Move with me and my HSP (hereditary spastic paraplegia)

  Рет қаралды 5,118

Oh Yes She Cane

Oh Yes She Cane

Жыл бұрын

I thought it would be interesting to show both how I walk and a few basic balance/range of motion exercises. I think seeing me attempt the exercises gives a better understanding to how I walk the way do.

Пікірлер: 19
@cathycook-lq2so
@cathycook-lq2so Жыл бұрын
Thank you for sharing your story. I was recently diagnosed with HSP and am feeling lost. It’s so helpful and inspiring to see you getting out and traveling. I need to focus on what I can still do instead of what I can no longer do. I hope you continue to make videos!
@ohyesshecane
@ohyesshecane Жыл бұрын
Yes, that’s definitely the right minset!
@detrickjohnson159
@detrickjohnson159 Жыл бұрын
Thank you for the video. I just got diagnosed with HSP. We just got to keep working and praying.
@ohyesshecane
@ohyesshecane Жыл бұрын
You are absolutely right!
@jeffwillmore6482
@jeffwillmore6482 Жыл бұрын
Thanks so much for your vids, I find them very helpful. I'm a late bloomer with hsp; mine not coming on until my mid 60s. I find your technique of using the cane and a walking stick extremely useful; thanks for that little bit of advice. Cheers.
@ohyesshecane
@ohyesshecane Жыл бұрын
Glad it’s helping you!
@d.moroz6039
@d.moroz6039 9 ай бұрын
Streching helps me
@ohyesshecane
@ohyesshecane 8 ай бұрын
Same! And it’s a must after strength training for me!
@JenniferAnderson-Jen
@JenniferAnderson-Jen 8 ай бұрын
That is so me!
@user-hf1pj3pq4u
@user-hf1pj3pq4u 2 ай бұрын
Hi I have HSP4 I see Dr.Fink at U of M Hospital in Michigan He will have medication to test soon for this disease. I'm going to test the medication I use cain or walker I'm able to mow the lawn and smile daily
@ohyesshecane
@ohyesshecane 2 ай бұрын
That’s great! I hope you respond well to the medicine!
@ranasilver2070
@ranasilver2070 Жыл бұрын
I also have hsp.. and i feel so sad because of it.. it started with me at the age of 15 :( i hate how people stare at me. somehow i feel if i was living in europe or US. things wouldnt be that hard on me that much. I think the government there takes care of people with such cases. I wish i could share how i feel with someone about this. But honestly i brag you that you had the courage to post your issue .
@williambean6126
@williambean6126 2 ай бұрын
Have u thought about the baclofen pump
@ohyesshecane
@ohyesshecane 2 ай бұрын
It’s not something I am interested in at this time. I have concerns about it being uncomfortable and the potential for infection.
@abdokalhed7412
@abdokalhed7412 Жыл бұрын
I can help you ❤️
@user-ly3sf5bi2x
@user-ly3sf5bi2x 11 ай бұрын
你好。我是中国人。我也是痉挛性截瘫患者。希望可以和你共享病情
@matthallam7772
@matthallam7772 15 күн бұрын
Wall surfing,not recommended You might get away with it for awhile but a fall will come believe me
@ohyesshecane
@ohyesshecane 2 күн бұрын
So far so good here, but I can see how eventually it would be risky!
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