Often Awesome The Series: An ALS Love Story

No video

Often Awesome The Series: An ALS Love Story - Episode 32

Рет қаралды 356,775

Күн бұрын

Episode 32 : "A Day in the Life" - This episode focuses on the daily routine that Tim lives with. The care that he receives from his wife, friends and nurses. If you ever wanted to know what living with ALS is...this is the one episode to watch.
Often Awesome The Series is a web series about Tim and Kaylan's battle with ALS (Lou Gehrig's Disease). Its a story about love, friends, strength and courage. Join us every month for a new chapter in this amazing adventure.
For more information about Tim and Kaylan's fight and to help them please visit : oftenawesome.org
Do you want to help support this series? Info here:
allacesmedia.co...
Often Awesome The Series on Facebook:
/ oftenawesometheseries
Often Awesome The Series Website:
oftenawesome.com
For more information about the filmmakers visit:
allacesmedia.com

Пікірлер: 477

@cherylboinske3411 6 жыл бұрын

I have lived with this for over twenty years. I have great faith in God and I can still eat and talk and breathe on my own. I am fifty five and I live in a nursing home. I've been here for almost seven years. I have an eye gaze computer that I spend most of my day on. I Skype with my daughter and grandson, and I keep up with friends on Facebook. All in all, I love my life!

@applejellypucci 4 жыл бұрын

buckheitfcandcrematory.com/tribute/details/1971/Cheryl-Boinske/obituary.html Rest in Peace Cheryl.

@tommyornothing7301 4 жыл бұрын

April P. Aww 😞 RIP

@sandradalton1611 4 жыл бұрын

@@applejellypucci I'm thinking she passed away not long after she wrote this. She was to young. So heartbreaking.

@1handedmedia 4 жыл бұрын

@@sandradalton1611 she wrote that about 2 years ago and her obituary said she died on September 25th of 2019 so almost a year ago

@sandradalton1611 4 жыл бұрын

@@1handedmedia thankyou for replying. I didn't see her obituary above.

@dariahughes5564 5 жыл бұрын

SHOUT OUT TO THIS NURSE AND ALL NURSES LIKE HER. 🏨🏥🚑

@saileebniss1782 2 жыл бұрын

Not too many like her left

@lindathrall5133 4 жыл бұрын

NOW THAT'S WHAT I CALL A NURSE ON CONSTANT ALERT AND STAYING ON TOP OF HER CARE TO HER CLIENT AND MAKING SURE HE IS KEPT CLEAN AT ALL TIMES

@boulderangel124 6 жыл бұрын

I am a caregiver and I recently had the honor of assisting and getting to know a 63 year old woman with ALS just before she passed away. Unfortunately, her husband also suffers from a terminal disease. He is only 71 years old. Life is short, folks. Don't take anything for granted.

@lindathrall5133 4 жыл бұрын

THERE ARE NURSES WHO SPECIALISE IN ALS CARE THEY KNOW WHAT TO DO INORDER TO HELP THE FAMILY AND FRIENDS ALS NURSING IS PRETTY DEMANDING AND CAN WEAR A CARER DOWN. HERE IN MICHIGAN YOU DON'T SEE VERY MANY PEOPLE WITH ALS THEY ARE OUT THERE

@sunflowerprairie3069 7 жыл бұрын

What's awful is that this guy was one of those ALS patients who had the disease running in his family. His mother died from ALS when he was pretty young. He apparently chose not to have children so they could not inherit it. Very heartbreaking.

@catman8670 3 жыл бұрын

Each of us should have a choice when confronting any terminal disease, in a case like ALS, I would like to pass ASAP. ❤️

@patriciarossman8653 6 ай бұрын

What we want and what is best are two different things.

@leaveittolefty 3 ай бұрын

you dont know what you would do unless you are in it

@yvonnespearing 6 жыл бұрын

man seeing that dog hug hes leg rest on it..made me shed a tear..

@hamstermunchies5558 2 жыл бұрын

Yeah. The dog must know it's not safe for them to jump on the bed but they just have to be by their human

@crod0121 10 жыл бұрын

That lady nurse was awesome.........

