My Cancer Keeps Growing Back Even After 3 Remissions | Tatijane's Leukemia Story | The Patient Story

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The Patient Story

The Patient Story

Жыл бұрын

Tatijane first knew something was wrong when she started having pain near her ribs. Her pain became so severe she was rushed to the ER and was then diagnosed with acute lymphoblastic leukemia, both B and T cells, with mutations. At 24, she was then given 6 to 8 weeks to live.
She shares how she processed her shocking diagnosis, the different treatments she’s undergone including a double CAR T-cell therapy clinical trial, and how she’s giving back to the cancer community.
Full story & transcript → www.thepatientstory.com/patie...
The interview has only been edited for clarity.
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Пікірлер: 150
@party518
@party518 Жыл бұрын
Thank you all for watching this video and for all your wonderful comments! ❤ your all so amazing!
@kailynguilieri9478
@kailynguilieri9478 Жыл бұрын
I went to high school with her and she was always the sweetest and kindest soul! She stayed so positive during her treatment. May she Rest In Peace 🙏😇
@keishasemelfort811
@keishasemelfort811 Жыл бұрын
Oh no, she passed away. Sorry to hear this.
@nesekitty9703
@nesekitty9703 11 ай бұрын
😢🙏
@barbcosgrove64
@barbcosgrove64 10 ай бұрын
🙏❤️🙏❤️....
@godschild3640
@godschild3640 9 ай бұрын
@@keishasemelfort811😭😭😭😭😭PLEASE 😭ANSWER😭 ME ….😭I have stage 4 non small cell lung cancer. On Keytruda only it shrinking. Can it grow back ,,can I be cured ..
@MrsOverthetop341
@MrsOverthetop341 9 ай бұрын
Oh my 😢
@marilynhendry2061
@marilynhendry2061 Жыл бұрын
You are absolutely amazing! When i was diagnosed with cancer, i was totally dysfunctional for months. You have a lot to offer this world young lady❤❤❤
@HelenAbalos
@HelenAbalos Жыл бұрын
@sherrybutts5947
@sherrybutts5947 Жыл бұрын
Yes cutie pie u are amazing and so much stronger than u knew!! Hang in there for a full healing😅
@debrarouth855
@debrarouth855 Жыл бұрын
My son had the same thing. ALL. Got it in 2014. He had CAR-T after it came back after chemo, then Bone marrow transplant in 2017 and he's fine today. CAR-T was his trial back then when it first came out. Saved his life!
@party518
@party518 Жыл бұрын
I'm so sorry he had to fight ALL. But he's a warrior to! I'm so happy the treatments worked!
@FathimaSaleem-qp8uw
@FathimaSaleem-qp8uw Жыл бұрын
Car t is it costly
@debrarouth855
@debrarouth855 Жыл бұрын
@@FathimaSaleem-qp8uw His insurance paid for it.
@hollypaduano8032
@hollypaduano8032 Жыл бұрын
Watching this as I just finished my 3rd chemo. You are a SuperHero! OMGoodness!!
@Howiefaye1996
@Howiefaye1996 Жыл бұрын
That’s my amazing,strong, and beautiful warrior cousin!
@barbaragalletta3030
@barbaragalletta3030 Жыл бұрын
She is an incredible young lady. To get that news at any age let alone 24 & covid time. God bless her with good health.
@ChrisKlein0
@ChrisKlein0 Жыл бұрын
6-8 weeks to live at 24, I have no idea what I would do if I was told that so young. It sure seems cancers are getting more and more common and hitting people younger and younger…
@kailynguilieri9478
@kailynguilieri9478 Жыл бұрын
Unfortunately she passed just a few days ago. Still so young, only 26.
@btudrus
@btudrus Жыл бұрын
"I have no idea what I would do if I was told that so young" I have several ideas I would try. For example several weeks of water fasting...
@btudrus
@btudrus Жыл бұрын
@@okamiamaterasu5416 "that's deadly wth" depend on the length of the fast and your fat storage. an average adult can certainly do 4-5 weeks without any problem... someone who is overweight can even do half a year... my own "record" were 32.5 days of a waterfast, i know what i'm talking about... letting the cancer grow is definitely more deadly...
@SM-zm5hz
@SM-zm5hz 11 ай бұрын
@@btudrusso true . Fasting starves cancer
@btudrus
@btudrus 11 ай бұрын
@@SM-zm5hz "Fasting starves cancer" Not really. Fasting changes the cellular signalling. Saying that fasting starves cancer ist too simplistic and not really true...
