Multiple Sclerosis, Brainfog and Cognitive Problems

Рет қаралды 11,458

4 жыл бұрын

#multiplesclerosis #cognitive #brainfog
Here's a video about how Multiple Sclerosis your cognitive function: from brain fog to memory problems, hear me talk about how I'm affected. What's your worst cognitive dysfunction?
Here’s the symptoms I go over:
- Brainfog
- Memory problems
- Vocabulary issues
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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⚠️ DISCLAIMER:
My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" KZfaq channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Пікірлер: 102

@meganhenry5795 4 жыл бұрын

I find myself saying I don't remember often and I've lost some respect at work because of this. It's hard man. Thankfully I work with good people, with the exception of a couple who just think I'm an idiot. But I definitely know I'm not. That's all that matters. ♥️ you Seb. Namaste.

@LifeofSebMS 4 жыл бұрын

It’s so important to have good people around you in these cases! I find that if the information is not readily available in my memory, I won’t even put myself through the effort of searching in the dark for information. I’d rather stay silent and people will judge me for that too 😂 it ain’t easy sister, but never forget that you ARE a star and worth just as much as everyone else ❤️

@whyareyougay9872 3 жыл бұрын

You are not really alone you might have recovered but i suffer from the same thing sometimes i say stuff without thinking and im aware of everything that brain fog does to me

@craiggraham5847 Жыл бұрын

I understand your frustration, I have lost so many jobs due to my cognitive issues despite having very high IQ. People often assume that I am either lazy or not committed and its frustrating because many of them aren't all that smart themselves.

@nikicarrie4071 Жыл бұрын

That makes me so mad ❤ smh

@ChooseHope 6 ай бұрын

I can relate. I’m sure my co-workers thought I was on drugs or hungover (I don’t drink). My episode really put me on high alert and I am also on guard for the next one. It’s exhausting. You aren’t alone.

@kurichai 3 жыл бұрын

When I struggle with finding words, my husband and I play a game of guess that word. I’ll describe what I’m trying to say and he throws out suggestions. I don’t enjoy the struggle but I’m blessed to have such a patient man at my side.

@ztarr 2 жыл бұрын

That's wonderful. I'm glad you have that 😊

@RuthAnnnMorris 4 жыл бұрын

I live in a state of brain fog! I find myself having to write on a sticky note about what I’m doing and where I’m going. Herb tea helps.

@DL-rl9bd 2 жыл бұрын

Brain fog for me is literally like a fog. One moment it’s not there, and another moment it’s as if it just rolled in. Or, one day I’m fine, and then one morning I wake up and there it is. Thinking is not clear, it’s slow, and all I can focus on are the basic necessities. It also feels like a subtle headache, and almost like a gentle sense of pins and needles all over my scalp. When I have it, there’s no question I have it.

@LifeofSebMS 2 жыл бұрын

Sounds terrible! Stay strong 💪🏻🧡

@DL-rl9bd 2 жыл бұрын

@@LifeofSebMS It is scary. Thank you, and take care!

@Charmedsweet 4 жыл бұрын

Seb, I want to thank you for the marvelous job you're doing and encourage you to keep making these videos. I was diagnosed with MS some days ago (really known I've had it since Christmas though) and what terrified me most was having symptoms no one else around me has ever had. People would be like "come on, I get that too" especially before my diagnosis (everybody was positive I was overreacting) but I knew something was unusually wrong with me. I'm gay also, which adds to the relating part haha. Having people to relate to has always been a coping mechanism for me, and with MS being so rare, it' can be quite difficult.

@Mags-bi6id 4 жыл бұрын

I'm so glad you brought this up, this is by far my biggest symptom(s). All of your points resonate with me so hard and yeah, it fucking sucks.. Sometimes I feel so dumb, embarrassed, and after that sad as fuck. I'm sorta crying right now, but in a good way. Love you, Seb

@livvahn8839 3 жыл бұрын

I'm literally trying not to tear up over this because I felt so stupid for so long. Or have been belittled before over this often.

@Don-bi6zc 3 жыл бұрын

I just got home from the store and I missed 75% of the list my wife gave me. It was like I saw there were things written on it but I didn't see it . I don't know if I'm forgetting things or are people using me as a scapegoat. I use to have a great memory, and now it's like watching a film with sections cut out.