@dragonsky799 10 жыл бұрын

Yes...she's amazing.

@tonyamitchell5713 8 жыл бұрын

+Carmen Rodriguez I was thinking what a saint she was :) I often call people like her "earth angels" .

@unaryan1979 6 жыл бұрын

Carmen Rodriguez she's amazing and can't see how fantastic she is. She's got a pure heart of gold.v

@PinkPanther70 5 жыл бұрын

Yes,she is a true angel, I just don't know how long her back will hold before she starts having chronic pain.

@lindathrall5133 4 жыл бұрын

THERE ARE MANY NURSES LIKE THAT I'VE HAD A FEW OF THEM AND HAVE ONE NOW SHE'S MY LITTLE SPARROW 🐦 SHE COMES TWITTERING INTO THE SPARROWS NEST

@lilredscout 10 жыл бұрын

Thank you to the caregiver. Beautiful, gentle, competant soul.

@Wxtst.3 6 жыл бұрын

JL Serkes I agree!!! Inspiring!

@lindathrall5133 4 жыл бұрын

WHEN GOOD CARERS COME INTO SOMEONE'S LIFE THEY ARE THE VERY BEST AT WHAT THEY DO GOD BLESS ALL THE CARERS THAT DO THIS KIND OF WORK

@nswe2002 8 жыл бұрын

what a fucking nightmare. Next time I complain about something trivial I will remember this video, I literally have nothing to complain about.

@missbooks8539 6 жыл бұрын

nswe2002 same here.

@flowergirlicart3949 5 жыл бұрын

I agree..

@almightraysams2912 4 жыл бұрын

Same

@catman8670 3 жыл бұрын

Your profanity isn’t necessary, are you uneducated?

@rebeccaduboise6890 3 жыл бұрын

Me too

@ditzitexas 13 жыл бұрын

My Dad lost his life to ALS, in 1991. I also have lost 2 Uncles and an Aunt to this terrible disease. My heart goes out to the family..... My heart cries of the caregivers ..and as well to Tim..I was my Dad's Caregiver after mom passed away from a massive heart attack one month and five days before I lost my dad....May GOD BLESS Y'ALL

@mirianansotegi649 2 жыл бұрын

Huge hug💫😽

@natashanicholson9313 5 жыл бұрын

This is every day? I will never complain again

@joelmason4513 2 жыл бұрын

Everyday. This is by far the worst I've ever seen anyone struggle. I can't even imagine.

@lindathrall5133 4 жыл бұрын

THE BEAUTIFUL YOUNG NURSE IS SO TENDER AS SHE CARES FOR HER CLIENT WITH ALS BEING VERY KIND TO HIM AS HE KNOWS. ALS NURSING IS BECOMING A FIELD IN IT'S OWN RIGHT

@TheLoveydovey214 12 жыл бұрын

My father had ALS. He died in December. I am so deep in depression because of his passing. Almost everyone is spending money on cancer research but what about ALS? I know cancer is a bigger problem, but we families and individuals struggle with this all the time. Who agrees? WE NEED TO FIND THE CURE!!!!

@Tracy-rf7ri Жыл бұрын

I'm so sorry. Als is a terrible disease. Needs more attention and doctors willing to help fight this.

@diannetrunnell6151 4 жыл бұрын

This nurse is an ANGEL. This has to be one of the worst illnesses ever. God be with them.

@karenlarke1737 9 жыл бұрын

Tim has great courage - most people including myself feel that they couldn't or rather wouldn't want to live with ALS. It is so obvious that everyone loves Tim to pieces - right down to his lovely dog (the way he lies on Tim's feet is such a sign of love). To live with most long term illnesses or disabilities is a nightmare (I know it is a struggle for me every day with mine) but to have support and the courage to keep going like Tim has is incredible. If he has lost his fight for life - he had the love he needed and that was a wonderful thing. For his lovely lady - she obviously realised long ago that love knows no boundaries.

