You are one incredibly brave and resilient woman. To share your ongoing journey takes a tremendous amount of courage. Please know many people you will never meet are here as your cheering section, and appreciate you 💕. You just go girl!

My sister had Trigeminal Myalgia. I remember how much pain she was in, and how light affected her. She had us get blackout material to cover all her windows, and she would sit in the dark with a dark cloth over her head. She couldn't even open the fridge door because of the light. She never mentioned any opportunity for surgery, but she was terrified of that sort of thing and would never have agreed. She did manage, after time, and a lot of drugs, to get it into abatement, but it took a long, long time. Good luck, best wishes, and I will make a point of clicking on all your vids and giving the thumbs up!

Oh, Stacey…the excruciating pain and on top of that having to give up a job u love. Am with u in my heart

What a big fighter you are Stacy How you have dealt with your health problem is amazing please do not apologise for crying in fact is good that you can cry for yourself as that releases endorphins natural pain relief that's just right for you I found that helped me with my back nerve pain which came in bouts that lasted so long but in the end I cried out of sympathy for myself and it actually helped greatly probably sounds crazy but it happend a few times now so cry all you want Hope it works for you brave lady Well done for your great videos Carol

My prayers are with you and your surgery. A big hug and I'm sure everyone on here cares so much about you. I enjoy watching you and even at 72 have learned some great tips and yummy recipes. Ya know we may not know each other personally, but just watching you and hearing your journey I feel like I do know you. You take care and know we on here are thinking about you and want you to have the very best outcome from your surgery.

I've just discovered your channel and really like what you're doing. I am really sorry to learn about your medical problems and I wish you all the best.

Just watching some of your older content and saw this. My Nana raised me and she had Trigeminal Myalgia suddenly pop up around 2016-2017 when I had my first child. It was absolutely horrible for her to be in so much pain and to listen to her screaming, yelling, and sobbing. Absolutely broke my heart. She was like this for months and became a shell of herself on meds, she used to cry in her room and beg for the end, eventually, she got surgery and it finally went away and she hasn't relapsed since. You, and her, are absolutely amazing women. I don't live close to my Nana anymore, though we talk most days. Watching your videos reminds me of her and the warmth, comfortable conversation, and love that being around her gives me and my children. Thank you for being so kind, so vulnerable, and for making content that is so uplifting. Our household really loves you x

My precious woman. I’m Canadian but live in the the Netherlands and have been suffering with this horrible condition for 5 months so I can’t imagine how you’re doing this for years. I’m writing this on June 2nd 2024: I tried carbamazepine but had a horrible experience; almost a kind of psychosis. Ended up in ER last Monday for the excruciating pain and got prescribed oxacarbazepine instead. Let’s see. I’m on oxazepam and other drugs too : bizarre for someone who never had prescription drugs before. 😵‍💫 TN is a crazy condition. I have ATypical as well. And like you: came out out now where. I want to find a healthy balance between meds and getting to the root. My husband told me we’ll look anywhere for solutions. Luckily like you I have a wonderful husband and without that I think I’d be a goner. Please keep me posted on how you’re doing. 🙏 I truly want to know. ❤

I too suffer from Trigeminal Neuralgia and have had to mention it in passing on my channel, dental work is also something I just cannot get done, the cost of being put under general for it and the required recovery time is not something I can deal with. The idea of the brain surgery is also something that is way off my radar! Maybe when the kids are older, but its 10 years till the yougest of 6 is 18, so we'll see! Lol :)

So sorry to hear what u go through Stacey😢....what a beautiful, strong and courageous lady u are ❤

Hello Stacy I love your content and channel. Yes! block the haters. Keep the great work.

You are a courageous person to be able to tell your story.. I wish you all the best. Hugs to you. Love your channel.

Hello sweetie, 2019 I had a medical misadventure after having a thromblized meds for suspected stroke. Golly I have all the symptoms that you have been going through. It has been mentioned that o may have trigeminal nerve damage been on morphine, gaberpetin for 9 months ghastly drugs . I am currently trying medical cbd and thc however that pain just doesn't disappear completely. Good days and absolutely shocking days. We seem to just get on with it daily and I know that o tell myself today is a bad day but tomorrow will be better. You have been a great inspiration for me, sharing is caring. I need something to keep me from sinking and finding you and your videos is helping me immensely. Your a blessing.

