Hi did your rheumatologist prescribe you medicine? And do they suppress your immune system?

@@suzzyy8669 yes

MollDoll29 hey fellow Molly! Sorry to hear about your diagnosis, but hopefully it comes as a relief and you’re able to put together a game plan for treating it. I’m super into natural products, so I use them whenever possible!!

I’ve used Ayr for years. I use it at night before bed; sometimes in the morning. It’s better than store brand saline for sure.

@@christinekenney5186 I use Systane eye drops when I need it. My biggest problem is dry mouth. I'm back on Cevimeline 3x a day which helps. Had to battle with insurance to get it covered. They had switched me to another drug which was useless unless I wanted to pay a fortune out of pocket. My most difficult challenge is keeping my lips moist. I had surgery which has also left me with oral paresthesia. The best product is out of stock - B Kamins lip balm. Kiehls is a decent runner up. Paula's choice is just OK. The rest are useless. I have a collection of lip balms that were a waste of money.

Where can I buy it?

Hi Dale I have Sjogrens and will try it for my nasal passages. It is horrible at night.

Ayr was suggested to me by my brain injury therapists after the nasty car wreck I was in. I have a severe TBI from my head hitting the window of my car after it was T-boned. I use the nasal wash and the gel of that product line - they work wonders!! As far as dry mouth goes, I take lysine supplements and I use the Biotene mouthwash. I also keep OralB gel on hand to treat my gums if the need arises. For dry eyes, I use Similasan (because of my allergies to different medications & the ingredients in them).

ExtraErika and thank you 😊😊

Where do you get them from?

@@janemillar-ck3nc I buy them at Walmart(Canada) in the pharmacy.

I use them all too

ExtraErika I am so glad!!

Many people with Primary Sjogren's Syndrome have problems due to lack of saliva production and can not digest such oils.

Why did you stop drinking hot tea and coffee?

Did sojgren effect teeth?

@@ne5464 Sjogies is caused by inflammation which is heat so by drinking hot tea and coffee once actually makes the inflammation worse

@@noo8160 Yes the dryness causes tooth decay so one has to use a high fluoride prescription toothpaste

The tea leaves and tea make our mouths even drier. Two doctors have told me not to drink tea. I can drink chamomile tea though.

To make you feel better , either have a Swedish or Thai massage and it helps a lot and go ….green smoothies . God bless you 🙏❤️

My PA recently sent me to a rheumatologist in my city that tests for all autoimmune diseases. Maybe try asking your doc for a referral. Took my PA sending referral to 2 as the first did not test for CFS or other autoimmune. I never even heard of it until I got my results.

This is true for me too. Sun feels good now, but I hardly notice a difference in my skin color no matter how long I'm out. Seems strange to me!

patchworkmermaid good tip - thanks! I’ve heard great things about xylimelts.

I use Xylimelts too. I have speak quite a bit for work, running training, so these are so helpful.

If it has real lemon in it, please don't use them. My dentist and doctors are telling me anything acidic such as lemons, limes, tomatoes, etc will eat the enamel off of our teeth. I cringe when I hear someone recommending lemons or lemonade or anything with acid in it. our teeth are bad enough without saliva... much less putting acid in our mouth with our fruits. I'm sure this young lady doesn't know this or she would not have said it.

I take it at bedtime following which I lay down and keep eyes closed. The product doesn't escape that way. Hopefully this will help.

Use the heat pad referenced to loosen oils in eyelid glands. That is the real issue.

Never worked for me!

I am deaf and use the cc

please do turn up the volume. the cc is giving weird versions of what I believe you are saying.

Castor Oil on your eyelids works well .. l use it daily after my shower.

Also l use A&D ointment on my lips overnight (diaper ointment 😊).. it stays put and keeps my lips from chappiing.

Yes, Molly - please make sure you practice and enunciate and pause. Clearly you love what you do, and we all appreciate you. As a Vocal Coach, I'd recommend a month or two of speech coaching - it would make all the difference in your presentation and professionalism. Kindly hold up the bottles for at least 30 seconds so we can see what the label says. And for listeners - in the KZfaq settings you can select the replay speed, meaning you will be able to slow down the speech rate to suit your listening and absorption much better.

I actually listened to her on 1.5x.

