Short description
In the past decade, several new drugs for the treatment of SLE have reached clinical practice. In this webinar, new drug therapies will be introduced and explained.
The target audience is SLE patients.
All resources and more info on SLE can be found here: reconnet.ern-net.eu/disease-sle/
Speakers
- Dr. Maarten Limper is an internist - clinical immunologist, working at the department of Rheumatology and Clinical Immunology of the University Medical Center Utrecht in the Netherlands. He is specialized in diagnosing and treating systemic autoimmune and autoinflammatory diseases, with a focus on systemic lupus erythematodes (SLE) and the antiphospholipid syndrome (APS). Together with Laurent Arnaud (Strasbourg, France) he is the current Disease Coordinator of the SLE group of ERN ReCONNET. Dr. Limper chairs the national working group on SLE and APS in the Netherlands and is a member of the scientific advisory board of the Dutch Lupus Patient Organization.
Besides his clinical work, dr. Limper is leading several research projects in the field of both SLE and APS. His research is both fundamental, investigating inhibitory receptors such as CD200 and focusing on chemokine-signaling in SLE, and translational, aiming to predict SLE flares and studying recurrent thrombotic events in APS.
- ePAG Jeanette Andersen is from Denmark and has a Master’s degree in German and Philosophy from the University of Copenhagen. In 2011 she was diagnosed with SLE, which (in combination with a lot of comorbidities) forced her to go into early retirement. Since then, she has immersed herself in the role of a volunteer in the area of rheumatology with a special focus on patient engagement in clinical research. She is the Chair of Lupus Europe, a EUPATI trained patient expert on medicines Research & Development and the leader of the Lupus Europe´s Patient Advisory Network (PAN). She is also Steering Committee Member and Research and Quality of Life working group member in ERN ReCONNET as well as leader in the Danish Lupus group underneath Gigtforeningen (the Danish Rheumatism Association). She is a EULAR PARE Committee Member and Leader of the Editorial Board and Edgar Stene Prize working groups. She also sits on the ACTion Council on patient engagement in rheumatology research. She has developed an exercise programme for lupus patients, that has been endorsed by both ERN ReCONNET and EULAR and at present she has a focus on developing educational materials on better communication between doctors and patients.