My experience with radiation therapy

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Simone Giertz

Simone Giertz

5 жыл бұрын

Yay! Brain tumors. Plus I make a lamp. May 30th is the 1 year anniversary of my surgery, so currently accepting brain shaped piñatas.
NEW MERCH ALERT! I have added a bunch of stuff to my store: teespring.com/stores/simone-g...
Thanks to my freeeens who drove me to my appointments. And to everybody on Patreon for helping me get through this period of not-a-whole-lot of work and a whole load of health problems.
Have gotten a lot of questions about the "outer space is closer than Antarctica" print. It is made by the amazing Michelle Ott who lent a print of it to us: michelleott.com/
👇 places where I post things 👇
TWITTER: / simonegiertz
FACEBOOK: / simonegiertz
INSTAGRAM: / simonegiertz
PATREON: / simonegiertz
MUSIC CREDIT
Electrodoodle by Kevin MacLeod is licensed under a Creative Commons Attribution license (creativecommons.org/licenses/...)
Source: incompetech.com/music/royalty-...
Artist: incompetech.com/

Пікірлер: 4 600
@ben_1
@ben_1 5 жыл бұрын
Just imagine the conversation this "conversation starter" will start: - "Hey that's a cool lamp, where did you get it?" - "I had a brain tumor" - "..."
@copbabycombo1311
@copbabycombo1311 5 жыл бұрын
that would be a "great" conversation.
@leusername
@leusername 4 жыл бұрын
Oh that’s cool... *hol up*
@chadredmon7364
@chadredmon7364 4 жыл бұрын
Don’t be a dick lol I also have had a brain tumor and needed brain surgery so it’s like it’s your choice meds or brain surgery, she probably feels more better now though since her surgery I would say “Give me the name of 1 surgeon of the many you have had working on you. Because my surgery I’m still recovering 25 months since I had it so anyways I’m trying to say that it’s tough to recover after you’ve had the kind of surgery that we’ve been through but worth it because in the end we will be not only recovered, but stronger from having the surgery
@GALAXY-te1dg
@GALAXY-te1dg 4 жыл бұрын
Ben Jeck kzfaq.info/get/bejne/iOCbptWqmZ_cc3U.html
@ownitervi241
@ownitervi241 2 жыл бұрын
@@chadredmon7364 huh
@garbagefreak
@garbagefreak 5 жыл бұрын
"For the last three weeks I've been tripping balls on Alzheimer's medicine." --SImone Giertz, 2019
@nhreef
@nhreef 5 жыл бұрын
Ya but that constipation is a real buzz kill.
@thatlamp
@thatlamp 5 жыл бұрын
I legitimately cackled when she said that.
@timothystoutland6961
@timothystoutland6961 5 жыл бұрын
TBA&M dropped their first album last week. It hit the charts with a bullet...A bullet.
@Sephyricon
@Sephyricon 5 жыл бұрын
Put it on a T-shirt and I'll be the first one to buy it!
@darkiee69
@darkiee69 5 жыл бұрын
@@nhreef Nah... Just wash them down with some prune juice. ;)
@Sok612
@Sok612 5 жыл бұрын
The story about your friends taking you to radiation therapy had me in tears.
@rallie2429
@rallie2429 5 жыл бұрын
Damn onion cutting ninjas in here
@Jamajalama
@Jamajalama 4 жыл бұрын
INSTANTLY! Super crazy
@AP-zx1ok
@AP-zx1ok 4 жыл бұрын
Holy crap, same. I have only just discovered this channel and yeah... instantly teary.
@brandia1498
@brandia1498 3 жыл бұрын
Got something in both eyes. Man... that message hit me right in the feels...
@sj-jc4gb
@sj-jc4gb 3 жыл бұрын
Same here
@Legominder
@Legominder 5 жыл бұрын
Thanks for your openness about this topic! In medical physics internships I calibrated these electron accelerators. The purpose of all the moving around and the fixation mask is to concentrate as much of the radiation as possible on just the tumor by radiating from different angles onto the exact same spot (thus giving high radiation doses on the tumor and low on other tissue, especially vulnerable tissue). So the radiation beam is shaped differently from every angle and a computer calculates the dose from each angle in order to optimize this. This works better as fast-growing tumor cells die faster than slower-growing healthy tissue.
@geocarey
@geocarey 4 жыл бұрын
As a med. physicist in 1970 I had to plan treatments with gamma rays from Cobalt 60. The doctor would draw an outline of the head on paper, then draw where he thought the tumour was. I was limited to two fixed beams of variable width and had to plan what width for each and at what angles they had to be placed to maximise the tumour dose. All done with stencils, pencil and paper. The modern tech. is phenomenal in comparison.
@cinnion
@cinnion 4 жыл бұрын
Yea, having my strong physics background, I was talking to the folks giving me my treatment today, and they showed me the console display. I don't know how well it turned out, as I have not looked at the video yet... but later this week, I may get them to show me again if did not turn out well. The folks at UVA are so great about all this!!! (and far better than the folks I had when I was being treated for a different form of cancer when I was 11).
@samspencer7765
@samspencer7765 3 жыл бұрын
This is incredible! Medical technology never ceases to amaze me and thank you so much for whatever part you have to play in it!
@johnmclarnon5890
@johnmclarnon5890 2 жыл бұрын
@@cinnion WOW !!!! You are a real fighter!! Cancer at 11 years of age must have been very scary for you and your family. I had stage 4 prostrate cancer, went through Radiation Therapy and so far all is good. I couldn't even imagine having cancer at 11 years of age. And now you are fighting it again, you Rock man!! Keep up the good fight.
@elizabethahearn6038
@elizabethahearn6038 2 жыл бұрын
Thank you for explaining this. It, and Simone's videos are helping me be less afraid about what's coming ahead of me. ❤
@themenion
@themenion 5 жыл бұрын
Your transparency and authenticity is needed on a global scale. Thank you for sharing your heart with us.
