I used to have sun sensitivity but changed the oils in my diet to olive, coconut and avocado. No vegetable, canola or seed oils and i cleaned up my diet overall to next to no processed foods. Learn how to understand and read ingredient labels.
@RH-ul2bc7 күн бұрын
This was very helpful. Going to try the thera tears. Waking up and not being able to open your eyes due to dryness is unnerving. Thankfully its only happened twice. Zylimelts are great for dry mouth at night. I asked the dentist about xylitol and it does not cause cavities. I have gum and mints everywhere as i get a dry spot in my throat and it prevents me from being able to speak and makes me cough. This is autoimmune issue number 4 for me. Every 10 years a new one pops up.
@jibberoverjava11 күн бұрын
My beautiful friend died from pernicious anemia. She simply could not absorb B12 in any form.
@LadyKestrel2314 күн бұрын
Do you have problems with your nerves? Thanks
@alicep693126 күн бұрын
Do you have dry hair as well?
@emmapowick28 күн бұрын
I was diagnosed with ra in my 20s and sjogrens last year. Although as a child i had a eye condition that an optician told me was not allergies but alergy like. My opthamologist says its was probably sjogrens even then. My opthamologist prescribed imuno-suppressing eye drops which have been a huge help. I also find heated eye masks and the gel overnight eye drops (with no preservatives) have helped soothing symptoms. Also the thera tears supplements and making sure I don't wear makeup too often and I throw my makeup out and replace it regularly. The Burt's bees mascara and eye-liner is very non irritating
@Nisha-kl8rlАй бұрын
If you're looking for natural relief from Sjogren’s Syndrome, Planet Ayurveda is the answer.
@sugaplumalexАй бұрын
ugh i had a vaccine and the following week i had a weird swollen feeling parotid gland for two days! 5 weeks later - dry mouth. negative bloods so far but damn i def have this
@LesliePethybridgeАй бұрын
Thank you so very much for all this information. I was just diagnosed with Sjögrens by my dermatologist. I’ve been sick for over 2 years and could never be diagnosed properly. I was then told I had fibromyalgia. I also have Crohns disease which I was diagnosed in my early 30’s and I’m now 56. 🙏
@marysmith56702 ай бұрын
Thank you for the. Information! I have been diagnosed with Sjogren’s. I have dry eyes and mouth. I was wondering if anyone else suffers with back pain. My pain is like bad cramps in my hips especially at night. Does anyone else diagnosed have this type pain?
@user-qy2de6zz8d2 ай бұрын
The girl in pink. I am almost positive just left Fort Stephenson House apts. About 3:00. Passenger seat. Sedan. West on West State Street Fremont, Oh
@PreciousGda2 ай бұрын
It's a great privilege coming across your KZfaq channel Dr Odija. You have always been there for me health wise. I can vividly remember how you turned up for me when I was down with Herpes virus. Your contribution and care was highly appreciated. You are the best doctor I have ever come across. Thank you so much for the difference you make in the lives of your patients! Your kindness, sincere caring, and concern make everything better and are a great encouragement 😍..
@viridianduchess2 ай бұрын
I'm so glad you were able to advocate for yourself. I'm a medical laboratory scientist....we are the people that perform your laboratory tests. The lab's motto is "without us you are just guessing" referring to your doctor. What people do not realize is that the lab generates over 70% of diagnostic information. I'm also going through the autoimmune disease path.
@patriciafeeley79973 ай бұрын
biotene has a laxative effect
@fifin48033 ай бұрын
Thank you for sharing and how are you doing now ?
@mcc14834 ай бұрын
could you tell me what an immune-deficiency test is; what is consists of? (In have abnormally high ANA results and thyroid nodules, weird, ha?) I know something is wrong with me.
@angieranson52335 ай бұрын
Thank you Molly, such good info! I'll be picking up lemon drops!☺
@judymorgan31921 күн бұрын
If it has real lemon in it, please don't use them. My dentist and doctors are telling me anything acidic such as lemons, limes, tomatoes, etc will eat the enamel off of our teeth. I cringe when I hear someone recommending lemons or lemonade or anything with acid in it. our teeth are bad enough without saliva... much less putting acid in our mouth with our fruits. I'm sure this young lady doesn't know this or she would not have said it.