Bad breath is often from the digestive tract. Try taking enzymes and probiotics for a while. Get some advice from a holistic doc as to dosage and application if you are uncertain! Get tested for h-pylori a gut bacteria.

Hi did your rheumatologist prescribe you medicine? And do they suppress your immune system?

@@suzzyy8669 yes, I take plaquenil 200 mg twice a day as I'm allergic to other meds i.e., anti-inflammatory, pain meds

@@ericamiller3585 ok thabks

Me to😉

@@ericamiller3585 me to plaquenil 200 and gencort hidrocortison

CBD made me totally sick - it was recommended by a friend's hubby, a Physician, who used a fairly expensive brand to help pain from knee replacement therapy. It was just awful for the tummy, but it's great to share ideas, try things, and cull a basketful of what works for YOU.

Did your results confirm Sjogrens?

@@CrabbyBeach3456 no, I had blood tests and my lymphocytes where high and then eventually my symptoms stopped. So gp didn't take it any further. Thanks for asking

@@SammyJaneD what exam did the doctor make? I would like to ask my doctor but I don't know how they can test this.

@@nancybartolino9134 they did blood tests but not sure what they tested for now after a year. I know one was to check my lymphocytes count , which were high. Apparently I am OK and had nothing wrong. A year on I do feel okay

Yes it is great .. but it is so expensive..My eye doctor gives me samples when I go and that helps..

I have that BUT it contains a preservative PLUS hydrochloric acid and/or sodium hydroxide. I'm gonna switch to a nonpreservative item I think.

Many of us cannot tolerate systane.

Ayr gel, it comes in a tube and really easy to use and cheap too. Walmart or any pharmacy carries it. I just put some on my little pinky finger and put it in my nostrils. Especially at bedtime and it really helps.

It may still come :(

I have slightly dry eyes; nothing major. Am having a little trouble with my contacts, so I might have to give them up. I’ve always had sensitive eyes; now I use Refresh. I’m older (66) and in good health (until this diagnoses!), I have bursitis in both hips, I’m a little stiff when I’ve been sitting a bit but I walk and do light weights for exercise. Keep moving and don’t let this diagnoses get you down! Stay positive.

How were you diagnosed? By biopsy? How does Sjogrens affect you?

I hear Salogen works well. I use cevemiline and have for years. I think it works great. I take it with food. Occasionally it makes me swear a bit but it has been well worth it for me

I use a zylimelt at night. It helps.

I use it. It works great! For me, I wanted to wear contacts and never could because of dryness. Restarts didn't work. Xiidra took a month or so, but now I can wear contact more than 10 hours at a time

@@vanessasmith2967 nicee i wish i can try it one day in my country we never have this stuff 😌

Thai massage can , really help out for the joint pain . rather than taking a lot of medications , that will harm your bodies . And read your Bible and helps a lot . God bless you 🙏❤️

i use neil med nasal gel...helps alot

I use a humidifier hot during the night it heph

I apply organic castor oil to nasal passages and eyelids at bedtime.

Coconut oil leaching and frequent cleanings brush often and floss well

Closys...the toothpaste, mouthwash and sprays. All of it. Xylimelts at night. Good oral hygiene routine.

I tried the red apple balm it didn’t help me nothing have

For dry mouth, I put two Xylimelts on my gums at bedtime. It takes about 4 hours or so for them to dissolve, so I have moisture in my mouth for about 4 hours. Then when I wake up, I put two more in my mouth. I don't know how I would manage sleeping without these. For my nostrils I use Ayr gel. For my ears, I used two or three drops of olive oil in each ear once a week to keep them lubricated. Hope this helps

Hi Angela, my rheumatologist prescribed me plaquenil which can cause blindness so I decided no to take it and I went on with my life ignoring my symptoms. But now my symptoms are getting worse and I m going back to the doctor to find out about new medications available but I still have concerns about taking medications. I heard that going on a vegan or Mediterranean diet can be very helpful because it is antiflamatory. Good luck and God bless.

@@islainecavalcante9953 thank you. I too was attempting to ignore my symptoms but they have become too intense. I made an appointment with the Rheumatologist for this month so....I put my faith in God and will become well informed.