@victorromanydacosta4793
@victorromanydacosta4793 5 жыл бұрын
Tendi foi nada
@anonymous-de3mn
@anonymous-de3mn 5 жыл бұрын
Authenticity yes, transparency not really. You don't need to spread your life for everyone to see/hear.
@johnb.7874
@johnb.7874 4 жыл бұрын
Yes!
@AK-jt7kh
@AK-jt7kh 4 жыл бұрын
anonymous anonymous That’s not transparency. That’s oversharing. I’m a transparent person but I don’t run around telling everyone everything. It’s just - I have no secrets. In conversation, I’m fine with revealing sensitive information, and I will answer your questions. That sort of thing. I think she is more of an extrovert than I am though
@BobBigWheels
@BobBigWheels 2 жыл бұрын
It's the super power that she had all along.
@Lorenz599
@Lorenz599 5 жыл бұрын
"i did not get any superpowers" Totally sounds like someone that got superpowers would say. Just saying. Also its awesome to see you back and making stuff! That lamp was amazing,
@MatthewSmith-sz1yq
@MatthewSmith-sz1yq 5 жыл бұрын
I would argue being able to resume what you love to do 2 months after radiation treatment for a brain tumor, after having a sizable portion of your brain scooped out with the tumor, a superpower of its own!
@cresenciavasquez6761
@cresenciavasquez6761 5 жыл бұрын
@@MatthewSmith-sz1yq b
@cynthiaroznowski731
@cynthiaroznowski731 5 жыл бұрын
Chemo has gotten rid of my immune system. Hopefully it gets rid of the cancer next
@kittenbraden9800
@kittenbraden9800 5 жыл бұрын
Fingers crossed!! Gute Besserung
@hsmacaraig
@hsmacaraig 4 жыл бұрын
Hey, you still here? Hope your better!
@uptown3636
@uptown3636 4 жыл бұрын
@@hsmacaraig no response. uh oh.
@londonm3161
@londonm3161 4 жыл бұрын
ah, chemo. a fever on steroids. losing patients to hoping the drugs kill the cancer before they kill you since the 1940s
@Ralphonthetrack
@Ralphonthetrack 4 жыл бұрын
Hope your doing better
@heliagrey
@heliagrey 5 жыл бұрын
Thank you for making this- and sharing! I still have my rads mask from 2005- I had cancer in my teens. I remember teasing my radiation nurses that they could have made a better living as S& M dominatrixes, bolting masked people to a table naked and giving them tattoos. ( I got 7 dot shaped tattoos as guide points.) I had to joke because it was such a rough process- I had upper and lower mantle radiation and it made me so ill for so long. So much more draining and difficult than chemotherapy. I also remember asking my doctor after a session “ what smells like microwaved chicken nuggets in here?” And he said... you. XD
@jeremiasuantak789
@jeremiasuantak789 4 жыл бұрын
Life can be quite hard for people like us. I too was diagnosed with cancer (stage 2) i got the chemo version and whenever they injected the medicine the blood vessels hurts so bad that your whole body starts to feel . Anyways what i want to say is that it's hard to start a normal life again even after you're diagnosed/kinda healed .
@makecba
@makecba 5 жыл бұрын
Tripping balls on Alzheimer's medicine is a pretty good name for a funk band
@jody024
@jody024 5 жыл бұрын
Punk *
@lanatsif
@lanatsif 5 жыл бұрын
T.P.O.A.M for short, might be a rock band after all 🤔
@ashutoshchaurasia911
@ashutoshchaurasia911 5 жыл бұрын
Burn my brain tissues- the first single
@Bumpelklase
@Bumpelklase 5 жыл бұрын
@@lanatsif T."P".O.A.M. ? Tripping "palls" [...]?
@patrik5123
@patrik5123 5 жыл бұрын
It's a pretty good name for any band, imho.
@Heeby-Jeebies
@Heeby-Jeebies 5 жыл бұрын
Today I learned: •how to make weird art •to dare to ask for help •Antarctica is further away than space
@marchenwald4666
@marchenwald4666 5 жыл бұрын
So true. xD
@harrygibus
@harrygibus 5 жыл бұрын
*eat fiber
@anacarranzagzz5430
@anacarranzagzz5430 5 жыл бұрын
Me too and how to say 40 in French 😊
@storminmormin14
@storminmormin14 5 жыл бұрын
The capitol of my state is further than space.
@marchenwald4666
@marchenwald4666 5 жыл бұрын
@@anacarranzagzz5430Already knew it, because I'm FRENCH ! Mouahahahahah ! snails.
@redxraccoon
@redxraccoon 4 жыл бұрын
When I watched this the first time it seemed so far away from my life. 2 months later I had a diagnosis... And now, watching it again, in 3 days I finish the last of my radiation treatment. It just stuns me how different this video feels to me now. So grateful for people that help. So grateful for people sharing their stories. Thank you Simone!
@amykathleen2
@amykathleen2 Жыл бұрын
How are you doing now? I hope you’re well.
@daveoh13
@daveoh13 5 жыл бұрын
"i've just been tripping balls on alzheimer's medicine"... my nose is still stinging from spitting me tea through it... love you lots!
@marsupialdungbucket
@marsupialdungbucket 5 жыл бұрын
I'm still not sure what I'm going to do with my radiotherapy mask. Next time I see my oncologist I'm going to try to get a copy of my brain scan so I can 3d print it in glow in the dark green and put it in the mask. And put it on the top of the tree come Xmas. If I live that long.
@DeterminedBeast
@DeterminedBeast 5 жыл бұрын
Best wishes for a long life ❤
@annomaly751
@annomaly751 5 жыл бұрын
marsupialdungbucket sorry hear about your situation praying for you and maybe you should make KZfaq channel and give updates.
@kajsamelen
@kajsamelen 5 жыл бұрын
I need to see this. 😆
@marsupialdungbucket
@marsupialdungbucket 5 жыл бұрын
@@kajsamelen If/when it happens I'll post a link here :-)
@marsupialdungbucket
@marsupialdungbucket 5 жыл бұрын
@@annomaly751 Thank you, but a KZfaq channel is probably not a good idea. Since the cancer diagnosis my sense of humour has turned very dark. For instance the theme song for my chemo treatments was this: kzfaq.info/get/bejne/msydm9Jyld6Uo6c.html. I listened on headphones but it was hard not to sing along sometimes...
