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@williambean6126 12 күн бұрын
I myself am tired of walking funny its so hard...next week im getting tested for the baclofen pump and if i pass im getting 1 installed ive been walking crazy for 5 yrs and im sick of it....lifes to short i wanna enjoy what time i have left....
@ohyesshecane 12 күн бұрын
@@williambean6126 I hear you. It is exhausting and even more so in this summer heat. It’s physically and mentally taxing to move like this. Best of luck with the pump. I hope it works out and gets you the results you are expecting!
@matthallam7772 15 күн бұрын
Wall surfing,not recommended You might get away with it for awhile but a fall will come believe me
@ohyesshecane 2 күн бұрын
So far so good here, but I can see how eventually it would be risky!
@kareemahmed9205 15 күн бұрын
I have the same disease and I do not know anyone who has the same disease except you who faces many problems and questions
@ohyesshecane 15 күн бұрын
That’s why I like to share! It’s nice to have people who can relate to what we deal with!
@kareemahmed9205 15 күн бұрын
Hello, I am Karim Ahmed and I have the same pain HSP But I developed the disease when I was 20 years old, and now I am 23 years old. Some doctors suggested that I inject Botox into my legs. I would like to contact you, please 00201029523482
@ummjamila1498 16 күн бұрын
Hi Kerry! Just started following your journey. My brother has HSP SPG11. Hope all is well with you!
@ohyesshecane 15 күн бұрын
I have SPG5. I hope you and your brother are doing well!
@bullie86 19 күн бұрын
I don’t know where you’re from, but you should consider joining the Handbikebattle in Austria some day. Great adventure!
@ohyesshecane 18 күн бұрын
I live in the USA, but that looks like a really cool competition!
@paulcardsfan 19 күн бұрын
I have paralysis in my legs but o can still.ride a bike but can not walk far
@ohyesshecane 18 күн бұрын
That’s awesome you can ride!
@brysonking1406 19 күн бұрын
Wait I’m new here I just have a question is something wrong with your leg I saw u moving it with your hand?
@youseftt2257 19 күн бұрын
Yh i wanted to ask but i dont wont to seem disrespectful ❤
@wy0min9 19 күн бұрын
she talks about it in her channel bio
@ohyesshecane 18 күн бұрын
Yes! I have hereditary spastic paraplegia which makes my leg muscles weak.
@brysonking1406 17 күн бұрын
@@ohyesshecane ohh ok thanks for clarifying
@ohyesshecane 17 күн бұрын
@@brysonking1406 you’re welcome!
@ohyesshecane 19 күн бұрын
Enjoying the views on my ride!
@pecanntann69 20 күн бұрын
Yes 👍🏽 Trying to find different ways can be a real task. Once you get it, you’ll be more comfortable 💜
@ohyesshecane 20 күн бұрын
I feel a lot better getting into the hand cycle this way. When I was sitting first and contorting my leg to the other side I was afraid I was going to hurt my knee. I struggled with this attempt, but I really think it was due to different positioning of my stabilizing hand.
@abdokalhed7412 24 күн бұрын
I can help you ❤️ ❤
@peterwesthe-his5508 25 күн бұрын
Congratulations. Cool bike. You really capture the way I feel when out on my recumbent trike.
@ohyesshecane 25 күн бұрын
Aw that’s so cool! I freaking love this thing!
@peterwesthe-his5508 26 күн бұрын
Congratulations. I ride a recumbent trike and I really love the freedom it provides me with HSP can be tough. Do you have a baclofen pump? I do and it really helps.
@ohyesshecane 26 күн бұрын
I have an upright trike too, but this one is proving to be much more fun! I don’t have a pump, I just use pills.
@ohyesshecane 26 күн бұрын
This was my first time getting into my hand cycle! I no longer do it this way though!
@MilanAC1987 26 күн бұрын
Is it a progressive disease?
@ohyesshecane 25 күн бұрын
Yes, it is.
@KarenMeyer-u5v 28 күн бұрын
I have a question for you…..do you have any difficulty initiating walking? I have had strangers open doors for me but since I can’t just start my walk like most people I feel like a bother.
@ohyesshecane 28 күн бұрын
Not always initiating walking, because I can be in the middle of walking and all of a sudden one of my feet/legs just gets “stuck.” Usually one leg will just not lift up off the ground and I really have to look down at my feet and concentrate to get my body to do what I need it to do. Because I move so slowly, when I see someone open the door for me I acknowledge it with a thank you and then once through the door I comment that I “really appreciate it” or a “thanks again,” “thanks have a nice day.” Extra thank you’s for their kind action ending needing extra time!
@KarenMeyer-u5v 28 күн бұрын
I grew up south of lake George and would go there just on a whim before being diagnosed with HSP. It is a great place to relax
@ohyesshecane 28 күн бұрын
Oh cool! It’s so beautiful and peaceful- even if the water is a bit brisk!
@jeffwillmore6482 Ай бұрын
That is very cool, but I would never get myself in and out of it. No way!
@ohyesshecane Ай бұрын
It’s not easy, but I figured out a way to make it work for me! You either need flexibility, or someone to lower you into it.
@WobblyLance Ай бұрын
That is awesome!
@ohyesshecane Ай бұрын
Yeah! Thanks Lance!
@ranitawilliams6067 Ай бұрын
That’s awesome 🎉🎉🎉
@ohyesshecane Ай бұрын
It so is!! I love how fast I can go with it!