My prayers are with you. I'm from South Africa and have learned so much from you. I will continue to watch...

I just found your channel today and have been binge watching your videos and can’t wait to try these recipes if yours. I’m sorry that you have to deal with this horrible condition and I will pray for you that it gets much better or better yet that it just goes away. You are a strong soul, keep looking forward and do what makes you happy❤️

Thanks for sharing. I'm so sorry you are having to deal with such a condition. Bless you! Block the haters. They are disgusting. I only recently found your channel and I love it!

I am so grateful to ambulance drivers. Your 7 years service is genuinely appreciate. What you have seen and experienced is beyond what I could handle. Thank you

Bless your sweet heart!!! Thank you for sharing and God bless your husband and family. I appreciate you so much!

I just wanted to thank you for sharing, I can understand some of your symptoms as I have idiopathic intracranial hypertension, pretty much to much spinal fluid going up to the brain and causing way to much pressure, I had a vp shunt(tubing that goes into my brain, through a machine and down behind my ear and ends in my lower abdomen) put in, in January 2020 in Wellington because if I didn’t get it I would be completely blind now, I have absolutely no peripheral vision and I still get the crushing vice like headaches 24/7 but I can see what’s in front of me and I can see my husband and my children and to me that’s a win, I know you will do well with the surgery, you are a very strong wahine I’m so proud of you for sharing, and for carrying on even through the pain, much aroha to you and your whanau 💜💜

You are a brave warrior, Stacey. I admire your courage and determination to keep going. I myself have several forms of autoimmune arthritis, also Fibromyalgia and Chronic Fatigue and the anxiety and depression that comes with it all… all those lost dreams. I understand the effort required to work past the pain just to turn up in life. ❤

Just watching your podcast. I have this as a result of an MS related plaque. Anticonvulsant meds are the only beneficial pain meds. Pregablim currently assisting after a disastrous attempt with another drug. Very hard to describe the intensity of pain, for me it was a complete curve ball, totally unexpected. I have no idea if the current drug related relief will be long standing. Every day currently is a blessing. My vege garden was a disaster last year but so enjoying seeing it getting sorted out, this autumn. Cant believe that i have been bying zucchini this summer...shows the state that my garden was in. Sorry, but it was really refreshing to hear somebody elses story with this condition.

I have being struggling with TN for over 10 years it is hard very hard sending love and prayers

Oh I just discovered your channel. My sister in law had the procedure , she was in terrible pain all the time and it worked!. you're in my prayers

Oh Stacey, my heart goes out to you. You have been through so much and yet keep going with your lovely smile. I can’t pretend to know how you feel, I only have a lung condition, but I can relate because my beautiful daughter has Functional Neurological Disorder- a blanket medical tag for “no idea what it is or how to deal with it”. She can either walk or talk. Her condition, and her fibromyalgia, are made worse by changes in the weather, air pressure and stress, but she never complains and dedicates her life to helping others. Much love. xx

Stacey, you are amazing. Your tenacity and your perseverance through hardship is an incredible inspiration. Thanks so much for sharing and big prayers that surgery is successful. 🙏❤️

You're a very beautiful, brave and courageous person.

I’m so, so sorry to hear that you’ve been through so much. Thank you for sharing and thank you for all you’ve taught us through KZfaq. We appreciate you x

I have TN and I had the MVD surgery and it worked and lasted 6 years and is back with a vengeance. I’m now going to have Cyber knife surgery. I have read nothing but good things. Hope you well and check into these procedures.

Thank you for sharing your story. I love your channel and what you are sharing. Your recipes remind me of some golden oldies and give my mind a boost, back to my roots. My sister had similar challenges and your reveal has helped me understand her situation better as she was secretive about these things. Go well, feel energised by the gift you are to those of us who appreciate you. ❤ 🙏 🙌 🙏 ❤

Hi Stacy your are in my prayers hope the surgery went well wishing you a speedy recovery love your videos love and hugs from Magdalene SA❤️❤️🫶I have breast cancer 🙋‍♀️

Oh lovely lady, I had no idea. I've watched a few of your videos but this one just popped up today. I will keep you in my prayers dear friend. Much healing love and peace to you! From the other end of the planet, Ontario Canada.

