I Was Diagnosed With Multiple Sclerosis : My MS Diagnosis Story

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Jen Finds Gems

Jen Finds Gems

3 ай бұрын

In this video I am sharing what led to my Multiple Sclerosis (MS) diagnosis in 2023. I have scarring and lesions on my spine/spinal cord. At the time of filming this video my symptoms include numbness and tingling, occasional "jolts" or "shocks" on my left side, and fatigue. I forgot to mention that while I was getting imaging and tests done, I was also referred to a Neuro- Ophthalmologist due to a swollen optic nerve and an empty cella. Not exactly sure what that means, but I figured I would mention it lol.
~~WHERE IT ALL STARTED~~
In 2020 my symptoms ranged from dizziness, trouble balancing and changes in vision to extreme limb weakness and trouble walking. I wish I could track the timeline of events better for you, however I wrote a detailed blog post in January 2021 which describes what I was going through at that time. You can read that post by clicking here: www.jenfindsgems.com/more-tha...
PART 2 of this video includes video diaries of myself during that time and a reading from a blog post I wrote. We’re moving to Saturday morning uploads, which means that Part 2 will drop on 2/24.
Subscribe here: / jenfindsgems
________________________________________________________________________
++ Boundary alert: Friends and family I love you and I appreciate you-- but please know that I am strong and I am fine. I appreciate your love and support. The best medicine for me is not your worries, but your prayers. :) With Love, Jen.
I am sharing my story with the intention of helping someone that was diagnosed with MS and may want to hear a similar story or see someone that looks like them. When I was doing research, I found a lot of people that had lesions on their brain or lesions on both their brain and their spine, but not a lot of cases where only spinal lesions were indicated. MS is often referred to as the "snowflake" illness where no two cases are the same, and while I believe this is true, I know how comforting it can be to hear a story that may sound like your own. If you're reading this, I want you to know that healing is not linear but with the right medical care, lifestyle changes and faith, I believe that anything is possible. When I was at my WORST in 2020, I didn't see myself being "me" again. I recovered then and that gives me faith that I will get through the toughest of times ahead. I also want you to know that you are beautiful, you are stronger than you realize, and God is good. Not all of my journey has been scary and I've really learned a lot about myself and how my body operates, and for that I am grateful. I am living and learning everyday, with so much motivation to do all the things (in moderation) lol. I hope that you see that within me because I will be out here LIVING LIFE, okay? LOL.
I am also tracking my journey because one of the "unseen" symptoms of MS is brain fog and a decrease in cognitive function like memory and retention. I want to document my journey to help others, and to help myself.
Tags: MS, livingwithms, msdiagnosis, MS patient, MS symptoms, multiple sclerosis symptoms, multiple sclerosis treatment

Пікірлер: 54
@dianataylor8311
@dianataylor8311 Ай бұрын
I'm going into my 28th year with MS. Keep your attitude positive, I'm still mobile and walking. Sorry you have to be a member of this club. Welcome Warrior! We are here for you😊
@JenFindsGems
@JenFindsGems 14 күн бұрын
Hi Diana! I wanted to make a video to respond to you personally but life has kept me so busy. I will be filming and posting that video soon but I couldn’t let another day go by without thanking you and acknowledging this sweet comment. Your words are so comforting and I sincerely thank you. We ARE warriors and you being on this journey for 28 years shows how strong you are! Thank you for being such a light, I’m here for you too and I’m so grateful that you’re a part of this community. 🧡
@dianataylor8311
@dianataylor8311 14 күн бұрын
You're so welcome, sister . We and I got you through the good,bad and ugly❤❤
@davidking6617
@davidking6617 7 күн бұрын
Can you still run?
@BrittneyTalks
@BrittneyTalks 2 ай бұрын
I also have Multiple Sclerosis. Getting that diagnose was devastating at first but you get used to the idea that MS is just as unpredictable as life it self. I wish you the best Jen!
@JenFindsGems
@JenFindsGems 2 ай бұрын
This is so true!! Thanks you for the words of encouragement Brittney, I’m sending you love and praying for healing on your journey too! How are you feeling since your diagnosis?