@AS-yz2iz
@AS-yz2iz Жыл бұрын
Someone needs to pay the price of all the people who were forced to experience traumatic health situation without support. Good luck to you. You're very strong. My son had Acute Myeloid Luekemia in 2019.
@macpduff2119
@macpduff2119 8 ай бұрын
America needs universal health coverage for all traumatic health events costing more than $5,000-$10,000. Major hospital bills are the major cause of bankruptcy in this country.
@AS-yz2iz
@AS-yz2iz 8 ай бұрын
@@macpduff2119 No, we do not
@k9khodi363
@k9khodi363 3 ай бұрын
I went to the ER myself and was told I might die (unfortunately I didn't). I went on to get a head injury I had to deal with myself and had to take care of my terminally ill 130lb dog myself while dealing with the head injury. Lots of people have ZERO help or people who harm us instead of help.
@cathytauscher6760
@cathytauscher6760 Жыл бұрын
You are definitely a warrior and your positivity is amazing. You are DEFINITELY making a difference ❤
@nesekitty9703
@nesekitty9703 11 ай бұрын
sadly she passed away.😢.may she R.I.P. 🙏☮🕊🌹🤍🧚‍♀✨
@stacydavis1682
@stacydavis1682 Жыл бұрын
You are a warrior in every sense of the word. Just said a prayer for you.
@faithf5846
@faithf5846 Жыл бұрын
Beautiful brave girl. Thank you for sharing your brave story. You got this! Cancer will be a memory.
@valorieoathout6956
@valorieoathout6956 Жыл бұрын
You such a strong lady. Admire you a lot! God Bless❤
@sueu6263
@sueu6263 Жыл бұрын
You’re incredible and so is your art! Wishing you the best💕
@130crowd
@130crowd Жыл бұрын
Know we are out here cheering for you. Thank you for your generosity, your bravery and your strength. ❤
@OscarsMama
@OscarsMama Жыл бұрын
You have to be the most chill, amazing person I've ever seen. If I had your diagnosis, I would probably just crawl in a hole and die. GOD BLESS YOU!
@qratorn
@qratorn Жыл бұрын
❤❤Love from me in Sweden and the southest Town called Ystad.
@hildeknarvik2440
@hildeknarvik2440 Жыл бұрын
I am in Norway. We are neigbours😄. 🇳🇴🇸🇪
@party518
@party518 Жыл бұрын
❤❤❤
@mariatoth2649
@mariatoth2649 Жыл бұрын
You are an incredibly brave and amazing girl ! and you're helping so many people. My daughter is also fighting a rare form of cancer, I call her "my hero" !. You are one also, a warrior ! keep this beautiful spirit. God bless you. ❤
@agaaga2578
@agaaga2578 Жыл бұрын
YOU are AMAZING! Wishing you the best of luck, pretty girl!
@michelles9897
@michelles9897 Жыл бұрын
💟 thank you Tatiana for sharing. I so enjoy watching your story.
@ThePatientStory
@ThePatientStory Жыл бұрын
Thanks for watching!
@godschild3640
@godschild3640 9 ай бұрын
@@ThePatientStorycan 🥶cancer 🥶shrink 🥶then 🥶grow back 🥶
@e.agoraphobicdickinsonpoet660
@e.agoraphobicdickinsonpoet660 Жыл бұрын
What a lovely young woman. ❤
@clairebeever3038
@clairebeever3038 10 ай бұрын
What a beautiful young girl the world can be such a cruel place … well cancer is ! ❤❤❤ thank you for sharing it so helps me dealing with cancer myself …. Amazing talented positive caring kind beautiful girl ❤
@kellyfarley9678
@kellyfarley9678 Жыл бұрын
Amazing you are Keep fighting
@vivianjones5904
@vivianjones5904 Жыл бұрын
GOD BLESS YOU!!!❤😂
@ElephantsRock19
@ElephantsRock19 Жыл бұрын
You are such a bright light, I feel blessed to have come across your story and wish you nothing but peace and love...🕊️🙏❤️🕯️ETA: I meant to add that 1 of my sisters very recently had mixed phenotype A.L.L., and your story and grace and positivity has helped me tremendously, thank you! 🙏❤️
@sawdust2556
@sawdust2556 Жыл бұрын
❤🙏Sending you hugs. You’re amazing.
@deirdrekiely6187
@deirdrekiely6187 Жыл бұрын
Don't let doctors weight shame you into blowing off the proper care you should receive them. If a doctor attributes *all* your problems to weight then get a new doctor or ask the Dr. if this is the care plan they would give a thin person.