@ahbeemarie7451 2 жыл бұрын

No, I couldn't live like this. I see no point. I'd rather be on my way to the next part of my journey.

@saileebniss1782 2 жыл бұрын

Amen

@applejellypucci 4 жыл бұрын

Nice to see his wife Kaylan stuck by him. I hope she is doing okay now. Rest in peace, Tim.

@skylar6818 7 жыл бұрын

I am deeply saddened that people have to live this way. He is so strong to just endure.

@enaro5580 6 жыл бұрын

May you Rest in Peace. A brave young man till the end. All my love and prayers for this special individual and his whole family. I wish that we will finally understand neurological diseases and find cures for ALS , spinal cord injuries and all cureless affection. God bless U Timothy .

@internetpolice1166 8 жыл бұрын

I really feel a sense of love for these strangers with ALS.

@Raven24444 3 жыл бұрын

His nurse gives really good care❤

@tn2134 6 жыл бұрын

Wow this nurse is wonderful 💕

@guitarjpm9 7 жыл бұрын

i have it and yeah it sucks .. 4 1/2 years and hanging in there :)

@Wxtst.3 6 жыл бұрын

guitarjpm9 All the best !

@DougClough 6 жыл бұрын

I'm coming up on 4 years diagnosed and 5+ years with symptoms.

@minidwarfdude9230 6 жыл бұрын

Doug Clough if you don't mind me asking, what are your symptoms like?

@LorraineD2805 6 жыл бұрын

guitarjpm9 wish you alle the best ... So sorry for you and all those people suffering from ALS...

@DougClough 6 жыл бұрын

mini dwarfdude my symptoms started in my left leg and foot about a year before my diagnosis. We didn't think much of it since I've had 5 back surgeries. Did all the regular tests and imaging and finally had the EMG done. Now my legs are pretty weak with my left knee not functioning at all and both of my arms are should 60-75% with left being weaker. I get fasciculations in my right leg, both upper arms, back and chest a little bit and then my fingers jerk. My breathing is the one thing that has changed from being in the Tirasemtiv trial. Went from 56% FVC and a 70% SVC to 88% FVC and 93% SVC. I have had colds and lots of pollen which has caused my numbers to drop to the low to mid 80%.

@nblurry 11 жыл бұрын

This is heartbreaking but beautiful as well. He's loved and valued, we all have worth even in broken bodies.

@MisterMuffin_ 8 жыл бұрын

Aww, the dog curled up next to him ;(

@yvonnespearing 6 жыл бұрын

that made me smile dogs love now go hug your dog I will ok jasper where are you..wink

@lindathrall5133 4 жыл бұрын

THAT'S ONE LOVABLE PUPPYLICOUS PUPPY 🐕 WHO LOVES HIS DADDY

@galescott8433 3 жыл бұрын

Love his precious puppy he knows daddy is sick

@DarleneSparks69 12 жыл бұрын

My mom has ALS, my sister & I take care of her. We have nurses to help over night. I watched your video and it was like I was watching just what her and I do everyday. God Bless you all that help Tim. May we find a cure someday ~ I pray everyday. LOve to all of you,

@BlondeRockChick Жыл бұрын

This is a horrible disease. One of the worst I’ve ever learned about. I pray to God we find a cure. To know everything going on. You hear see feel but u can’t make one move or say anything.. absolutely horrible.. I feel bad for anyone that has had this , does or will. I think having his dog around him is so beneficial and amazing. Seeing him lay on his leg brought me to absolute tears. Animals love and I think it’s a more pure love than any human could possibly express.. I see this man has many that care for him and that’s such a blessing. Very sad story wish I could had done something for them…

@lostmoon77 9 жыл бұрын

This is why it's so important to legalize the Death with Dignity Act of Oregon for all States in this union.

