Myalgic Encephalomyelitis/Chronic Fatigue Syndrome | Connecting Point | May 15, 2018

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New England Public Media

New England Public Media

6 жыл бұрын

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome affects nearly 1.5 million people nationwide and over 28,000 Massachusetts residents, but few people have heard of the condition. Myalgic Encephalomyelitis/Chronic Fatigue Syndrom can have severe neurological effects, in addition to zapping a person’s energy to the point where simple tasks leave them bed ridden.
Lisa Hall, a Registered Nurse at Northampton Integrative Medicine, and chronic fatigue syndrome patient Rivka Solomon join Carrie Saldo to shed light on the symptoms of Myalgic Encephalomyelitis, its treatment, and what it’s like living with the condition.

Пікірлер: 113
@jenniferfrost7713
@jenniferfrost7713 4 жыл бұрын
14 years of absolute HELL for me. I Want Out😢
@penelopelambson9128
@penelopelambson9128 5 жыл бұрын
35 years trying to find help. Lots of ridicule and dismissal. Have had some improvement via my own treatments and sugar and gluten free diet. Hydration is key. Still have crashes. Still dragging every day. 3-4 days/ week in bed just to have one good day. . So very grateful for videos like this that give credibility to ME/CFS at last. Thank you. 🌺
@sherryblatt4459
@sherryblatt4459 5 жыл бұрын
Penelope, Ive been told hydration helps but you can only drink so much water and then your body gets depleted of sodium and other nutrients!😢
@penelopelambson9128
@penelopelambson9128 5 жыл бұрын
Sherry Blatt that’s true and I realize it’s all a balance. I have chronic viral inflammation esp in my brain, and drinking enough water really helps. I guess it’s trial and error for each person. It’s a full time job!
@CC-yl9wz
@CC-yl9wz 5 жыл бұрын
juicing helped me.
@penelopelambson9128
@penelopelambson9128 4 жыл бұрын
Sherry Blatt yes it’s a fine balance. I drink salted lemon water which aids liver and adrenal function. Protein Smoothies with some banana for potassium. It helps.
@queenofthebutterflies5212
@queenofthebutterflies5212 4 жыл бұрын
interesting u say that, i instinctively drink 3 litres of water a day on top of 3-4 teas and maybe a juice!!!!
@peteowen3539
@peteowen3539 2 жыл бұрын
When I got COVID April 2020, I got the symptoms of CFS for ten days. It was the worst ten days of my life and I wouldn’t wish it on my worst enemy.
@rosebudadkins6803
@rosebudadkins6803 2 жыл бұрын
We barely survived CoVID. We still have long haul issues. It definitely sucks! Glad you survived. Cheers!
@Madeley-Mick
@Madeley-Mick 3 жыл бұрын
I have had this for 35 years now, it started in my late twenties and has become worse following a brain injury 20 years ago. People just don't understand, my family just treat me as though there is nothing wrong and say pull yourself together, do this, do that, keep busy but this just puts more pressure on me! I call it " Heavy Head Syndrome ", it starts with a headache, aching, brain fog and then spreads to my body! I feel for all you fellow sufferers out there.
@k1ghz960
@k1ghz960 2 жыл бұрын
Tell the jerks who advise you to just ignore it to try just ignoring a broken leg during a marathon. A-holes will never get it cause they don't want to and most of them do not have the mental capacity to understand.
@Madeley-Mick
@Madeley-Mick 2 жыл бұрын
@@k1ghz960 Well said my friend, thank you for your understanding. x
@paul2019monte
@paul2019monte Жыл бұрын
Yes and by them encouraging or pushing you to do something that you shouldn't be doing you risk a fate worse than death. I find it so much easier to try to stay away from people. Which is lonely but safer.
@Madeley-Mick
@Madeley-Mick Жыл бұрын
@@paul2019monte Such true words Sue, thank you, big respect, Michael xx
@daydreamerinca
@daydreamerinca 6 жыл бұрын
Immense gratitude for this excellent interview. I've been ill with ME/CFS for 31 years, house and bedbound for the last five. The complexity and severity of this disease was very well communicated. Thank you to all participants for helping us be seen.
@thanhphongtran9808
@thanhphongtran9808 4 жыл бұрын
Cheers for this, I've been looking for "chronic fatigue syndrome treatment" for a while now, and I think this has helped. Have you heard people talk about - Diyadelyn Ziyily Idea - (search on google )? It is an awesome one of a kind product for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) minus the hard work. Ive heard some interesting things about it and my cousin got great results with it.