@kathyerb3134
@kathyerb3134 Жыл бұрын
So proud of you. I wish you every success in your continued cancer journey and helping g scientists and other patients now and going forward. You are a star girl. Keep rocking. Love your personality. From Canada 🇨🇦 😊
@alohatvj
@alohatvj 7 ай бұрын
Thank you for sharing your survival story. You are a very strong woman. I am sending love ❤️ 😍 💖 and look forward to the day you are finally in full remission.
@nesekitty9703
@nesekitty9703 11 ай бұрын
her friend @kailynguilieri9478 posted here 2 months who went to high school with Tatijane commented sadly she passed away.😢.may she R.I.P. 🙏☮🕊🌹🤍🧚‍♀✨
@suchitraroy1758
@suchitraroy1758 Жыл бұрын
Prayers for your complete recovery.. 🙏 Thank you, for volunteering for this trial..
@peggysue7898
@peggysue7898 Жыл бұрын
Do you have your own KZfaq page? If so, I would love to follow your journey and give you as much support possible. Sending you prayers for healing 🙏❤
@yasmeen66
@yasmeen66 Жыл бұрын
Tatijane… You are a lovely person. I love your attitude. I wish for you the very best.❤️🌻🤲
@lucyadams2521
@lucyadams2521 Жыл бұрын
So incredibly courageous
@truckerhill
@truckerhill Жыл бұрын
Wow youre my hero
@party518
@party518 Жыл бұрын
Thank you❤❤❤
@tarawhite8847
@tarawhite8847 Жыл бұрын
I too have cancer,,,,,I hope all the best for you
@party518
@party518 Жыл бұрын
I'm sorry you have cancer to. But you got this, ur a warrior! ❤
@maryellenblount6376
@maryellenblount6376 Жыл бұрын
Your story is amazing and you are so courageous in that your desire is to help others. God bless you in your journey. You are such a beautiful spirit! ❤️🙏🏼
@jmnightingale9055
@jmnightingale9055 Жыл бұрын
I have AML Leukemia with the MECOM mutation and so I was given a Stem Cell Transplant in August of last year, after five days of extreme chemo which I believe was similar to what you went through. It sounds like you either had fewer side effects or you are just tougher than me because my experience was extremely traumatic while you seem to have glided through it, well, relatively. And you are right, that it is best to share everything with the docs, without worrying about TMI (too much information). I really admire your spirit and your resilience. Hang in there!
@jimig399
@jimig399 3 ай бұрын
So tragic and heartbreaking.
@journeywithjan4388
@journeywithjan4388 Жыл бұрын
I'm told the same thing. You need to lose weight! Drs need to listen to the person who has lived in the body for however many years. Praying for you and sending hugs. You are amazing.
@malshamaldeniya7997
@malshamaldeniya7997 Жыл бұрын
I'm also reciving t-lymphoblastic lymphoma.. I can feel you❤ lets fight together..
@party518
@party518 Жыл бұрын
You got this! Ur a warrior 💪🏼 ❤️
@donnajanecastle4807
@donnajanecastle4807 Жыл бұрын
Thank you for sharing this. You're a great person!
@deborahevans1052
@deborahevans1052 Жыл бұрын
Yea keep going your doing great 👍
@susiebilk9905
@susiebilk9905 Жыл бұрын
You are wonderful ❤
@helenbennett4391
@helenbennett4391 Жыл бұрын
Wow!!! You are an amazing human being, if only there were more people like you, our world would be a far better place. Keep strong, keep fighting. I will pray to the universe for you. God bless ❤
@Ceerads
@Ceerads Жыл бұрын
Thank you for this video. It’ll help many. I wish you everything good in life.
@jenniferboughton5966
@jenniferboughton5966 Жыл бұрын
I’m praying for you my friend! Thank you for sharing your story
@Leah.says.the.things
@Leah.says.the.things 10 ай бұрын
Thank you for sharing your story ❤
@lindasalera5650
@lindasalera5650 Жыл бұрын
Prayers for you to keep fighting, you are amazing!🙏❤️
@createwithlinda5181
@createwithlinda5181 Жыл бұрын
Wow, you’ve been through it…God bless you! I will add you to my prayers…stay strong!🙏🙏❤️
@sarahdermody6665
@sarahdermody6665 11 ай бұрын
Wow! You are such a kind and grateful person. Your positivity is inspiring ❤
@dianataylordeguerrero3888
@dianataylordeguerrero3888 Жыл бұрын
Love, sending prayers and wishing you the best from Mexico.❤
@user-wb2yv7ll9d
@user-wb2yv7ll9d 11 ай бұрын
What a brave and good person.
