I also have CVID and was diagnosed about 1.5 years ago. I had a lot of the same issues you had ever since I was a kid (I'm 38 now) . The part where you talk about worrying about every little ache and pain is something I really relate to. I'm still struggling with this, but I'm getting better. I had a lymph node biopsy because it was enlarged and it came back benign. But I still think about what else is going on inside of me. I'll get through it eventually. I appreciate your story and for sharing it. It really helps me a lot to hear other people's journeys. Take care.

Good video. I was diagnosed recently. Thank you.

I found your channel by searching CVID. Thank you for putting this out there! Sick most of my life although energy level was like the Energizer Bunny. Until it wasn't. Diagnosed at age 58. SCIG weekly since March 2019 and no infections! Energy level is now my main thing. I'm subscribing and looking forward to more videos about your journey.

Thank you for sharing your journey with cvid, I m newly diagnosed and found this helpful.

I'm diagnosed with CVID just last Wednesday and the last couple of days have been a rollercoaster of emotions. Anxiety, peace, not accepting, hopeful. Seeing this vlog really made me calm in a very anxious moment. Thank you for being so open and giving me some sort of hope and peace, knowing the road ahead is unknown but it does can get better. I only have had mild symptoms besides severe sinusitis and they discovered my low IgG and IgM by chance during the sinus operation. The fear of getting all the other scary stuff a CVID patient is more likely to get scares me, but like I said: your vlog really made me a lot calmer. Thanks again!

I was also diagnosing by an allergist! I’ve been treated for allergies and sinusitis for 60 years! Allergy testing was absolutely normal! I was so shocked with this diagnosis I didn’t even know what questions to ask! Fatigue has been a lifelong problem as well. I’m waiting for prior approval from Medicare to get started on SQIG weekly. I’ve found your story inspiring. I know God is in control ❤️

You are such a beautiful person, inside and out. I love how you use your experiences to bless others, thank you. I do believe God will continue to bless you in return.

I enjoyed watching your video, God bless you, everything is happening for a reason. I got diagnosed with Cvid 2018 after still birt, limph node surgery, constantly having allergies and pneumonia . Everything you mention. No one in my family had any genetic disorders. I would like you to talk more about treatment, insurance, work issues and everything that affect your life as zebra 🦓. Thank you and stay strong. I'm in the process of finding insurance so they can Hook me up on meds each month

Thanks for sharing! You have a great outlook and message about your faith. So glad that you are in a good place!

Thank you for your testimony. God has brought me so far with so many crazy things. We do have to trust him. I always say nothing is going to happen to us that doesn’t pass through his hands. Bless you for your walk.

So beautiful, inspiring, hopeful and encouraging!! May God continue to bless you and your family. I know this took a lot of courage to do this…👏🏻👏🏻👏🏻👏🏻🤗.

My daughter was just diagnosed with CVID, thank you for sharing.

Thank you for sharing your story! You are such a strong person! It's been a tough week, and I needed to hear somthing like this and be reminded that God is in the details.

My daughter was diagnosed at age 25. The treatment made her feel worse. She stopped treatment almost 2 years ago and isn't really doing well. Lung problems, swollen lymphomas, gastro problems, edema. Can't get her to go back on treatment. I hope you are still doing well. She did the what u r doing with the treatment in the legs to iv to having a port put in. She is to have treatment every 3 weeks. Sorry for the rambling.

My brother is suffering cvid and diagnos 2008. Doctor are advised ivig injection monthly life time

I just got diagnosed last year and did my first subcutaneous IG treatment this week. I'm excited to have something that explains why I'm always sick, but worried that I won't always have access to these expensive treatments. The doctors, in general, haven't understood, because my numbers are close to normal. I got diagnosed from failing my vaccine pushes, and the number of infections I get. It's just worrying half of the doctors I see think it is nothing, even though it explains all of my symptoms. I already have monoclonal gammopathy and lung damage that I think are related to being 37 before the CVID was diagnosed. Edit: I'm also suspicious my mom has it, since it's usually genetic. She had the same thing happen with lymphnodes in her neck, and they biopsied the wrong tissue.

This is exactly my story but my thing is recurrent pneumonia. I am not officially diagnosed yet but I see an immunologist in a few weeks. IGG, IGA and IGM are almost nothing. Thank you for sharing your story!

May the Lord continue to bless you🙏🏻. Thank you for your honesty. You are right, when we first hear the words about a chronic disease, the unknown fear can be the worst….you have helped many people today…Blessings to you today😘

first tine i found out that i have cvid i laughed and said well that explains all the illnesses

Thank you so much for sharing. I have been going to my doctor and 4 different specialists for over 2 years now. Nobody can figure it out. I have yet another specialist appointment next month and I am going to bring this up as a possibility. Were your IgG subclasses levels low when you got your blood work done? Mine are all low and I have re-occurring sore throat, swollen glands etc but no one seems to be doing anything about it except they keep on giving me antibiotics. It has been so frustrating.

I'm so glad to hear you are doing well! What kind of doctor would one go to to get tested for CVID? I know you said it was your allergist, but is there another specialist that someone would normally go see?

ia m diagnosed since 2008 sarted with privigen where I was once allergic to because of a charge .Am now with kriovic...; plus because I va got Asthma/copd mix a new medicament which goes subkutan called xolair.

right not the half of normal doctors knows what it is you say i ve got cvid..; oh you re positive with covid the answer🙄

Tears. Thank you. 🤍 I started IVIg last month and you have made me feel less alone in this and given me so much hope. Again, thank you.