@michelst-laurent4791
@michelst-laurent4791 5 жыл бұрын
Thanks Simone for making cancer and radiation therapy less of a taboo thing. Best of luck to you. You look great!
@cordrobertson6864
@cordrobertson6864 5 жыл бұрын
@@Reelix people try to not talk about cancer and radiation therapy. It's seen as a topic that's too shocking to just discuss
@christines3638
@christines3638 5 жыл бұрын
@@Reelix - They are reminders of our mortality.
@ArtFreak17
@ArtFreak17 5 жыл бұрын
@@christines3638 Yeah. That also reminds me of the death positivity movement and how it aims to help people have healthier and candid discussions about death. It can help make the grieving process more manageable and less isolating. Stuff like how it's a good idea to think of advance directives and end-of-life arrangements while you're still alive/well and discuss that with those close to you. Because without said discussion - their guesses on what you want is often only as good as a stranger's. They may not know that you /don't/ want to bankrupt them with fancy funeral packages or unnecessary medical expenses. As well as it being a good idea to be [compassionately] honest to children if someone they know and cares about dies.
@WasabiKitCat
@WasabiKitCat 5 жыл бұрын
It's a reminder that it's possible to just randomly get a life threatening illness and there's nothing you can do to prevent it. That thought terrifies me, that even perfectly healthy people can just get sick and die for no reason other than our body randomly fucking up and creating a cancerous cell that then spreads. I could get cancer, the people I love could get cancer, literally anyone can get cancer and no one can prevent it, and that's really scary to me. The best we can do is just get checked by the doctor often, especially if you have family history of cancer (In the future I'll have to get checked regularly for ovarian cancer because my aunt died of it), and just catch it early and kill it if you do get it. That said, it should be talked about way more. People always seem (understandably) grim when talking about cancer, but we really have to cope with these things better. Coincidentally, I heard that laughter actually helps the cancer fighting cells in our bodies, so maybe we should laugh more? I don't know if that's true, but it's not like it could hurt. Depression isn't good for your health on it's own, so it definitely wouldn't help to have cancer and be depressed.
@noreensultan7557
@noreensultan7557 5 жыл бұрын
She has cancer?
@looppp
@looppp 5 жыл бұрын
I've been dealing with anxiety and depression the past few months. I haven't been so emotionally affected by a video until this video. I'm out of words. Your strength and bravery and smile and confidence in yourself and vulnerability is so powerful. Thank you for this video.
@dragonmaid1360
@dragonmaid1360 5 жыл бұрын
Hey try cbd oil. I have shakes that affect my whole body and it makes them go away - although I live in Australia with a dick at the head of our country so I have to smuggle it in. But if you can find it? Give it a go. Rock on little trooper!!
@dragonmaid1360
@dragonmaid1360 5 жыл бұрын
Actually you know what? Let's just rock our worlds like we don't care. Get out there little buddy and dance your way through your day. After all we all ending up in ground one day and we all idiots at heart. Celebrate your weirdness like a boss. I do. Cause I figure I have nothing to lose. Rock on little trooper.
@thepixelpusher
@thepixelpusher 4 жыл бұрын
Simone is a poor role model for you!
@thepixelpusher
@thepixelpusher 4 жыл бұрын
Faroskalin Simone is a horrible role model for you!
@kyrab7914
@kyrab7914 Жыл бұрын
Honestly I took a lot of comfort out of her talking about daring to ask for help. Maybe mental illness isn't seen as serious as a brain tumor but it's still your brain being messed up. And it takes great strength to know that you need help and ask for it. Anyway, hope you're doing a bit better 3 years on.
@bnew5394
@bnew5394 4 жыл бұрын
My dad was recently diagnosed with cancer. And he’s been having such a rough time. His isn’t even terminal, and he just wants to give up all of the time. So yes, it’s very sad.
@Corn22
@Corn22 4 жыл бұрын
Brittney Newton many of us will get cancer in our lifetimes. it is just a part of aging...our cells are constantly exposed to damage, and sometimes a few cells slip through the checks and balances and run rampant. i hope your dad is doing okay.
@sagerocket3341
@sagerocket3341 5 жыл бұрын
"I've been tripping balls on Alzheimer's medicine" - Simone Giertz, 2019
@chaschuky999
@chaschuky999 5 жыл бұрын
Sage Rocket for 3 weeks
@wobblysauce
@wobblysauce 5 жыл бұрын
Once you go back you never come back, oh... what is this? Once you go back you never come back, oh... what is this...
@Syrigaras
@Syrigaras 5 жыл бұрын
Memantine is a hell of drug
@kristian9955
@kristian9955 5 жыл бұрын
"didnt get any super-powers out of it" Implying you didnt already have super-powers Also, that lamp is terrifying
@freerideshuttle
@freerideshuttle 5 жыл бұрын
It's a bit like freaky friday just with colors.
@nozzika
@nozzika 2 жыл бұрын
I will soon start my 30 days journey. Every time I feel I can't do it I watch this video again. Thank you.
@martha7157
@martha7157 4 жыл бұрын
The story about your friends taking you to the hospital is so beautiful, I'm so happy that they were there for you during your treatment. Every few weeks I have to have an IV of medicine and I'm always so touched when my friends offer to come and sit with me during it :)
@cosmecurious
@cosmecurious 5 жыл бұрын
"Dared to ask for help and dared to let people help me" I love that
@iplaysdrums
@iplaysdrums 4 жыл бұрын
Andrea Boots I work in end of life care, and it’s truly incredible how many of my patients are unable to let go and be comfortable with asking for or accepting the help they need. The line I’ve used over and over to great effect is, “you’ve taken care of people your whole life, now it’s time to let us take care of you.” If it’s that hard for people in their 80s, 90s, even 100s, it’s so much harder for the young and vital. In short, it really is daring to flout the societal value of self reliance, even when self reliance isn’t a viable option. I mean, I agree with you. I love that quote, too
@Liminal_Cat
@Liminal_Cat 5 жыл бұрын
This is such a perfect balance of positivity, raw honesty, and the usual silliness we know and love
@robbieward7026
@robbieward7026 5 жыл бұрын
I've never seen you before today. I appreciate your Honesty and transparency but on top of that, your over all personality and way you carry yourself. I look forward to looking back on your previous AND future content!