No meds for me. I stretch in bed every morning with hip exercises; I walk and lift light weights also. I have bursitis and arthritis just diagnosed in the past 2 years. I’m 66 years old, try to eat healthy and I babysit my 4 and 1 yo grands. Keep positive and keep moving. Treat your symptoms and avoid meds like hydroxychloroquine as long as possible.

Can't agree more...am a retired paramedic seen too many Dr's throw drugs at pts terrible side affects and addiction

Most of those frugs have awful sx. Try diet, Retaine, xlitol etc! Heat on eyes and castor oil

I have found for me Systane works best. Genteel also helps a lot. I buy both from Amazon. I have tried Tears but did not get long lasting relief. I use a couple different brands and rotate randomly, it seems to keep them all working.

@@pennyvecchio6239 I will order. Thanks and I’ll let you know. Have u gained weight? I am🥲

I do when I have a relapse of symptoms but my weight goes down when I stabilize a bit. I can tell when I am having major issues because I wake up unable to open my eyes. In fact that is how I found out I had It before I was verified with blood work. Very scary thing to happen.

@@pennyvecchio6239 I use genteal drops and gel for severe dry eyes. But it's not effective. Tried several drops. What drops you are using for eyes now.

That is a possible side effect of taking that specific medication penny

Up to 65% of ss have no blood markers until organ damage is well underway. Join the foundation and read like crazy. Docs know very little about SS

It’s not easy to diagnose… How did your rheumatologist rule it out?

I've had symptoms for over 15 years before my ANA and other tests were positive.

I've had sojourn at least 30 years I've been experiencing terrible dizziness went to er they didn't know how to TX me going to my dr for follow up...now I have this info and hoping he'll listen, been diagnosed with fibro also

What is that last thing you mention

@@sarahupchurch5480 you should contact Dr madida to help you.

