My Stem Cell Transplant Experience in Multiple Myeloma (& Hair Loss)

My Stem Cell Transplant Experience in Multiple Myeloma (& Hair Loss) | Marti’s Story (3 of 4)

Рет қаралды 13,960

Күн бұрын

Marti describes in detail how she and her doctor approached the discussion about undergoing a stem cell transplant, the resources she used in trying to learn more, and shares the details (and videos!) of shaving her head.
“I just simply decided I'm going to go shorter and shorter and shorter. And so that's basically what I decided to do is every month I would go in and I'd get a haircut and then I would post it on social media. And then it was just your families and friends giving you that affirmation that, hey, it's going to be okay, it's going to be okay and it's going to be short lived. And so that's what I did for I think I did that in December, January, February and March. And then finally we decided to go ahead and do the big shave.“
This is part three of our 4-part conversation with Marti.
Thank you for sharing your story, Marti!
The interview has only been edited for clarity.
Full story & transcript → www.thepatientstory.com/cance...
Videos:
1) 1st Symptoms & Diagnosis: • My Multiple Myeloma St...
2) 1st Line Treatment (Chemo & Side Effects): • My Cancer Story: Chemo...
3) Stem Cell Transplant & My Hair Loss: This Video
4) Living with Multiple Myeloma: • Cancer Patient Stories...
Join Our Community:
Website : www.thepatientstory.com/
Facebook: @ThePatientStory
Instagram: @ThePatientStory
Twitter: @patient_story
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Contents of the Video:
00:00 - intro
00:16 - Discussing a stem cell transplant
02:18 - Basis of a good relationship with your doctor
04:28 - The process of getting a stem cell transplant
07:11 - Stem Cell Transplant Recovery
12:16 - Dealing with the hair loss
16:58 - Tips for people struggling with hair loss
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#multiplemyeloma #myeloma #cancerhairloss #stemcelltransplant #mmsm #thepatientstory #patientstories #cancerstories #cancerpatient #cancersurvivor

Пікірлер: 27

@ThePatientStory 2 жыл бұрын

Your voice matters, too: 👇

@donnawargacki6612 9 ай бұрын

My Husband of 45 years in marriage, was just diagnosis with Multiple Myeloma in July, on his 70th Birthday. Tomorrow is oral chemo, and infusion, there is no cure at Stage 3, with this cancer there is no Stage 4. Im terrified for him, this was his second cancer diagnosis within 5 years. We are hopeful, praying is what we need, may God bless anyone going through this trauma.

@beverlylevene4699 5 ай бұрын

I am a myeloma survivor 5 full years. It was very hard personally and mentally. Apart from having a good doctor, you must not let go of your faith. Faith is the power of this evel. I live without thinking of this disease in me. I went through transplant, then remission. I am now on secondline treatments. That is what keeping me from relapsing. Have faith

@mattieandsunnieaverhart1795 9 күн бұрын

Your story is told clearly, and I appreciate you for sharing your Mutiple Myeloma story. My daughter will be getting a Stem Cell Transplant in August. She will turn 50 in August. Thank you for sharing. It helps me understand the important things she must go through. May God continue to bless you.

@donnawargacki6612 4 ай бұрын

My hubby found out in July 2023, with multiple Myeloma, second cancer diagnosis in less than 5 years. This cancer has no cure but it gives you more time. May God bless you and your family.

@moffettcoates6455 3 ай бұрын

I had a stem cell transplant in May of 2023 at Duke Hospital. The prep and the recovery from the transplant is tough.

@minnesotagal507 Жыл бұрын

I went to a hairdresser who was a cancer survivor and she buzzed mine off free, 10 days after my first chemo

@loganna75 Жыл бұрын

I just made an appointment to shave 6 days after my chemo, november 30th :/.. feeling a little blue. How do you feel?

@donnarichard3296 Жыл бұрын

God Bless You !!🙏 Thank you for reaching out to help others ❣️❣️❣️

@chanteldaley8204 Жыл бұрын

Thank You so much for these videos! Prayers for you.

@pammybob47330 Ай бұрын

I have amyloidosis and have had 6 months of chemotherapy, and I will be going through stem cell transplant in July. My biggest concerns so far are getting a port and losing my hair. You have been an inspiration. You are absolutely beautiful bald. Thank you for sharing your story.

@pinkflamingo5320 Ай бұрын

Hi, my hubby is going to have transplant end of this month. He is very optimistic. He has had treatment since beginning of January. Hope you have a great outcome. Your hair will grow back don’t worry. Be positive 🙏🏻

@kmarie1351 4 ай бұрын

Thank you so much for this series, I was just diagnosed.

@helenreynolds7499 Жыл бұрын

Thanks for this video..has helped me..Im awaiting a date for stem cell transplant. You look gorgeous without your hair ❤ I shaved mine off as it was falling out but love it bald now and wear scarves in the hot sun. People notice other things about you..you have the best smile xx

@ThePatientStory Жыл бұрын

Helen, so glad Marti's story was helpful to you. Thinking of you as you await your SCT ❤️ Stephanie

@michelsooriah692 Жыл бұрын

Good luck. Mine done in oct, 19 india. On remission

@jenniferboughton5966 Жыл бұрын

You are gorgeous and stunning with or without hair, God Bless you, thanks for the personal story ❤️✌️😊

@marcelolumakang1356 Жыл бұрын

Great information

@pochy2010 Жыл бұрын

Good info..thank you.

@margarethassler5559 Жыл бұрын

I have had MGUS for 18 plus yrs. This is a precursor for Multiple Myeloma. I am scheduled for a bone marrow and Pet scan or MRI this coming January. Hopefully everything is status quo.

@michelsooriah692 Жыл бұрын

Good, greetings from mauritius. Remission B M T done oct 19, in india

@joseledesma280 Жыл бұрын

Godspeed! The bone marrow aspiration is painful. If sedation is an option do go for it. Due to your age try to push for a collection at least. That way if it develops to MM you have your own cells that can use. Otherwise the chemo regimens for conditioning may be very tough or take time.

@bernadettebranagan3475 Жыл бұрын

Hey, does anyone know of anyone who's hair has not grown back after chemo/stem cell re-introduction?

@ottoavila9895 Жыл бұрын

It is interesting how important hair is to our ego

@jedison3414 Жыл бұрын

I think you would look great with blond hair!

@patrinajohnson8713 8 ай бұрын

This is a beautiful video. I was just diagnosed with MM and I am grateful having it found early, GOD BLOCKED IT. Just completed my first cycle of chemo, 3 more months to go, and I also have to have a total hip surgery so praying I can get that before the cell transplant... But I am grateful for your story... I know GOD did what HE did for a reason...