@Str8Raiser
@Str8Raiser 4 жыл бұрын
Apparently, your comment was 9 months ago. I was literally thinking the exact same thing today. I finally stumbled across Simone's channel today (4/10/2020 Coronavirus stay at home like a good little sheep nonsense, but I digress). I've been watching her content on and off all day, and I keep coming back for more. Simone is a walking, talking ray of sunshine. Funny, smart, and your buddy's kid sister kind of hot. Can't get enough.
@robbieward7026
@robbieward7026 4 жыл бұрын
@@Str8Raiser Oh dude, she's totally hot! Girl next door has always been my favorite look 😂
@WinterCharmVT
@WinterCharmVT 5 жыл бұрын
> I did not go alone a single time I'm crying. Goddamn it, Simone.
@foogriffy
@foogriffy 5 жыл бұрын
Girl, you've made a grown man cry into his Lunchable. I'm so glad you're feeling better and that you've gotten through this challenge with such a strong support system. Okay, I'm gonna go tell my friends I appreciate them. Love you, Simone!
@Tw3akst3r
@Tw3akst3r 5 жыл бұрын
Unsure which to feel more strongly about, the crying or the eating of Lunchables by a "grown man". 😁
@Rosibean
@Rosibean 5 жыл бұрын
@@Tw3akst3r the great thing about being a grown ass adult is that you can buy your own Lunchables, any time you want. It's great. :D
@Tw3akst3r
@Tw3akst3r 5 жыл бұрын
@@Rosibean You make a VERY good point!
@cavv0667
@cavv0667 5 жыл бұрын
@@Tw3akst3r Lunchables... Hands down. I mean it takes no more than 5 minutes to just make a couple of sandwiches... and you get to put whatever you want on those. I'm a make a big pot on Sun for the week kinda guy... sandwiches and hotdogs mixed in throughout the week.
@Tw3akst3r
@Tw3akst3r 5 жыл бұрын
@@cavv0667 I just always felt there wasn't enough there, I'm 125lbs but I can put away a pretty large amount of food in a sitting and unless I'm eating about, (probably all) of it at once it just won't suffice.
@catcatcatcatcatcatcatcatcatca
@catcatcatcatcatcatcatcatcatca 5 жыл бұрын
All along the real superpower was the friendship and bonding on the way to hospital. People don't need genetic mutations to fight the evil of the world; they need friends to support and get support from.
@kyrab7914
@kyrab7914 Жыл бұрын
I know it's years later but I really appreciate you sharing this and about your I guess struggle to ask for help? It's so great seeing so many ppl in the comments saying you helped them when they were dealing with cancer as well. I'm the kind of person that also would not ask friends for help b/c I technically don't need it, and I feel like hearing you talk about it can speak to a lot of ppl- something you have a gift for. Also I definitely teared up hearing about Scott helping make a schedule of all your friends- I don't know how you weren't crying the whole episode.
@CsabaTothMr
@CsabaTothMr 5 жыл бұрын
@Simone, idea: 3D print some kind of a brain and you can position it inside the head. Then that will have a nice 3D brain shadow as the LEDs light up.
@dio52
@dio52 5 жыл бұрын
It'd be super morbid, but you could probably model something from the CT scan.
@Ratchet4647
@Ratchet4647 5 жыл бұрын
You'd have to cut open the epoxy base to insert the brain then redo it somehow, and figure out how to attach the brain.
@CsabaTothMr
@CsabaTothMr 5 жыл бұрын
@@Ratchet4647 I thought there's enough opening left at the neck portion. I can imagine 3D printing 2 parts, then inserting it through the neck opening and glueing it together while inside. Then the only question is how it'll hover. Is magnetic levitation applicable in case the brain has some magnetisable metal mesh?
@JesseHires
@JesseHires 5 жыл бұрын
"Elegant" really equates to "lots of editing"
@manfredschmalbach9023
@manfredschmalbach9023 5 жыл бұрын
😂
@theCodyReeder
@theCodyReeder 5 жыл бұрын
Haha love it! Glad the treatment is completed, hopefully it worked. Those side effects wow; I don’t think I could survive not being able to taste salt. Hey I just had an idea! (Hence the edited comment) what if I made a charred “Brian” and sent it to you? Could maybe go well with the sculpture?
@kazsmaz
@kazsmaz 5 жыл бұрын
Shame she never asked you to do it. You'd rig something up from all that uranium ore
@theCodyReeder
@theCodyReeder 5 жыл бұрын
The Virtual Scotsman actually my x-ray gun probably has just as much power as the machine they used on her. Not sure if the beam would be right though.
@TheNoerdy
@TheNoerdy 5 жыл бұрын
Cody'sLab Cody who are you kidding it will be your next video lol
@DannZylman
@DannZylman 5 жыл бұрын
not being able to taste salt would really suck
@coryhobgood
@coryhobgood 5 жыл бұрын
@@theCodyReeder I'm on the same reply thread as Cody'sLab!! :D Btw, Simone, I admire how honest you are about the treatment. You da bomb!
@Skoran
@Skoran 3 жыл бұрын
"It's a girl with a brain tumor" is one of the darkest and best jokes I have ever heard. Its been a long time since I laughed this hard. Kudos Simone!
@itISafakechannel
@itISafakechannel 5 жыл бұрын
I only just found your channel through the truckla video and just wanted to say, I love your videos, your personality really shows well through what you make, and it's great how open you are in videos like this, it could really help a lot of people. Thank you.