@BrittneyTalks
@BrittneyTalks 2 ай бұрын
@@JenFindsGems Thank you so much and thank you for asking! I am feeling better than I thought. Progression is minimal and the only annoying thing is all the doctor appointments since diagnosis but other than that I would say it made me more thankful and a happier person!
@Ane127
@Ane127 Ай бұрын
Get a homeopath
@martinmatko6401
@martinmatko6401 Ай бұрын
What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…! - Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍 --------------------------------------------------------------- # The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ... # Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal. People who have diabetes or who have had a heart attack are most likely to develop silent ischemia .. ---------------------------------------------- # Risk factors : - People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include : use 1- Diabetes 2- High blood cholesterol 3- High blood pressure 4- A family history of heart disease 5- Age (after age 45 for men and age 55 for women, risk increases) 6- A sedentary lifestyle 7- Obesity 8- Unmanaged stress -------------------------------------------- # To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do : 1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke . 2- Prevent diabetes or manage it if you have it . 3- Prevent or manage high blood pressure . 4- Prevent or treat high blood cholesterol and triglyceride levels . 5- Exercise regularly (talk to your doctor about what type of exercise is right for you) . 6- If you’re overweight, lose weight; maintain a healthy weight . 7- Eat a heart-healthy diet . 8- Take steps to reduce stress in your life, and learn how to manage stress . 9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions . ------------------------------------------------------ By : Kareem Blinder Reference : www.beaumont.org/conditions/silent-ischemia --------------------------------------------------------------- #coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا
@martinmatko6401
@martinmatko6401 Ай бұрын
​@@JenFindsGemsWhat is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…! - Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍 --------------------------------------------------------------- # The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ... # Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal. People who have diabetes or who have had a heart attack are most likely to develop silent ischemia .. ---------------------------------------------- # Risk factors : - People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include : use 1- Diabetes 2- High blood cholesterol 3- High blood pressure 4- A family history of heart disease 5- Age (after age 45 for men and age 55 for women, risk increases) 6- A sedentary lifestyle 7- Obesity 8- Unmanaged stress -------------------------------------------- # To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do : 1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke . 2- Prevent diabetes or manage it if you have it . 3- Prevent or manage high blood pressure . 4- Prevent or treat high blood cholesterol and triglyceride levels . 5- Exercise regularly (talk to your doctor about what type of exercise is right for you) . 6- If you’re overweight, lose weight; maintain a healthy weight . 7- Eat a heart-healthy diet . 8- Take steps to reduce stress in your life, and learn how to manage stress . 9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions . ------------------------------------------------------ By : Kareem Blinder Reference : www.beaumont.org/conditions/silent-ischemia --------------------------------------------------------------- #coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا
@SpencersMSStory
@SpencersMSStory 2 ай бұрын
Hang in there! I know many of those symptoms all too well. Not fun! I hope things get better real soon
@JenFindsGems
@JenFindsGems Ай бұрын
Hi Spencer! Your words of encouragement mean so much, thank you!! I hope that you’re taking care too- How are you feeling these days?
@metaspencer
@metaspencer Ай бұрын
@@JenFindsGems Yeah I'm still stable and doing great 9 years after being diagnosed ... what a wild ride MS can be :)
@JenFindsGems
@JenFindsGems Ай бұрын
@metaspencer that’s so good to hear! Praying for a smooth road ahead, it’s so awesome that you are sharing your experiences!
@happybuuny
@happybuuny 3 ай бұрын
Have you heard of nicole apelian? She's a botany/ biology phd with MS who reversed most to all her symptoms using plant extracts. She just opened her own apothecary and she has all these protocols on how to tackle root causes/ lessen effects. Most of her protocols use food mushrooms that she extracts in several ways. Reishi ( double extracted), lions mane double extracted. I've used her stuff with family that has degenerative spine stuff and it did help / make a difference in about 2 -3 days of use.
@JenFindsGems
@JenFindsGems 3 ай бұрын
Hi Happybuuny! I haven’t heard of Nicole and her methods of apothecary. I will be researching this heavily, thank you so much for sharing!! How is your family doing now?