@RollinWithRosie5 ай бұрын
So what do you think, my RO came back positive but the LA negative, do you think it's Sjogrens? ANA positive
@kellieblondel14666 ай бұрын
Thank you for making this
@rhondanieborak58296 ай бұрын
Manuka honey drops and gel. Stings like crazy only lasts for a few minutes. Drops probably better for most
@ninajohnson74116 ай бұрын
I have really bad chapped lips nothing works
@GG-qy2js7 ай бұрын
All familiar and hate side effects some of the medication can cause. Anything natural is best. 👍🏼
@kristineanderson49838 ай бұрын
At age 71 I am finally figuring out why I never feel well. I am seronegative and started with RA and Raynaud's, but had bad TMJ in early high school. My grandma had Lupus -- I have the face rash but I don't burn so I don't have Lupus, but a doctor once told me I did. My mom had JRA. My Sjogren's symptoms are progressing fast right now. No saliva, no tears, peeling face (and I'm a lotion freak). It's scary because I'm already in an electric wheelchair and I don't have a way to get out of town to see a rheum. My family thinks I'm complaining so I haven't even told them.
@ninajohnson74118 ай бұрын
I want to purchase the CBD oil I have Sjogrens for over 30 yrs
@ninajohnson74118 ай бұрын
My nose and throat’s becoming really try any suggestions
@pattytada91178 ай бұрын
Go to dentist 2 times a year and have florid applied you your teeth each visit
@pattytada91178 ай бұрын
Lancone juicy tubes too for lips
@bibianagutierrez59438 ай бұрын
Hi! Have you ever tried the AIP? I've been on this like 2 weeks and I'm seeing results in moisture, I even drool at nights haha
@Donnistill9 ай бұрын
Facial steamers help. I have also put a little natural chapstick on the outer corners of my eye. I have done with castor oil too. Hall have a drop that is for dry mouth too.temu has a vaporizer for your eye. Feels so good. If you don’t have have presc. glasses get some with no prescription. It keeps wind out of eye.
@Donnistill9 ай бұрын
Omega 6 is terrible. Causes inflammation. Look more into it.
@deborahstollman62389 ай бұрын
Getting diagnosed is so difficult.
@deborahstollman62389 ай бұрын
I had to really advocate for my doctors to even listen to me.
@Infrared196710 ай бұрын
This is beautiful, thank you! I can't say enough about Restasis for dry eyes. I was about to file for disability when my ophthalmologist prescribed it after punctal plugs failed to ease my suffering. It changed my life!!! After being on it off and on for 3 years, my eyes went into a kind of remission. While I still have occasional dry eyes, it has not gotten bad again, and it's been nearly 15 years. I highly recommend Xylitol gum for dry mouth. Xylitol is something our bodies make and not a synthetic drug. Xylitol sugar is the bomb! Tastes great, is all natural, and it helps to keep your mouth biome healthy.
@coleworldcole943810 ай бұрын
Girl I wish I found your video at the beginning of my journey. Great advice here
@MiryamGonzalez-jw8ho8 ай бұрын
Hil! Do you have Sjögren’s Disease? Clinical Outcomes Solutions, a healthcare research company, is conducting research into SjD through a one-time remote interview. Eligible participants will be compensated for time and effort. You may be eligible if: • Be 18 years of age or older • Have a clinical diagnosis of active systemic (i.e., extra glandular) Sjögren’s Disease for at least 6 months • Can converse in and read the English language with sufficient fluency to participate in an interview and read the documents used during the interview • Do not have another rheumatic or inflammatory disease (e.g., rheumatoid arthritis, systemic lupus erythematosus, scleroderma, inflammatory bowel disease) • Do not have another disease that causes widespread pain or fatigue symptoms (e.g., multiple sclerosis or fibromyalgia) • Able and willing to participate in a one-time, audio-recorded remote interview This research is confidential. Any contact information you provide will only be used for the purposes of compensation and interview scheduling. Please contact us at [email protected]
@pamelasmith262510 ай бұрын
Do you have any suggestions for pain. I have had fibromyalgia for over thirty years and am just seeing a Neurologist and am being tested for Sjogrens as I have a lot of new symptoms over the past few years. I have small fiber neuropathy and the pain is very debilitating. I have sensitivities to most drugs. I have been on an opioid for some time, but would like to go on something else if possible. I have tried all the regular ones such as Gabapentin, Amytriptilene etc, but just can’t tolerate any of them. Looking for some alternatives. Thank you so much. Found your video very informative. Hugs