@briannemuise7856 5 ай бұрын

I struggle with brain fog and word finding for sure. As I get closer to my treatments, it’s worse. I say the wrong words too

@LifeofSebMS 5 ай бұрын

😞🧡

@munandstar 4 жыл бұрын

I remembered something ,a friend told me about her brother who got MS too ,he had to keep a journal of everything he did.

@skrotteable 4 жыл бұрын

I got my first attack in the fall of 2018 and was diagnosed with MS in January 2019. I suffered a lot from fattique and difficulty concentrating and couldn't multitask at home or at job. I increased my vitamin d intake during the summer and then started on the Coimbra protocol in September 2019 and it has helped me so my fattique and cognitive problems are almost gone and I can multitask again, I nearly live a normal life again. Moreover, my lhermites signs have disappeared and balance problems are gone and my heat intolerance has also disappeared. I now can walk unlimmeted again only my fitness sets the limit. Coimbra Protocol have helped me a lot 👍 Thank you for sharing your story, it has helped me a lot when I first got my diagnose. Best regards, Lotte, Denmark

@LifeofSebMS 4 жыл бұрын

skrotteable hej Lotte! Tak for din besked. Nu er jeg blevet nysgerrig - kan du fortælle mig lidt mere om, hvordan du fik adgang til coimbra-opfølgning i Danmark? Da jeg stadig boede i Danmark flirtede jeg meget med tanken om at starte protokollen, men det var for besværligt i Danmark og så valgte jeg i stedet for at flytte til solrige Spanien 😎☀️ kærlige hilsner, Sebastian

@skrotteable 4 жыл бұрын

@@LifeofSebMS hej Sebastian. Jeg har godt set det afsnit, hvor du taler om Coimbra Protocol. Jeg kender til sclerose, da min mor også havde det. Så da jeg selv fik sclerose som 49-årig, gik jeg i gang med at læse om sygdommen og jeg stødte på så mange artikler på nettet, der omhandlede d-vitamin og immunforsvar og til sidst Coimbra protocol. Jeg tog kontakt til egen læge og spurgte, om han ville hjælpe mig med blod og urinprøver. Jeg fortalte ham, at jeg havde fundet en Coimbra Læge i Hamborg og at jeg havde brug for hans hjælp til prøverne, og det indvilligede han i. Jeg har besøgt min Coimbra læge en gang i Hamborg og resten klarer via mail og skype. Jeg har ingen intentioner om at missionere Coimbra Protocol, men når jeg høre andre der lider, kan jeg ikke lade være med at fortælle om det. Det har hjulpet mig helt fantastisk. Jeg kender 2 andre danskere, der følger protokollen. Jeg ved, at du var bange for alle restriktionerne med calcium, det var jeg også, men det er faktisk super let at holde og jeg drikker vand fra hanen i DK, selv om vi har højt indhold af calcium i vandet. Alle mine prøver har været fine indtil nu. Jeg er stadig under indkøring med d-vitamin og jeg får det hele tiden bedre og bedre. Min sclerose vil altid være her (og har nok været der siden jeg var barn, når jeg tænker over det), men jeg tror på at jeg kan stoppe sygdommen og min krop kan få lov at hele. Du er velkommen til at skrive til mig hvis du vil vide mere om protokollen på mail lms@kija.dk eller via facebook messenger Lotte Mejer Sørensen, eller her på youtube, selvom jeg ikke er så god til at finde rundt her 😊

@_.sebk_845 2 жыл бұрын

@@skrotteable hey man how are you doing right now? Do you think vitamin D supplements will be enough to help me while saving up money for treatment?

@skrotteable 2 жыл бұрын

@@_.sebk_845 Hej Sebastian. Tak fordi du spørger. Jeg har det fortsat godt efter snart 3 år på Coimbra Protocol. Jobmæssigt har der været frygteligt tralvt under corona og jeg har desværre haft noget stress og let depression pga lock down under corona, men er gået ned i tid på job og det har hjulpet. Stress er det værste man kan byde en autoimmun sygdom. Hvad er det for en behandling, som du skal spare op til? Hvis det er Coimbra Protocol du mener, så bruger jeg pt 160 euro pr skypekonsultation med min protocollæge ca 3-4 gange årligt, indtil vi er helt i mål med min d-vitamin dosis..den er der næsten nu. Alle mennesker over 50 og dem som tilbringer meget tid indendørs og ikke får så meget sol, bør tage10.000 IU D3 vitamin dagligt (børn 200 IU/kg)+ have et d-vitamin niveau i blodet på ca 100-150 nmol/l. Jeg kan anbefale at tage magnesium og B-complex også. Jeg tager en masse tilskud dagligt, som en del af protokollen og jeg har nu fået et tykt krøllet hår 😄 jeg har hørt om flere på CP der får krøller, både mænd og kvinder 😊 Hvordan har du det?