@macpduff2119
@macpduff2119 8 ай бұрын
I was diagnosed with the rare CMML -2 leukemia - 4 months ago. One week on Azitadine chemo and 3 weeks off. Thank you so much for posting this video - it's a big help for others like me. I am sad to read that you have passed away.
@nikkihines3652
@nikkihines3652 Жыл бұрын
God bless you dear. You definitely working on your soul mission 😊
@Mimi92818
@Mimi92818 11 ай бұрын
What a beautiful soul❤️🙏
@sweetsharie66
@sweetsharie66 Жыл бұрын
What a beautiful spirit. 🙏🏾💗
@FredaFlynn2008
@FredaFlynn2008 Жыл бұрын
Such a strong woman you are and I wish you a full recovery given time, I know this can’t happen over night. Sending love and best wishes from the UK and hoping you’ll stay strong to kick cancers *ss!
@macpduff2119
@macpduff2119 8 ай бұрын
According to newer comments this lovely lady has passed away. Prayers for her family
@Begging-xm6iz
@Begging-xm6iz Жыл бұрын
You have such a positive spirit, and I will pray that they will find the right treatment for you and others going through the same diagnosis. You're a beautiful young lady inside and out, and your family has to be so proud of you, putting yourself out there to help others and the doctor's, I wish you a positive recovery & remission. God bless you.🙏💕🙏
@NikhilSingh-ev8zw
@NikhilSingh-ev8zw Жыл бұрын
You are amazing. God bless you Mam 🙏❤️
@HWolfe
@HWolfe 10 ай бұрын
Rest In Peace ❤️.
@myrnajoven9339
@myrnajoven9339 Жыл бұрын
Let’s keep on praying to overcome the cancer . God is Good and Trust and Believe in His Healing hands.
@clairem3543
@clairem3543 Жыл бұрын
Sweetheart you are making a difference already.❤ Hugs to you.
@carolirvine3367
@carolirvine3367 Жыл бұрын
I hope you know how many people across the world are rooting for your wellbeing x
@splash6427
@splash6427 Ай бұрын
🙏 ❤️ 🙏 For You Always & Forever
@countrygirl366
@countrygirl366 Жыл бұрын
Prayers sweetie ❤️🙏❤️🙏💖🙏💖🙏❤️🙏💖🙏
@ronlample4407
@ronlample4407 Жыл бұрын
You are such an inspiration to all of us fighting cancer . Love and blessings to you ! You help all of us cope by showing how brave you are❤
@tracymcgrath1192
@tracymcgrath1192 Жыл бұрын
So sorry. Not fair. 🙏🙏♥️♥️🌹
@A.L.I.S.O.N
@A.L.I.S.O.N Жыл бұрын
2yrs kickin butt, you've got this girl! The food looks delish & I'm craving that now, lol. I had my uterine lining come out all at once. It was like giving birth to me. We didn't know what was going on so we took it to the ER & they confirmed it was my uterus lining. It happened bc I was on birth control so I was told I can't take birth control anymore bc it's too dangerous. I'm wondering what the dr will say about yours.
@momo43momo66
@momo43momo66 6 ай бұрын
May she rest in Everlasting Peace 😔🕊️❤❤❤❤❤❤❤,
@Sheila612Miller
@Sheila612Miller Жыл бұрын
I'm so sick of doctors not listening and thinking they know your body . It's so frustrating. Your amazing and you deserve all good things and a long long very long life. Life can be so unfair. Always fight . You rock girl. I wish you were my friend,you seem so fun. I love crafting and mermaids too( but u won't catch me in a mermaid tail lol.)
@kriscomer7118
@kriscomer7118 Жыл бұрын
Brave! Super woman! ❤
@crimenexdor
@crimenexdor 8 ай бұрын
It drives me insane that doctors keep dismissing symptoms. They should be held accountable!!
@Ida-Adriana
@Ida-Adriana 9 ай бұрын
Lastly, please see Serrapeptase also and Nattokinase (poweful enzymes) and Lumbrokinase and their anti carcinogenic actions.
@cindyhouston6789
@cindyhouston6789 11 ай бұрын
You are a beautiful, strong woman. Trust God with everything and keep your pleasant , positive attitude. I'm praying for you!.
@exboyjr
@exboyjr Жыл бұрын
❤❤❤🙏🙏🙏 You are beautiful!
@janroach1852
@janroach1852 Жыл бұрын
So angry at your doctors for ignoring your health problems and automatically blaming it on your weight with absolutelly no investigation. Your positive attitude is pulling you through, sheer will.