@rich34779 Ай бұрын
What 😂😂 this is a first time seeing this
@ohyesshecane Ай бұрын
This is a Force 3 hand cycle that I bought second hand, but essentially brand new as it was not used by it’s previous owner. Toys for the disabled are NOT cheap!
@burakulucay-pi5sz Ай бұрын
BEN BURAK ULUCAY SEN KİLOLUMUSUN
@MegaMusical10 Ай бұрын
My body moves exactly like yours. I use the Fluidity ballet bar it helps me with stability more than a wall si I can relax. Thank you!
@ohyesshecane Ай бұрын
Yes, a ballet bar would be great!
@gabrielbras5618 Ай бұрын
Hi Do you live in scotlànd ?
@ohyesshecane Ай бұрын
No, I was there for a wedding
@ChrisM-mu8rc Ай бұрын
What about the everlasting sea legs?
@ohyesshecane Ай бұрын
Or just live on a boat/ship the rest of my life?
@BerndLoesing-kz5ut 2 ай бұрын
Kannst du ein Video machen wir du mit deinen sticks rennst und ohne Hilfe aufstehst
@juliatrainer6813 2 ай бұрын
Woooow amazing! Especially walking uphill in the last video! Was that mostly the upper body strength pulling you up, or mostly the legs?
@ohyesshecane 2 ай бұрын
Eh a little bit of both!
@peterwesthe-his5508 2 ай бұрын
Really interesting about the dock. Do you have a baclofen pump ?
@ohyesshecane 2 ай бұрын
No
@ChrisM-mu8rc Ай бұрын
Do not get a baclofen pump. Stay off of drugs especially prescription
@peterwesthe-his5508 2 ай бұрын
As someone who also has HSP I want to thank you for these videos. Keep living a full life!
@ohyesshecane 2 ай бұрын
Thanks, you too!
@WobblyLance 2 ай бұрын
Railings everywhere would be soooo handy 😂
@ohyesshecane 2 ай бұрын
Right?!
@user-hf1pj3pq4u 2 ай бұрын
Hi I have HSP4 I see Dr.Fink at U of M Hospital in Michigan He will have medication to test soon for this disease. I'm going to test the medication I use cain or walker I'm able to mow the lawn and smile daily
@ohyesshecane 2 ай бұрын
That’s great! I hope you respond well to the medicine!
@williambean6126 2 ай бұрын
Have u thought about the baclofen pump
@ohyesshecane 2 ай бұрын
It’s not something I am interested in at this time. I have concerns about it being uncomfortable and the potential for infection.
@rebeccashelly3864 2 ай бұрын
I also have to place my hand between my knees on that machine. I just learned that I am a "carrier" of hsp. I will learn more tomorrow what this means. Thanks for sharing your journey.
@ohyesshecane 2 ай бұрын
Best of luck to you!
@UziGR6642 2 ай бұрын
I have similar but minor, and no girl wants to marry me😭
@WobblyLance 4 ай бұрын
You're amazing
@ohyesshecane 2 ай бұрын
Thanks Lance!
@MichaelandJustin 4 ай бұрын
Hey there. I just found your channel. I, too, have this same disability. I found your videos very inspirational, and I just wanted to say thank you for making them. Baci Baci.
@ohyesshecane 2 ай бұрын
Thank you so much! I am glad to hear they are helpful!
@ChrisM-mu8rc 4 ай бұрын
I have HSP too. GMB, gold medal bodies, the elements program was fun and helpful.
@ChrisM-mu8rc 4 ай бұрын
You could crawl much quicker depending how fast you can get down and up.
@ohyesshecane 2 ай бұрын
But then I would need knee pads and to wash my hands and it would be a whole thing.
@lookingupwithwonder 5 ай бұрын
That dress is awesome
@ohyesshecane 2 ай бұрын
Thanks!
@lookingupwithwonder 5 ай бұрын
Yep
@lookingupwithwonder 5 ай бұрын
Your arms must be bloody strong. 💪
@ohyesshecane 2 ай бұрын
Oh yeah!
@juliatrainer6813 5 ай бұрын
Wooooow great job! For how long can you keep doing that until the legs become exhausted?
@ohyesshecane 2 ай бұрын
Depends on the day! Usually my feet hurting is what takes me out.
@karengallimore2016 6 ай бұрын
I do exactly the same thing when I need to do something in my apartment. I use my recliner or bed and slide off on to the floor and the same thing all over again to get back up.
@ohyesshecane 6 ай бұрын
So much better than putting full pressure on knees to get up and down from the floor!
@WobblyLance 6 ай бұрын
Yes!
@johnfelso2808 6 ай бұрын
Nobody can stop you 🎉
@ohyesshecane 6 ай бұрын
That’s right!
@lylousanti7127 20 күн бұрын
Bonjour grâce à vous je vais m inscrire dans une salle de sport j en ai envie et besoin je suis atteinte de la même maladie que vous mais je ne me sens pas malade juste embêtée par tous les obstacles de la vie on a pas le choix il faut absolument se battre ❤ merci beaucoup de nous montrer que nous aussi on peut ❤❤❤❤
@ragingmeta2241 6 ай бұрын
Proud of u
@ohyesshecane 6 ай бұрын
Thank you!
@ohyesshecane 6 ай бұрын
Don’t let your differences keep you from getting the exercise you need! The gym is for everyone- you belong there even if you don’t always feel like you do.
@MIKEDIAMONDZ 6 ай бұрын
Women like you today are very rare... maybe your condition makes you a woman in facts... i bet your man is happy with you ❤