@redacted-oo7ne
@redacted-oo7ne 2 ай бұрын
please don’t put any faith into people that think they can home remedy their way out of ms, the only treatment that is proven to work are DMTs
@feystrange
@feystrange 23 күн бұрын
Great video! Thanks for sharing very helpful
@JenFindsGems
@JenFindsGems 14 күн бұрын
I’m so happy that it helped! Thank YOU for watching! 🧡
@LeslieA-gu2qj
@LeslieA-gu2qj 2 ай бұрын
I have MS. I would recommend following Dr. Aaron Boster. He is an MS specialist with a KZfaq channel, with a lot of great information. It sounds like you are taking the right steps.
@JenFindsGems
@JenFindsGems 14 күн бұрын
Thank you so much Leslie! I see his videos pop up all the time, I’ll start watching them!
@kimstewart2281
@kimstewart2281 3 ай бұрын
Thank you for sharing 🙏🏼
@JenFindsGems
@JenFindsGems 3 ай бұрын
🫶🏾🫶🏾
@user-pu5ys9he1z
@user-pu5ys9he1z 5 күн бұрын
I would really like to know off your first symptoms were as I’m seeing a neurologist he’s doing a muscle biopsy .. you are a beautiful lady 🙏🏻🙏🏻❤️❤️😘😘
@MorangJames
@MorangJames 3 ай бұрын
My mom has MS and she’s had it for years now. She’s progressively gotten worse, now to the point where she cannot walk. She’s also afraid of man made medicine. All in all, we’ve changed her diet and seen some improvements, but ultimately I’m hoping to share “earthing” with her, hoping that the grounding (natural grounding) will help resolve some of those electrical impulses that she’s been having. We are naturally electrical beings, if you think about it. When a person grabs an electrical current, even with a pinch, the brain takes that electrical energy and transmits it as its own. So if you pinch and electrical current, you continue to pinch harder and harder… therefore, I’m hoping that earthing (natural grounding) will break the electrical impulses her brain is demanding of her body…. Long story short. I’ve been researching MS for years and stumbled across your video looking up grounding/earthing benefits and MS. I look up health advice for her nearly everyday, with anything from herbs to diets… I haven’t yet researched grounding yet with her, I’ve just ordered a grounding mat today, but watch Tyrone’s video on grounding benefits MS.
@MorangJames
@MorangJames 3 ай бұрын
Earthing Grounding helps MS and more by Tyrone Magnus
@JenFindsGems
@JenFindsGems 3 ай бұрын
Thank you so much for sharing this James, this is the first that I’ve heard of using grounding techniques for MS healing! I will definitely be checking out his videos, thank you again and sending lots of love and prayers for your Mom!
@michellelucas7985
@michellelucas7985 3 ай бұрын
Thank you for sharing. My daughter is 36. She was diagnosed in 2017.
@JenFindsGems
@JenFindsGems 3 ай бұрын
Hi Michelle, of course, thank you for watching! How is your daughter doing?
@michellelucas7985
@michellelucas7985 3 ай бұрын
@@JenFindsGems You're welcome. I went with her today to see her neurologist. She always refused to take medication or infusions. She's been using a cane off and on. She's finally giving it some thought. She has the relapsing MS. Praying for a cure.🙏
@JenFindsGems
@JenFindsGems 3 ай бұрын
@@michellelucas7985 I know that coming up with an action plan for treatment can be a difficult decision to make. I’m happy to hear that she is weighing her options and I’m praying that she has a pain free journey. Praying for a cure too. 🧡🧡
@DaniiGiRRRl
@DaniiGiRRRl Ай бұрын
Thank you
@TheMarie0213
@TheMarie0213 Ай бұрын
Hi Jennifer 👋 I was diagnosed with MS at the end of 2021. I started Ovrevus on last year and it has been ok so far no side affects. I have lesions on my brain and spine.
@JenFindsGems
@JenFindsGems Ай бұрын
My middle name is Marie! 🥰 I’m so happy that you’re doing well with no side effects from Ocrevus! How have you been feeling overall?