@CarlosPerez-vl3vi
@CarlosPerez-vl3vi 4 жыл бұрын
Just wonderful, I have been researching "medications for chronic fatigue and fibromyalgia" for a while now, and I think this has helped. Have you heard people talk about - Diyadelyn Ziyily Idea - (should be on google have a look )? It is a great one off product for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) minus the hard work. Ive heard some awesome things about it and my colleague got cool success with it.
@nadiayvonnerazanajao7082
@nadiayvonnerazanajao7082 3 жыл бұрын
Cheers for this, I been tryin to find out about "is there a cure for chronic fatigue syndrome" for a while now, and I think this has helped. You ever tried - Diyadelyn Ziyily Idea - (do a google search )? It is a great exclusive guide for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) without the headache. Ive heard some pretty good things about it and my work buddy got amazing results with it.
@arturogoleman5221
@arturogoleman5221 3 жыл бұрын
Just wonderful, been searching for "is there a cure for chronic fatigue syndrome" for a while now, and I think this has helped. Have you ever come across - Diyadelyn Ziyily Idea - (do a search on google )? It is a smashing one off guide for getting rid of chronic fatigue syndrome (CFS - Also known as myalgic encephalomyelitis or ME) minus the headache. Ive heard some interesting things about it and my buddy got excellent success with it.
@shaduwy
@shaduwy 3 жыл бұрын
You need probiotics and prebiotics in yr diet. The issue is related to yr gut and due to imbalance nature of yr gut it’s got yr immune system working over drive.
@lindakelley2676
@lindakelley2676 2 жыл бұрын
Imagine if on your “best” days you have 2 hours of energy and hurt all the time, it’s like having the worst flu of your life every day. You can feel the pain and toxicity in every cell of your body. By the time you get dressed, feed yourself and dog, make a trip to the store, and empty the garbage, you’ve drained your “energy” account. You can’t push through the fatigue. The impact on your quality of life, relationships, ability to travel or plan, have a social life, career, self care, child raising,life maintenance, etc is devastating. Now the government has decided it’s better to not prescribe pain medications and let people suffer, it’s barbaric. On top of people thinking you are just “tired” or “lazy”
@smakkdat
@smakkdat 2 жыл бұрын
This is how it is for me. In a bad flare now for the past 8 months, feeling so horrid at the moment in bed, because I over did it today. Yes it is like the most horrid flu and every cell in your body is depleted and the feeling of yuck is indescribable. It’s hell and why has there not been any way to diagnose this disease yet??? I believe the answers are in our mitochondria, the energy producers of the cell malfunctioning. Well it’s a piece of the puzzle for sure anyways. Lord help us that suffer with this energy sucking, life-altering, nightmare ailment!!!!
@smakkdat
@smakkdat 2 жыл бұрын
And the nay sayers and unbelievers are the worst!!
@Annmarie123ize
@Annmarie123ize 5 жыл бұрын
I only have moments to be involved when I can then deteriorate. I have ME and Fibromyalgia
@mste3509
@mste3509 4 жыл бұрын
4:32 I need to hear this again and again. I've pushed through barriers and paid the consequences each time.
@052970
@052970 Жыл бұрын
Lisa Hall is a wonderful woman and nurse. She knows the risks of suicide when having to live with chronic disease of ME/CFS. Many patients support and treatments are lacking or completely cut off and that only increases the symptom profile of this chronic illness. As a result, many ME/CFS patients are at a high risk of suicidal thoughts, attempts, and unfortunately, many succeed and end their lives feeling hopeless. We have lost many to this unsupported, painful, and debilitating disease.
@paul2019monte
@paul2019monte Жыл бұрын
So sad but so true. 😪
@Hugatree1
@Hugatree1 3 жыл бұрын
I’ve been dealing with this for thirty plus years. Physical exhaustion, migraine headaches, severe joint pain. I was a dancer and bodybuilder for years but always had symptoms and setbacks. Two or three days a week I feel absolutely great, next day I’m bedridden for three or four days. There is no treatment supplement or medication I haven’t tried. Just be happy and blessed for the good days and realize in certain ways we’re luckier than some people with terminal illnesses.
@carolynlee81
@carolynlee81 2 жыл бұрын
I have same issues. When I push myself on low energy days I worsen. I think I have some adrenal insufficiency as cause...