@@sarahupchurch5480 Click #DrMadida

I miei prodotti indispensabili per la sindrome di Sjogren Ehi, gente, sono Molly. Bentornato nel mio canale. Oggi voglio fare un video che mostra alcuni dei miei prodotti preferiti che uso per affrontare i diversi sintomi della mia sindrome di Sjogren. Quindi non parlerò tanto dello stile di vita e dei consigli per combattere la fatica. Se li vuoi, puoi dare un'occhiata al mio ultimo post sul blog, che è tutto su Sjogren: come gestisco tutti i sintomi, quindi dai un'occhiata; e se vuoi vedere come mi è stato diagnosticato lo Sjogren, ho un video a riguardo qui sotto, e anche un video di una settimana nella vita con Sjogren. Oggi esaminerò tutti i miei prodotti fisici preferiti per diversi sintomi. Quindi inizierò con gli occhi asciutti. Lo Sjogren attacca specificamente le ghiandole che producono umidità, quindi provoca molta secchezza e gli occhi asciutti sono stati il ​​primo sintomo di secchezza che ho avuto. La marca di colliri che scelgo di usare si chiama Thera Tears. Vengono in una bottiglietta come questa, oppure puoi ottenere piccoli pacchetti monouso e io uso solo le gocce normali, ma ne hanno anche uno che viene fornito in pacchetti monouso per l'uso notturno, quindi è un po' più spesso e lascia la tua vista un po' sfocata, ma può davvero aiutare durante la notte, perché a volte mi accorgevo che mi svegliavo nel cuore della notte con gli occhi asciutti e avevo bisogno di applicare un collirio quando ero mezzo addormentato. Quindi adoro davvero i colliri Thera Tears. La cosa importante che vuoi fare è usare un collirio che non contenga conservanti e Thera Tears è probabilmente il più popolare di quel tipo. Poi, anche io di recente, o forse sei mesi fa, ho preso un collirio con prescrizione. Sono andato su Xiidra. Xiidra e Restasis sono i due che sono raccomandati, e quello arriva in questi piccoli pacchetti monouso che ne hanno circa cinque in ciascuno, e ne ha abbastanza in una fiala per fare una goccia in ciascun occhio al mattino e una goccia in ogni occhio la sera. Un'altra cosa che uso per i miei occhi asciutti è una maschera riscaldata per gli occhi. Questo è pieno di quelli che sono un po' come fagioli, quasi. È una specie di termoforo. Lo metti nel microonde per un breve periodo di tempo, diciamo 30 secondi, e poi lo metti sugli occhi. Puoi anche metterlo intorno alla testa e attaccarlo con il velcro e sembrerai un po' un insetto. Quando lo togli, scoprirai che la tua vista è un po' offuscata perché il tuo occhio ha prodotto oli naturali, quindi è un'ottima cosa da fare, di nuovo, mattina o sera. Se lo fai di notte, potrebbe aiutarti a dormire, perché non ti sveglierai con gli occhi asciutti. E poi, se lo fai al mattino, si spera che aiuti a dare il via alla produzione di quegli oli da parte dei tuoi occhi. L'altra cosa che faccio per gli occhi asciutti è che uso degli integratori. Quindi il marchio di cui parlavo prima, colliri Xiidra, è un ottimo integratore per gli occhi asciutti, che ho usato per un po', ma ora uso qualcosa chiamato Omega 3-6-9. È prodotto da Sundown Naturals. Collegherò questo e tutti i prodotti di seguito. Questo ha ingredienti molto simili al farmaco per gli occhi secchi Thera Tears, ma è un po' più economico perché non è commercializzato come quello. È fatto con oli di semi di lino, pesce e borragine e le vitamine Omega sono davvero, davvero ottime per gli occhi asciutti, quindi questa è una raccomandazione di qualcosa che sento mi ha aiutato. Un'altra cosa che il mio oculista mi ha consigliato sono stati i semi di chia, quindi li ho presi al Thrive Market. Se non lo sai, Thrive Market è un ottimo mercato online dove puoi acquistare tutti i tipi di cibi sani e prodotti per la cura della pelle a prezzi più convenienti. Questo non è sponsorizzato, ma metterò un link per iscriverti in basso se sei interessato. Quindi questi sono i semi di chia del marchio Thrive. Di solito mi piace aggiungerli al mio frullato mattutino, quindi aggiungo solo un cucchiaio, e questi hanno anche gli Omega tre, che è ciò che aiuta con gli occhi asciutti. Quindi, dopo, possiamo parlare di secchezza delle fauci. Non lo provo molto, ma ho spesso le labbra secche, quindi quello che uso per le labbra secche è questo balsamo per le labbra davvero incredibile. Viene da una società chiamata Red Apple Lipstick, che ha prodotti completamente naturali, e questo è il loro Rally Balm. Quindi, è un balsamo per le labbra trasparente che viene fornito in un tubetto di rossetto e lo metti semplicemente. Lo uso un paio di volte al giorno. È così importante. Vedo che in realtà è stato formulato specificamente per la secchezza da malattie autoimmuni, come Sjogren o Crohn, perché possono causare disidratazione, e poi celiachia, quindi è senza glutine. È privo di tossine ed è un balsamo per le labbra davvero molto nutriente. Quindi, per la vera secchezza delle fauci, il consiglio più grande che posso dare è