@otomshiloh4467 3 жыл бұрын

I got diagnosed with MS two years ago and have struggled to explain to people my brain fog ...memory issues etc... Thank you for you....you have truly helped me...take care..

@LifeofSebMS 3 жыл бұрын

❤️

@lw5682 4 жыл бұрын

Very well said! Its like your describing my experiences exactly. Loving all your videos lately😊

@subhadipchatterjee6319 4 жыл бұрын

Hello seb, I'm from India. My age is 20 right now and dxd 2018. Your videos are actually helpful for me to struggle everyday....love💕 from 🇮🇳

@stevewilliams4842 2 жыл бұрын

Hey I'm from India as well..how are you doing now

@Venomskye00 3 жыл бұрын

I go get my mri Monday and everything your experiencing I have especially the brain fog. The numbness tingling in my legs arms. Tremoring. My whole mothers side my mom her 4 sisters and my two brothers have ms.... and its affecting my ability to do anything at work it's so hard nobody understands. And watching you and listening makes me feel not alone sending hugs!!!

@LifeofSebMS 2 жыл бұрын

Every day is a new day! Stay strong 🧡💪🏻

@craiggraham5847 Жыл бұрын

@LifeofSebMS Жыл бұрын

😞🧡

@terrichester4683 3 жыл бұрын

Thank you so much. This is exactly what I’m going through.

@johna9543 4 жыл бұрын

Just recently found your vids. Your whole story resonates with me personally. I’m from the U.K. and diagnosed in year 2000. Wasn’t a diagnosis funded by the nhs and still isn’t really so was left to fend for myself cos I was never able to afford private health care. Was age 20 then and felt like my life was over. As the years progressed I’ve been largely ok but recently been going through a bad patch the past 6 months or so. Worst since diagnosis. Memory and balance have been the biggest issue and it’s tough but I believe il get through it like I always have done. I was always pretty scared to discuss my condition with anybody for a long time so was literally left to suffer in silence. It’s inspiring to see younger folk like yourself openly discuss it. It really isn’t the end of the world. My advice is just keep doing what your doing and learn to live with it as a minor blip you may have now and then. I never have had any treatments for it and have had to self medicate all this time. It’s tough dude but very manageable. It all started with tingling in my left index finger and spread up my arm and left it numb permanently . I keep active and try to stay healthy and worked so far for me. Don’t be afraid of sharing your thoughts and feelings. It’s still something I’m learning to this very day after feeling like I had to bottle it up for so long. It’s hard discussing it when there’s nobody to discuss it with. I’ve come to realise I’m not alone but it’s never been the end of the world. I have family and friends who have pushed me on all these years and I’m certain you do too Stay strong my friend 💪 Found a new subscriber in me lol

@jennifersmith2514 4 жыл бұрын

Seb thank you for your message on cognitive and in my job I have to remember and problem solve working in mental health field and addiction is very challenging but I find ways to keep myself organized and together..lol multitask is a complete fail now so as AA says one day one minute at a time. Love ya and positive vibes to you.

@user-ox7vb6sy1d Күн бұрын

I have Ms with cognitive problems as well . I feel quickly overwhelmed. I get very confused and dizzy especially in heat . I’m very confused in supermarkets and have to really do my best to focus. I find it hard to guess the distance between me and objects so I’m scared of falling or bumping into things .

@PjKneisel Жыл бұрын

Thank you for this. Very very relatable.

@LifeofSebMS Жыл бұрын

You’re very welcome 🙏🏻🧡

@Argghimapirate 4 жыл бұрын

I kinda stumbled across your videos , they’ve been informative and confirmation of what I feel. I’ve been trying to avoid anything having to do with Ms cause I’m kind of still having a hard time accepting it.. But your videos don’t make me feel as bothered. I’m starting Gilenya on Sunday I’m extremely nervous..

@Momma_Gee Жыл бұрын

Thank you for this ❤❤❤

@LifeofSebMS Жыл бұрын

🤗🧡

@janinesingh3462 4 жыл бұрын

Yes people laugh 😂 at me coz I say the wrong words or think I’m not clever but hey 👋 I’m doing great 👍

@beatrizrosales5186 3 жыл бұрын

That happens to me to. 😕

@janinesingh3462 3 жыл бұрын

@@beatrizrosales5186 gone past caring now 😜

@ChooseHope 6 ай бұрын

Gosh, I have had this. I found myself trying to remember conversations at work and at some point I realized anyone could tell me something and I was afraid to dispute it because I honestly didn’t remember. Fortunately the fog lifted after time but it was so bad for several months.