@TheMarie0213
@TheMarie0213 Ай бұрын
Aww ☺️ I’ve been good I feel tired a lot. Legs feel heavy from time to time but besides that I’m pretty good
@rosieposie9564
@rosieposie9564 Ай бұрын
I was only diagnosed a few months ago this year myself. I have both brain and spinal lesions. I am not on any medication at present but Ocrevus was recommended by the neurologist. I understand you not wanting to take this medication. There is a three fold increase in the rate of cancer in people on Ocrevus. There is also the risk of serious infections and PML. Like you, I am particularly worried about the spinal lesion thing. I will have to go on some sort of medication soon I think, even as I type this I am getting consistent stabbing sensations in my arm and legs, it must be related to the wheat pasta I have been eating. It has all been quite overwhelming.
@dianataylor8311
@dianataylor8311 Ай бұрын
Definitely get on a therapy very important. Now, with any medications, you are monitored closely. I'm 28yrs on this roller-coaster ride and going strong. You got this warrior
@JenFindsGems
@JenFindsGems 14 күн бұрын
Hi Rosie, I’m so sorry you’re going through this. I understand your feelings of overwhelm, a new diagnosis is scary. How are you feeling now? Have you decided to start a treatment plan or self manage? I must say that I respect your decision and concerns either way and I have straddled both sides- I still do. Of course I am not a professional but my MS specialist did caution me about the risk of “doing nothing”. Did your neurologist have any suggestions for ways to relieve the pain/ discomfort in the meantime and alternatives if you decide against Ocrevus? I have been okay since starting, and while the tingling is still there, I am hopeful that the slow of progression is working. I’ll be posting an update video soon and after I receive my next MRI, I’ll be sharing those results too. When I agreed to start Ocrevus, I was scheduled to have an appointment with someone from their team and they shared a presentation on how it works, what to expect, possible side effects, etc. I brought lots of questions to the table, one of which was the cancer concern. I forgot their exact explanation but I think it was something along the lines of the patients in the study were already at risk due to their age, genetics, etc but because it showed up, they had to include it in the findings of the study. Hopefully you have the opportunity to meet with someone from the O team to ask the questions that you have too. I will be posting a video replying too but didn’t want more time to pass before I replied. Here if you have any questions or need support and like Diana said, you are not alone!
@rosieposie9564
@rosieposie9564 13 күн бұрын
@@JenFindsGems Hi Jen, great to see you around here and I hope you are doing very well. I am gradually adjusting to the diagnosis. Some days are better than others. My neurologist is an MS specialist but he is rather old and I am not sure to what extent that affects his advice. He thinks I have had MS (undiagnosed) for some years now and he thinks that it seems 'stable' despite the massive relapse that led to the eventual diagnosis. I am already vegetarian (almost vegan) but he suggested healthy eating, vitamin d, exercise including weight training (I now have a physiotherapist) and stress management. Even though he mentioned the Ocrevus as an option, he really was not pushing it which is rather different from the more aggressive treatment approach recommended by the much younger neurologist who first saw me. For the time being the plan is that I will have more frequent than normal MRIs and monitoring. I am on medication for the neuropathy and I will have another MRI in a few weeks to see what is going on with the lesions. I am really pleased that the Ocrevus is not causing you any unpleasant effects. I will look more closely at how these Ocrevus research studies were conducted because I am really not sure that being without treatment is very wise. Please do an updated video soon and all the best.
@DeeDauredding
@DeeDauredding 14 күн бұрын
Hi I just seen your video I am very new to having MS I have my second MRI tomorrow, I'm scared I don't like them at all. But in your video you said you wad having joults in your side and then numbness that's how mine stared and always asked if anyone ever felt that. Also do you have any tips on feeling more comfortable in the MRI.. thank you for sharing sending you prayers 🙏🏼
@JenFindsGems
@JenFindsGems 14 күн бұрын
Hi Dee, thank you for sending prayers, you’re such a sweetheart. I’m so sorry that you’re going through this and I want you to know that regardless of the outcome, you are not alone! Getting officially diagnosed was overwhelming but my life has changed so much for the better since then. I’ll be sharing an update video soon. :) Just know that with a few lifestyle changes and a treatment plan, you can still live a beautiful, quality life- a diagnosis is not a death sentence. As far as your MRI, you are going to do great! Try to relax and stay as still as possible and it will be over before you know it. Don’t let the loud noise of the machine scare you, try to zone out and listen to the music they play in your headphones. You’ve got this!! I’m here if you have any questions or need any support and in the meantime, check out this video I posted on how to prepare for an MRI: www.tiktok.com/t/ZTL7f2cwh/ Sending you love and praying for you too!