idratare. Bevi acqua durante il giorno. Bevilo a piccoli sorsi, in modo coerente, e un grande trucco di Sjogren è aggiungere il limone all'acqua perché l'acidità incoraggerà le ghiandole salivari a produrre più saliva. Quindi, per la vera secchezza delle fauci, il consiglio più grande che posso dare è idratare. Bevi acqua durante il giorno. Bevilo a piccoli sorsi, in modo coerente, e un grande trucco di Sjogren è aggiungere il limone all'acqua perché l'acidità incoraggerà le ghiandole salivari a produrre più saliva. Quindi, una cosa che amo fare è usare il mio flacone con infusore. È vuoto adesso, ma dentro questo tizio c'è un piccolo infusore, e puoi aggiungere frutta a questo, e poi lo metti nella bottiglia. Aggiungi acqua e la infonde con il frutto. Quindi, mi piace molto aggiungere il limone a questo e poi lo lascerò durante la notte nel mio frigorifero e quando mi sveglio prendo una bella limonata fredda. Questa bottiglia specifica è di Clean Skin Club. Lo linko in basso. Hai un codice sconto anche per quello. Un'altra cosa che molte persone usano per la secchezza delle fauci sono le gocce di limone o altri tipi di caramelle dure. So che Act, che è un'azienda di collutori, produce gocce specifiche per la bocca secca, ma devo solo prendere queste gocce al limone. Sono il marchio CVS. Assicurati sempre di essere senza zucchero. Sjogren e secchezza delle fauci e tutto ciò può causare comunque carie e problemi dentali, quindi si vuole evitare qualsiasi ulteriore carie dentale. E solo l'acidità e l'atto di frusciare in bocca aiuta a incoraggiare le ghiandole salivari per più saliva. L'ultima cosa è che molte persone che hanno la bocca secca usano collutori secchi. Io, personalmente, non ho ancora dovuto usarli, ma ho questo campione di Moisyn. L'ho ricevuto alla conferenza sulla sindrome di Sjogren a cui sono andata di recente. Ancora una volta, so che Act fa un collutorio per bocca secca, e anche Biotene è molto, molto popolare. Quindi, un paio di altri prodotti vari di cui volevo parlare: il primo è il CBD, che è molto popolare. Probabilmente ne hai sentito parlare molto nel mondo del benessere. Ho un post sul blog tutto sul CBD. Lo collegherò di seguito e scrivo anche molto come freelance per una società di CBD chiamata Alive Market, quindi posterò il loro blog di seguito. Ci sono un sacco di informazioni davvero interessanti e ho un codice sconto per loro. I due prodotti principali che uso da loro sono le loro capsule di CBD e il loro olio di CBD. Io uso l'uno o l'altro. Non li uso entrambi insieme, e in realtà ho iniziato a usarli per aiutare con la mia ansia, ma sono anche molto, molto utili per l'infiammazione, e quando hai una malattia autoimmune, fondamentalmente significa automaticamente che c'è un'infiammazione nel tuo corpo. Mi piace prendere una capsula ogni mattina con le mie vitamine, oppure prendo circa mezzo contagocce dell'olio. L'ultima cosa è la crema solare. Sjogren e altre condizioni autoimmuni possono causare fotosensibilità o una maggiore sensibilità al sole. Ho già la pelle facilmente bruciabile, quindi indosso sempre la protezione solare. Penso che sia molto importante, ma una cosa che ho capito dopo che mi è stata diagnosticata la sindrome di Sjogren è stata che anche quando indossavo la protezione solare, mi prudeva davvero molto dopo essere stata al sole. Così, ho imparato che è molto importante usare una crema solare a base di ossido di zinco, e mi piacciono quelle più naturali, quindi mi piacciono Babo Botanicals, mi piace Badger, mi piace ThinkSport. E poi, ho mentito, l'ultima cosa di cui parlerò è la prescrizione che ho, che è Plaquenil, o idrossiclorochina. È il farmaco più efficace e più sicuro per Sjogren. Devi essere attentamente monitorato da un oculista. Ci vado ogni sei mesi perché una percentuale molto, molto piccola di pazienti può avere problemi con la retina, quindi devi stare al passo con i tuoi test e assicurarti di prenderlo presto, se succede del tutto. E poi, dopo, ci sono un sacco di altri farmaci che potrebbero provare. Potrebbero provare il metotrexato, il Rituxan o anche più farmaci. . . continuano ad andare finché uno funziona. Quindi, sicuramente, consulta il tuo reumatologo per parlarne. Quindi, questi sono i miei prodotti preferiti per la secchezza degli occhi, la secchezza delle fauci e per gli Sjogren in generale. Come ho detto, ho collegato un sacco di informazioni in basso. Ho parlato di queste cose sul mio blog e ho altri video di KZfaq a riguardo, e se hai domande o commenti, non esitare a commentare qui sotto o inviarmi un'e-mail. La mia email è Molly a balanced and blissful punto com. Sono su tutti i social media -- potete trovarli qui sotto, e spero che ne abbiate uno buono! Questi sono alcuni dei miei prodotti preferiti che uso per trattare il mio Sjogren, una malattia autoimmune che attacca specificamente le ghiandole che producono umidità e può portare a un'eccessiva secchezza.