@LifeofSebMS 6 ай бұрын

Yup, been there too 😞🧡

@planetrosie2688 4 жыл бұрын

Omg I relate to this sooo much thank you so much for posting this I’m going to send this videos link to my friend because I was trying to explain what was happening with me earlier and I JUST COULDNT EXPLAIN like finding words like it confused and angered me like grrr why is this happening 😢 Thank you , hope you are keeping well!

@mimiwhite1963 Жыл бұрын

I have MS. I always had a great memory, learning came easy etc. Brain fog is a real issue. Also when I am tired it is like my brain can not process any new information.

@LifeofSebMS Жыл бұрын

It’s terrible 😩🧡

@jennifermurray4387 4 жыл бұрын

Yup...going through a horrible bout of optic neuritis right now, being shuffled between neurologists and the "fog" makes it hard to remember who Im supposed to see and where.. frustrating to say the least lol...at least we are all in this together 💕 let's stay strong and positive for each other.

@AJ_411 4 ай бұрын

Thank you for sharing your experience with this. It is so frustrating that the effect MS has on the brain and cognition has only just started to be recognized. Finally, DMTs are measuring effects for reducing brain volume loss and atrophy. As I understand it, true BVL is measured through a series of scan "slices" and not just from our regular MRIs. Have you had this measured? I think establishing a baseline should now be standard with yearly checks. Especially now, since we know about "smoldering MS" and that the MRI "lesions" found in MRIs are not the true indications of progression.

@hairsurvival6739 2 жыл бұрын

I was recently diagnosed with MS and you have explained what I go through everyday! I thought I was experiencing early dementia!

@Whimsy_Pose Жыл бұрын

Me to! I put off getting checked in case dementia was confirmed so relieved to find out it was MS and I wasn't loosing my marbles.

@wildelizabeth 3 ай бұрын

Thank you

@karenseeley6174 4 жыл бұрын

I am a freelance writer, so you can imagine how upset I get when words don't come to me. And yes, I do end up dumbing down what I write at times because the excellent vocabulary I used to have isn't always available to me. I just got a BA(Hons) degree and I'm in my '50's, so I keep learning. However, when I have to do research, I notice that I can read something, and then 2 seconds later I can't remember what I read, so I have to keep going back and forth between what I am researching and what I am writing, so it takes a long time. Does anyone know how to improve short term memory?

@bojanbojic9230 4 жыл бұрын

I practise jñana mudra yoga. Only 10 min a day makes my memory better. I also have ms.

@britsluver 4 жыл бұрын

Brain fog every day love you

@lawnerddownunder3461 2 жыл бұрын

One day I was trying to talk about the hammock in our garden. I knew what I wanted to say, but it was impossible to access the word "hammock". My brain eventually landed on "banana chair" 😂😂😂.

@LifeofSebMS 2 жыл бұрын

Hahaha this is kind of genius though 🙈

@lawnerddownunder3461 2 жыл бұрын

@@LifeofSebMS well thank you 😄 Mostly I feel like Homer Simpson..."metal dealie, dig food."

@LifeofSebMS 2 жыл бұрын

Hahaha 😆

@winniecash1654 Жыл бұрын

Sometimes I lose track of the plot in a movie or who the characters are. 😮

@LifeofSebMS Жыл бұрын

I think that may have happened to me too 😆🧡

@mohamednajem4285 4 жыл бұрын

Hi ..Can you summarize the video with points you write below the video in order to be able to translate and benefit from the video?

@marierossler7325 4 жыл бұрын

Thanks, I have trouble verbally. I think I am saying one thing but wrong words come out.

@ChucknRachelN 2 жыл бұрын

I can give you another example of memory suckiness. I don't remember most of my kids being little. I am grateful for pictures because that is how I can remember. 😪

@LifeofSebMS 2 жыл бұрын

Oh dear, that’s terrible 😞 I find that pictures really save me from forgetting things too…

@henriettesteyn6388 4 жыл бұрын

All I can say is be strong MS is not easy. I Lost my daughter on Sunday after 29 years of batteling the sicknes.