@martinmatko6401
@martinmatko6401 Ай бұрын
What is the role of CCSVI Venous Hypertension and proper/improved Cerebrospinal Blood flow?? #CCSVI #BloodFlowMatters CCSVI is definitely one of the causes of MS. The novelty for some years is that we are certain that, after studying at the La Sapienza University of Rome, there are 3 types of CCSVI: * a 1 type with patients suffering from an obstacle to the endovacular venous discharge, i.e. due to congenital or acquired anomalies that restrict and block the drainage of the investigated veins (jugular, vertebral, azygos) * a 2nd type with patients suffering from an extra-vascular venous obstruction, i.e. due to external compression of the vessel * a 3 type with patients suffering from endo-vacular and extra-vascular venous obstruction So to simplify we can say that there is a CCSVI of the "hydraulic" type (1 type), a CCSVI of the "mechanical" type (2 type) and a "mixed" CCSVI of the two previous types (3 type), the 2 and the 3 type represent about 85% of cases. A patient with type 1 CCSVI will have a greater indication for angioplasty treatment, a patient with type 2 CCSVI will have a specific indication for specific physiotherapy decompressive treatment (RIMA Method), a patient with type 3 CCSVI it will have an indication for both an endo-vascular dilatation treatment and an extra-vascular decompression treatment. The RIMA Method devised by Dr. Domenico Ricci of Bari is able to release compressed veins throughout their course, as shown by a publication of June 2015 after a one-year study (Internal jugular Venous Compressione Syndrome: hemodynamic outcomes after cervical vertebral decompression manipulations-Pubmed). For information: Dr. Domenico Ricci cell.3393828399 MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 This quantification of the disease pathology will help! #CCSVI Venous Hypertension >microbleedings >iron >inflammation >free radicals >neurodegeneration #multiplesclerosis M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration M.S. - Mystery Solved Mysterious Autoimmunity = CCSVI Neurodegeneration Keep in mind! Also venous hypertension ➡️ impaired CSF absorption ➡️ reduced G Lymphatic drainage ➡️ interstitial peptides accumulation ➡️ NEURO INFLAMMATION #CCSVI Eliminating cause of the Symptoms of so called Multiple Sclerosis will End MS. Apparently it is unquantifiable the length of time Symptom$ can be treated! If you hadn't noticed Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke common occurrence in Individuals diagnosed with Diabetes, unproven autoimmune THEORY so called MS Supplying Oxygen and Nutrients to Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! MRI IN MS VASCULAR PATHOLOGY www.dropbox.com/s/m0yvgmufgfcys1v/MRI%20IN%20MS%20-%20VASCULAR%20PATHOLOGY%20.pdf?dl=0 Who Knew?? #BloodFlowMatters What is the role of proper/improved Blood flow? #CCSVI Apparently #BloodFlowMatters Stroke is a common occurrence in Individuals diagnosed with Diabetes Neurovascular Disease Multiple Sclerosis is being referred 'slow Stroke'. What is the role of proper/improved Blood flow in both conditions as much CCSVI has been Scientifically confirmed a causative factor in Symptoms of so called MS! Supplying Oxygen and Nutrients to every Cell in a Body. Blood Circulation through and including activity/exercise. Building Blocks of life, having made yourself what you are functioning today! #CCSVI #Healthcare game changer when the cause of the Symptoms of Medical conditions are eliminated! The doctor of the future will give no medicine, but will interest his patient in the care of the human frame, in diet and in the cause and prevention of disease. -THOMAS EDISON Best possiblity easing/eliminating cause of SymptoMS! You can relate! If your veins are blocked they should be opened if you have SymptoMS or not! A Vascular problem led to the crippling nightmare of Multiple Sclerosis The real Multiple Sclerosis nightmare started at the point of NeuroDx The disaster of diagnosis being made by general physical observation over time,. Especially when Time is something you can’t afford #CCSVI Multiple Sclerosis is strong and you often need help. Make you be worthy of this help, don't stand in a corner complaining, do your part! 💪 #Symptoms often ease/DISAPPEAR Facilitate Collaboration Neurovascular Disease Research! #CCSVI FB Group: MSS facebook.com/groups/4939355…! - Silent Ischemia ( Myocardial Ischemia Without Angina ) .. 