Hey, everyone, it's Molly. Welcome back to my channel. Today I want to make a video showcasing some of my favorite products that I use to deal with the different symptoms of my Sjogren's Syndrome. So I'm not going to talk as much about the lifestyle and fatigue fighting tips. If you want those, you can check out my latest blog post, which is all about Sjogren's -- how I handle all of the symptoms, so definitely check that out; and if you want to see how I was diagnosed with Sjogren's I have a video about that down below, and also a video of a week in the life with Sjogren's. Today I'm going to be going over all of my favorite physical products for different symptoms. So I'll start with dry eyes. Sjogren's specifically attacks moisture-producing glands, so it causes a lot of dryness and dry eyes was the first dryness symptom that I got. The brand of eyedrops that I choose to use is called Thera Tears. They come in a little bottle like this, or you can get little single-use packets and I just use the regular drops, but they also have one that comes in single-use packets that's for nighttime use, so it's a bit thicker and it does leave your vision a little bit blurry, but it can really help overnight, because I used to sometimes find that I was waking up in the middle of the night with dry eyes and needing to apply eye drops when I was half asleep. So I really love the Thera Tears eyedrops. The important thing you want to do is to use an eye drop that does not have preservatives, and Thera Tears is probably the most popular one of that type. Then, I also recently, or maybe six months ago, went on a prescription eye drop. I went on Xiidra. Xiidra and Restasis are the two that are recommended, and that one comes in these little single-use packets that have about five in each, and it has just about enough in a vial to do a drop in each eye in the morning and a drop in each eye in the evening. Another thing that I use for my dry eyes is a heated eye mask. This is full of what are kind of like beans, almost. It's kind of like a heating pad. You microwave it for a short amount of time, say 30 seconds, and then you put it over your eyes. You can also strap it around your head and velcro-attach it and you look a bit like a bug. When you take it off, you'll find that your vision is somewhat blurred because your eye has produced natural oils, so that's a great thing to do, again, morning or night. If you do it at night time, it could help you sleep, because you won't be waking up with dry eyes. And then if you do it in the morning, it'll hopefully help kickstart your eyes' production of those oils. The other thing I do for dry eyes is I do use some supplements. So the brand I was talking about earlier, Xiidra tears, it makes a great supplement for dry eyes, which I used for a while, but now I use something called Omega 3-6-9. It's made by Sundown Naturals. I'll link this and all the produts below. This has really similar ingredients to the Thera Tears dry eye medication, but it's a little bit cheaper because it's not marketed as that. It's made with flax, fish and borage seed oils, and the Omega vitamins are really, really great for dry eyes, so that is a recommendation of something that I feel has helped me. Another thing that my eye doctor recommended was chia seeds, so I got these at Thrive Market. If you don't know, Thrive Market is a really great online marketplace where you can buy all kinds of healthy foods and skincare products at cheaper prices. This is not sponsored, but I will put a link to sign up down below if you're interested. So these are the Thrive brand chia seeds. I usually like to add them to my morning smoothie, so I just add a tablespoon, and these also have the Omega threes in them, which is what helps with the dry eyes. So, next, we can talk about dry mouth. I don't experience this as much, but I do get dry lips often, so what I use for dry lips is this really amazing lip balm. It's from a company called Red Apple Lipstick, which has all-natural products, and this is their Rally Balm. So, it's a clear lip balm that comes in a lipstick tube, and you just put it on. I use it a few times a day. It's so important. I see that it was actually formulated specifically for dryness from autoimmune diseases, such as Sjogren's or Crohn's, because they can cause dehydration, and then Celiac's, so it's gluten-free. It's free of any toxins, and it's a really, really nourishing lip balm. Then, for actual dry mouth, the biggest tip that I can give is to hydrate. Drink water throughout the day. Drink it in little sips, just consistently, and one huge Sjogren's trick is to add lemon to water because the acidity will encourage your salivary glands to produce more saliva. So, one thing I love to do is to use my infuser bottle. It's empty right now, but inside of this guy there's a little infuser, and you can add fruit to this, and then you stick it in the bottle. You add water, and it infuses it with the fruit. So, I really like to add lemon to this and then I'll leave it overnight in my fridge and when I wake up I have some nice, cold lemonade. This specific bottle is from Clean Skin Club. I'll link it down below. You have a discount code for that as well. Another thing that a lot of people use for dry mouth is lemon drops or other types of hard candy. I know that Act, which is a mouthwash company, makes specific dry mouth drops, but I just have to get these lemon drops. They're the CVS brand. Always make sure you get sugar-free. Sjogren's and dry mouth and all of that can cause cavities and dental problems anyway, so you want to avoid any extra dental decay. And just the acidity and the act of swishing around in your mouth helps encourage your salivary glands for more saliva. The last thing is that a lot of people who have dry mouth use dry mouth washes. I, personally, have not had to use those yet, but I do have this sample of one called Moisyn. I got this at the Sjogren's Syndrome Conference that I went to recently. Again, I know that Act makes a dry mouth wash, and Biotene is a really, really popular one as well. So, a couple of other miscellaneous products that I wanted to talk about -- the first one is CBD, which is super popular. You've probably been hearing about it a lot in the wellness world. I have a blog post all about CBD. I'll link that below, and I also do a lot of freelance writing for a CBD company called Alive Market, so I'll post their blog below. Lots of really cool information there, and I have a discount code for them. The two main products that I use from them are their CBD capsules and their CBD oil. I use one or the other. I don't use them both together, and actually started using these to help with my anxiety, but they're also really, really helpful for inflammation, and when you have an autoimmune disease, it basically automatically means that there's inflammation in your body. I like to either take a capsule every morning with my vitamins, or I'll take about half a dropper of the oil. The last thing is sunscreen. Sjogren's and other autoimmune conditions can cause photosensitivity or an extra sensitivity to the sun. I already have easily burnable skin, so I always wear sunscreen. I think it's super important, but one thing that I realized after I was diagnosed with Sjogren's was that even when I was wearing sunscreen, I was getting really, really itchy after I was out in the sun. So, I learned that it's really important to use a zinc-oxide-based sunscreen, and I like the more natural ones, so I like Babo Botanicals, I like Badger, I like ThinkSport. And then, I lied, the actual last thing that I'm going to talk about is the prescription I'm on, which is Plaquenil, or hydroxychloroquine. It's the most effective, safest medication for Sjogren's. You do have to be closely monitored by an ophthalmologist. I go every six months because a very, very small percentage of patients can have issues with their retinas, so you have to stay on top of your testing and make sure you catch that early, if it happens at all. And then, after that, there are a bunch of other medications that they might try. They might try methotrexate, or Rituxan, or even more drugs . . . they just keep going until one works. So, definitely, see your rheumatologist to talk about that. So, those are my favorite products for dry eyes, dry mouth, and then Sjogren's in general. As I said, I've linked a bunch of information down below. I talked about this stuff on my blog and I have some other KZfaq videos about it, and if you have any questions or comments, please feel free to comment below or email me. My email is Molly at balanced and blissful dot com. I'm on all the social medias -- you can find those down below, and I hope you guys have a good one! These are some of my favorite products that I use to deal with my Sjogren’s, an autoimmune disease that specifically attacks moisture-producing glands and can lead to excessive dryness.