@sherip1270
@sherip1270 2 жыл бұрын
I am sorry, as I cannot say that I have been luckier than someone with a terminal illness. I think it is worse being dead in a living body. A dear friend of mine had lung cancer and has passed on. I had told her that if I could, I would take her place. I don't consider myself depressed, just realistic. She had so much to offer and I have been bedridden and unable to care for myself in the most basic ways. No medical care, no advocate and too sick to be my own. I know that God loves me and has something for me to learn from this experience. He is the only one who knows my struggles.
@Rome_Vienna
@Rome_Vienna Жыл бұрын
Sheri P Very Beautiful!
@mischa23406
@mischa23406 Жыл бұрын
@@sherip1270 I wish I would die everyday and it all would be over so don’t feel luckier either, it’s a living hell with no escape
@sherip1270
@sherip1270 Жыл бұрын
@@mischa23406 I'm so sorry you have been so sick. I remember asking god to take me home or cure me. I feel god has taken care of me and led me to ways to improve. I started a ketogenic diet and it has helped me a lot. Not cured me, but enough to see joy around me. Much love to you. I hope you can be led to something that will give you some improvement. I feel impressed to say that you will be blessed for struggling through this adversity.
@VV-th5is
@VV-th5is 4 жыл бұрын
What compounds the condition is everyone's opinions/advice... "just try not to think about it", the ignorance that you can talk/think your way out of it.
@k1ghz960
@k1ghz960 2 жыл бұрын
If you could talk your way out of it then no one would have it. Normal People ignore tiredness every day...that is NOT CFS any more than a sparkler is lightning or a drop of water is the ocean.
@smakkdat
@smakkdat 2 жыл бұрын
Positive thinking helps to a degree, but the same can be said for all illnesses. Some people like to think though that all that is needed to cure CFS is positive thinking because when people hear fatigue or low energy they automatically think one is just depressed. But all of us with CFS know although fatigue/malaise is the most debilitating and life altering symptom of this disease, it’s much more than that.
@GamingHelp
@GamingHelp 2 жыл бұрын
Went from a high end career working in bleeding edge tech and being in the best shape of my life to barely knowing my own name virtually overnight. Had mono and a near death case of dysentery (You'd be amazed how much blood you can lose in your bowels and not die) and suddenly it was all gone. I fought as hard as I could for almost a year afterwards, but it was no use. CFS can take the sharpest brain and turn it to mush. Your working memory might go from a half dozen bits or more to barely a couple of things at most. And that's on a good day. I literally forget my immediate families members names now. Ah well, them's the breaks. (Edited) Watching her describe the fog part at about 3:30 just now, I swear I can feel what she's feeling. I've never seen it from the other side before, but I recognize the sentence/dialog structure where you're struggling to make sense and convey yourself, but you tend to sort of lose yourself and go down little side paths while explaining, having to snap yourself back to where you were originally going.
@Xiliaace
@Xiliaace 4 жыл бұрын
I got ME/CFS as a "by-product" of the multiple chronic conditions I have (both mental and physical health). In high school IT WAS BAD (I wanted to sleep 14+ hours everyday and still not feel well rested). College I got an average of 6-9 hours every hours every night and still feel dog tired. Today (I'm in my mid 20s) I basically need 1-2 energy drinks a day, even with the help of vitamins (D3 and B complex). I hate it. Friends and family have accused me of "being lazy" or "just not caring" when that's far from the case.
@queenofthebutterflies5212
@queenofthebutterflies5212 4 жыл бұрын
u poor thing. u CERTAINLY ARE NOT LAZY. that is THE MEANEST thing anyone who does not have this condition can possibly say to anyone with it. sending you a big hug from down under xx
@k1ghz960
@k1ghz960 2 жыл бұрын
Ignorant "friends and family" can make your illness much worse. Best to move away and avoid them as much as possible.
@clairemartin922
@clairemartin922 4 жыл бұрын
I’ve had it for years but it got really bad the last 3, it’s ruined my life. I can no longer work and I’m mostly house bound 😔
@queenofthebutterflies5212
@queenofthebutterflies5212 4 жыл бұрын
me too, darling. i've been wondering if i need an electric wheelchair. i've even shopped for one before, but couldn't bring myself to buy one. i've been sick since i was 26 and am 41now. i had a baby just b4 i turned 35 & it drained me SO badly. i've NEVER been the same since. do you have a partner or children? or supportive family members? 4 me my son is a cause of a lot of guilt (b/c i can't even take him to the park or out in the backyard, let alone the zoo! or other normal things families do) but he's also the source of so much joy. i found that going overseas to a tropical climate helped immensely when i had been sick after the 1st 2 yrs. it got me out of bed and able to walk. i've had it so long & have lots of friends w/ it 2 now, if i can be of ANY help, just reply here & we can have a lil chat. the worst part of this illness is the isolation, it's so lonely, isn't it? blessings, Claire.
