Treating Huntington’s Disease Patients

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Treating Huntington’s Disease Patients

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Күн бұрын

JFK Hartwyck Center is the only designated care facility in New Jersey that specializes in Huntington's disease, which is a fatal neurological disease.
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Пікірлер: 92

@emmabramer3049 2 жыл бұрын

Just lost my grandmother to it. My mom has it. I'm 22 years old, and 95 days clean from heroin, I don't know if I have it, but I know I must stay clean to care for my mom. Please keep my family in your prayers

@andrewli2656 Жыл бұрын

A little late, but congratulations on your sobriety!

@elena.t3251 Жыл бұрын

Dear Emma, The family from my mother have this. This is not fair, but this world is not fair. I pray for you and your family ✝️✝️ From Europe

@furbabiesarefamilytoo Жыл бұрын

Praying for you and your family

@mattavellino3147 Жыл бұрын

Just lost my gram to it too. My father was just diagnosed at 50. I lost my brother to heroin. I still struggle with my addiction as well. Emma i dont know you but i feel like i had to reach out. Our stories are too similar. Oh and im 24 btw.

@E4MB1011 Жыл бұрын

Prayers and god bless you. I dealt with addiction for 10 years and have been sober for almost 4 years. God bless you and your family and keep doing what ya gotta do to be strong and the best person you can be ❤️🙏🏼

@rachaelpate6778 9 ай бұрын

I’ve take care of several people with this disease. I’ve always wondered why people with Huntington's disease decide to have children when this is hereditary. To each it’s own but I wldnt wish this on my worst enemy.

@BRACEY12345 5 ай бұрын

A lot of people didn't know about the genetics of it until recently.Also, lots of people only show symptoms once their children have already grown up and had their kids. Also, you can do tests on the placenta to see if its passed on 50% chance with choice to abort at week 11-12 or do IVF to not pass it on.

@PranavJadhav-rl8ih Ай бұрын

U r right ...now i fear i will suffer from same disease..im 25

@kennyj4366 2 жыл бұрын

Thank God for these care givers.

@sharontrimble8370 7 жыл бұрын

my nieces had Huntingtons and they gave them something to stop the movement. I am so grateful this Christmas I didn't get it. Best gift ever.Many in my family died from it. My prayers go out to those who are suffering from this disease. We all need to work to find a cure.

@marinarigattisantiago9851 2 жыл бұрын

Me too I'm Scared to be tested because I feel like it will make it certain instead of unknown

@sandradalton1611 3 жыл бұрын

She is so beautiful. So very sorry she has to deal with this.

@mikechang7232 Ай бұрын

Praying for you all❤️🙏🏿

@jasongirard4923 Жыл бұрын

HD has taken so many lives in my family. Thank God for places like this that offer some measure of peace. I pray for the day we can stop this beast.

@henripohjanhovi4204 6 жыл бұрын

Having kids while knowing they might have HD is the most fucked up and selfish thing to do

@andrewhughes2753 Жыл бұрын

So what does somebody do? Not have children? Or abort a perfectly healthy baby? I’m curious as to what that tiny little brain of yours thinks.

@MyCold1 9 ай бұрын

True...a family freind has it so never had children on purpose

@szqsk8 6 жыл бұрын

Why would someone who carries this condition have kids with a 50% chance of them inheriting it?

@terisammon5180 6 жыл бұрын

They can because they want to. Nobody can determine the value or outcome of anyone's life. Can you?

@watchensee 5 жыл бұрын

Some people don't know they have Huntington's Disease until after they've had children, and the disease starts to show. :(

@dodgebullet7423 3 жыл бұрын

We didn’t know, her dad started symptoms late

@MollyKaren 3 жыл бұрын

I know this was 2 years ago but there are actually many reasons! HD sometimes doesn't start presenting until people are in their 30s, and if they don't know that one of their parents had HD (they may have died when they were young, or left the family due to the emotional effects), they may have children without realising that they could pass it on. Often the first symptoms are emotional - anger and irritability - so there are cases where a couple has a child, then they end up separating due to this, with the partner who does not have HD never finding out that their child may have it.

@lindamitchell-fox1926 2 жыл бұрын

@@terisammon5180 I can…and Huntingtons disease should absolutely not be passed on if you know it runs in your family and you won’t get tested or you’ve tested positive. The disease can be eliminated in one generation…just one generation. It’s so horrible to watch someone with HD from beginning to end. There are ways now to have children that are HD free even if you tested positive and there are even funds set up to assist with the expense of it.