@ojibwagurl1951 5 жыл бұрын

WTF is wrong with you? This man just showed you what true dignity really is and you mouth off about your personal shit. Go vote. And know this. The reason people choose death is because they are afraid that the doctor will not allow them enough pain medicine.We need to be their voice. People are afraid to be a burden. We need to assure them its an honor to assist them. People are embarrassed about being incontinent. We need to stop saying "Diapers" and we need to Love and reassure. We do not ever want people to think its ok to let people die. Do you get it? Should Drs choose who can die? Soon the elderly will be disposable. The disabled will be "Let go" and now, even people with chronic depression can be given lethal doses of meds in a certain country. People want to live. Aids used to be a death sentence. Ebola can be cured if caught in time. What if its easier to let people die then search for cures? Think about it.

@user-nubiangoddess 4 жыл бұрын

If he didnt hav money for these nurses etc he would have never been alive.not everyone can afford ths level of care

@lindathrall5133 4 жыл бұрын

@@ojibwagurl1951 YOU HAVE A GREAT POINT THERE ARE A GOOD MANY DOCTORS WHO ARE AFRAID OF GETTING INTO TROUBLE AND YES I DO AGREE WITH YOU RESEARCH NEEDS TO TAKE PLACE TO HELP END THESE DISEASES

@ojibwagurl1951 4 жыл бұрын

@MRO My point exactly. You should never be in pain longer then it takes to admin a dose of pain med that works for you. Doctors worry they will be liable but you are not a drug abuser. your Doctor is under prescribing and needs to be sued. Get on his ass now and demand proper pain management. Invasive surgery is performed on people who are semi conscience, they dont feel a thing. I have seen this happen and there is no excuse, you can get help with this. I understand your choice. I respect your choice for you. I can't stand seeing people suffer when they are doing so because their doctor under prescribes. Tell him you want your dose of pain med increased and now. Trust me, you will get help if you are firm, but you should sue his ass anyway. Doctors know you won't be around, and/or are too weak to pursue this but it needs to stop. You deserve to be comfortable and if you press the issue and be firm , you will get proper dosage and remind him He, works for you. Period.

@ojibwagurl1951 4 жыл бұрын

@Kimberly Marshall Thats exactly how I feel. People matter to me. Tough shit. I want people to know I'm not like you. There is no reason people should beim pain and doctors have medication to prevent that. I'll speak up and doctors listen. They listen much more with support People who will admin and monitor meds. You are heartless to generalize and act as though all People who have a terminal illness should be allowed to die. You don't know them all. Some just need to know they are well worth working for and not considered a burdon. How about get the attitude that all life is important and then listen to each person's issues and needs and make sacrifices instead of agreeing that expediteddeath of sick People is the best solution for you and them People think they are a burden and they are not. It's an honor to assist them. People feel obligated to others and don't want to spend savings on themselves so they can leave others money. People fear dignity issues. That should never happen. The medical community and caregivers need to step up and make sure people know privacy and things will be respected. People need to Quit calling adult undergarments "diapers" and treat I'll people right. They have reasons they want to die and most of them, like pain can be avoided, at least made tolerable. I will always give my opinion on this. Pretty soon it will be ok for doctors to decide who should die. Just cause someone is terminal doesn't mean they should be made to choose death because they don't want to suffer. Let's get that fixed. Let's make sure people know they matter and they will have the best care possible. People will choose life if they have the choice of a decent last few months. And they need to be cared for by people who want to make them comfortable and who won't give up on that. If everyone had the attitude that people be allowed to die for certain reasons things will get bad. People can end their lives whether others care or not. I care. I will never watch someone end their lives early but as their care person, I will get them to who they can see that are medically assigned in Oregon. Then I'll quit.

@Conker3000 13 жыл бұрын

Tim is such a strong man. I love you my man!

@hazel555 6 жыл бұрын

You don't know what you would do until it happens to you; it is hard to give up on life.

@tucsonvic4105 4 жыл бұрын

God bless this young man his wife and his family and friends. You can feel the love throughout the film. My thought are with you all.💜

@Kringspiermusketier 6 жыл бұрын

I have so much respect for Tim. The courage and will to live.. My body is healthy, though I live with severe anxiety and bipolar mood swings. Every day I pray for death. Cancer desease, whatever. I don't have goal in life. I'm lonely. Don't have family friends or partner. I don't have a job. I have disability benefits. My days are empty. Give my body to this strong and courageous guy. Those who want to live life, often due to young. And those who want to die every day, live often long life as zombies.