@uncannyvalley2350
@uncannyvalley2350 3 жыл бұрын
Same, used to be so active, then wondering about barometric changes I came across FM, my dad had it, but I never even considered I had CF
@rosebudadkins6803
@rosebudadkins6803 2 жыл бұрын
Same with me.
@lindusa.9450
@lindusa.9450 5 жыл бұрын
ME/Chronic fatigue syndrome is not a psychiatric condition even if it can affect mood and mental states as I will explain and have explained in much more detail before (see notes). It is an energy dysfunctional illness that can range from very severe where life is unbearable for years to moderate and milder versions, but always with better or worse periods (relapses). It is a multisystem illness, meaning, it can and will affect multiple organs, more the worse the energy dysfunction becomes, and less the less severe it is. This can be controlled somewhat by a combo of medications, proper rest and using other therapies that are healing and can help to raise the energy, as well as avoiding as good as you can most forms of all types of negative stress (physical, chemical, mental). The milder states can be confused with psychiatric illnesses, as the lower energies affect the brain and lower neurotransmitters also in these milder states, but not if you have been through the more serious conditions that can last for years, where you can barely sit up straight for more than a minute. However since the energy dysfunction will affect the brain and cause neuroinflammation and disturbance of neurotransmittors, it will cause neurological as well as psychological problems, call it neuropsychiatric if you will. You can not walk or barely walk a few steps, constant severe migraines and epileptic states of the brain, that is definitely neurological, where you can not tolerate blinking, moving objects, severe light sensitivity and just looking at a screen can feel like your face and eyes are being burned, and is impossible until you recover and gain more energy by resting and taking medications that can help with the epileptic tendencies and severe migraines, and overall help to reduce the brain inflammatory states where the brain is one of the first organs that will experience drastic negative symptoms from such a low energy state (energy dysfunction). That in addition to back pain, pain in the legs, severe vertigo states, paralysis, extreme fatigue that is unlike anything a normal person can feel, yet often feeling wired (often neurological nervousness) and severe insomnia due to the excitatory state of the brain, cold and heat intolerance (as you have too little energy to be able to control your body temperature effectively), light and audio sensitivity depending on the severity of the current state, problems regulating blood sugar, even when eating healthy (like in 2017 when I ate as healthy on a plantbased diet and very little processed foods and no sugar, caffeine or artificial sweeteners) and much more. The factors that can worsen the condition and improve the condition are multiple and are mostly physical, but also mental stressors can worsen the condition of course. I have recently been through the worst life crisis in my life that caused severe mental anxiety (fear) and mental depression, and yet my ME/Chonic fatigue condition was not affected as badly as say when I push myself too hard physically over time, although of course it does not help and it will of course lower the energy. When there is an energy dysfunction like mito dysfunction where the brain will be attacked often first (as it is one of the most energy demanding organs), it will automatically lead to a lowering of neurotransmitters that will affect and cause both neurological symptoms and can and usually will affect the mental state as well. Gaba medications will lower the brain inflammatory states (unlike say alcohol which will increase brain inflammation) like severe migraines and epileptic states of the brain (that are severely present when the condition is severe, in relapses and will improve in better stages when the condition is milder). The amount of needed medications will have to be adjusted to the current severity of the condition. I am not more addicted to gaba medications today as I was 11 years ago, but it has helped me to go from a severe state to a milder state overall for the last 5 years since I got medications in 2012 that could help with the severe neurological problems /brain inflammatory states) where the severe migraines, epileptic states of the brain that will also cause symptoms in other parts of the body and even paralysis were reduced and I was able to function again and go from severe to a more moderate/milder state of ME/Chronic fatigue syndrome. Not only with the help of medications, but medications combined with knowledge about the illness, and having developed over years methods and awareness of all the symptoms to know (or better know) when to stop an activity and rest and how the illness works, which can take years of painful experience and testing and trying and balancing, What factors that help and what factors that make it worse and how much one can currently handle which can vary greatly. In severe states it is almost impossible, at least when they were as permanent as mine and lasting for 6-7 years (2007-2013/4) in a pretty much chronic severe state, with the exception of shorter periods where I felt somewhat better, like in late 2010 and the beginning of 2011. The last five years I have had a more moderate and milder severity with the exception of worse relapses in periods as I have mentioned before.