@tachi98lep
@tachi98lep 5 жыл бұрын
Simone-2 Brian-0 Good luck and may life be less stressful from now on.
@ferrypanda
@ferrypanda 5 жыл бұрын
Brian is the worst!
@alla96xas
@alla96xas 5 жыл бұрын
@@atriyakoller136 r/whoooosh
@pfaffinaround
@pfaffinaround 5 жыл бұрын
I hope this means Brian has successfully been burned! All the best for you, Simone. You bring us so much joy. 💛
@raetroll
@raetroll 5 жыл бұрын
I'm staring down two major surgeries on top of each other and I really needed to watch this today. Thank you so much for sharing part of your experience.
@davidlewis1787
@davidlewis1787 4 жыл бұрын
I have just discovered your videos, had a binge then this popped up. I sincerely hope your recovery is complete and permanent. You are hilarious , bright and unique. Xx
@TooMuchDad
@TooMuchDad 5 жыл бұрын
Love you Simone! You're such an inspiration for so many people!
@ebony.b1976
@ebony.b1976 5 жыл бұрын
Thank you for your transparency in how shit it really is to have the condition you are currently dealing with. But also thank you for continuing to make bomb content. Respect👊🏻
@Emmaengelchen
@Emmaengelchen 3 жыл бұрын
I got goosebumbs when you said how your friends have been able to be at your side, that is so so great!!
@maggiewilliams5610
@maggiewilliams5610 2 жыл бұрын
In 2020, my dad had a cancerous brain tumor removed from his frontal lobe. Due to the type of tumor, there was never any chance of recovery and due to the location, he could never really find the words to explain the process of the (futile) radiation he went through to help prevent regrowth. But I remember one day when he showed me his radiation helmet they'd let him keep and I'd forgotten about it until stumbling across this video. He's been gone for over a year, but it's kind of nice in a way to hear more about what his experience was since he couldn't describe it himself. Thanks, Simone.
@theflava
@theflava 5 жыл бұрын
I fix those machines! You'll be happy to know that the TrueBeam you were treated on is state of the art and the absolute best option you could have been treated with.
@Leroset
@Leroset 5 жыл бұрын
Thank you for doing the work you do. Keeping these machines functional saves lives. Also, how did you get into that career? And do you get exposed to any radiation?
@theflava
@theflava 5 жыл бұрын
@@Leroset I spent 5 years in the US Navy working on submarines. When I got out I put my resume online, and the company found me and trained me how to fix their machines. There is some minor radiation exposure, but nothing too extreme. The machine is a linear particle accelerator that creates a megavolt x-ray through coincident pulses of an electron gun and a RF amplifier. When the machine is turned off it isn't radioactive except for a couple of isolated components that cool off in about 18 hours and are easily avoided.
@ec9053
@ec9053 5 жыл бұрын
That is so cool! What’s a small world! Thank you for saving lives and for your service😁
@lifetoanother
@lifetoanother 5 жыл бұрын
@@theflava oh that's funny. I almost went into that job while in the Navy, but went into subs instead.
@roykinn7
@roykinn7 5 жыл бұрын
"a linear particle accelerator that creates a megavolt x-ray through coincident pulses of an electron gun and a RF amplifier" Coincident pulses, (nodding head), I totally understood this sentence.
@cindyschroer9233
@cindyschroer9233 5 жыл бұрын
Last year they told me I had cancer and I tought about you, the way you are dealing with it and it helped me so much. I went trough a lot of chemo therapie and they had to remove my knee (because of a aggressive bone tumor) so now I have a prosthetic knee. So.... I am now a shitty cyborg and you got a shitty lamp. (Btw I’m cured now but as you said I’m also still dealing with the side effects and my mental state)
@BaguetteHD
@BaguetteHD 5 жыл бұрын
That sounds hella spooky. Hope you're doing alright 💚
@merloo7594
@merloo7594 5 жыл бұрын
Hey Cindy, not sure if it helps at all, but know that there is a person whom you've never talked with before, but he wishes you a quick recovery and a cancer free, long and happy life! Hugs and more hugs. :)
@cindyschroer9233
@cindyschroer9233 5 жыл бұрын
Merloo that’s sweet, thank you ;)
@alexamckenzie6826
@alexamckenzie6826 5 жыл бұрын
Cindy Schroer awe. i hope you’re feeling okay. 💗
@merloo7594
@merloo7594 5 жыл бұрын
@@cindyschroer9233 Aww please do tell how are you feeling and are you entirely clean of it?
@meagles1333
@meagles1333 5 жыл бұрын
You're amazing and brave and just an awesome human. I'm glad you had your friends to help you through it all xx
@libertyts
@libertyts 5 жыл бұрын
Strength and courage is knowing when you need to ask for help. You are one of the strongest people I know. I can only hope I would be half as strong and courageous as you if ever in a similar scenario. Keep pushing through and thank-you for your honesty and tumor humor!
@pheenix42
@pheenix42 5 жыл бұрын
The positive side is, it leaves you with a glowing complexion.
@iepineapple
@iepineapple 5 жыл бұрын
Positively Radiant!
@alepartidav.7664
@alepartidav.7664 5 жыл бұрын
Alonzo Branson great comment 5/5 stars😂😂
@mareli82
@mareli82 5 жыл бұрын
5/7 great comment
@MisterMooo
@MisterMooo 5 жыл бұрын
Not too bad, not too great either
@mukil6227
@mukil6227 5 жыл бұрын
@@MisterMooo I understood that reference
@Askjerry
@Askjerry 5 жыл бұрын
I am glad you have great friends to help you out. as you get older... you will realize this is more precious than gold or diamonds.
@markhawkins5022
@markhawkins5022 4 жыл бұрын
Love the positivity, and the relationship between you and your friends.
@germunity5435
@germunity5435 4 жыл бұрын
Hey! Brave, strong, positive, emotional. I was with you, I thought of you. I was impressed and still am! I laughed with you and was speechless and silent, wiped tears from my face. Thank you for being there! And please stay here! I keep my fingers crossed and wish you much strength and love!
