexkimberly7057 help me...tell me how I get that... i'm brazilian

@rosangzuali7381 2 жыл бұрын

@@julianameira3309 she is a spam

@lucybellescott7531 4 жыл бұрын

Not important enough for research.

@lillyrocks2011 2 жыл бұрын

That's very sad. I don't know what is going to happen in the future. In my case took 10 years to get the diagnosis. Even doctors didn't read rightly my labs. It's terrible.

@Crystal4RealHealing 3 ай бұрын

We need more awareness