🫀📚🔍 --------------------------------------------------------------- # The medical definition of silent myocardial ischemia is verified myocardial ischemia without angina. Ischemia is a reduction of oxygen-rich blood supply to the heart muscle. Silent ischemia occurs when the heart temporarily doesn’t receive enough blood (and thus oxygen), but the person with the oxygen-deprivation doesn’t notice any effects. Silent ischemia is related to angina, which is a reduction of oxygen-rich blood in the heart that causes chest pain and other related symptoms ... # Most silent ischemia occurs when one or more coronary arteries are narrowed by plaque. It can also occur when the heart is forced to work harder than normal. People who have diabetes or who have had a heart attack are most likely to develop silent ischemia .. ---------------------------------------------- # Risk factors : - People who are at risk for heart disease and angina are also at risk for silent ischemia. Risk factors include : use 1- Diabetes 2- High blood cholesterol 3- High blood pressure 4- A family history of heart disease 5- Age (after age 45 for men and age 55 for women, risk increases) 6- A sedentary lifestyle 7- Obesity 8- Unmanaged stress -------------------------------------------- # To reduce your risk for silent ischemia, you should reduce your risk for heart disease in general. Here are some things you can do : 1- Stop using tobacco of all kinds - including chewing and smoking tobacco and inhaling significant secondhand smoke . 2- Prevent diabetes or manage it if you have it . 3- Prevent or manage high blood pressure . 4- Prevent or treat high blood cholesterol and triglyceride levels . 5- Exercise regularly (talk to your doctor about what type of exercise is right for you) . 6- If you’re overweight, lose weight; maintain a healthy weight . 7- Eat a heart-healthy diet . 8- Take steps to reduce stress in your life, and learn how to manage stress . 9- See your doctor regularly, have recommended heart screenings, and follow your doctor’s instructions . ------------------------------------------------------ By : Kareem Blinder Reference : www.beaumont.org/conditions/silent-ischemia --------------------------------------------------------------- #coachblinder #blinderpathology #anatomyandphysiology #diabetes #ischemia #سبحانك_لا_علم_لنا_الا_ما_علمتنا
@JenFindsGems
@JenFindsGems 14 күн бұрын
Thank you for sharing! I’ll have to dissect this and circle back!
@tasteechickenleg
@tasteechickenleg 3 ай бұрын
Hey Jen! I’ve had multiple on and off issues that I haven’t been able to find a reason for that makes sense. I had an MRI of the brain which was basically clear, and figured since many of my symptoms seem brain related, MS wouldn’t be likely. Where on your spine did you find lesions?
@JenFindsGems
@JenFindsGems 3 ай бұрын
I’m so sorry that you’re suffering! I started to feel jolts and then tingling and numbness on my left side (side of my abdomen), kind of in between my breasts and my hips. I believe my Primary Doctor said this was close to the T12 vertebrae which triggered them to do a thorastic spine MRI. Is there a way you can have your medical team run an MRI of your spine as well? Ironically, my brain MRI can back “normal” and it wasn’t until I mentioned the jolts to my neurologist that he started to grow concerned and mentioned MS. Hopefully you find answers and start to feel better soon!
@tasteechickenleg
@tasteechickenleg 3 ай бұрын
The only place that hasn’t been checked is the thoracic spine. Initially thought I had a left shoulder injury, then neck, now left leg as well. Was supposed to see a neurologist, but the appt got pushed back till April. Thanks for being open and for your willingness to help out! I hope your treatment gives you the best possible outcome
@JenFindsGems
@JenFindsGems 2 ай бұрын
@@tasteechickenleg thank you so much! I’m praying that you get answers in April and hopefully you’re not in too much pain in the meantime. You’re so strong for being an advocate for yourself and following your intuition, I love this for you. 🥹🫶🏾
@Ane127
@Ane127 Ай бұрын
Just get a homeopath.
@JenFindsGems
@JenFindsGems 14 күн бұрын
I may need to look into this!!
@Ane127
@Ane127 14 күн бұрын
@@JenFindsGems If you do so, you will be more than fine. Can’t say more because censorship.
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