@lindusa.9450
@lindusa.9450 5 жыл бұрын
By "moving objects" I mean things like falling snow, action scenes with a lot of shooting and blinking in a movie or video game for instance. In any event, you do not react to the moving object in the sense that you feel like attacking. It is just a very very uncomfortable feeling and when it happens you are located in a bed and even in the worst of cases I have always had control over myself even if it is almost unbearable. I have never had a grand mal seizure though as I know of. These more severe and lengthy periods occured for the most part from around 2007-2012.
@sherryblatt4459
@sherryblatt4459 5 жыл бұрын
The fatigue is worse than anyone can imagine!! Its not normal by any means! I remember what it felt like to be a normal tired! To go to bed and get up feeling refreshed! Ive tried everything and had most every test and many doctors and specialists, and im left with anti depressants! 😢
@lindusa.9450
@lindusa.9450 5 жыл бұрын
​@@sherryblatt4459 Normal anti depressants will likely not help. Only gaba medications can help if you have the wired and tired/fatigue symptom. I have never experienced any relief from anti depressants, only gaba medications that reduce brain inflammation (moves the brain away from going in the direction of seizure to normal and calm/rest/normal tiredness in stead of wired/fatigued. But other natural remedies can greatly help as well, sunshine /if tolerable) and fresh air in particular and activity suited your current energy limits (which only you can learn by testing and trial over years to better detect when the body give you early warning signs of overactivity).
@gregorymalchuk272
@gregorymalchuk272 3 жыл бұрын
@@sherryblatt4459 What antidepressants have helped?
@paul2019monte
@paul2019monte Жыл бұрын
Thank you for this detailed post. It is so hard to even relay to others what it is like to live with this illness.
@terriealabama7612
@terriealabama7612 Жыл бұрын
Really this was the best. Thank you.
@sherip1270
@sherip1270 2 жыл бұрын
I'm so glad to see this being shared. I have had ME/CFS for 10 years and now, my son has it post-Covid.,
@hannatalks8437
@hannatalks8437 5 жыл бұрын
This is great
@itskzz422
@itskzz422 Жыл бұрын
its such an amazing video, must watch this if you are new here . its so helpful i must say , especiallly for a medical person.
@mocki5665
@mocki5665 2 жыл бұрын
Thank you!
@dirkkatz172
@dirkkatz172 3 жыл бұрын
most people with a microwave arent chronically ill because some people are more sensitive for microwaves, also the distance person/microwave is very important. The oven in another place is more safe. The radiation become less when the oven gets older.Some ovens give less radiation then others. In Russia the allowed radiation is less.
@samcheng7542
@samcheng7542 5 жыл бұрын
I am 48, female, a long history of cramping and diarrhea.plus my husband having IBS for a years,However I was able to control both with Imodium until January. I have been in severe pain since middle of January and have lost 20 pounds. The pain has progressively gotten worse. It started as a “bladder infection” pain, but all urinary tests came up negative. I even had a CT and ultrasound done. I then had a colonoscopy and upper endoscopy done which the results are most likely Crohn’s disease and CFS but I’m waiting for blood test results to confirm, the Prometheus test was done. However I am still in a lot of pain, I have pressure also, all of it right above my bladder. The pain is as bad as my childbirth labor was. I have had a total hysterectomy, appendectomy, gall bladder removed also. Also, I have this weird sensation of a string pulling through my genitals. That’s the best way to describe it, but it kind of feels like a nerve or tendons being pulled. There is also throbbing in my abdomen and genitals. I have also been to my gynecologist, nothing abnormal shown as I figured with my hysterectomy. I believe I am at least gluten intolerant, but tests show I am on borderline of celiac disease. I have been trying to correlate the pain with something and I noticed as my bladder fills up, the pain increases. But here’s probably the biggest clue, when doing the prep for my colonoscopy, as soon as my bowels were clear, I had no pain, not even when my bladder filled up. I didn’t start hurting again until hours after eating again the following day when my bowels filled up again. Also, I noticed that when I take Imodium for diarrhea I hurt more, probably because the stool is sitting in there instead of going right then. i was then introduced to a chinese herbalist Dr sale bashiru i got the herbs and oil a long with my husband IBS. just about 3 months past without pains and symptoms and my husband fully cured also.here is my email. chamcheng362@gmail.com whatsapp +17372079382
@uncannyvalley2350
@uncannyvalley2350 3 жыл бұрын
Sounds an awful lot like a kidney stone, they can be tiny and evade a range of tests. If it was it will be over by now, I have had plenty and they feel just as you described
@dan01
@dan01 2 жыл бұрын
Does anyone have sleep issue along with CFS?