@andrewreisinger2008
@andrewreisinger2008 5 жыл бұрын
glad youre feeling better. i missed you. welcome back. you are amazing.
@espero21
@espero21 5 жыл бұрын
Пусть поправляется и чтобы всё у неё было хорошо.
@sneezocat8122
@sneezocat8122 5 жыл бұрын
What?!
@rbxgamer1545
@rbxgamer1545 5 жыл бұрын
Роман Рыжаков what?
@aharonhovsepyan6012
@aharonhovsepyan6012 5 жыл бұрын
I had the same kind of experience last december where i was hospitalized with a pretty huge tumor at the back between my 2 brain halfes. After a month in the hospital and 4 surgeries on taking 8 hours they removed the whole tumor. Afterwards i needed to go to 30 radiation sessions and i also still have the mask! I also openly talk about the situation and it really helps to see another individual be so open about this. Allot of strength to you!!!
@sensiblewheels
@sensiblewheels 5 жыл бұрын
Hope you're doing well now 😊
@aestheticsandinsights4640
@aestheticsandinsights4640 5 жыл бұрын
I have had a similar experience being a living organ donor, telling others the importants of donating organs when we die, and of being a living donor for, organs, blood platelets, blood, etc, as well makes me feel like I am having an impact on others.
@plesesportmesubscribemycha7524
@plesesportmesubscribemycha7524 4 жыл бұрын
Same here after 3 year again niw readation thrypy nex week .can u tell me how u feeling how is expernce. Did side affict or not please
@JoshuaChowabc
@JoshuaChowabc 4 жыл бұрын
Getting to hear your story has been comforting. Thank you for making these videos! ♥️
@RobGreenLDN
@RobGreenLDN 2 жыл бұрын
Thanks for being so open and sharing your story - currently recovering from surgery to remove a cancer in the roof of my mouth and it feels so important to hear other people's stories right now and not feel alone
@RayMak
@RayMak 5 жыл бұрын
I pray that you'll fully recover from every health issue and live a strong healthy life. Love ya
@patientestant
@patientestant 5 жыл бұрын
She has the holy spirit and God loves her.
@unicorn7337
@unicorn7337 5 жыл бұрын
Amen to that. Simone is amazing and the world needs people like her. :)
@ehteshammukhtar8841
@ehteshammukhtar8841 5 жыл бұрын
It broke my heart seeing you cry 😢
@BaronVonHardcharger
@BaronVonHardcharger 5 жыл бұрын
.... even though crying is TOTALLY ok.
@dannyrobinson3173
@dannyrobinson3173 2 жыл бұрын
You’re amazing. Your story, courage, personality, sense of humor, your intelligence. Just Beautiful Simone!
@illbeyourstumbleine
@illbeyourstumbleine 5 жыл бұрын
I feel you so much on the asking for help. I had bacterial meningitis that really messed me up 10 years ago. I was 29. So for 10 years I have been kinda shutoff to the world and all my friends and family. I don't know how to get out of it even when people offer. Two months ago we bought a bus to turn into a skoolie. I want to get out of this bed and see the country! However my husband works a ton and again I get weak easily. We have made slow progress. I started watching your channel to get me motivated watching an amazing woman build amazing things. Now you have given me new motivation to accept help and or don't be afraid to ask for it. Hopefully that will help us get this build going. Thanks for the inspiration ❤ peace, love and well wishes for good health being sent your way xo
@Maxid1
@Maxid1 5 жыл бұрын
Yep, asking for help,. Same for me. Funny how the hospital always seems to be the vehicle for getting people that can't ask for help, to be forced to ask for help. It couldn't be a coincidence could it?
@illbeyourstumbleine
@illbeyourstumbleine 5 жыл бұрын
@@Maxid1 sorry for such a long post. Just really wanted to try to let you know I hear you and can empathize.
@Maxid1
@Maxid1 5 жыл бұрын
@@illbeyourstumbleine One of the things I learned in addition to the importance of asking for help was the opposite of what I needed: When the IV drip is on the other foot: If there's someone in need, don't offer help, give it. Most people are like us, we don't want to impose (dig into that feeling deep enough and you'll find it's veiled pride). If someone is serious about offering help, pick a thing to do and do it. If there's something after that, do that too..Keep doing what they need until they don't need it anymore. Or don't offer in the first place if you're just saying it to be nice. They don't need nice, they need help. From watching people help others I've found that most people only want to do one thing (or nothing at all), not stick till the end. I know who my real friends are, and can help the ones that weren't in a way I wouldn't have been able to do before.
@illbeyourstumbleine
@illbeyourstumbleine 5 жыл бұрын
@@Maxid1 everything you said is so true and on point. The pride, the not asking and just doing. Amazing and insightful. You are a beautiful soul.
@tylma001
@tylma001 5 жыл бұрын
Best. Ad. Ever. Hey. Im in a tree.
@rgz_geno1938
@rgz_geno1938 5 жыл бұрын
I. Know. Right. 😍😍😍.
@crooker2
@crooker2 5 жыл бұрын
Simone could be the next "Old Spice Guy". :)
@joannehart9624
@joannehart9624 5 жыл бұрын
You made me cry... In a good way, but I cried. Blessings to you for a long and (now) healthy life!
@PeepingUkulele
@PeepingUkulele 5 жыл бұрын
Joanne Hart I teared up too.
@treysawyer
@treysawyer 5 жыл бұрын
Simone, this was really cool and inspiring - especially the bit at the end about asking for help and actually accepting it. I know I, for one, have struggled with that in the past and I guess it's cool to know that I'm not alone in my thoughts. Also, you're awesome and kind of my hero, so keep being you.
@techdivetv2994
@techdivetv2994 5 жыл бұрын
Simone, I love your zest for life and the fact that you bring humor to all situations. Stay strong.
@joanapalha1115
@joanapalha1115 5 жыл бұрын
I admire you so much! The way you used the mask for you treatment to make something and the way you joke about the tumor and the way you dealt with everything. I hope you feel better soon. Love from Brazil 🇧🇷
@TheBenUniverse
@TheBenUniverse 5 жыл бұрын
Maybe the best super power was friendship all along...