@lorriesanders6782 5 жыл бұрын

Maurice Verhoeven Maurice as long as you ate breathing you have a purpose do don't say that.

@memba111 9 жыл бұрын

It's horrible to see what this disease does to human body but at the same time it's great to see all the support Tim had from the people who loved him. I wouldn't make it that far without that kind of support.

@wadeturner2535 8 жыл бұрын

I have cried...every day.. I lost my dad on May 3rd 2013 from ALS..My heart is broken...I watched my dad suffer for almost 3 years...I am so sorry for those that have been diagnosed with ALS, I truly understand what you are going through... God Bless you all...

@TheMrturn1 7 жыл бұрын

Wade Turner Very sorry to read about your dad.

@whatwillbem6825 3 жыл бұрын

I’m very sorry for your loss...😔🙏🏻

@abigailjunek 6 жыл бұрын

When I saw the dog lay his head on the foot I started crying

@natashanka 3 жыл бұрын

Pardon my ignorance as I just stumbled upon this series. What a great beautiful gift Tim and the army has provided to all of us. My cousin literally just passed away from this disease last month. I was completely clueless about ALS. And we’ll still kind of is. When Tim’s body gave out and he was confined to bed was he still mentally aware of everything that was going on around him and just couldn’t express it? It’s like a prison within one’s self. Sad

@racheljones9786 Жыл бұрын

I am blown away by this film. Thank you Tim and everyone around you. I have supported someone with MND and thinking they are very similar (?). So much love in all these posts. I want to echo what everyone has said. There aren't the words to convey what I feel so am wanting to send you all sooooo much love and strength and especially Tim and everyone who is affected by ALS. I love you all even though we have never met. Rachel (England) xxxxxx

@RydiaLS83 9 жыл бұрын

I had a friend, who lost her brother to ALS. Watching this, it's hard to imagine, what the family had go through. My heart breaks, watching this. :( To: Tim's Family,Friends and his Wife. I'm sorry for your lost. and my heart goes out to all the Families have go through this with there love ones, with ALS.

@johnavi 3 жыл бұрын

This scares the shit out of me. Please people, live is too short not to be happy. Enjoy every minute you can. Remember things could be worse and give a hand to people that need it.

@whatwillbem6825 3 жыл бұрын

Yes...don’t waste a minute of your life wake up being thankful..spread positivity...ugh so devastatingly sad....hug your loved one’s...

@salemblackcat-thehealthcat1 Жыл бұрын

Great to see Billy Gould from Faith No More! Thank you for presenting these videos! Praying a cure is found for ALS.

@zen-ko2nl 8 жыл бұрын

The nurse is helpful she never gets bored helping this guy disease

@lalehlotfi4957 7 жыл бұрын

My brother have als . I cried a lot watching this video . Hope soon they find cure .

@LorraineD2805 6 жыл бұрын

Laleh lotfi wish you and your brother all the best...

@flavadog17 7 жыл бұрын

I can't even come close to imagining what it is like to battle this HORRIBLE disease. To be essentially trapped in your own body must be torture, this man and anyone who faces this disease (past/present/future) have nerves of steele and are an inspiration to us all, I mean it. I am praying for everyone, for a cure, and at the very least, a treatment for those who fight ALS. Stay strong.

@HarryderPotterr 9 жыл бұрын

This was the first Episode I watched. I wanted to know who this man is and started from the beginning. It really hurts to see how his life changed during these few month and how such a man, full of energy, feels/lives now. It is so sad!

@momjeans9238 5 жыл бұрын

I remember the same sound of the trach suction in my grandma when I was little. ALS is terrifying to watch, especially as a 9 year old.

@maytachannel6031 Жыл бұрын

I took care of an ALS patient back in Singapore and I know how hard for him to live his life with so much machines that needs to use everyday. when He passed away due to cardiac arrest I said to myself he suffers no more.