@jayajmeria5250
@jayajmeria5250 3 жыл бұрын
I have chronigue fatigue syndrome after getting coronavirus 5 months ago. I think it is caused by hormone imbalance after the infection
@carolynlee81
@carolynlee81 2 жыл бұрын
My theory is that fibromyalgia results from hormonal and glandular imbalance. Sure hope you become strong and better.
@peteowen3539
@peteowen3539 2 жыл бұрын
I got it for ten days. I couldn’t imagine living with it.
@rosebudadkins6803
@rosebudadkins6803 2 жыл бұрын
I believe it’s caused by a certain viral strain or multiple viruses. The damage accumulates until we are disabled.
@dirkkatz172
@dirkkatz172 3 жыл бұрын
Chronic Fatigue Syndrome is caused by microwaces of the magnetron oven.Electric power plug also to remove because when he is in, the oven radiates micrwaves. When you are sensible,you are a victim.
@Marie-ru6pc
@Marie-ru6pc 2 жыл бұрын
Nein, das stimmt nicht. Ich hatte noch nie eine Mikrowelle und koche schon immer nur auf dem Gasherd. Und jetzt?🤷‍♀️
@cfs-genesung
@cfs-genesung 4 жыл бұрын
There is a reputable explanation for the cause of ME/CFS. Its a particular brain structure that has been traumatised in the beginning of the illness (that's not psychological). The brain goes into defence mode and triggers the immune system and a massive stimulation of the nervous system. Please have a look at the Gupta program for further information. I went from bedridden and in need of care to 100% health with that. Yes, it sounds unbelievable, but the explanation and the solution are already there
@yleanagareca3447
@yleanagareca3447 4 жыл бұрын
What’s the treatment? I’ve been to every doctor in different states but nothing helps. If somebody know about a treatment or something help? Please!
@uncannyvalley2350
@uncannyvalley2350 3 жыл бұрын
A lady in the comments above suggested GABA, a quick search showing has been used to treat CF
@k1ghz960
@k1ghz960 2 жыл бұрын
@@uncannyvalley2350 Tried it with no success.
@uncannyvalley2350
@uncannyvalley2350 2 жыл бұрын
Well then unfortunately there is nothing, as we still don't know the causes
@uncannyvalley2350
@uncannyvalley2350 2 жыл бұрын
Mind you I did come across a story where the husband gave the wife seltzer when it was really bad, also chocolate and coffee, I drink half strength coffee all day, but I also have the benefit of taking methadone for a kidney stone condition, it's really the methadone that allows me to get up every morning (well most) and I don't know what I would do without it. But good luck convincing a Doctor to prescribe it for CFS
@jacobtaylor4258
@jacobtaylor4258 3 жыл бұрын
does anyone donate blood, because my DR told me i could have ME, last week, i have been suffering from fatigue for some time, but i started donating blood 12 months back, i felt like crap on thursday, so friday i donated blood, i feel 10 years younger and full of energy, and that's everytime i donate, just a thought, if you got bad blood then change it,
@mrsrose8101
@mrsrose8101 3 жыл бұрын
It’s against the law to donate blood if u have cfs
@tallwomenresistence1473
@tallwomenresistence1473 3 жыл бұрын
That doesn't seem to be right because we have hypovolemia, that increase our fatigue. So lee alone if we lose more blood.
@uncannyvalley2350
@uncannyvalley2350 3 жыл бұрын
@@mrsrose8101 how does that work when it's still not recognised by many medical insurance companies and medical boards? And when 90% of patients are undiagnosed, and we dont knownthe cause either, so I'd really like to see some citation please, you haven't even said what country
@sherip1270
@sherip1270 2 жыл бұрын
I would be VERY hesitant to donate blood for someone else to receive, Since we have no idea how this can spread. I would NEVER want to share this with anyone. It is a living hell.
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