@JimmySquiky
@JimmySquiky 5 жыл бұрын
My little pony was right !
@bluesquare23
@bluesquare23 4 жыл бұрын
I love everything you make and your struggles are nothing you can’t handle. You have a great community Simone and we’re there with you all the way!
@sitflyer2661
@sitflyer2661 5 жыл бұрын
you are amazing in your straightforward approach to life and the challenges you face. A real breath of fresh air...keep on keeping it real and best of all things to you going forwards in your journey.
@catfish023
@catfish023 5 жыл бұрын
"Trippin' Balls on Alzheimer Meds" should be the name of your Rock Band!!!
@timothystoutland6961
@timothystoutland6961 5 жыл бұрын
TBA&M cut an album last week.
@timothystoutland6961
@timothystoutland6961 5 жыл бұрын
Where you been?
@timothystoutland6961
@timothystoutland6961 5 жыл бұрын
Went number one on the UK charts with a bullet.... A bullet.
@J8n3eyr3
@J8n3eyr3 5 жыл бұрын
LED string light hair - please! You are rocking it with the positive attitude.
@sonceramax6374
@sonceramax6374 3 жыл бұрын
You are amazing. You made the statement in this video that one of the things you enjoy the most of watching 'maker' youtubers, is how elegant everything is. Building things has never been elegant for me." And that last part is what totally makes you amazing. You are relatable. I don't want to sound like a crazy nut job, but you are real and humble and deservingly proud (when you get it right) and not perfect and that is awesome. But even greater is how strong you are without even knowing it. Anyway, thank you
@KellyanneKashaS
@KellyanneKashaS 5 жыл бұрын
You are such a cool & inspirational person. Love your attitude to it all & freaking love that light its so so cool. Wish you all the best & lots of love & healing x
@IceGlass0
@IceGlass0 5 жыл бұрын
You were extremely adorable on this video. I'm so happy to see you again around here! 🤗🤗
@puppyxfyr9757
@puppyxfyr9757 5 жыл бұрын
I approve!
@georgiamundy4839
@georgiamundy4839 5 жыл бұрын
my radiation was WAY EASIER THEN THIS. good on you girl, this seemed hard. proud of you
@LizTiddington
@LizTiddington 5 жыл бұрын
I'm sure it wasn't easy though, good on you for getting through it x
@loafyu5405
@loafyu5405 5 жыл бұрын
It all must be hard, glad you all got through it💛💛💛
@jeffpape6519
@jeffpape6519 5 жыл бұрын
Georgia Mundy glad you’re here. Hope you’re doing alright now!
@ReasontoLiveAdventures
@ReasontoLiveAdventures 5 жыл бұрын
A great video that gives me a few ideas for my masks. My last radiation treatment out the kibosh on my already screwed up short term memory. I’m going to be putting together some sort of long hike/camping tour to help raise awareness for brain tumors.
@MrGrauz
@MrGrauz 5 жыл бұрын
Good to see, you made it through the year. Your friends are amazing. Great idea to ask them. Very encouraging!
@paulusthegrey
@paulusthegrey 5 жыл бұрын
Takes bravery to admit that you need help, and real friends to give it unconditionally. Stay safe and stay positive.
@johncyruspangan1460
@johncyruspangan1460 5 жыл бұрын
I see that you are subtlety nudging HBO for another sponsorship for the upcoming season of Westworld
@640kareenough6
@640kareenough6 5 жыл бұрын
The Westworld Amazon Echo tho...
@jennifera426
@jennifera426 5 жыл бұрын
Thank you for sharing your story with us. Your positivity throughout your journey is inspiring! Best of luck to you on the road ahead. Love your videos!
@joelado
@joelado 5 жыл бұрын
I'm glad you have friends that support you. Long time EV fan, loved your Truckla. You are loved by people you may never know. That is a great thing. I heart you too.
@TARGETPRACT1CE
@TARGETPRACT1CE 5 жыл бұрын
Aww, the real superpowers were the friends she made along the way. Also the power to trip on Alzheimer's medicine.
@AshleyGrenstone
@AshleyGrenstone 5 жыл бұрын
EffinStephen 🤣 ❤️ Thank you
@xhdultrawalk
@xhdultrawalk 5 жыл бұрын
Just found your channel thanks to Truckla...you're awesome...cant wait to see all your vids 🤩
@VTV12
@VTV12 5 жыл бұрын
XHD ULTRAWALK me too lol
@arrowhead2558
@arrowhead2558 5 жыл бұрын
Dude, literally the exact same thing. LOL.
@legitgabby69
@legitgabby69 5 жыл бұрын
XHD ULTRAWALK same
@bean_man8752
@bean_man8752 5 жыл бұрын
XHD ULTRAWALK sameeeeeeeee
@dncii3776
@dncii3776 5 жыл бұрын
Me too!
@volvowagon70
@volvowagon70 5 жыл бұрын
I just have to say that you are truly blessed, and have friends that love you.
@Lamasdelaine
@Lamasdelaine 4 жыл бұрын
I'm a year late but it's awesome you have an amazing support group. I truly believe that it makes all the difference in the world.
@droppedelbow
@droppedelbow 5 жыл бұрын
There's a reason you have so many amazing friends. You're an amazing person. That you can go through this and still keep any humour about the situation is incredible. Keep going.
@ZachisntReal
@ZachisntReal 5 жыл бұрын
“Michael Myers?” “...Austin POWERS?”
@rommix0
@rommix0 5 жыл бұрын
OH BEHAVE!
@fredrich1210
@fredrich1210 5 жыл бұрын
Baby Driver!!!!!!!
@PetraArkanian59
@PetraArkanian59 5 жыл бұрын
That is exactly what I thought when someone first said that to me!! XD
@IRex-wm9pd
@IRex-wm9pd 5 жыл бұрын
Someone is old enough to remember The Spy Who Shagged me but not old enough to remember Halloween.
