Musculoskeletal Challenges in Marfan Syndrome and the Role of Physical Therapy

Рет қаралды 32,326

6 жыл бұрын

Dr. Ryan Goodwin, Director, Cleveland Clinic Center for Pediatric Orthopaedics and Scoliosis Surgery is joined by physical therapists Raquel Griffis, PT, DPT and Lisa Seely, PT to discuss the changes that occur to the musculoskeletal system with Marfan Syndrome, treatment options, when to seek a physical therapist (PT), how to work with a PT, and a case presentation of a child with Marfan. Filmed at the Regional Symposium on Marfan Syndrome and Related Disorders presented by Cleveland Clinic and The Marfan Foundation

Пікірлер: 23

@MissouriBirds Жыл бұрын

As a 39 yr old with Marfans, ligamentous laxity, and osteoarthritis since my early 30s--I beg to differ that "the vast majority of these issues cause no arthritis." I believe if you were to take xray imaging of these people's hands, feet and smaller joints you would definitely start seeing joint changes there in fairly early life. The changes are subtle--but they can cause pain. Hyperextensibility of joints DEFINITELY wears down the joints a lot faster is my point.

@MH-hw4uh 3 ай бұрын

You are absolutely right. My major problem is muscular skeletal and I have severe scoliosis, and hip dysplasia, which leads to arthritis, osteoarthritis, degeneration of the bones in spine and hips and the list goes on. Many family members also.

@muhammadzakwan2550 4 жыл бұрын

Tolong doakan saya sembuh dri penyakit scoliosis. Dan marfan sydrome(walaupon dr ckp sy tidak ad marfan sydrome) tpi kehidupan saya seperti seorng marfan sydrome. Hanya perlukan doa korang sahaja🙏🙏

@DeeplyGratified Жыл бұрын

I have Marfan's and just going grocery shopping puts me in bed for a day, so my body can recover from all that moving. Just grocery shopping causes my back to lock up, and I don't how else to explain it, but my muscles flare up and all I can do is stay off my feet. So, no physical therapy is not going to work for everyone

@MH-hw4uh 3 ай бұрын

You are absolutely, correct. At 66 I have been there done that. Physical therapy makes it worst. Any form of movement hurts. Any task hurts and becomes painful and bedridden until it wears off.

@YankeeTM 5 жыл бұрын

Good day , I have knee pain sometime. It's really weird . Any exercise or something to that? . Yeah I'm a marfan. Knee pain feels like it's gonna collapse and I'll break my knee sometimes

@milespennington5255 5 жыл бұрын

Go to PT they help so much.

@beatrizmelendez4709 5 жыл бұрын

@@milespennington5255 Do you know if eye pain or headaches are symptoms of marfans?

@milespennington5255 5 жыл бұрын

@@beatrizmelendez4709 not sure

@milespennington5255 5 жыл бұрын

@@beatrizmelendez4709 talk to a doctor if you think if you have marfans.

@hugedisappointment309 4 жыл бұрын

Yankee TM same