@ninajohnson741110 ай бұрын
For lips was that red apple balm
@ninajohnson74116 ай бұрын
I tried the red apple balm it didn’t help me nothing have
@monishabhattacharya436511 ай бұрын
Can square breathing be done during pregnancy Thank you
@janefigueroa173111 ай бұрын
I use life saver peppermint I can't use sugar free any sugar free products inflame my osteoarthritis raising my pain levels.any artificial sweetness are not good for painful joints
@motheofbean11 ай бұрын
I have had great full body success by taking Pure Himalayan Seabuckthorn Oil omega 7 complete softgels from a company called Seabuck Wonders. I was introduced to it by the tennis champion Venus Williams. Hope this helps you & others🙏🏻❣️
@Hi-levels11 ай бұрын
You can buy dry reishi mushroom fruit bodies. You can take vit D daily , magnesium glysinate and mushroom daily. NAC and exercise. And you can go off meds but you should nevrr die youe hair it will triger it also avoid make up
@stacymcintosh1990 Жыл бұрын
People with this auto immune disease should not have citrus of any kind
@SouEuMesmoAqui Жыл бұрын
Is there anything for extreme dryness inside the nose, that closes the air ways? Thanks
@judymorgan31921 күн бұрын
Ayr gel, it comes in a tube and really easy to use and cheap too. Walmart or any pharmacy carries it. I just put some on my little pinky finger and put it in my nostrils. Especially at bedtime and it really helps.
@pottersclay77 Жыл бұрын
I have had Sjogren's for 8-15 years or so. I was diagnosed in 2020 with a biopsy of the salivary gland. That was not great and if I had to do it all over again I would probably just assume I had Sjogren's and treat myself naturally anyway. I cannot take HCQ which is the most common prescription for Sjogrens as it made my palpitations worse. I also could not take the medication for dry mouth as it too made my mouth even more dry. The items that have helped me the most is Xylimelts especially during the night and Systane eye drops at night and sometimes during the day. I also use Spry mints, a humidifier, Doterra lemon drops in my water or real lemon slices. I use very clean lotions and cleansers and use oils as often as possible on my face and skin. I take cod liver oil, selenium and a few other supplements. I try to walk as often as possible-movement is so important. I also use a waterpik which I love and also a rotary toothbrush. Oral health is so important. I also floss daily before I go to bed. For sleep I use essential oils on my spine or on the bottom of my feet. In particular I use, Peace, Cedarwood, Lavender and others. I mix it up a bit. Essential oils help me immensely. For pain I use essential oils and occasionally have to switch to a prescription medication or ES Tylenol when I am in a flare. I worked with a Root Cause Clinic and they shared with me that many with Sjogren's can have opposite reactions to supplements/medications etc. They also can have opposite results with hyaluronic acid or collagen as we don't typically have the moisture within our bodies to make these effective. I find this to be true. Thanks for your video. I will check out your others.
@danyechry Жыл бұрын
how much mg of omega 3 do you take ?
@josephine2610 Жыл бұрын
A brilliant summary of a wide range of symptoms,am 83yrs old,retired nurse.Dry eyes since 30 yrs,partial thyroidectomy 30 yrs ago,Multiple multiple infections,mainly chest.Dry mouth nasal passages,airways.extreme,extreme,fatigue,Doc just thinks it's ANXIETY.Have never had any type of medication ,sleeping tabs etc.This is going on for years.Weary of it all
@deborahturner3427 Жыл бұрын
I’m watching from uk! I suspect I’m suffering from this, swollen bottom lip, dry mouth, swollen glands, fatigue! I’m 46 and I’m trying to get a diagnosis but what blood tests did you ask for ? Thanks x
@deborahhayes825 Жыл бұрын
I just saw on a medical sjogren's video that you shouldn't take little sips, that can make it worse. They saidtake a full drink of water, not as often.
@Miss.queenof Жыл бұрын
Thank you for your information,
@curiouskitty7972 Жыл бұрын
Really appreciate the natural tips 🙏 the auto immune meds are so toxic 😢
@donnakreye3716 Жыл бұрын
I notice you “call in” illness. I refrain from owning illnesses or calling it mine. Yuck.