@ThetaReactor
@ThetaReactor 5 жыл бұрын
@@IRex-wm9pd I dunno, it's been almost twenty years since the last Austin Powers film and they made a Halloween sequel last year.
@sensiblewheels
@sensiblewheels 5 жыл бұрын
I'm so glad I re-found your channel! Thanks to Truckla 🥰 It's super inspiring and fun to see you! Your personality is a gem ❤️❤️
@robnee3313
@robnee3313 4 жыл бұрын
You are a very special and beautiful person. I have enjoyed your videos for quite some time, I've enjoyed your fun outlook and approach to life. I'm glad you kicked the crap out of Brian... I think you're due a break from that.Keep being you, you're the only you we've got.
@MrZimpoppel
@MrZimpoppel 5 жыл бұрын
You are a strong girl, Simone ! Must be that Viking blood, or something like that....
@vanillash7489
@vanillash7489 5 жыл бұрын
MY ALEXA WAS ON VOLUME 9 and she it said Quarant loud as shit in the middle of the night XD
@HtSxxKendia
@HtSxxKendia 5 жыл бұрын
Lmao same shit just happened to me had me shook
@DanStarktheReal
@DanStarktheReal 5 жыл бұрын
My google home just sat there, all quiet. I think maybe, perhaps, it just doesn't know French?
@alexanderlevi2257
@alexanderlevi2257 5 жыл бұрын
Same! my parents are asleep, and my alexa is like "THIS IS HOW YOU SAY 40 IN FRENCH"
@AniketBhatP
@AniketBhatP 5 жыл бұрын
@@DanStarktheReal Or maybe it doesn't respond to "Alexa"? Stop stealing alzheimer's medicine lol...
@DanStarktheReal
@DanStarktheReal 5 жыл бұрын
@@AniketBhatP When this thing responds to music and movies, maybe it has been stealing the Alzheimer's meds... Silly Google.
@tristancampbell2968
@tristancampbell2968 4 жыл бұрын
just discovered this channel, watched a ton of videos in a row and the roller coaster of emotions ive felt. so many laughs and sad times, hope you are doing really well now
@nolabel7705
@nolabel7705 3 жыл бұрын
Thank you Simone for being so open about what you're going through. (And you bringing your own sense of comedy) My father passed in 92 from Stage 4 Cancer. From the day we all found out, he was gone in less then a month. In 2009 my mom passed from Lewy Body Disease after her 1.5yr battle of slowly wasting away. I'm sharing today to remind everyone...life is precious. Take today for today. Focus on what really is important.
@chuckmawson7273
@chuckmawson7273 5 жыл бұрын
TIL: I’ve been to Afghanistan twice...and you’re still tougher than me. Keep kicking ass! Love your work.
@cfreeman5631
@cfreeman5631 5 жыл бұрын
I am so happy to see you again. Hope things continue to improve,
@lorelig
@lorelig 4 жыл бұрын
i can definitely tell you this isnt 'shitty art". a lot of art grows out of adversity and making something beautiful about bad situations and exploring your feelings on a topic in a way that is aesthetically pleasing. This is exactly that! it explores your feelings on your radiation treatment in a way that is both functional and beautiful! I adore your work and your personality, don't be so hard on yourself!
@kr5neoradiodude641
@kr5neoradiodude641 2 жыл бұрын
I took my Dad to Radiation therapy for 3 years. I saw it drain his energy, then I experienced it for myself. You went thru a very hard time, and I am glad you had such wonderful friends to help you get through that trying time. May God bless your friends.
@Youtubedotcomma
@Youtubedotcomma 5 жыл бұрын
Thank you for sharing your experiences, not many could, especially in a informative, honest, personal way with a dash of humour. ♥️
@jpiz224
@jpiz224 5 жыл бұрын
Heeyyyyy, I'm glad you're back and still have your amazing humor ❣️
@calugaru4174
@calugaru4174 5 жыл бұрын
jpiz224 i thought this said tumour and i freaked out
@katarinazivkovic3102
@katarinazivkovic3102 5 жыл бұрын
Oh god...I read "your amazing tumor"
@angelaphsiao
@angelaphsiao 5 жыл бұрын
Maybe that humor can kill the tumor
@Falcrist
@Falcrist 5 жыл бұрын
She has amazing tumor humor... which certainly isn't the worst coping mechanism.
@Awelbeckk
@Awelbeckk 5 жыл бұрын
I read 'amazing tumor' too ... glad I wasn't the only one.
@koenvandeneynde315
@koenvandeneynde315 4 жыл бұрын
a lot of respect for your openness in your story with your tumor. I hope for you that you are now completely done with it and that you can continue with your life, that we can see many nice videos of your projects.
@alexigraves8458
@alexigraves8458 3 жыл бұрын
You are such an inspiration too me. My uncle passed away from a stage 4 glioblastoma almost two years ago and I find so much peace watching your videos. Thank you so much!
@acmulhern
@acmulhern 5 жыл бұрын
Your french accent is on point, omg! Also, I’m glad you’re back and that your radiation is over. It sucks when bad things happen to good people. Sending you much love and positive energy.
@sami711
@sami711 5 жыл бұрын
Mulan 121 I think English is her second language... I’m pretty sure.
@JuliArvi
@JuliArvi 5 жыл бұрын
@@sami711 She's from Sweden, so swedish is her first language :)
@acmulhern
@acmulhern 5 жыл бұрын
Yes, french and English aren't her mother tongue, but her accents in both are flawless.
@kylegoodsir
@kylegoodsir 5 жыл бұрын
There's a pickup line. "Hey. I'm in a tree."
@petermarsh4578
@petermarsh4578 5 жыл бұрын
So smooth
@Savorass
@Savorass 4 жыл бұрын
You are so inspiring! Everytime I watch your videos I feel a little but more positive and optimistic! Thank you!
@valentins.352
@valentins.352 5 жыл бұрын
Simone it is so amazing to me how you turn the shittiest situations into something less shitty and more into happy situation for you and all the people around you. I'm happy you are getting better and thanks for making such great videos on this platform :)
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