@kathleenwinser4033 7 жыл бұрын

My Uncle Art passed from ALS. It was in the 1970's. it was devastating to see him sick like that.

@lyndenmcdonald4285 6 жыл бұрын

My cousin died after refusing a vent after her diagnosis of als..she instead had a heart attack..thank God she didn't suffer

@sp8s1979 12 жыл бұрын

hey there, I know all to well what you are dealing with, I was 17 when my mother died from it and it destroyed me to see it happen. There is light at the end of it and if it helps you have a person you have never met on your side, all the way from New Zealand. Keep going you will get there

@forgottonbabyforgottendeca1483 2 жыл бұрын

I'm sorry for your loss my boyfriend of 14 years left me because he has ALS he didn't want to put me through it afraid it would destroy me the way it did him when his mom died from ALS I'm completely heartbroken

@jenniferantonelli-bernardo8086 10 жыл бұрын

Thank you for sharing this video. My family member has been battling this for about four years. I will share this with them.

@lulienne8212 Жыл бұрын

It's hard to even find the words. No one should have to live with this horrible disease. And yet there was so much love around this young man. So many people stuck by his side and his care givers were excellent. My husband has MS and we may some day face similar challenges. It's scary and sad. Just the cost of 40 daily prescriptions a day to say nothing of all the other supplies needed to care for a bedridden person. I don't know families afford it.

@TrixtyEdits 5 жыл бұрын

So heartbreaking to see this... My Lil sister was diagnosed with ALS almost 4 year's ago. Feel so completely helpless

@hoodatheist5549 Жыл бұрын

What Causes als?

@zipper46ful 10 жыл бұрын

this is very sad, and terrifying, poor guy : (

@thematrix2783 10 жыл бұрын

Those are real friends

@martynotth7640 6 жыл бұрын

I had a boyfriend with ALS. I was 40 and he was 3O. We went to a fair one day and he could not walk the whole way. He moved away and broke up with me. He'd hold me with his left arm which was already damaged. He hid a lot from me about his disease. We did not break up because of his disease. He got married to a beautiful girl and I hope he is well. He is a wonderful man.

@davidfleck9635 2 жыл бұрын

I was my husband's caregiver such a horrible disease ALS is he passed April of 2022 miss him everyday

@knitler8274 10 жыл бұрын

It's always living wean your breathing and have people that love you for who you are

@gardenvarietypenis 13 жыл бұрын

this must be the most illuminating document of a day in the life of a pals that I have ever seen. It's almost overwhelming to watch in full. We need brain diseases to be targeted and funded in such a desperate way. Thank you for allowing us to see the most intimate details of your incredible struggle and those people around you that are so supportive.

@katynam572 10 жыл бұрын

God bless him and his nurse

@tonyamitchell5713 8 жыл бұрын

Bless his heart, and all the beautiful people taking care of him. I'm not that brave, I couldn't do it, I'd want to be put out like for a surgery, only never wake up again. I just had no idea it was this bad, which sounds stupid I know but it's different when you see it up close and personal like this. I have a friend who was just diagnosed and I can't stop crying. Praying they find a cure.

@kathleenwinser4033 7 жыл бұрын

This is so sad. RIP Sir.

@lalamatteo1857 8 жыл бұрын

wow!!! very sad, my heart goes out to all of them. I do not agee, No One has the right to make people suffer in such a horrible way! I will never Ever understand, how we as a nation have the right to treat an animal with more dignity and respect!

@MultiMusicus 12 жыл бұрын

this is sooooooooo sad, sooo hard.......and the dog feels it.......i am crying

@lostmoon77 9 жыл бұрын

This is NOT living.