@LifeofSebMS 4 жыл бұрын

I’m so so sorry to hear that... be strong and I send you all my love

@LifeofSebMS Жыл бұрын

So sorry to hear that 😞

@spirit_007 3 жыл бұрын

Yes I’m battling all this as my condition is getting worse

@vanessabaty7278 Жыл бұрын

My son did that one to me when he was in highschool cause he thought it was funny. Making me believe we did something or I said something I didn't do or say. He's older now and realizes it's not funny thank God.

@LifeofSebMS Жыл бұрын

🧡🙏🏻

@capitalpulse1 Жыл бұрын

I fall victim to this as well, especially with interactions with others. Someone will remind me of a funny anecdote they said and I’ll often remember being there, but not the conversation. It’s very frustrating because my long term memory has always been very sharp but my short term memory often fails me and it’s hard to self judge over it. Do you know any strategies to help you? I’ll screenshot on my phone or take a picture but I hate to rely on these as opposed to developing my memory skills. Wishing you all the best.

@LifeofSebMS Жыл бұрын

I’m really not sure what to do about it… I find that recording information makes me tired too… 😞🧡

@warlordqueekheadtaker7960 4 жыл бұрын

Hello I'm Brian I'm from Virginia USA I have some weird things happening to me my scalp feels tingly sometimes one of my bottom eye lid twitches from time to time and my feet and legs feel tingly and my hands also a few muscle aches here and there but also every now and then one of my muscles in an arm or hand leg or sometimes in my neck twitches for about a few seconds and goes away and its always never in the same place twice. Please any suggestions will be very appreciated

@LifeGaveMeSourLemons 4 жыл бұрын

Hey do not stress it. There are a lot of things that can cause these symptoms, diet, low vitamin count, stress, bad posture, anxiety, injury. Speak with your doctor and see if she can recommend a neurologist if you still are uncertain. Just give it time.

@ronalddonner3396 2 жыл бұрын

I'm not a medical professional but I have watched many documentaries on MS and I never heard this issue mentioned?

@LifeofSebMS 2 жыл бұрын

Sadly this is a very common symptom…

@barbarajean1983 2 жыл бұрын

I have been having problems with finding words like I know what to say but can’t say it I am 39 and feel like a dumb person i am not sure what to ask my doctor and I can’t remember anything

@amandabcilley 3 жыл бұрын

I deal with emotional abuse and gaslighting and I’m wondering if it’s all connected

@sosha4050 3 жыл бұрын

Same 🙁

@LifeofSebMS 2 жыл бұрын

Certainly doesn’t help 🙏🏻🧡

@munandstar 4 жыл бұрын

Yeah I've been told I'm stupid and made me feel dump cuz I forgot things I really don't care about.. thanks friends thanks thanks fam :) Edit /sorry this is sad

@Tonayez 9 ай бұрын

What’s the solution ? Supplements ?

@LifeofSebMS 9 ай бұрын

I wish there was one! 🙏🏻🧡

@aubreyvg7488 Жыл бұрын

Hi. Before you had brain fog, did you have ringing in your ears?

@LifeofSebMS Жыл бұрын

I don’t think I did… do you?

@khansakhan1157 6 ай бұрын

Exactly same situation 😂

@LifeofSebMS 6 ай бұрын

🙏🏻🧡

@TheMadnessmonster 4 жыл бұрын

har ikke kunne finde din instagram. så har ikke fået added dig. men det er muligt at blive symptom fri for dine symptomer hvis du ændre din livstil. jeg ved det kan være svært men det er helt sikkert vejen frem du kan komme til at droppe medicin helt...

@babybaby5893 3 жыл бұрын

Dr Terry Walsh. She recommended a kind of diet. She might give you some hope or comfort

@LifeofSebMS 2 жыл бұрын

Yes indeed and it makes a lot of sense

@javan5938 4 жыл бұрын

¿Cuántos años tienes?

@LifeofSebMS 4 жыл бұрын

Javan cuántos me pondrías?

@javan5938 4 жыл бұрын

@@LifeofSebMS Mmm... ¿Unos 30?

@sushmasharma-jh1cl Жыл бұрын

Hi... How are doing now son...

@LifeofSebMS Жыл бұрын

🙏🏻🧡

@danribeirao 4 жыл бұрын

so cute, single?

@vince7528 Жыл бұрын

I keep thinking about ending it all. Fucking ms

@LifeofSebMS Жыл бұрын

No, Vince, please don’t say that. You are NOT alone in this. Look at all the people sharing the same condition as you on this platform. Be strong brother 💪🏻🧡