Oh my darling😭💔💔❤️❤i know every single painful emotion you've felt with this awful disorder..your channel just popped up on my page tonight..i see it as a sign..because I'm on my journey 2 years now and its so so tough and such a struggle at times..but on the good days..how amazing is life👏✨️🥰 sending you love from Dublin ❤☘️

What a strong lady you are, willing just to get on with what life has thrown at you and make the best of everything, so appreciate your content and wish you to be well.

Gosh Stacey poor you, that sounds terrible, was very interesting to hear about it though.

God Bless you! I hope the surgery is a success. It’s so hard losing your dream job!

Oh my Stace hearing your story made me 😢 just hearing what you have to go through daily hope all goes well love the channel & just learning new things thank you so much

Hi there! I'm new-be but want to thank you for your time and efforts. I have watched most of your videos and looking forward to seeing more. God bless look and do you first!❤

My friend suffers from this condition, she is currently taking seizure med to help her. It was very debilitating till she found the right medication. She really fears the pain coming back! So sorry you are going through this! 😊praying for a quick healing!

Great job

Hi from a farm in 🇨🇦. I just found your channel and have subscribed. I will be trying your crumpet recipe right away. Really looking forward to trying more. I hope you were able to have the surgery and that it is helping.

Hello lovely. I have it too. I have it continously where there is just pain and flare ups where its unbearable. I'm currently on tegretol (think it's called carmbazamine or something like that). I also have fibromyalgia. Both conditions flared right up since my wonderful mam died last April. I'm on meds for the fibro and feel like a walking zombie. I'm very tearful. I love your videos, I'm slowly going through them. I know what it takes to battle the tn and you're an inspiration xxx

God bless you, take care and stay strong 🙏

Hi Stacey, what a time you are having, so sorry to hear of your health problems. Look forward to you getting back to your channel. Wish you well and that yr surgery goes well and takes all that pain away. Take care and time and look after yourself.❤

Good luck you will be fine

❤You are a very brave lady.❤

Blessings to you Stacey & all your followers who have this disease🙏❤️🌹

You have probably researched this horrible disease to infinity. I understand that this and many other neurological disorders come right on a animal products only diet. What a shame you can’t still be an ambulance officer as that job is a real calling and so valuable to our communities. All the best.

I do feel for you I have it to for about seven years it’s horrible I can understand your pain but on both sides must be terrible it changes your life so much you are so strong a strong woman god bless you xxx

Hi Stacey. I'm so sorry to hear what you are going through. I'm suffering badly right now with pain from my neck all down my right arm to my thumb. I'm having an x-ray today to see what's causing it. I'm on tramadol. You're honesty and openness is amazing ❤😢. Please stay safe and well dear lady. I've just found your channel and would not like for it to go. There is still so much more to learn from you. For example how to hydrate and use hydrated fruits.❤💐❤.

Thank you so much for taking the time to reply to my comment when your having so much pain every day must be like a roller coaster wishing you some free pain days ❤

Im so sorry you have pain ..you are very good at explaining..yoy gi into the nitty gritty. Well done..I have daiky knee pain..understand you sis..take care..kind regards Karolyn Melbourne..Kia Ora. X

Oh !!I just found you and I love the way you cook because I cook like you do.Listening to your story just poked me in the heart and watching you grieve and then put it away and pull up your boots was remarkable. I will pray for you and really that's the best thing I can do.I also ask for blessings on you and our beloved husband.Mercy and strength.You are not made of iron because who is.Big hugs from Alaska.

You are one strong woman. ❤❤

You are a strong woman.

Sending love and prayers from South Africa 🇿🇦 ❤ 🙏. Ive recently been diagnosed with Lupus.