@ginaesperanza8239
@ginaesperanza8239 Жыл бұрын
im colon cancer stage2 diagnose last march 2022 had my operation with colostomy,done 8session of chemo biopsy is negative,my 4th ct scan done last march and its ok.but in blood there still trace of cea..and my oncologist refer mi for PET SCAN..Any one experience same mine?
@jessicamariee5466
@jessicamariee5466 8 ай бұрын
Hunny you are a special woman and very strong prayers to you ❤
@danielliu9616
@danielliu9616 10 ай бұрын
RIP
@sylvietezier4374
@sylvietezier4374 Жыл бұрын
Je dénonce les diagnostiques stade 4
@ElizabethNoelleK
@ElizabethNoelleK Жыл бұрын
❤️❤️❤️❤️
@party518
@party518 Жыл бұрын
❤❤❤
@kevanhubbard9673
@kevanhubbard9673 Жыл бұрын
Sadly it, the cancer, often does find a way to get around the treatments.
@lidiawroblewska1184
@lidiawroblewska1184 Жыл бұрын
❤❤❤
@party518
@party518 Жыл бұрын
❤❤❤
@party518
@party518 Жыл бұрын
❤❤❤
@KS-yp1jl
@KS-yp1jl Жыл бұрын
@party518
@party518 Жыл бұрын
❤❤❤
@margaretcoyle4224
@margaretcoyle4224 Жыл бұрын
🙏🙏🙏❤️❤️❤️🏴󠁧󠁢󠁳󠁣󠁴󠁿
@tarawhite8847
@tarawhite8847 Жыл бұрын
Were you on immunotherapy or targeted therapy at all?
@party518
@party518 Жыл бұрын
I'm currently on an immunotherapy. The double car-t was a targeted therapy because it targeted my 2 cells that were infected.
@DutchEVP
@DutchEVP Жыл бұрын
Tatijane sadly died on May 4.
@danielanderson204
@danielanderson204 9 ай бұрын
Oh No, was it the cancer or the therapy that she died from... It's so Upsetting we don't have cancer Cures in this day of Technological Advances!!! Beverly - breast cancer Thriver since 1-2-19 ( on my hubby's YT account)
@avm1645
@avm1645 Жыл бұрын
I pray for your healing in The Name of Jesus. Ask the Lord Jesus to help you and be in relationship with him as your Lord and Saviour He has healed me from cancer, Thanks Be to God the Father 🙏
@party518
@party518 Жыл бұрын
Thank you, 🙏🏼
@avm1645
@avm1645 Жыл бұрын
​@@party518 You are more than welcome Tatijane.. praying for you always 🙏
@donnarobertson252
@donnarobertson252 Жыл бұрын
A young man had stage 4 colon cancer and just ate no food. He didn't feed the cancer. He occasionally had protien like a t-bone steak once every week, but the fact that he had no sugars that cancers love to feed on healed him. His cancer diminished. He fasted for a few months. His cancer shrank to a fourth it's size and that's when he had radiation. Cured.
@katrinagodfrey9931
@katrinagodfrey9931 Жыл бұрын
🗣🗣🙌🏿🙌🏿🙏🏾🙏🏾
@Gesundheit888
@Gesundheit888 2 ай бұрын
Go on a Lion diet! and look at the interview between Dr. Seyfried and Dr. Ken Berry.
@nikkisolo9080
@nikkisolo9080 Жыл бұрын
I wonder if she took the jab since this happened during Covid.
@annmarie1689
@annmarie1689 Жыл бұрын
All these super cancers ..God help this woman.
@Ceerads
@Ceerads Жыл бұрын
Stop saying idiotic things on this site. 🤮😡
@keishasemelfort811
@keishasemelfort811 Жыл бұрын
Who cares about a covid vaccine. Is that what's important here? Something is wrong with you.
@dennishassler605
@dennishassler605 10 ай бұрын
TRY TOTALLY changing your diet? We all pray for you, too!!!!
@sharonlovely4653
@sharonlovely4653 Жыл бұрын
Dr Lorraine Day
@madonnaanderson3877
@madonnaanderson3877 6 ай бұрын
🙏🏻🙏🏻🙏🏻🙏🏻♥️♥️♥️🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻♥️♥️♥️♥️♥️
@nesekitty9703
@nesekitty9703 11 ай бұрын
@nesekitty9703 1 second ago ...and so many turbo cancers over these past 2 years...even moreso lately on a MASSIVE scale...instantly/SUDDENLY so agressive and widespread throughout thr body stage 3 but mostly 4😢 ... youtube,social media is with flooded so many new cases
@luislallave9666
@luislallave9666 2 ай бұрын
Have you tried vitamin C infusions?
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