@krissyjo2577 4 жыл бұрын

🌺They are precious in his sight 🌺

@pappyreeves6988 3 жыл бұрын

I agree, but I also have a life limiting, genetic disorder called Marfan disease, and that can get me down, but until their is more money for research, we all have to live with the hands with which we are dealt 😔

@krissyjo2577 3 жыл бұрын

I’m glad JESUS is going to make all things new 😃New Heaven New earth 🌎 we will have no pain no sadness and no curses 😁it will be totally awesome 🤗🥰🥳❤️👍

@ebrooks24711 3 жыл бұрын

I would end it way before this.

@lostmoon77 3 жыл бұрын

@@ebrooks24711 and that a very personal choice for which I am a big proponent for.

@NickanM 10 жыл бұрын

This series really stinks. Of love and unbelievable courage, plus amazing friendships.

@samanthashpeley1039 10 жыл бұрын

I cried. I feels so bad. 😭

@Brandi.65 4 жыл бұрын

I've always loved talking care of people in need. Can't now cause I have RA. But I will never forget those I helped 🥰💞

@kkdoc7864 5 жыл бұрын

Is Tim ok with his treatment and his current predicament? Most people cannot afford this amazing level of care. This is horrible to watch, so I can’t imagine living it.

@teribabe58 4 жыл бұрын

“Shoot me now”...put me out of that kind of misery!

@logicone5667 4 жыл бұрын

To die of ALS at 31 years old.. So tragic. Thank God that is a rarity..

@mamepiche 12 жыл бұрын

Bonjour, j'ai vu tous les épisodes, merci de votre témoignage, tellement émouvant... c'est une maladie immonde que j'ai eu l'occasion d'approcher de près.. et comme beaucoup hélas, j'ai perdu des amis qui en étaient atteint. Merci d'avoir partagé votre vie et des moments si douloureux.

@PazuzuM666 3 жыл бұрын

So lovely that he has all those people him. I used to be a carer and it its a very difficult job but if you like the person you care for it can be a fabulous job.

@rebeccagandoe9298 10 жыл бұрын

I cried so much.... My grandad has ALS 😔

@kristinefajardo5334 6 жыл бұрын

this is what im doing exactly to my patient before.i miss her so much.you will say to yourself how lucky you are.

@jakemode 3 жыл бұрын

The keith richards thing killed me. What a good lad

@jojozep7820 2 ай бұрын

I don’t WANT to die, but I’m unsure if I want to live like this….. thank you for sharing and making us ask the important questions

@hellorawsienna6984 6 жыл бұрын

If I ever had a terminal illness whether it would be this or a terminal type of cancer, I would go the holistic route (although I already eat fairly healthy), and I would choose to forgo treatment. I would like to spend the remainder of my time with my family, but not confined to a hospital bed. Thank you for sharing your story. I don’t know much about ALS and I feel like there isn’t much information on it.

@user-og1nu5pb8c 3 жыл бұрын

RIP my friend... don't think this guy would be around by now...

@liornaor8755 6 жыл бұрын

He died 2 months after this video was posted.

@destany9591 5 жыл бұрын

I realize now I shouldn't complain about my body when Tim cant even move his! I try to be thankful. Challenges are hard. I'm 26, I can still live normally. I have bad chronic pain flares. I went from a healthy 130 pounds down to 102. A CT scan showed joint damage 'bone on bone' i was diagnosed by a specialist degenerative joint disease. It commonly affects older people in their 60s of older, i happened to have it prematurily. Certain tasks are harder to do. I can only work 3 hours a day due to physical restrictions. The pain is mentally hard to deal with. I really feel bad for people like Tim though. Imagine not being able to move.

@bulletproofkam7931 7 жыл бұрын

So sad. This makes me want to stop wasting my life!

@unfallkatze 11 жыл бұрын

I will never forget you.

@thecrippledrummer 3 жыл бұрын

I was born with Spinal Muscle Atrophy, another form of Muscular Dystrophy. I’m 51 and live in a nursing home...but I’m thankful every day that I wasn’t born with ALS.

@Fonzi79 9 жыл бұрын

Im sorry If i was diagnosed with this i would end my life. This is so awful for this young man! My prayers go out to him...