Joni I have never found that correlation! But doctors recommend sugar free candies bc dry mouth can already lead to dental issues, so why add sugar on top of that? Haha

I would agree with your question and the answer, let me just add my two cents. Whenever I consume a lot of sugar I feel overall kind of crappy, and I would get this weird tightness in my lower chest. My GP and Rheumy said to really watch my sugar intake because too much of it can inflame your body, and your body is kind of already inflamed bc its being mistakenly attacked by your immune system. After I started watching my sugar intake, the tightness went away and I didn't feel as crappy. Sorry for the long reply and hope it helps :)

You should stay away from sugar. I have had Sjogrens for 15 years, possibly longer than that. If you have dry mouth, it destroys the salvia which is critical in coating and Protecting your teeth. Unfortunately, I know too much about this. I have spent year's at the dentist. I'm still dealing with my teeth breaking off. I've had root canals in almost every tooth. I drink alkaline water and buy special toothpaste and everything I can find to help. Nothing is helping and I am now disabled and have no dental insurance. Please be careful with sugar intake. I hope this helps ☺️

Thanks so much for the advice. I thought I had tried every toothpaste and mouthwash, but I just got the Colgate mouthwash and I really like it. It doesn't burn.

It does for me. My main symptoms are peripheral nerve damage. I avoid sugar and gluten like the plague.

What do you do for vaginal dryness? A med I took induced this and dry mouth eyes

I use estradiol inserts twice a week. It works for vaginal dryness.

Is the dryness painful or does it cause frequent yeast infections?