Hi you just popped up on my feeds and i want to reach out , sending you positive vibes and i pray for you that the future looks HEALTHY AND YOU CAN BEAT THIS HORRIFIC PAIN, iv just myself been diagnosed with TN, and i have type 2, and on the medication for facial nerve pain to that are not the best at functioning. I too have a youtube cooking channel and also lost my job . I really sending you a big hug, every thing you said i feel your emotions. THANKYOU FOR SHARING . ❤

Oh my bless your heart, you are so beautiful person. I also have a incurable disease called anticoagulant blood disorder . It causes my blood to produce blood clots so I take blood thinners ,it is rare too.. But I am Christian and I trust Jesus and I believe in prayer and Jesus Christ healing powers, I will pray for you too, I hope your have a blessed day

I just watched this! Its heartbreaking for you! I only hope that you can find relief after your operation!

Praying for you.... hugs❤

Hi Stacey, I am so sorry to hear of your situation, and praying that the surgery is helpful for you!!! I love your channel, and can't wait to steam can pinnapple like you do. God Bless your courage and rcovery. Praying for you and your family. Janet

You poor soul, pain is so draining ❤

Whangarei Hospital, the WORST hospital in the World diagnosed the patient with stress. Baby doctor was adamant that despite all the evidence it was definitely stress. Thanks be to God for the 'older' GP who took one minute to diagnose this hideous disorder. It has come and gone, treated with Tegratol which has worked. Still wanting to slap the baby doctor who knew it all. As a nurse I KNEW the baby was wrong, but as is typical at Whangarei Hospital, if you query anything you are deemed a high security risk. SO GRATEFUL AND GLAD YOU ARE FEELING BETTER. LOVE YOUR CHANNEL AND YOUR STRENGTH. THANK YOU FOR ALL YOUR HARD WORK.

Hi hoping in the 6 month since you put out this video you are on the improve, really enjoy your videos and little snippets of your life

I'm so very sorry you're having to go through this. I'm praying you get better soon 🙏. I had a sister that had the very symptoms that you're describing and the doctors couldn't figure out what was wrong with her. She lost her eyesight and was in excruciating pain. But I was wondering what happened to you and I missed your videos

You are strong and courageous, but I wish you didn't need to be. I have the intermittent kind of TN. When I'm having a flare, movement is a trigger. I don't have to tell you how much I don’t want to move! But, life. Things need doing. People think it can't be as bad as you say or you wouldn't be talking, smiling, going about your business. You'd be on your knees. What they don't get about chronic pain is the chronic part. Your have a choice: you can be curled in a fetal position in terrible pain or you can get on with living life in terrible pain. Either way, you're in pain. But one of those options lets you have some life. For people who have never experienced TN, have you ever had a really bad toothache needing a root canal? Worse than that. More like having the root canal without being numbed first. Or maybe you've had sciatica, which is also a neuralgia. But the trigeminal nerve is more sensitive. Think sciatica times 3. Or 4. Most people would be on their knees crying out for it to stop if they had so much pain. But when it's unremitting, 24/7, at some point you have to live your life around it. So yes, you're courageous. But you don't have much of a choice. Given the chance, you'd choose to live without the pain. I'm very sorry you had to give up your dream job which you worked so hard to achieve. That's a loss which must be grieved, almost as much as the death of a friend, because it was a piece of your identity. I'm glad you've thought of another career where you are helping people, because that's your nature. I can see that in you. I won't wish you strength and courage, because you have plenty of those. I wish you periods of respite when you don’t need to be strong or courageous; times when you can safely lay down the burden of being strong and courageous.

Hi Stacy Could you please tell me if your operation terminated the Trigeminal problem ? I am in a middle of some decision to take the right one . Thank you in advance if you answer to me

I have suffered with Trigeminal Neurolgia since 2019. In March 2022 i had a Balloon Rhizotomy..it relieve the pain for about 10 months. This Wednesday, May 8 i am having the MVD surgery. Wish me luck. May 5 2024 7 a m

Have you had your surgery? I hope you are pain free.

This is not to offend but shared in love. Please look to Jesus and the cross and try take communion as much as possible, not just at church but in your home because the spiritual application of communion His broken body and shed blood really helps. Ive heard many testimonies of people being healed. Joseph Prince speaks on this really well. I hope you feel better as each day passes. Stay strong x