@lyndenmcdonald4285 4 жыл бұрын

My cousin died with ALS at 42..she refused the vent and had a heart attack..she had 4kids

@rocioespinoza2098 3 жыл бұрын

Im sorry !!! My dad also had ALS and passed away almost 7 years ago ... He too refused any assistance and had a heart attack... Thank God he never got this severe .

@MuseFanUprising 11 жыл бұрын

How precious life is. How we worry about the most trivial things when really we are so lucky with so many diseases in the world we don't have any. I am so sad for Tim, I hope he will get better, he seems like a good and strong person.... I am so blessed to have a healthy body, the rest doesn't matter... health is all that matters..

@wirinaholstein4076 10 жыл бұрын

But the dog - I just LOVE the fact that they don't keep the dog away due to the wish of a sterile environment e.g. Dogs are well known to be used as therapy dogs in hospitals anyway and are known to be less a liability of bacteria and disinfection than children. And he even get to go in the bed too. So so wonderful of them to let this cutie of a pet, be with his beloved human and cuddle.

@crissy214 9 жыл бұрын

I'm a Christian but watching this makes me wonder

@Velopter 9 жыл бұрын

don't question things... you'll go to hell.

@tacoma2259 9 жыл бұрын

wonder what

@jovany69 9 жыл бұрын

There's no hell or heaven, just be the best person you can be without having an excuse

@TheReconmarine92 9 жыл бұрын

Ben F Yeah because living like this isn't any worse than hell....what did this guy do to deserve this lifestyle?

@Parhellia 9 жыл бұрын

Ben F always question everything! don't make your mind a slave of faith. If there is a good god, a well-intentioned god, he would very much prefer those who question him over those who don't! And if he doesn't, well then he is a piece of shit and you have to be like fuck off you fucking totalitarian dictator!

@cami805 3 жыл бұрын

Wow his nurse is amazing

@wakajumba 5 жыл бұрын

I lost my sisters-in-law to this horrible disease. I have seen what ALS does and the pain it causes not only those afflicted with it but also the toll in takes on caregivers and family. If you are moved by this then please consider contributing to your local ALS organization or to organizations like Team Gleason. BE THE CURE!

@EstherFisher-lv6rq Ай бұрын

this is so so frightening and sad for me. I don't think I want to live like him.

@fisherroastedpeanut 2 жыл бұрын

a true display of love

@ismaelfernandez4734 6 жыл бұрын

This guy looks young, how sad

@chriscope7292 10 жыл бұрын

my father has been diagnosed 10 weeks ago, already his speech is going and movement in his arms, im terrified what the future holds x

@thematrix2783 10 жыл бұрын

I hope they found a cure for als very soon .

@wendylable 10 жыл бұрын

find a holistic practitioner, who deals with natural, nutritional therapies, and ask about heavy metal chelation.

@Star5dg 7 жыл бұрын

This is heartbreaking. My grandad died of ALS / MND

@Martha-LaMexa 6 жыл бұрын

This disease is horrific.

@helloiamthegirlracer 12 жыл бұрын

Timmy had medicaid and medicare, and that's what paid for his care. He did have health insurance when he was diagnosed, but oddly, when the insurance company "reevaluated" his risk scores, his premium went up by about 500%. But, for those people who have too much money to qualify for medicaid, and not enough to pay for the care, my heart goes out to them. I have no idea whatsoever how anyone does that.

@_DrDrakeRamoray 4 жыл бұрын

This is why you don't choose a trach if you have ALS. The resources for this is crazy.

@micheleshepherd6867 2 жыл бұрын

What is the other option?

@_DrDrakeRamoray 2 жыл бұрын

@@micheleshepherd6867 Tap out and don't burden your family when the quality of life is zero.

@salahspounkas4702 2 жыл бұрын

It's terrible to live with amyotrophic lateral sclerosis (sla), it's not easy, every day is a new struggle, and every day passes you like one day, and it recurs. It's not possible sometimes I pray to God that I die better to rest and relax everyone who suffers in my service🥺

@MuseFanUprising 11 жыл бұрын

I read now that he passed away... Rest in peace :(