@bossalinarock7711 4 ай бұрын

I'm a caregiver I lost my client of four years to this disease yesterday. My heavy heart led me here😞Bless all of you that are or have dealt with this❤️‍🩹😞🙏🏾

@JosephAllen-vg2cs Ай бұрын

My father was a great man. He watched his entire family die from this very disease, and it did him in as well. He was in the army and he was a great leader, he made sure he and his men got home to their families during the war is Iraq and Afghanistan. He died a little over a year ago, and I have unfortunately noticed that I have the very same symptoms of it...I can't remember anything as soon as I hear it or see it, I keep choking on words I am trying to say to my family, and I keep spassing out and having seizures in mid conversation. I don't know what to do. I miss my dad very much and if this really is what I have, at least I'll be with my father soon

@olivere9772 11 ай бұрын

What a lovely mom; 😞

@redblue40rc33 10 ай бұрын

Please God heal these people for Your purpose... Amen

@MyCold1 9 ай бұрын

News flash...asking a pretend god will not cure 1 person suffering from this

@coraldell3091 4 ай бұрын

@@MyCold1 Thankyou so much for your brilliant comment. ❤❤❤

@BrielleAvs_11 Ай бұрын

I lost my dad to it almost 2 years ago luckily I don't have it but we all need to work to find a cure

@ashleyervin602 7 жыл бұрын

My birth mom was suspected of having it so I got tested. I do not have it and if I wanted which I don't I can give birth to an unaffected child.

@LectronCircuits 10 ай бұрын

HD is basically Gruesome Death with an installment plan. Audience wishes doomed and grievously afflicted folks all the best. Cheers!

@coraldell3091 4 ай бұрын

Lecton , you don't understand unfortunately, yes cheers every and each day , 🤔

@bennoble6320 Жыл бұрын

Christians please forget about the stigma ascoiated with canniboids which really will slow down the progression of this diseaes and that goes for Alzheimers.

@saeedqasem2877 4 ай бұрын

Paying plenty of taxes without any return from the government. Government should be sued

@bridgetfolk5424 5 ай бұрын

Maybe allocate more 🤷‍♀️ if youre the only one who specializes then maybe only do that so these people have a place!

@quirkymedico6141 3 жыл бұрын

how bad will be the affect on a patient with 42 repeats ?

@talldaddy7890 2 жыл бұрын

usually if someone has over 40 repeats, they will have the disease but the symptoms won't be so outlandish

@unicron24 8 жыл бұрын

I'm my wife's advocate she has huntentons chorea, where can I find medicine and advice in Spokane WA??

@farrellgerard9776 7 жыл бұрын

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@lanastar264 Жыл бұрын

University of Washington medical center

@pawsitivenooz Жыл бұрын

I don't have a cure, but I may have something that improves the symptoms overtime, I only wish I had one patient and one doctor willing to work on this with me. If I can't test it on a patient I'll never know

@MyCold1 9 ай бұрын

Utter rubbish

@coraldell3091 4 ай бұрын

What is that.. ?

@kerrymacefield6336 Ай бұрын

What us it

@nasuahmad2267 Жыл бұрын

هل تم الحصول على العلاج

@georgen9755 Жыл бұрын

cedar Brookfield facility

@mikechang7232 Ай бұрын

❤❤❤

@nicolehessling1 9 ай бұрын

This is such an awful diseases

@margaridabras9281 10 ай бұрын

❤❤❤❤❤

@cathymarble3283 Жыл бұрын

Why in God's name would you have children if it's a 50/50 chance

@apriljones1013 8 ай бұрын

I think sometimes people don’t always know they have it until they’ve already had kids.

@coraldell3091 4 ай бұрын

If you do want to have kids, who are you to judge. FFS. 😊 What others do , choses to do ?

@teehee4096 4 ай бұрын

Choose to give their child a crippling genetic illness...@@coraldell3091

@teehee4096 4 ай бұрын

@@apriljones1013Yes, that's the only valid/blameless reason I can think of.

@jmcljazz6733 Жыл бұрын

God bless you

@ninamatt1963 8 жыл бұрын

She's beautiful.

@phillipdennis8911 4 жыл бұрын

Nina Matt yeah as seem alike she touching my heart as love one as kinda of very special. I believe god knows of those are griefs plus suffering to living with those whose has many kinds of diseases. He will healing them in someday.

@gunterliam7411 2 жыл бұрын

All thanks to dr Stanley who cured me from my Huntington’s disease I am forever grateful

@debbie2382 Жыл бұрын

It's fatal... read the information that's provided...

@elena.t3251 Жыл бұрын

Gunter Liam Which Doctor, and where??? Tell us, please.

@junbh2 Жыл бұрын

No they didn't. And it's a horrible thing to try to scam frightened people.

@caniseeyourinsides 11 ай бұрын

There's no cure... stop spreading false hope. That's heartless!

@andrewforrester8386 11 ай бұрын

It's genetic in my mom's side of the family. My mom died or a brain hemorrhage before she could be tested. I'm due a HD test. To clarify there is no cure for huntington's disease or anyway to slow/stop it getting worse. I do hope they find more effective treatments in the future. Won't be in my lifetime but I hope they find a way.